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Return or not

WARNING: This is a covid related post… it may contain grotesque examples of confusion.

This friendly bird is a frequent visitor who keeps returning for a daily meal. A visitor who doesn’t bother with social distancing rules but is far too fast for my poor mobile to get a truly in focus picture. On the subject of RETURNING.

The school return question is starting to be vexing again. When the schools closed down a few weeks back the advice was that they would be closed indefinitely. Exams in June and July cancelled. They would certainly remain closed until the virus was under control and the country had implemented systems to keep track infection rates. A return was not going to happen until it was safe to do so.

Let’s set the context in the UK.

  • Each day a 1000 people are dying in hospitals as a result of the virus and the numbers are continue to rise. The UK is likely to have the highest mortality rate in Europe,
  • That horrendous number does not include the many deaths occurring in care homes and in household settings. Up to half of all deaths could be occurring in care homes,
  • Medical staff, care workers, teachers, bus drivers, people who have attempted to self isolate are continuing to die,
  • 5 under the age of 20 have died,
  • Each day something like 40 people die from this virus who have no underlying health issues,
  • The official ‘those at most risk’ list has clearly missed off many thousands of vulnerable patients,
  • Currently the UK can only perform 18000 virus tests per day. That’s not even enough to cover the urgent requirements of our front line staff,
  • Unless your the daughter of a government cabinet minister you are unlikely to be tested if you are self isolating at home,
  • We are still to introduce a virus contact service or app,
  • Even based on the country’s inadequate testing regime we officially have 84000 cases recorded.

That doesn’t strike me as under control.

This week the governments’s appointed scientists and will meet with the Cabinet to consider the lockdown arrangements. The government are keen to reopen the economy as a matter of urgency and revert back to the original herd immunity strategy. Even though growing evidence is developing that people can be become infected more than once. How long any acquired immunity lasts is still uncertain. As part of demonstrating that we are getting back to normal many in the government want schools to reopen ASAP. Certainly well before the ban on mass gatherings are eased. The argument is that kids are at a lower risk of serious complications.

Ok I fully understand the need to start living again. I hope it’s done as quickly as it is safe to do. If decisions are truly based on the best and broadest scientific advice then I think many of us will support that. But then I put my parent’s hat on.

Parents potentially are going to face a decision in the coming weeks. A decision where there is no right or wrong answer. If schools opens early, do I send our kids in. That is a personal decision and not one that I will allow the Government to take for me. Personally this revolves around a number of factors

  • Kids may be at a lower risk of serious complications but that it not NO RISK. Already 5 under the age of 20 have horrifically died,
  • UK schools are not designed for adequate social distancing or effective hygiene. Too many kids, teachers and support staff are crammed into out of date, inadequate facilities,
  • Homeschooling v Schooling – not planning to go there today,
  • The anxiety and stress the return may place on our kids. Some kids may be busting to meet up with friends again and start being a school kid again. But equally many will find the return stressful. With our Son’s Aspergers he struggles with many social and health anxieties. He has a huge issue with the fear of hygiene, illness and death. Co-vid has sent that off the chart. To the extent he struggles to leave the confines of our front gate these days. If we do venture out then it’s a quick walk, keeping at least a field distance between others and not touching any surface. That’s walking a dog in a quiet village, what on earth will it be like when we are talking about a confined building with a 1000 people. The medical support we might be able to tap into to help with this has been cut back by the government. The service is stretched and is currently not able to do face to face counselling until later in the year – currently it’s not deemed safe to do so.

So it’s a personal decision. No right or wrong decision. We all are just trying our best to navigate this mess. For me (with my parent hat on) I can’t see any foreseeable set of circumstances where I would be willing to send him back into school this side of September. But it’s a personal decision. It’s his decision. So when the times comes that the school is open then it’s his call completely. It’s his risk, his stress, his life.

Stay safe people.

Posted on by bereavedandbeingasingleparent · 116 Comments

Random Tree

A random Yorkshire tree. When it snows, a random Yorkshire Tree positioned at the end of our sledging run. So a random Yorkshire tree with a very hard trunk which I have collided with on more than one occasion. It’s like a Rome. All the sledging runs seem to abruptly end at this tree.

So this morning’s fight with WordPress was a bit of a score draw. On the plus side it went remarkably smoothly and very quickly. On the downside my attempted fix – didn’t pigging work. So the app is still possessed. My comments on many sites just disappear. One explanation is that I’ve upset one of the Spam filters. I might have used a naughty word on a comment (or two ). See kiddies swearing is not big or clever. Anyway until it’s resolved I will keep trying to comment on your sites – a few comments are still sneaking through. Enjoy the peace and waffle free time while it lasts.

