Pictures

We haven’t don’t this for a while. Draw a picture in the ice forming on the outside of the window. Then turn the room light on and see what it looks like on the pavement. Makes us smile anyway.

It’s a tradition. Something we repeat. We do it every night we get the opportunity.

That’s a theme in our Aspergers household. Repetition.

The same foods on the same night. Week after week. Things like cheese have to be the usual brand and flavour.

Wearing the same type of clothes.

Buying the same toothpaste and the same toothbrushes. The same soap. Even things like the same toilet paper.

Watching a select group of movies and tv shows, time after time.

The same morning and nighttime bed rituals.

The same subjects we talk about most nights.

Having the same objects in the same places in the house.

The same fun animal story we tell every night. We have done this since he was a toddler. EVERY SINGLE DAY. I dread to think how many episodes we have told.

Playing the same games on the console. Just a couple of games. Microsoft might as well hardwire them into our box.

When we could get outside, walking the same walks and the same routes. Driving the same routes on the way to places. Even if that means more driving time. If we vary then we need to double back and drive the usual route as soon as we can. Going to sit in the same seats in the same cinema. Going to the same shops. Going to the same fast food joints and buying exactly the same order. Going to the zoo and visiting the animals in the same set order.

Repetition provides Hawklad with security and comfort. It provides stability for him to build bridges between his world and the big mad world. Variations can and will send him into a the realms of anxiety. At school any change to the set timetable will throw him and severely effect his performance. So it is just how things are in our little family.

So if ice forms tonight, I wonder what picture will appear on the pavement?

Eat chocolate

I received a lovely present today in the post. The government support package for Hawklad will expire soon. So I need to reapply. Helpfully they have sent the 50 page application form to complete. I can’t submit the old paperwork and need to have more recent assessments and evidence. That’s a nightmare at the best of times but during a pandemic!!!!!!!

Only thing for it….. A bar of dark chocolate, a decaf coffee and listen to some angry music. Today’s choice, the latest from Roger Waters. That’s one seriously cheesed off artist recording those songs. That fits as that’s the music I would make today. Normal people are forced to jump through hoop after hoop for their kids yet friends of the Government are awarded multi million pound contracts without any due process. Roger Waters would certainly get the irony.

Well I then made a start. Book an appointment for a new assessment from a Paediatrician. On the waiting list. That’s currently a one year wait and growing. It’s a start…. Where’s the next chocolate bar.

But here’s the really scary thing. Our Son is fortunate as he has had some support. We somehow battled through the intentionally difficult minefield to get that. So many are either unsuccessful or are just missed. That’s the children, adult support is almost none existent. Discarded by our society that has its priorities so badly skewed. What’s the answer. Certainly to keep fighting. Most definitely to eat chocolate.

Worth it

That was the backdrop to my early morning workout. So much better that grey, damp , gnarly mist.

At the end of the workout I was finishing off with 10 minutes tai chi when a couple of thoughts crossed my mind. Apart from ITS FREEZING and why on earth did I come outside in cycle shorts.

I thought about clearly looking like a complete Wally and also what my family would think if they could see me now. One of my sisters would be cool with it as she does yoga. The others not so sure. My brother would definitely mutter something involving the word ‘hippy’. My parents would have talked about the world clearly going completely mad. Their idea of a mindfulness workout would have just about stretched to putting on the kettle for a cup of Yorkshire Tea. It’s a Yorkshire thing. We have a saying here

If the country raises the threat level to national panic, Yorkshire would raise the threat level to ‘ put a mug of tea on’.

I guess we all have to find whatever works for us.

But that’s the thing. I’m not sure my parents ever really did. Too many people don’t. We still don’t talk about mental health enough. That has to change.

So tomorrow I will be outside and trying to master Tai Chi. I might look like a Wally but that’s fine with me. Trying to deal with mental health issues is so worth it.

School

That’s as clear as it’s been so far today. The mist lifted for a few minutes but far too quickly returned.

In the UK the Government’s handling of the pandemic has been an absolute shambles and that’s putting it mildly. Sometimes following the science, sometimes following politics, sometimes it’s all about common sense, sometimes it’s about enforcing rules but then not applying those rules to themselves. Telling people a national lockdown would be an unnecessary madness then days later enforcing one. Banning many safe activities but allowing other much riskier things to continue. Dithering on things like masks, testing and social distancing. Culminating in telling the public to go out and mix as it’s our civic duty to get the economy going THEN weeks later blaming people for meeting up and causing the virus to spread again.

