Some days life needs lots of words and some days it just needs a few.
I was going to reflect on how difficult the school bus journey can be for so many kids. I will leave that for another day. I picked our son up from school the other day and he came up with this gem.
“Dad that’s some sky. It’s a sky show. That’s why life is the best thing”.
It’s December. Its still sunny and its that time of year when you watch those movies you wouldn’t dream of watching during the rest of the year. It was like that before the world changed. It’s like that after the world changed.
But one teeny weeny request.
Please filmmakers and TV schedulers can we try not to do Christmas movies that at some stage involves death. Death of a parent, death of a lover, death of a pet, death of a main character. Last year we watched festive movies which without warning introduced the mum dying (3x), the dad dying (x1), grandparent dying (x1) and the family pet dying (x2). Really it’s CHRISTMAS. I know it’s hard to believe but many of us out here in viewing land will be going through grief. But it doesn’t stop there. I remember our son saying this during one particularly happy start to a film.
Why is it that so many films have a single dad whose either bad tempered, drinking and gambling. And the child who is behaving badly, has no friends and is being bullied. It’s never just a nice dad and child who are doing ok just a bit sad.
So what’s the answer apart from watch Guardians of the Galaxy on loop. Oh hang on that’s got a mum death. Ok apart from watching Big Hero 6 on loop. Oh hang on the robot dies. Ok part from watching Muppets Christmas Carol on loop.
Well the answer is a new movie classification system. One which actually tells you what the movie is really about. So for example if a PG movie contains a parent death you could label it PG-PD. Or if a pet dies it could be labelled PG-PED. Or if a loveable main character dies PG-LMCD. So as a parent I would be pre informed of the upcoming sadness. That way I can make an informed decision on if we should find another film.
So Big Hero 6 would be classified in the UK as PG-LMCD. Guardians of the Galaxy would be 12-PD.
But the new movie classification system could go further. Suddenly the movie watcher could be truly enlightened.
-JWTT all the best bits are in the movie trailer (Just Watch The Trailer)
-F movie contains super delicious looking Food (helpful for those trying to stick to a diet)
-A movie contains alcohol drinking (for those trying to give up)
-K movie contains Kissing (this ones for our Son, he doesn’t like kissing)
-ET movie contains Expensive Toys which kids may start wanting
-S movie contains Snakes and Spiders (useful for Ophidiophobia and Arachnophobia)
-L movie is Long so you had better go on the toilet before hand
-I movie is so boring that it’s a cure for Insomnia
-TD movie contains a Transport accident or Disaster (for those travelling tomorrow)
-AC movie contains Alvin and The Chipmunks
-NPCS this ones really important to stop wasting 10 minutes waiting for the Credits to finish at the end of the movie. It’s always a bit awkward being the only ones left in the cinema. No Post Credit Scene.
-W movie contains a Wrestler trying to act (think Hulk Hogan)
-WR movie contains The Rock acting (we like him)
-ANS movie has Action but No Story so you can safely fast forward between the action scenes
-HD movie claims to be true but is Historically Dodgie (think Braveheart)
-Q movie is very Quiet so probably not a good idea to get a mega sized popcorn tub
-U2 movie contains a grotesque playing of a Bono song.
After weeks of rain the clouds finally parted and reassuringly the sky is still blue. The sky is blue and the ground is still muddy.
Since it’s a day with a name that ends with DAY – it must be a day for another school moan. Don’t worry it will be the Christmas holidays soon and you will get a break from the rants – hopefully.
Next week our dyslexic son has to sit TWO spelling tests. One for English and one for DRAMA. That’s DRAMA. So to develop any Performing Arts talents he has to learn to spell words like
Melodrama, Exaggeration, Facial Expressions, Placards, Stock Character….
I guess when he wins his first Oscar in his acceptance speech he can thank these Spellings…..
Then we have the English Spelling Test. The weekly spelling test. This week he has 15 words to learn. Including such beauties as
Advertisement, Similarity, Persuade, Exaggeration, Testimonial, Alliteration….