So the school version of homeschooling has ended for another week. It’s now the two week Easter break. A break which will probably look very like the last few weeks. Normally we look forward to these two weeks but this time it feels like just the same as the last few weeks. No real change except the school iPad can remain switched off.

But as everyday is FUN DAY let’s try to make the most of them.

It’s good to see school is getting into the celebratory mood. The kids have been set homework and have been given plenty of revision to complete over the holiday. After Easter it’s straight into online exams and YES the delights of spelling tests. Deep joy.

But we are not going to let school put a dampener on life over the next couple of weeks. So at lunchtime we reverted back to one of sons favourite games. Bouncing on a trampoline while holding a bucket filled with water. It’s amazing how even Son’s bucket of water ends up over his Dad. Maybe that’s why the game is so much fun. Then it was back to online lessons and trying to explain to a bewildered son the finer details of love poetry. You might have seen my sledgehammer writing style in Thursdays Terrible Poetry submissions. Me advising on poetry is like asking a pheasant to operate a pedestrian crossing. Some lessons are about personal growth and development. However this one was just about survival.

After the last lesson of the day the Easter break started with a dog walk. A walk to our sons self imposed world boundary. And a look over to a distant random tree. A tree beyond our little world. Let’s hope that when we get snow again, once again all our sledge runs will be able to meet this tree again.

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Art

“If I’m going to suffer this, then you can as well DAD.”

We had arrived at one of those lessons – ART.

Son really struggles with drawing. His fine motor skills are just not conducive to it. Unfortunately his Dad is also rather deficient in this area as well. I am to Art as Donald Trump is to Veganism. I remember one art teacher quietly whispering in my ear when she took one look at my attempt at a landscape scene.

Can I suggest that goes in the bin. I wouldn’t take it home as your parents might be of a nervous disposition.

But son is right. If he suffers then I need to suffer as well.

One hour later we compared masterpieces. His attempt was not too bad. Son cast his critical eye over my work.

“Erm Dad what exactly is it?”

“That’s a tree”

“Are you sure. I would never have guessed that.”

“Look son it’s obvious. These are branches.”

“Are you sure it’s not upside down. What on earth is that?”

“That is a bird and that is a nest”

“Oh a bird. I thought it was a car. Look Dad I am bad at art but I have an excuse. I have Dyspraxia. What on earth is your excuse to be so awful at this. Clearly you talents lie elsewhere. “

The search continues…….

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Motivation

Not sure it’s the slightly unhinged world but here the daffodils are looking extra special this year. Much needed colour. Much needed motivation to keep believing in our world.

“Come on Dad, your doing the PE lesson with me.”

So 20 minutes later we are doing a fitness workout. I do slag the school off quite a bit but sometimes it does do things well. The online PE lessons was really good. It started with a daily workout from YouTube. The Body Coach TV (PE with Joe Wicks). The person doing it was great and made the session so much fun for kids. Son warmed to him straight away. Which is no mean feat.

My second workout of the day was definitely very different from the first. Standard weights and short burn military fitness exercises at 7am. Pretending to be Spider-Man and bouncing like a bunny rabbit at 11am. The latter was way more fun. So maybe, just maybe tomorrow at 7am you might see a grown man pretending to be a rabbit. That’s my excuse if I get wheeled away in a straight jacket.

But you need balance in life. If you get good then often the not so good arrives to bring life back into order. The Food Technology online lesson was grisly. Son attempted the task which was so tough for him given the difficulties he has with handwriting, spelling and drawing. But he tried and that’s all we can ask. A bit later the response came back. One or two good efforts but some are very poor presentations. Well that’s done his confidence a world of good.

So we have balance. Motivated and demotivated. Looking forward to the next lesson and dreading the next lesson. One has 1.5 Million subscribers (plus two more from our house) and the other has a kid desperate to drop the subject.

I’m sure even this guy was motivated to move just a bit during the fitness workout.

I should really tell this guys story as well. Completely ignored him when I waffled on about his gnome buddy. His name is Gene. Can you work out why? Gene is a relative baby. He’s about 7 years old. He was a Christmas present from my brother. He was supposed to be fireplace ornament. Unfortunately my partner hated it. As did our dear departed psychotic girl cat. So he was banished to the garden to save him from the sledgehammer and the apex predator. On his bottom a sign says – Not for external use. Yet after 7 years of grizzly Yorkshire weather he is still shinny and looking like new. So he clearly likes dancing in the Yorkshire rain.

