Next stop

Ever got the urge to keep opening those gates. To just keep walking in one direction. To see what you find. No boundaries. No limits. To be free.

One day I will walk to the next stop.

Now if I packed enough egg sandwiches and tins of Pepsi!! then I will eventually arrive at the city of a Hull on the North East Coast. If I have been very organised and packed my floatation rings then it’s next stop Amsterdam.

What’s the next stop on the school at home journey?

I think Hawklad is now starting to realise that a return to school this month is out of the question. His fears and anxieties are not going to be overcome within weeks. So now he is starting to look at January as the next window of opportunity. So it’s looking like another 3 months of school at home (at least). We will continue to try to stick with the school teaching schedule. Cover the subjects they teach. Use whatever teaching materials they make available. If they don’t then we won’t lose any sleep over it. That’s more time for him to try and relax. To try and enjoy life. It’s often easily forgotten that too many are losing out on huge parts of their precious childhood. It’s not all about formal schooling and meeting government targets.

So be it. We have got this.

It’s completely his call. He decides what the next stop is.

Spikey

Meet one of the worlds great predators. I guess these are our equivalent of the shark. The Yorkshire Spikey Shark. Hanging from the tree or hiding in the undergrowth, waiting to pounce. Pain beyond pain.

I fell off a garden ladder again yesterday. Cut my thigh, back and bit of under skin bleeding in the knee. But my forearm – oh wow the pain – landing on one of these spikey chaps was the worst part. Still hurts today. Could have been much worse. My large backside wasn’t that far away from landing with much force onto Mr Spikey.

It was just one of those accidents. Was trying to be careful but the ground just gave way. Probably thanks to Mr Mole and his tunnels. The bit I struggle with is that I’m doing these things on my own. Hawklad’s fears mean that I can’t expect him to help out. So no one to point out the risks I’ve missed. The better ways of doing things. And no one to hold the steps as I go up. Actually no one to send up the ladder rather than me !!!!! I guess it means that my life is about trying to turn two person jobs into single person projects. Not ideal but needs must. Often having to do tasks that are way beyond my skill mix. Things I shouldn’t be really trusted with.

So as I stood in the house trying to apply antiseptic to my cuts, while trying to figure out how to get a plaster on my back cut….. Hawklad appeared and gave me one of those looks…..

Dad I take it you have been gardening again. You know it’s bad for you.”

Why don’t you just pay for a professional to do it properly and safely.”

But there’s the other side of being single. Time spent with Hawklad is time I can’t work. So choices have to be made. Paying for gardening comes way down the list of priorities. So this won’t be my last garden accident. But that’s life.

J

Insignificant

It’s a big sky. Its easy to feel very small and insignificant stood under it.

There are so many times when parenting is the best gig on the planet. Then there are other times…

I was trying to convince our son that he had washed his hands enough. He had been at the soap and water for nearly five minutes. Everything I said didn’t seem to have any impact. Finally he decided that was enough. He asked if the towel was clean and had it been washed that day. I assured him that was the case. He left the bathroom and I looked at his hands. His very red and sore skin. That’s what happens when you wash as often as he does. We are using skin friendly soap. I water it down further. But his hands are still red. I encourage him to use his skin care lotion. But his hands are still sore.

These are the times I feel inadequate as a parent. Missing the support of another person. Someone to share the load. Definitely running out of things to try. Actually ran out of things to try. His health professionals try to help but they see this intrinsically linked to the pandemic. Get the pandemic under control and we can start to bring his hand washing under control – hopefully. But that doesn’t make me feel any better as a parent. Feels like I had one job and I dropped the ball on it.

So I’m stood under that big sky. Feeling insignificant. Time to breathe. Reset and go again. Yes significant but definitely not beaten yet.

A window

A brief window to step outside and breath. Otherwise it’s been horrible. Many of the places around us have closed due to bad weather. Must admit education feels that way a bit currently.

