Posted on by bereavedandbeingasingleparent · 78 Comments

Money, money, money

Clearly the blueberry has given up on this Yorkshire Summer and just assumed it’s autumn already.

MONEY. Not listened to that Pink Floyd song in ages.

Get a good job with good pay and you’re okay….

That’s how the song goes. It’s funny that I love Floyd but this is the only song of theirs that I don’t like. The sound of the cash till just annoys me. It’s kinda nice that when I finally got to see them live, I can remember the concert so well yet I can’t remember them playing this song. It’s so good when the mind works like that.

MONEY. Before the world changed in 2016 we were doing alright. Finding a way to maintain two quite well paid jobs while making sure one of us was always there for Hawklad. It wasn’t easy and took a shed load of planning, but we found a way. We had a nice house, two cars (our jobs headed in different directions) and we could afford a trip to Switzerland every year. We tried to save for the future so we didn’t buy much. But it was a comfortable life and we could certainly pay the bills.

Then the world suddenly changed. I’ve just realised how lame that phrase sounds. Took me long enough. Seismic Rupture might be better. Need to think about that…

MONEY. The last thing you should be thinking about after a bereavement is money. But far too often MONEY quickly looms over you when you are at your lowest ebb. Bills still have to be paid. Food has to be bought. The government wants its pound of flesh, death brings the delights of Inheritance Tax. Two incomes suddenly became one. Even that one….. Single parenting, Single Aspergers parenting, Single parenting to a 9 year old who has just lost his mum. My job became impossible to maintain. Suddenly I was scrambling for a part time job which worked round Hawklad. MONEY became a very scarce commodity. Trying to get my head properly round these scary things is the last thing I needed when my world had just been shaken to the ground. Trying to look at a shrinking bank statement is bloody hard when it’s done through crying eyes.

That’s how it’s been with MONEY ever since 2016. I was so lucky to find a job which was flexible enough to fit round the single parenting gig. But I was still trying to pay the bills. Working out which repair jobs would have to be kicked into the future – which is most of them. Only trying to spend on the absolutely essential stuff. Funny thing is how often schooling costs suck up any spare cash. Holidays are just not happening – the last one was back in 2015. When we do have to buy items the first point of call is always the previously enjoyed or damaged sections. Our one extravagance, concerts, are always in the much cheaper – restricted view areas. We never turn down hand me downs. I’m currently looking at an exercise bike which was surplus to someone’s requirements and is held together with copious amounts of electricians tape.

MONEY. How needs it. With hindsight it’s clear that we are so lucky. So many are in a much worse position than we are. I’ve found a job that kinda fits our lifestyle. We have a nice house and garden. Live in a lovely area. Friends are wonderful. Financially it’s challenging but we are just about stable. Money helps but it doesn’t buy you happiness. Thinking of Hawklad, memories and friends – money doesn’t buy you those things.

Posted on by bereavedandbeingasingleparent · 81 Comments

Needs trimming

That hedge needs trimming……

Hawklad likes to think that this bush has become so large and overgrown, that if it was one day cut then it might destabilise the earths orbit. Better not touch it then. That’s what I call a quality excuse to avoid hard work. A few minutes later it was absolutely chucking it down. At least we got a few minutes sun.

Well that dreaded day has arrived. Been trying to put it off. Yes Hawklad is now taller than me. Certainly if you include the hair…. Even discounting hair then he is now above me. Waiting till he was 15 or 16 would have been nice. But only just gone 13 – really….

I was happy at 5ft10.5 (179cm). I was just above average height. Yes a few more inches might have given my goalkeeping career a boost, but I was cool with my height. I was the tallest in our family. But deep down I knew my title would be lost. Especially when Hawklad was 9 and the Doctor told him that he was above the 97th percentile for height at his age. 97th is always going to tower over something like the 51st.

Now to work on his weight. He is tall but very slim. He struggles to maintain his weight. He’s underweight for his age and height. That’s a label that I have never, ever had. In the words of his Doctor – if he wants to eat chocolate then let him, no need for calorie counting, just eat…. It maybe that he is always moving, brain always in overdrive. It’s something I have to keep an eye on. Evidence is rising on the link between Autism and eating disorders. He is conscious of his weight but thinks he is overweight. He does love eating salads and vegetables. I need to find ways to get more calories in him in a sustainable way.