Take care my friends and try to smile.

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Prophecy

Colour slowly returning to the garden. Sadly just in time for the next weather blasting. Just so predictable….

A few years back our son had a wonderful medical expert who did an awful lot for him. Just before retirement I remember the experts prophecy. To paraphrase

Our country’s support for kids like yours is nothing short of a disgrace. Sadly if you think that the support he gets now is patchy and insufficient, well just wait a few years. It’s likely to get very much worse. Maybe when he is 12, most definitely when he is a teenager, the minimal support will dry up. He will get reassessed by clinicians who have no practical experience of your son. They will deem him above the clinical threshold and will turn off the support. Clinical threshold should be renamed budgetary threshold. It’s not a reflection of the clinical position. He will still have severe clinical need for intervention. The support will be removed because as a society we don’t support teenagers and adults on the spectrum. We expect them to fend for themselves. If they don’t fulfil their potential then tough. I’ve seen this happen to virtually every kid I have worked with. If they achieve anything in life it’s just down to themselves and their parents. On top of this the school system just assigns them to the bin. It stinks….

Sadly the prophecy is coming true….

Just before Christmas he was reassessed for one of the support services he receives. The assessment was done by someone who had never met our son. The outcome – the service was withdrawn as he no longer met the clinical requirement.

Today we had a therapy session at the local hospital. It’s a service he has had since he was 7. It’s made some great progress over the years. It’s taken time and many sessions. At the last session his worker agreed on a programme to help with his handwriting, keyboard skills, and areas such as shoelaces/school ties. The programme after that would look at trying to help with coordination specifically aimed at swimming and bike riding. He has significant problems in each of these areas. Well guess what. At today’s session his worker was joined by a senior member of the team. A reassessment was made of his case. After a few practical exercises we were informed that he was now above the support threshold. He was now discharged from the service. They would write to school and give them some suggestions on his future schooling. We were handed a couple of information sheets on handwriting and shoelace tying. We can ask his Paediatrician to review this decision. We are on the waiting list to see a Paediatrician – currently our last appointment was over two years ago.

So we are now down to one service support now. But that is so underfunded. His worker is wonderful but because of workloads she struggles to see him now. Last year we got invites to a couple of group sessions. His last one to one session was back in 2018. Clearly it’s only a matter of time before that last helping hand is removed.

It really feels like that the health service has now dumped our son since he’s a teenager. I guess they argue that it’s an educational problem now. Unfortunately the school system has washed its hands of our son already. Like so many kids the school’s write them off. Label them low attainment. If they get the odd exam certificate in the end then school has achieved its goal. Ticked it’s box on the Government’s school assessment.

So here we are in the brave new world. We are fending for ourselves. Our only support – a few pages of photocopied guidance from a textbook. How can we have got this so wrong. How many thousands and thousands of autistic teenagers and adults are in the position. Some of the statistics on autistic suicide rates, unemployment, depression and poverty are appalling. But society doesn’t care. Our leaders don’t care. That’s a truly sickening thought.

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Cake test

This was my attempt at baking son’s birthday cake. It’s amazing what heaps of icing can hide. The cake was a bit over baked with a huge volcano like hole at its centre. I plugged the hole with soft sweets and then covered with thick icing. What was left of the sweet packet was scattered on top. I might be onto something here. The soft sweet centre worked brilliantly. As a result the cake was deemed “not too bad at all” which on our sons review scheme equates to just above two Michelin stars. So now that’s got me thinking what other things can I fill the inevitable cake sunken holes with. I’m going for jelly in the next one. I will report back on my test.

On the subject of tests …. ok troops, time to stand by up your beds. Its spelling test time.

School is slipping as we have had only one spelling test this week. So they better make it a doozy.

Imagery

Alliteration

Rhyming

Couplets

Syllables

Stanza

Rhythm

Sonnet

Simile

Metaphor

Hyperbole

Assonance

Personification

Onomatopoeia

Enjambement

Another cracking list of words that will be of great use in son’s future life. My last conversation with school stressed the point

That spelling tests for dyslexic students are not recommended practice. If they have to be used then they should only focus on the most commonly used words.

Good to see the school are sticking to the common words then. I had to look up Enjambement. I was sadly disappointed to find that it wasn’t a Caribbean Cooking term for combining Jackfruit with Jamba Juice. My favourite flying dinosaur (Onomatopoeia) makes a welcome return. Last time I pulled that joke I had a shedload of abuse from my Texan fan club….. For some reason Son can’t say ASSonance without cracking up. Must get to the bottom of that joke.