UK School doesn’t really work for those with additional educational needs. The traditional classroom setup brings much stress. School at home brings a little respite.

So that’s two weeks ticked off from the next stage of the school at home approach.

I was asked why I didn’t call it homeschooling. Basically we are still trying to follow what the school is teaching. Not setting our own learning agenda. Having to do this just in case our son decides to return to school when he is able to. So it’s not the freedom of homeschooling, it’s basically school but at home.

So in two weeks we have kind of found a way of trying to keep up with the class. Covering the same subjects. In some lessons we are getting all of the material which is being used in class. In some we are getting some of the material and we are trying to fill in the gaps as best we can. In a few subjects we are basically getting nothing so we are just winging those – maybe we are following the class, maybe we are heading in completely the wrong direction.

He is getting virtually no pastoral care from school. Absolutely zero feedback on work submitted, not sure some of the teachers are even reading it yet. A couple of the teachers do occasionally send a message asking if he is ok with the work set. That’s it really. On a Thursday all the pupils have to select an option for an additional lesson. It’s supposed to cover non curriculum activities. It’s about learning new skills and building confidence. It could be a gaming option, archeology, performing arts, sports, astronomy. He hasn’t been included in this programme – says it all really.

In my mind I have already settled on the best way forward. It’s for our son to leave school and opt for full on homeschooling. But it’s his call. It’s his future. So when the time is right then he can make a decision. But I have to say school are not bending over backwards to sell themselves.

L

Grouse

Most definitely not like this today. The strange yellow thing in the sky has most definitely gone on holiday. Hopefully not a long one.

Currently I am looking out of window into the rainy garden and thinking. I’m guessing this home at school project has many months to run. As a single parent it’s trying to get my head round the logistics of that. At present there is not much work and what work there is can be done at home. Shopping can be done through a combination of home delivery and very quick trips to the small local store. But what happens if I need to make a longer trip out. Hawklad is not comfortable at all being left alone.

The options are limited at the best of times and these are not the best of times.

Normally our options would be one of two sisters (but one-off those is 2 hours drive away, and both don’t drive) and a couple of local parents who have known Hawklad since the age of 5 (they are busy so are not often available). Unfortunately under the new Government Lockdown rules all four options are now banned. Breaking those would leave us open to heavy fines. The Government has even encouraged people to contact the police if neighbours flout the rules. The irony here is not lost, flouting rules if you are a member of the government or the dad of the PM is said to be entirely reasonable. Under the new rules our only option would be for a grandparent to stand in. Unfortunately ours have all left this world. But here’s another irony, those grandparents would fall into high risk groups. Those who should be shielding. Are grandparents seen as expendable….

The other irony is that those who would be an option before they were banned fall into much lower risk groups. They can’t babysit for us but I could go to work with them and sit alongside them in an office – that’s apparently fine. We could even put on green camouflage and go grouse hunting together without any punishment. Maybe that’s the childcare answer, we set up a grouse hunting lodge in the garden. The first ever vegetarian one….

It’s wet

It’s definitely wet today. Pouring down and very cold. All rather depressing so let’s take the time to look at a bit of nature’s colour.

Do you ever have those conversations. Those conversations where the words seem to head in one direction but actual the conversation clearly ends up in a totally different place. Ever so frustrating.

I’ve spoken to school about Hawklads enforced school at home project. I thought I had explained to school that although it’s kind of working it was far from ideal. In particular

  • He is getting absolutely zero feedback. He is submitting work but getting nothing back. The other kids are clearly getting marks and comments back. That’s clear from some of the teacher comments on the set work tasks. But those comments are always aimed at other pupils. If he doesn’t get feedback then what is the point.
  • Have the teachers forgotten that he is dyslexic. Comments like ‘if I don’t get round to sending you tasks for the lesson then just read a book on the subject’ don’t really help….
  • Have the teachers forgotten that he has difficulty in hand drawing. He struggles with fine motor skills. I can’t believe the number of times the set task is to hand draw something – unbelievably that is currently not Art.
  • Some of the subject teachers are still completely forgetting about Hawklad. No subject material at all has been made available.