All the class (regardless of individual spelling ability, regardless of dyslexia) have to spell the same words. The expectation is that you will get 100%. All it takes is a bit of effort. Hang on we need to raise the stakes just a bit higher. Anyone not getting at least 10 out of 15 exactly right will get a Negative. Four Negatives get you detention and much shame. It also rules you out of the end of year trip to the Fun Park/Zoo.
For F*#@ Sake.
This new penalty rule was introduced minutes before today’s test. One unfortunate student received his punishment. Our son managed 11 so survived. As he says he had to guess the ending of most words and was largely lucky today. But he’s a nervous wreck. Having seen this weeks words he’s convinced he has no chance. How can this be part of modern teaching. Oh I forgot our Government wants to return to Victorian values. Well they can all bugger off back to Victorian Times and leave us in peace.
On a side not I see our Prime Minister is avoiding being asked difficult questions so he has started sending his Dad to do some of his interviews. I’m not making this up. Well today a member of the public phoned in and basically said Johnson was like Pinocchio. His Dad then said mockingly “the British Public couldn’t even spell Pinocchio if they tried”. Well let’s try – Pinocchio.***** up yours you posh snob.
So what do we do. We have the weekend to think about it. I’ve offered son the day off if school insist on him sitting the test. At the moment he is saying that he will have to sit the test. He doesn’t want to be picked out as different. But that’s the problem with the current approach to handling dyslexia in the classroom. It’s the same as with Aspergers and the classroom. The approach is so fundamentally wrong.
Assume the child is low attainment.
Resist providing proactive support
Deliver one standard teaching programme for all kids – no variations
Put the onus on the child to put a hand up and ask for help – in front of all the other kids
Child doesn’t put the hand up so assume everything is fine
Watch child struggle in tests and class work
Confirm assessment that child is low attainment
One final thought. It’s ok to penalise the kids but what about those leading us. Our School Minister – Remember him he’s the lovely chap who thought kids having time off for bereavement was like “an extended holiday” – was asked a grammar question he was expecting school kids to get right. Guess what the numpty got it wrong. So maybe he should get a negative and be barred with running our schools. That is one punishment I can agree to.
And still it rains. And rains. And rains.
And still it rains at school.
French Homework is to complete a crossword. A French Crossword. Marks will be deducted for incorrect spellings.
Dad I can’t even do a crossword in English never mind French. I can remember the sounds but I can’t spell the words. The Teacher knows this but just says I have to try harder.
And we have more…
Drama Homework is to complete an acting related Word Search Game. Really. Very early on his previous school it was identified that he could just not do Word Searches Tables. The Psychologist who looked into this established that for some reason he was not able to visualise letters and collections of letters if they were printed diagonally or backwards. On top of this his dyslexia just made identifying words difficult. As this was stressful for him it was strongly recommended that his education did not use word based games. Fast forward a couple of years and his current school now requires him to do word searches as it’s the set task for the class.
I can see the point of a French Crossword for some kids but how is a dyslexic kid expected to complete this. Has our school system become so inflexible that we can’t just vary the teaching programme a little for each individual child need. Clearly not. The Government is committed to this Factory/Production line model of education. That’s for State Schools. Private Schools have more scope to flex the teaching programme. Unfortunately many can’t afford to go Private. But that won’t bother Boris and his buddies. As long as the chauffeur driven car turns up and the expensive wine keeps coming.
Ok I can see the point of a crossword for French for some BUT… What is the pigging point of a word search for Drama. I guess it’s all part of the Government’s drive to make every kid spell correctly the defined key words. Spelling is given a higher profile that actually understanding what the word means. Maybe I’m wrong. Maybe the best way to develop the next Orlando Bloom, Keira Knightley, Anthony Hopkins, Robin Williams, Whoopi Goldberg and Tom Cruise is to focus on spelling. Oh hang on a minute these have dyslexia as well. So no I don’t see the point.