At the moment we are probably just about maintaining a balanced approach, but only just. I don’t want to make light of this. Many families and adults are so struggling with eating disorders, which too often end tragically. Much more needs to be understood and done. We will treat this so seriously and will continue to look at options. In our case the best approach often involves humour, so…. So maybe a better baker than me is required in our house. That’s something Hawklad would sign up to.

Posted on by bereavedandbeingasingleparent · 71 Comments

Life snapshot

The Aspergers life can be racked with anxieties and obsessive behaviours. Additionally Aspergers can frequently coexist with OCD. Add the death of a mum and both grannies. Then on top of that you add a pandemic. Something has to give with that kind of pressure building up. That’s what our son is dealing with and it is so very tough for him. What does that mean in practice. Well here is a snapshot of life and the impact it has on him.

Every ache, every sneeze, every spot, every pain is seen as a potential sign of a serious disease or the C word. Anxieties bring on indigestion and constipation. These are then seen by him as more potential warnings of serious, life threatening health conditions. The natural response was to frequently wash his hands. It was both to cleanse his hands but also an attempt to pour water on the raging anxiety wildfire. Washing to the point of red raw skin. These issues have existed for years but slowly during 2019 slow progress started to happen. The hand washing was just about brought under control. Then the pandemic hit. The progress was instantly lost. Suddenly the months of reassuring talk a out avoiding serious illnesses, the bodies capacity to fight back and the advances in medical science are basically blown out of the water. The problems started to mount up again and escalate to new heights.

  • Hand washing every few minutes. From 15 second washing now to washing for minutes at a time.
  • A reluctance to dry washed hands as towels might be a source of germs.
  • Harmful germs are seen to exist everywhere. Suddenly it’s difficult for him to touch taps, toilet handles and door knobs. Sheets of paper have to be left next to these so he can avoid touching them directly. Even pulling on a shirt may result in the potentially unclean sleeves coming into contact with his hands. Shoes have to be put on without using his hands.
  • iPads and joysticks have to be washed frequently and definitely before he touches them. It’s the same for things like pens.
  • When he strokes his pets he will immediately run to wash his hands.
  • He needs to see evidence that I wash my hands before I touch any of his items.
  • Clothes have to be frequently washed often multiple times a day.
  • Outside he is constantly looking out for flies and flying bugs. If they come too close then he will need to go inside to wash.
  • He has to have his own seat and no one is allowed to touch it. If they do then the seat has to be cleaned.
  • When he goes out the the front door then he consciously tries to avoid walking over any areas that the postman or others might have walked across. When he comes back in them his shoes will need to be completely cleaned. If he ventures through the front gate and into the outside world then on his return he will completely strip, shower and change to new clothes. Those rules apply to me as well.
  • Mouth-washing and gargling is frequently repeated during the day.
  • Any item which hits the ground (inside or out) will need to be deep cleaned.
  • Any new food items have to go into the garage and complete a quarantine period if at least three days.

This is daily life in our little home. I do my best to reassure, reason and modify behaviours. But it feels nothing more than trying to plug a leaking dam at present. One hole maybe plugged but in the meantime another two new holes have appeared. Counselling was there but government cutbacks have taken their toll on services. The pandemic has temporarily suspended specialist help. The result is massive backlogs and no access to help. These are tough times. For him and yes me as well. As a parent you feel helpless, definitely so underprepared for these challenges. But we keep going. We pick ourselves up and go again. Yes we will get there. We will. But it will take time. Realistically maybe well into 2021. In practice timescales don’t matter, we take each day as it comes, fortified by the love of friends.

Posted on by bereavedandbeingasingleparent · 60 Comments

Telepathy

Free Gardening Tip Number 1: Clearly if you leave the garden long enough it will sort itself out. You can just stand back and enjoy the results.

If I was listing my many wonderful features I might start with

  • Chiselled Features
  • Thor like body
  • Razor sharp intellect
  • Reactions of a cat
  • Chef supreme
  • Cunning linguist
  • Sporting Superbeing

And on and on. The list would be extensive but one word that does not appear is Telepathic.

“Dad we have a problem. Class have been working on a project for the last two weeks. It’s going to be used as this terms evaluation mark. The project has to be finished in one hours time. I didn’t know about it.”

The two week project period almost perfectly mirrored the time Hawklad had been off from school since his unplanned operation. Now in the normal scheme of things this would not be a problem. He had a valid reason to be unavailable for schoolwork. School was notified of this. Common sense would surely prevail……

Oh no……no, no, no, no, pigging NO.