Anyway the school seemed very supportive, so surely job done. Clearly not as the school responded with an email basically saying that they were happy that things where going so well. They will keep going with the current approach and they hoped that we would keep in touch…..

Sounds like it’s time for me to most definitely stay in touch with them right now.

Odd sandwiches

The one thing that you get used to as an Aspergers parent is routine. Lots of routine. That’s tough for parents like me as I am not really a routine person. I’m a bit more impromptu. Bit more going with the flow, see what happens person. Maybe some would call it winging it. Which is most odd. On most of the old Aspergers tests I would score very highly yet on one I was way down. Routine.

On this Hawklad is completely different to me. He needs his routine, his order, his plans. He needs to have that safety net and he needs to follow them. It’s reflected in so many things. If we are driving somewhere then we need to follow the usual route, even if that means a much longer journey. He likes to wear the same types of clothing – if he grows out of them then we need to replace with almost exact copies. He has a TV and movie schedule which he sets way in advance. We will often watch the same movie over and over again. School lessons have to follow the timetable without variation. We need to buy the same types of pens and pencils. He likes to go out in the garden and talk at the same times. He doesn’t like me to do things like change my hairstyle or try new clothes. It’s funny I’ve been wanting to shave my hair off for years but that’s just not allowed.

Break the routine and he is immediately hit with waves of self doubt and fear. Over the years we have tried to work on this. Slowly trying to introduce change. Occasionally trying to introduce unplanned but definitely fun routine changes. But it’s never really worked. Routine is just a key part of who Hawklad is.

Another area of much needed repetition is food. He has the same seven day food menu. The same foods on the same days, year after year. Trying new foods is just not something he does really. Normally ends in failure.

Dad what on Earth is that.”

It’s a sandwich.

Yes I can see the bread but it’s what is between that which is the worry.”

That will be cheese and onion crisps. It’s going to be one of the great gourmet experiences. A crisp butty. A crisp sandwich.

Really. That is just wrong on so many levels.”

It’s fantastic. Go on try it. It’s a family tradition. Your Little Nan would always be treating herself with one. But her crisp butty would be made with Ready Salted crisps.

Just No Dad.”

Ok. But if it’s not a crisp butty then what about a chip butty. A sandwich made from fried chips (fries) with heaps of tomato ketchup. Another true taste sensation.

Erm NO. You can keep that as well.”

Ok Hawklad what about a fish finger sandwich. Fantastic.

Not happening. That’s a tradition which is not passing down the gene line anymore. It ends with you.”

Missed goal

I admired this beautiful plant. Admired it as I was sat on the bench. I was actually sat on the bench to inspect my injuries. A rather too enthusiastic attempt to score a garden goal ended up with my head first in the hedge. A few cuts and scrapes but the flower took my mind off the pain. Can’t believe after all the damage, I didn’t score the goal. This was all done to the backdrop of Hawklad laughing his socks off.

Dad do you want help getting out of the hedge. Are you ok?”

Hawklad concern is better when your not wetting yourself with laughter.

It was like an albatross with too much in its belly trying to get into the air. Little legs struggling to pick up enough speed to take off. And failing spectacularly. That was too funny Dad”.

Hawklad that was a cracking goal

You missed Dad. It was all for nothing.”

Oh man. I thought I had hit the target.

You certainly hit the hedge, unfortunately the ball was less accurate. Actually it was very similar to your head. It ended up buried in the hedge. Shall I help you out Dad.

No I’m doing that by myself now.

Dad you’ve left a big hole in the hedge. Maybe it’s your new art. Body dents in the natural world.”

I could tour the world hurling myself head first into different world landmarks.