We just set too many of our kids up to fail. They see other kids repeatedly praised for great spelling or neat handwriting while at the same time they are just told to try harder. How demoralising is that. A phrase you hear often is that kids with learning difficulties have to try super hard just to keep the perceived learning gap from widening. DAMM RIGHT THEY DO. Too many kids are forced through the same stereotyped classroom hoop. Never given a chance to demonstrate their unique skill sets as these are not in the areas deemed valuable by the Government.
Too many kids have been failed by our society. It’s not as if our society is particularly successful or sustainable on the back of this. This has to stop. When it does stop and we start allowing all our kids to grow – just take a few minutes to think how good this world will become. That is a hope worth fighting for. That is a hope worth voting for.
Another day in Yorkshire and another day of rain.
Another day of rain and another very muddy dog.
Another very muddy dog and another very messy house.
Another very messy house and another need to clean.
Another need to clean and another news bulletin on the radio.
Another news bulletin and another interview with a government spokesperson.
Another interview from a government spokesperson and another bunch of lies.
Another bunch of lies and another radio turned off.
Another radio turned off and a another realisation that the clock is ticking..
Another realisation that the clock is ticking and another urgent search for the right colour school football sock.
Another search for a football sock and another school bag not meeting school requirements.
Another school bag not meeting requirements and another day in school.
Another day in school and another day without support.
Another day without support and another set of exams.
Another set of exams and another setup to fail.
Another setup to fail and another shed load of young anxiety.
Another shed load of young anxiety and another failure of school to support.
Another failure of school to support and another mother lode of parent stress.
Another mother lode of parent stress and another phone call to school.
Another phone call to school and another wall punched.
Another wall punched and another ice pack applied.
Another ice pack applied and another attempt to soothe the school anxiety.
Another attempt to soothe the school anxiety and another set of school homework to be done.
Another set of school homework and another list of misspellings to write out three times.
Another set of misspellings to write out and another wave of young anxiety.
Another wave of young anxiety and another search for something that will help.
Another search for something that might work and another frustrated parent.
Another frustrated parent and another attempt to bring some smiles.
Another attempt to bring some smiles and another viewing of The Guardians of the Galaxy.
Another viewing of Guardians of the Galaxy and another bedtime.
Another bedtime and another living room to myself.
Another living room to myself and another forlorn wish to turn back time.
Another forlorn wish to turn back time and another realisation that ‘it is what it is’.
Another realisation that ‘it is what it is’ and another day gone.
Another day tomorrow……
I believe Marygate Landing was built in 1324. In all though years it’s seen many many things. So many passing boats. So many passing souls. And I understand as many as 4 sunny days in 785 years. Another day and another drenching.
So in the end it’s been a complete weekend lockdown. An attempt to soothe the raging anxiety which school and modern life creates in someone so young. Someone with Aspergers and Dyslexia who doesn’t in to the current factory schooling regime. A regime which will only get much worse if the current Government with its elitist dogma wins the election.
Last night we were due at a concert. One of my favourite bands. A chance to see them for the first time. But it wasn’t to be and in the grand scheme of things – it doesn’t really matter. When you experience grief. When you enter the world of parenting. When you become a single parent. It changes you. It changes your outlook on life. It changes your life opportunities.
Ten years ago I would have been really annoyed at the sudden change of plan. Frustrated at missing that concert. Not now. It is what it is. With little support you learn to appreciate even the smallest win. An hour reading. A good movie. A nice walk. A good run. Yes a night out with friends or a days climbing would be wonderful. But it’s probably not going to happen. It’s now over 4 years since either of these occurred. But you get attuned to the new life. Yes one day it would be nice but there are other more attainable wins to build your life around. The main one is blocking the system out so you get to see your son smile and be relaxed.
Yes because of circumstances you make countless plans. You try to create stability and repeatability. But in our world life happens. You might hope for the perfect day. But in reality how many perfect days come your way. Not many. So Plans change. Son was watching a video about Prussia and the famous quote from Helmuth van Moltke (Military Commander) came up
No plan survives first contact with the enemy
Today maybe this can be changed to
No parenting plan survives first contact with the outside world.