It is the responsibility of the pupil and the parent to be fully aware of all assignments. These are clearly communicated via class lessons and the class notes. Failure to be aware of an assignment is not a valid exception to the rule. This applies to ALL parents and pupils. So basically if your sick and return to school then you should ensure you read all class documentation before your first day back. You can then immediately start working on any projects. This bad, bad, bad parent did not do this. So I never came across the assignment. That’s where the power of telepathy would have been most useful.

Free Parenting Tip Number 1: So clearly what any responsible parent should have done is read all the class notes, work out deadlines for the various projects and then return your child back to school THE DAY AFTER THE PROJECTS HAD TO BE HANDED IN. Job done and no need for a one hour mad scramble to cobble together a project….

Posted on by bereavedandbeingasingleparent · 56 Comments

Mothballed

This is a mothballed Coal Power Station that is right on the furthest horizon we can see. We can only see that far as we are on top of a hill. It takes an effort to find it from here. Can only see it from one extreme corner of the garden. This is also at my poor old camera’s maximum zoom. I guess it’s a reminder of a rapidly receding age and will be getting demolished soon.

Last school week and it’s trying to end the year on a most vexing high….

Let’s see how many assessments we can squeeze into 5 days. The answer ….. TOO MANY.

I had spoken to school and told them that son was still not 100% following his hospital visit but would give the last school week ago. However he wasn’t firing on all cylinders. School assured me that they would go easy on him. ASSESSMENTS are clearly easy on him. That’s so how I remember school tests in my day. Then we come to English. He completed the online lesson and submitted a rather fine gothic story. I was impressed with the storytelling and especially the writing. It was grammatically very good. Whisper it, spelling was almost perfect. That is some progress for him. So I was a little surprised to receive an email from school at 11.30pm to inform me that his work in the lesson had been below standard and incomplete. Really. The teacher has not responded to my query as the email failed to provide any details. Well that’s helpful. Having reviewed the lesson material several times I can only assume that he failed to respond to one rather vague question. A hard to spot question requiring a one sentence answer. Son had actually answered it but forgot to upload a photo of the one line answer. Unsurprisingly not a mention of the story he had submitted. If I wasn’t already convinced about the failures of mainstream education then this has finally clinched the deal. Well stuff school. I’ve assessed his work as brilliant and he will be getting a reward for it.

Maybe it’s time to mothball our countries factory farming educational approach…

Posted on by bereavedandbeingasingleparent · 58 Comments

Live on the edge

This counts as excitement here in Yorkshire. We know how to live on the edge.

I don’t really celebrate my birthday anymore. It’s more associated with being the day that we lost our mum. But I did start a new tradition. It would almost become a second birthday for our son. If the Queen can have two birthdays then so can Hawklad. So I get him his favourite cake, that’s buy it not bake it (wouldn’t do that to him). He gets to eat his favourite meal which is probably pizza at the moment. We would normally have a trip out somewhere but not this year…. Finally he gets a present. So what present does he want this year.

“I’ve been giving it some thought and decided.”

My money is on either a computer game or maybe a wrestling figure.

“I would like Chilli Soup.”

What as your special meal?

“No as my present. That way I get two special meals.”

Well you can have two special meals this year and still have a present.

“No will stick to the Chilli Soup as a present. “

I’m not like the Genie in the Lamp. Not going to hold you strictly to three wishes. Plus I struggle to count past 2 these days. You can still have a present.”

“No that’s the deal this year.”

*******

Well he’s going to get his Chilli Soup. It’s either going to be Beef Or Pumpkin Chilli. He’s going to get his pizza night. AND yes he’s going to get a present, just need to think of one now. Maybe a joint present. One we both can enjoy. That would kinda work.

Posted on by bereavedandbeingasingleparent · 61 Comments

Biscuit inspiration

Flowers never fail to take my breathe away.

Sadly on too many days, school has the same effect on me

I contacted school to let them know that son was still struggling but as it was the last week of school, he would give the online lessons a go. School said that they would let all his teachers know and would appropriately restrict his work demands. This week had to be a phased return. That was 8.30am on Monday morning. His first lesson went ok then it was time for the second to start. He was told to complete a one hour test (starting in 5 minutes) which the rest of the class has had a week to revise for. In fact some of the questions related to course material which was only introduced during the week he was absent. Apparently even if a child is sick, that child should still log into the school system and check all class lesson notes.