It’s a big hole you have left. Looks like a hippo has crashed through.”

Hawklad are you saying I’m as big as a hippo……

“Of course not Dad. That would be unfair on Hippos.”

Now you mention it, that is a big indent. Did I really make that.

Yep. Being a responsible parent weren’t you Dad. It’s a good job I moved out of the way as you would have hit me.”

Responsible parenting goes out of the window when your son is taller than his Dad. Look at the bruises on my shins from your kicks. All the world great footballers have to endure the dastardly attempts to stop their artistry.

“I’m only defending myself from a charging hippo. Funny I’m not seeing Messi or Neymar playing in my garden. It’s more like Gloria from Madagascar. ”

Absolutely no appreciation from my so called son.

That’s right Gloria. Now go and fetch the ball from the hedge….”

I will after Gloria sits down and inspects her injuries. Oh… Look at that flower.

Combinations

Some combinations go so well together. Blue Sky and Yorkshire. Bill and Ted. Fish and Chips. Batman and Joker. Trump and publishing tax returns. Kirk and Spock. Tom and Jerry. Cheese and Onion. Boris Johnson and Lies. Spongebob and Crabby Patties……

We do have some random conversations in the garden. Just like today. No idea why but Muppet Dad and Hawklad decided to try and randomly combine things.

What do you get when you combine a Tom Hanks movie and a US President – Forest Trump.

Much groaning – but you get the point. This went on for hours. I must admit the really funny ones unfortunately fail the good taste censor. Maybe I will do a late night version of this. But some of the cleaner ones included.

Combine a infamous US building with a famous 70s UK Comedy series – Trump Fawlty Towers

Bringing together a Marvel Character and Whale movie – IronWilly

Bring together a movie about Hobbits and a Disney movie – Return of the Lion King

Combine a British PM with a Donkey – Doris

Combine a young wizard with Toy Stories Mr Potato Head – Harry PotHead

What do you get when you combine an Arnie movie with a popular kiddies series. The Smurfinator.

Try combining a popular burger with a bit of Shakespeare – Big Macbeth

I hear you cry – Please no more…. I will be kind. But the point is that we had been having a conversation about missed opportunities. Maybe if things had been different then we could have spent this sunny day somewhere else. Somewhere different. Maybe the beach. Walking in the hills. Hawklad could have been visiting friends. Maybe a trip to a historic site. But just a few minutes later we were having fun. Fun in the garden. Making the most of what we have available to us. Sometimes the best place to have fun. To find happiness is rather close at hand.

The shape of bread to come

See the sun does shine in Yorkshire – occasionally.

How can baking be so hard. Everything seemed to be going so well and then you end up with very odd shape bread. One day, one day.

Maybe I can blame these baking woes on a lack of sleep. At least it ended up tasting ok. So it’s kind of a result.

I was sat drinking my herbal tea and having my misshapen bread with some hummus. Really, is this what life has become….. sudden urge for proper coffee and a sausage roll. But that is life currently for me. I might wish for something else but circumstances dictate otherwise. Wow that feeling could cover so many things. But at that precise moment my eyes wandered to a book on the table. A book about Ski Jumping. One small dream is remembered.

I have always wanted to go to and see just one Ski Jumping competition. Have never got round to doing that. Circumstances have repeatedly prevented that. Now as a single parent with a son who struggles to get to the front gate of the house, those circumstances seem to be even more insurmountable. Another winter will pass. It’s definitely not happening this season. Maybe not for a number of years.

Yes it’s a little deflating but don’t get me wrong. That dream hasn’t died. It’s still there. Still cherished. The future still offers hope. Just have to deal with the here and now. In all likelihood autumn and winter will see no real change in our circumstances. The next 6 months will be largely restricted to our house and garden. Very few social encounters. Single parenting day in day out. More days of dodgy bread and hummus lunches. But it is what it is. Will just deal with that. But I won’t forget those special dreams. That what keeps me going.