You learn to be flexible and pragmatic. A well thought out plan for a concert did not survive first contact with an Aspergers Meltdown. So we lockdown. So when the concert was due to start I asked the question “here’s the popcorn, what movie shall I put on”. Expecting something like Marvel End Game or Paddington and not expecting this response.
I fancy something a bit different. This movie has had great reviews and apparently is historically very interesting.
Oh he’s going for Apollo 13. I like that movie.
Can you see if you can find Victoria and Abdul. It’s about a friendship between Queen Victoria and an Indian Muslim Servant. It supposed to be very good and it shows how racist Victorian Society was.
Ok. Never saw that one coming. After much searching and after paying the £3 online rental we watched the movie. And it was really good. Son enjoyed it. I enjoyed it. It was a win. So the original plan failed but it worked out ok in the end. If we can keep doing that then we will be ok. If I keep remembering that actually I have a lot to be thankful for. Yes life will be a struggle but every so often wins come along. Just need to see them and grab them. Make the most of the many imperfect days. In the end it’s not worth relying on that perfect Yorkshire sunny day to arrive as you might be waiting a very long time.
Spending time near water can be so relaxing. Today felt like I needed to be submerged right in the middle of this river. Stood on the banks probably wouldn’t bring my BP down much below 5000. Yesterday was a kick the wall type of day. Even today my BP is probably 250 points higher than my IQ.
You plan to work from home but that’s the day BT decides to turn off the broadband. You then decide to drive to work but then find out that’s the day the Council decides to close ALL THE roads leading to it. Aargh…
You drive to the supermarket to find it was as empty as my wallet. When I say empty it had plenty of items as long as they were not on my shopping list. Shopping for someone with Aspergers often revolves round a small range of food items. If the food is not quite right then he won’t touch it. Today the only pasta, soup, pizza and sausages he likes were frustratingly missing. The upcoming weeks menu for our son has suddenly become even less varied (if that is possible).
Then we come to my menu. You try to go healthy. You try to go environmentally friendly. The key phrase is ‘you try’. In my case that is meat free, dairy free, gluten free, soya free. In a supermarket of 32 aisles my shopping area constitutes no more than one quarter of one aisle. At best it’s a very limited range of products. Today most of that small portion of an aisle was empty. When I asked the ‘shoppers champion’ (title on badge) helpfully said
“It’s becoming really popular so we run out normally in the middle of the week”
Well order more stock and why not give just a bit more of your shop to this really popular range…. While I’m at it let’s vent some more. If I am eating healthier (as the government wants me to) and I’m buying more environmentally friendly items. Why am I being penalised for it. Why are these products so bloody expensive. How can they justify charging £2.50 for a small loaf of gluten free bread. Why are all the ‘healthy and socially good’ products three times the price of the bad ones….. Aargh….
You rush back home so you are in plenty of time for an afternoon delivery only to find a note pushed through the letter box. Unfortunately you were not in when we called at 9.45am. You will need to collect the item from you local delivery depot. When is 9.45am an afternoon delivery AND how is a 25 mile trip to the LOCAL PIGGING Depot defined as local. Aargh…
You then venture into the utility room to put on a wash when your faced with a waste spillage even BP and Exxon would be proud of. Why has the big fat boy cat suddenly decided to use his litter tray sideways rather rather long ways. He’s a big fella and using the tray sideways means he now misses by over 1ft. Aargh…
Then you get a phone call from the bank. One of my cheques bounced. Why. Apparently the other bank wanted .00 adding to the total I had wrote on the cheque. It was a round number so why do I need that. Aargh…
Then we come to the main event. Already my blood is boiling.
I was getting sons Games Kit ready for the next day. Like most school things you have a prescriptive list of items. Any variations from the list gets the child an automatic negative. Only one light blue football sock could be found….