So much for a phased return to schooling.

This called for the inspirational powers of hot milk, digestive biscuits and toast. The test was completed with much common sense and quite a bit of creative guesswork. Looking at some of the questions – his Dad would have been as much use as air conditioning is in Yorkshire.

That was the first morning of the school week. This could be a long one. Good job we have many packets of biscuits and chocolate ready to go…

Posted on by bereavedandbeingasingleparent · 65 Comments

Midday

Still summer is glorious. Had been hoping to get outside, have a chat and be creative with a pencil, but the weather is just not playing ball. This is midday…..

The school at home project has allowed this Dad to see some practical evidence of the progress and issues which son has with his learning process. The level of insight that is just not provided to parents from schools. Maybe in class sizes approaching 30 this type of insight is just not collected.

After these 3 months I have a better grasp on the dyslexia position. The feedback from school has been limited to

  • He has reading problems,
  • He is doing quite well in spelling tests.

That’s it…. Nothing else in just under two years.

So what insight has the last 3 months provided.

  • His reading has developed. I would estimate that he can read unaided about 50% of words. If he takes his time he can try to sound some of the missing words out, eventually arriving at a word he’s heard of before. The other words at school he’s been guessing or just ignoring. At home he’s happy to ask for help with words. Even allowing me to read out particularly difficult sections,
  • His dyslexia is more pronounced when he’s doing handwriting.
  • He finds it easier to type out answers. It’s a long process as his typing is not quick. He also struggles to see when the predictive text function selects the wrong word.
  • With certain word patterns it doesn’t matter how many times he sees the word, it’s like he is seeing the word for the first time.
  • When he gets tired the dyslexia flares up with greater force. Regular breaks really help. The optimum time appears to be 20 minute work blocks with short breaks.
  • Number dyslexia is still a problem. 6’s and 9’s are easily switched, especially when a decimal point is introduced into the number.

I’m not a trained teacher but I have a valuable quality which many teachers don’t get in UK schools. Quality time. Time to focus on one pupil. That is something which is not permitted under the current government led approach. An approach based on schools operating like automated production lines. That must be another vote for homeschooling…..

Posted on by bereavedandbeingasingleparent · 79 Comments

Whitby

It feels like it’s been an eternity since we last took in some seaside air. I think it’s just under two years. TWO YEARS…. That must be my longest ever inland run. Especially not great when you are a seaside child, born on the North Yorkshire coast. One day with patience.

This is Whitby. Here’s a few random facts about this beautiful little town.

  • Captain James Cook lived here and his famous ship the Endeavour was built here.
  • Whitby has some of the best Fish and Chips on the planet.
  • The black semi-precious stone Whitby Jet.
  • Bram Stoker developed the idea of his Dracula book here. The opening chapters are set here. Also the idea of Dracula taking on the form of a huge black dog is based on local legends.

When I was a kid we would come here on a day trip by train. While my parents went about doing parenting things, I would be sent up the 199 steps to The Abbey which is in the background of the second photo. My job was to hunt for Dracula’s grave. I never did find it but maybe next time.

I’m not sure that time wasting parenting excuse would have any chance of success with our son. More chance of him convincing me to go. These days we come to Whitby for the chips, the ice cream, the beautiful beach and a bit of dinosaur fossil hunting. This part of the country has been named Jurassic Coast for the number of discoveries it yields. This is one of ours.

So let’s hope it’s not long before the fossil hunting is back underway.

Posted on by bereavedandbeingasingleparent · 43 Comments

Drama

You take your eye off the veg patch for a few days and an Amazonian Forest starts to form. Clearly rain rather than warm sunshine is the secret to greenery. Now where did I plant the spring onions?

An email from school made me smile. I notified school of the hospital issue and told them that Son would be out of action for a while. I would speak to school on Monday with an update. Then on Friday night the email at 11.30pm. Son had apparently failed to satisfactory submit work for one subject on Friday. Son immediately guessed which was the only subject that would do this. Why is it always DRAMA. Why is Drama always a drama. Following a rather snotty midnight parent email the teacher quickly apologised on Saturday. On the plus side there are only 2 more weeks to the summer holidays. After that Son has elected to drop the subject (assuming he goes back). So only two more hours of Drama left. How much drama can be squeezed into those 120 minutes…..