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The road

The road often seems so long and never ending. Somedays it is, especially when your trying to run along it straight into the teeth of a biting north wind. Absolute purgatory. But then other days the road is short and manageable. Even in my rubbish car it only takes a couple of minutes to drive it. It’s good to remind myself this every so often.

In those dreadful early days of being a widow and a single parent the journey in front of me looked so daunting. So beyond me. A road with seemingly no end. I would shake my head and just think – I can’t do this. Yet I still set off down that road. I didn’t want to but I was faced with no choice. I was a parent to a young kid who has just lost his mum. He’s was also trying to get his head round not being able to read and that new word – Aspergers. I owed it to him to at least try. Nobody else would. It was down to me.

He only gets one childhood and it better be as brilliant as is humanly possible.

So I started down that road. I had no idea where the road led to. I was so confused. As a result I was hoping to find a ready made parenting plan – an easy to navigate road map. As hard as I tried I just couldn’t find a map which I could use. I searched everywhere. So many books and articles were scoured over for that magic road map. But in the end it was a futile search. No one is going to do this for me. No easy shortcuts had been forged by others. It was down to me and I needed to own it.

Fast forward to 2020 and I’m still here. Still a widow. Still a single parent. Still slightly confused. Still travelling that road. Still haven’t come across a map. But there is a difference. That road doesn’t quite feel so daunting. It doesn’t feel quite so long now. That’s progress in my book.

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Poets Society

The feeding zone has been active today with the usual characters. Yes the characters are making a mess of the lawn but it’s always so good to see them. We don’t get too many human visitors these days so who is going to notice the rugby pitch of a lawn and I don’t think non-human visitors are that fussed.

Another largely sleepless night. One short dream, a viewing of the stunning yet grim Everest movie and a bout of late night blog catchup. While reading a friends post a thought entered my zonked out brain. How many other souls are struggling with sleep currently. We really deserve our own secret club. Maybe the name should be The Dead Tired Poets Society. Dead Poets Society is a truly stunning movie. If we want to be selective we could be the Dead Tired Parents Society.

But why stop there. We could have so many subgroups.

For the financially challenged – The Dead Broke Poets Society,

For the puzzled amongst us – The Dead Confused Poets Society,

For the bad cooks – The Dead if you eat this cake Poets Society,

For those feeling happy – The Dead Chuffed Poets Society,

For those who can regenerate – The Deadpool Poets Society,

For the rubbish Fortnite players – The Dead in five seconds Poets Society,

For the rubbish negotiators – The Deadlock Poets Society,

For the strong amongst us – The Deadlift Poets Society,

For the gardeners amongst us – The Deadheading Poets Society,

For the Monty Python lovers – The Dead Parrot Poets Society,

And for the impassive people – The Deadpan Poets Society.

Today was another fun day. Fun but with son’s anxieties bubbling just beneath the surface. I have emailed school to tip them off but deep down I know they won’t do anything. The teachers won’t be informed and if they were – what would actually happen. Not much. I’m not sure how much training this group of teachers have had in dealing with anxiety. They certainly have had little specialised training in areas like dyslexia and autism. Maybe that’s why my first questions to the teachers tends to be

You do know he has Aspergers and you do know he has Dyslexia and you do know he has Dyspraxia.

The look I get back with the generally vague replies suggests either they don’t or they do but given the 1000 things they are dealing with this is never going to be a priority. So my parenting anxieties are mounting again. That’s why having fun is so important. It’s great for my son and it’s such a release for me. A release which is even more important when sleep fails you. Can you guess what tonight’s insomniac movie is. I’ve dropped enough clues.

Dead Poets Society.

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Is winning best

At last sun. Just a couple of hours but even that feels like a win. Certainly lifts the soul.

“Dad are you trying. That’s 9 – nil to me”

Mini Air Hockey is a tricky sport. Requiring a unique combination of hand eye coordination, reflexes, ability to bend your back for more than 10 seconds and unchecked brutality.

“Just look at my fingers. That’s missing skin. Yep I’m trying. Your just too quick for me.”

Son worries that I let him win. That’s such a difficult area for parents. Do we play hard or do we let our children win. I remember reading a story about a former giant international rugby player. He was playing touch rugby in his garden with his kids. As a feel for how seriously he was taking this game ask his garden shed. Apparently in an attempt to win the ball off his young son he crashed into the wooden structure. The poor shed was basically demolished. The Dads take on that. They have to learn to compete. When I play I always play to win. Kids need to learn this.