Son wasn’t sure if he brought it home or had left it at school. We ransacked the house to no avail. With every passing minute son is getting more upset and my BP has gone to Green Rage Hulk levels. Not angry at son angry with life in general. Then a great idea we have 40 minutes to get to the nearest sport shop. Some frantic driving and we get there just in time. The shop has an extensive football range. Every colour sock going EXCEPT Light blue… Normal blue would be a school negative (as it’s not the official colours). Ask the shop assistant. “Yes we have some light blue behind the counter”. At last we catch a break….
“We only have two in stock and I’m afraid they might be a bit small for him”. If it’s tight don’t worry. “Both are 5-6 Year Old size”. Bloody hell… Aargh.
So that was that. Son was sent into school with some royal blue footy socks and a note pleading our case. But the damage was done. I spent most of the night and early morning trying to calm our sons anxiety meltdown. A meltdown caused by one missing light blue sock. It sounds trivia but it isn’t. On that night it was the single worst worry one particular kid with Aspergers could have. Caused by petty school rules.
So yesterday was officially a kick the wall type of day. To the outsider it’s all mundane stuff. No internet. A few road closures. No expensive hippy food. A missed delivery. A cat missing the target. A cheque which needs amending. AND a light blue sock. But to me it was a massive pain in the bootocks….
York Minster is one of Europe’s finest Cathedrals.
The central tower is 235ft (72m) tall. It’s Northern Europe’s biggest Gothic Cathedral.
The first religious building was built on this site in 637AD. Work started on the current Gothic structure in 1230 and was completed in 1472. The Minster has 128 stained glass windows which apparently have 2000000 individual glass pieces. It’s a busy place of worship with over 1600 services each year.
Thankfully York has not succumbed to the plague of high rise buildings. So The Minster still dominates the city view from all directions. I remember having a chat with an American work colleague who on visiting the city for the first time told me
“That’s a lovely church but it would have been better if they had built it on a hill”
Unfortunately the nearest hill is about 15 miles away. Strangely our little bungalow is on that very hill. We struggle to fill our little church so I’m pretty sure a Cathedral would be bit of over kill.
It’s absolutely stunning inside but we never make it that far. Son loves to walk round it and think. Then he looks to the skies for a glimpse of the nesting Peregrine Falcons. Finally we always end at a statue of a Roman Emperor. In 306AD Constantious died in York. The soldiers in York immediately proclaimed Constantine the Emperor. So for a brief moment in time York was the centre of the Roman Empire. Son loves to drink up this history.
Surely when you have such history on your doorstep why not use. York has the largest Train Museum in the World showcasing engineering and invention at its finest. What better way to spark an interest. To learn. To grow. But apparently this is not the case. It would seem writing out spelling mistakes 3 times is the way to go. Regardless of the subject – Science, History, Maths, Design Technology, Drama – let’s just get the spelling right. I bet that will spark an interest!!!!
A beautiful little thing from warmer months.
Unfortunately many little things are not so enjoyable.
Little things are sent to test us. The one day when it had to be a full day at the work base would also have to be the day the office heating failed. The heating failure had to be on the coldest day of the year so far. In the morning the thermometer was resolutely stuck at -2C. In the afternoon the thermometer reached the heady heights of 1C. Sat huddled over the computer with a coat stretched like a tent over me and the screen. Inside the makeshift tent hoping that the hot tea and the heat from the CPU would fend of frost bite. Lovely
Little things are sent to test us. Maybe it’s the frostbite but as soon as I got into the car a warning light came on. Car Key Battery Low – Change Battery. Not a problem as we have a vast collection of various types of batteries at home. Guess what. Having ransacked the house I found 11 different types of battery but unbelievably not one which would fit the key. So let’s hope the key has enough juice left to allow me to get to the shop in the morning.
Little things are sent to test us. Like WordPress being most vexing. For the last 6 months the WP Ipad app has been hopeless. Well not sure what has happened but it is now firing on at least 3 cylinders. Best it’s been for a while. Not saying much but at least it’s partly working. Unfortunately we come to the Yang. Now my WP email updates are a disaster. They arrive as normal but it’s impossible to do anything with them. That leaves trying to read and comment using the app – that is the cylinder which is misfiring. How can it be so difficult to leave a comment or just like something. Just so frustrating.
Little things are sent to try us. Spelling Tests for a Dyslexic. If son doesn’t sit the test then he will be given zero marks and this will rule out any chance of him moving up sets this year. But if he does sit the test he will be given no help and no marking adjustments – setup to fail. As son has decided to try the test he has been practising the words. After much frustration (from both child and parent) Son announced.
This is not happening. I’ve got a photograph in my head of all the words and will just see what happens on Thursday. I can find better things to spend my time on. I can name every English Monarch since 827. Their main achievements, notable events, claim to the throne and how they died. I know it been no use at this school but it’s fascinating. So I’m going to do the same with the French Monarchy. Much better use of my time.
And off he went on his quest. If a child has a passion then that passion should be given every opportunity to flourish. Our bureaucratic education system has forgotten this. Thankfully kids and many parents have not. That’s why there is always hope. Hope in little things.
An entire weekend without seeing any evidence of other humans. No post. No phone calls. No dog walkers. Villagers hidden away in warm dry houses. On the walks not even one passing car or stray rambler. Helps when many of the roads are closed with overrunning roadworks or floods. Great fun in the pouring rain trying to play tennis on the pavement. Very cramped in an area probably not big enough for table tennis.
Sadly the relaxing weekend goes to quickly and dreaded school looms. A temporary change in school bus routes means more strange faces and much larger buses are running. No guarantee when the bus turns up. An absolute nightmare for a kid with Autism. If only that was the only thing.
Another heated discussion with school and the authorities. Both reassuring us that measures have been put in place which ensure compliance with government requirements and allows all kids a fair chance of performing well. Yeh right. Keep the Government happy – Sod the kids in effect…. Clearly certain parties need to lookup the definitions of all and fair. So this weekend our son’s homework basically is all about writing out three times all his spelling mistakes and unclear handwriting attempts. That’s going to expand his mind and boost his confidence!!
Then to cap it off he has to revise for an English Test. The test is an old school Spelling one. Learn 20 words.
Language
Presented
Sherlock
Through
Evidence
It’s the same spelling test for all in the class. No extra time or help for any child. Again maybe it just me and my cabin fever. If it is please just delete this post. But how is this fair. On what planet is this supposed to have any positive impact on any child with dyslexia and autism. Designed to fail AGAIN. For all the required words our son can give definitions for and provide alternative examples of how to use the word correctly in spoken English. But this is not important apparently. Not what school and the government wants. The focus is on getting all kids to just spell by learning parrot fashion a list of predefined words. If you can’t do this then you are low attainment. A failure. A faulty item.
Education is filled with really good, dedicated and caring teachers. Yet they are increasingly told how to teach and to focus on a narrowing range of objectives. Objectives not about the interests of the child. It’s all about Satisfying the Government. The agenda is that money should go to fund tax cuts for the rich rather than on unimportant things like school budgets. To make sure this happens Schools need to follow the tried and tested factory model. Increasingly large production runs which help drive down costs. Eliminate natural variations and reduce choice. Children just seen in terms of inputs and outputs. Push them through the system. Those who don’t fit are labelled a problem and discarded as surplus to requirements.
I will tell you where the staggering stupidity and the real problem lies. It’s in those leaders pushing this dogmatic crap and equally on those who choose to vote for them. Shame on you.
So we move on into another uncertain week filled with too much anxiety for someone so young. Let’s hope a few Muppet and Spider-Man movies can briefly lift the mood. Even a bit of no space tennis might help. But surely the countless thousands of children who suffer deserve so much more than this. The really do.
A Dad trying to cope with the loss of his Partner and becoming a single parent. 