But on the other side I was watching a video of the great Mohammed Ali. He was boxing with a small child. Ali was repeatedly knocked down and finally the kid scored a dramatic K.O. The kid walked away with the biggest smile and feeling like a champion.

For what it’s worth I was in the Ali camp. I wanted to see my kid smile and feel like a winner. Yes the occasional defeat was important to learn about life and that failure will happen. As you get older failure comes regularly so why not grant a few years of success to the young. Son has been through so much in his short life. Seen so much sadness. He’s earned the right to feel good sometimes. But what do I know – I’m still trying to learn this parenting gig.

But time moves on. With a cruel flick of life’s switch, happily letting your young ones win becomes increasingly hard. Suddenly you can’t buy a win. The cold reality sets in. Your kid is better at stuff now than you. Maybe he should go easy on his Dad. He is quicker, thinks faster, has better reactions and has higher skill levels. What happened to Dad being a computer game legend. Now Dad is a Noob. Oh the shame.

Yes there are complications. A kid with Aspergers and Dyspraxia will struggle in some areas. It’s so important I factor those things in. Confidence levels are so brittle. It sends daggers through a parents heart to hear you kid say things like ‘I’m just stupid’, I’m useless’, ‘I’m so rubbish‘, ‘ hate being different’. So yes allowances are still made. He loves Jenga but struggles with his fine motor skills. He hasn’t noticed yet that I play just using my left hand. Connect 4 is another favourite but he struggles to see diagonal patterns. Yes I will tend to ignore the obvious connections.

So what’s your take on winning or losing?

Am I getting this so wrong?

Whatever the rights and wrongs of my approach. Dads are strange sensitive souls. We still need to feel like kings sometimes. Yes to show off a bit. Those area are becoming increasingly difficult to find these days. That’s why bench pressing weights and the ability to stomach increasingly disgusting tasting jelly beans are so important. That’s all I’ve got left. Long may I rule over those two talents.

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End Game

The way forward is shrouded in mist but a clear route is emerging.

As we move into the second week of the Year 8 exams we have a clear state of play emerging. Son is trying his hardest, school clearly is not. Son again was upset this weekend as he clearly thought that school sees him as not very bright and a failure. He found out that he came third bottom in his Drama exam. Well was that surprising when he was given only a short period of time to read questions then an equally short timescale to write answers. Absolutely no help was provided. So clearly autism, dyspraxia and dyslexia do not apply in the world of Drama.

Sadly this has not been an isolated incident.

  • In subjects like Mathematics, Design Technology and French he received zero help. No additional time. No help with reading. Nothing. Maybe help was considered but as Son pointed out

“One of the kids broke his hand so the one Teaching Assistant had to scribe for him. Maybe that’s why I didn’t get help. I really struggled to read and understand the questions. Even maths had lots of words I didn’t recognise in the questions.”

  • History did not proved a scribe but he was given a laptop to type his answers in. So he still had to try and read the questions. He was given a laptop because the teacher was concerned about being able to read his handwriting. Problem is that son is waiting for some therapy work to try and help with his typing skills. His typing is slow and very inaccurate. He hadn’t practiced answering test questions on the computer. The computer also had the spelling aids disabled. No additional time was provided.
  • Science and English did provide a scribe. He hadn’t practiced working with the scribes provided. He was really uncomfortable trying to work with the two assistants he had previously had very little interaction with. He had thought incorrectly that he was getting extra time but with a couple of minutes to go the scribe just said the exam is finishing when it’s 10.15. He struggles to tell the time using an analog wall clock. The scribe in English only read out the questions. She was not allowed to read out the passages which he had to answer comprehension questions on.

“What was the point. The scribe would tell me things like for this question you need to read lines 5 to 12 of the text then describe what writing techniques the author has used. Well I would if I could actually read the text. Some of the text was using slang language – I struggle with proper language, got no chance with slang.”

So basically it’s been a mess. If his marks are not good then this is going to hit his confidence going forward. Currently school are deadpanning my queries but I guess they will just say that appropriate support was provided and he just needs to work harder. Poor results will confirm their assessment of low attainment. I just hope for his sake that he manages to get some decent marks. I’ve told him that for me it’s not he who is being assessed, it’s school. And clearly school have failed – AGAIN. To quote a reasonably popular movie, it feels like that we are moving to the mainstream education END GAME. No we still can’t truly afford to homeschool but this failure of due care can’t go on. Son deserves better than this.