It’s just a complete mess. So how tough must it be for schools to operate in these circumstances. All major social gatherings are banned but schools are instructed to stay open. My beef here is not with headteachers but with those above them….

We received an email from our school yesterday trying to set out the current rules. To summarise

  • Even though the country has entered a national lockdown the School remains open but large numbers of pupils and staff are isolating. The school has a number of confirmed cases. Pupils and staff are struggling to get tests undertaken.
  • Pupils must attend school unless they have written confirmation from a Doctor that they are not medically cleared. Even if a pupil is clinically vulnerable they must attend unless a doctor has signed them off.
  • If the pupil lives in a household with someone who is clinically extremely vulnerable then the government line is that the pupil should still attend school.
  • If a pupil develops symptoms then the school recommends that the pupil isolates until a test is undertaken however this cannot be enforced due to Government rules.
  • If a pupil is legitimately unable to attend then they must use the online teaching systems. They must stick to school timetabling or punishments will be issued.
  • Masks should be worn on school buses, while walking in school corridors, visits to the toilet and while queuing for school meals. These will be enforced.
  • Masks can be worn outside school buildings and at times during classroom time but not when answering teacher questions or during group work. The wearing of masks in class cannot be enforced due to Government instructions.
  • Pupils are encouraged to observe 2m (6ft) social distancing outside of the classroom. Space does not permit that in classroom settings. The school is not currently allowed to install additional screening in the classrooms.
  • Pupils must not mix with pupils outside of their designated year group during the school day. That includes family members and close friends.
  • The school is still not permitted by the Government to make more general use of online tuition to free up space within the school.
  • During winter it will be necessary to keep many windows open for improved ventilation. Teachers have the discretion to allow pupils to wear coats if the classroom temperature drops. The wearing of hoodies or non school uniform is not permitted.
  • All out of school activities have had to be suspended due to Government instructions.
  • Due to the number of staff absences it is likely that a growing number of lessons will be taught by teachers who are not the normal class assigned one.

How stressful is this for children, staff and parents. Its such a mess which according to the Government is a bastion of best practice. We are told schools are perfectly safe, feature the highest standards of care and that it’s a parents civic duty to send their children into school……..

OK so here we start another week of homeschooling.

Help with yoga

What on earth are you doing Dad.”

This is supposed to be yoga.

Really, looks like torture.”

This position is supposed to be called the Downward Dog”

More like Dead Dog.”

And this one I’m transitioning into is called the Reverse Warrior.

You look like a Buffalo trying to do ballet.”

That’s not really helping Son.

This is very funny are you going to try another one Dad.”

This is a Mountain.

That’s just standing…”

Well this is the Siddha Pose.

Now that’s just sitting on the ground”.

Ok well this one is the Crescent Moon.

You look like you’ve just been struck by lightning.”

No pleasing some people. Well this one is Forward Fold.

Looks like you’ve dropped some money now.”

Right be prepared to be impressed now…. This one is called the Standing One legged Pulling Pose.

**** 3 seconds later I’m in a crumpled heap on the ground****

Awesome Dad, I’m calling that the Dead Muppet on the Ground position”

Yoga, I want some words….

If only sitting with a nettle tea and looking at a beautiful flower was classed as exercise….

Who invented yoga? Really! Who invented that medieval form of torture. I want words with them. The glossy brochures are so enticing.

Wonderful for posture

Stress busting

A pick me up for the soul

Strengthens the mind

Improves confidence

Recover your flexibility

Builds strength and a strong heart

Anyone can do it

Fun

Feel your anxiety ebb away

So what actually is the reality. What happens when YOGA meets a Yorkshire Bloke who is trying to figure out if he is Man or MUPPET….

So the iPad was fired up. A random yoga app was selected. The advanced 50 minute session selected. Surely being an experienced runner, CrossFit, weights, climbing, cycling superhero must count for something. For a start having an instructor who speaks in English would help. Whispering terms like Chaturanga Dandasana and Shalabhasana is just going to get a blank look in Yorkshire. Secondly can we not have an instructor who has the flexibility of Elastigirl. I’m not getting in those positions EVER, not even with scaffolding and a construction team.

50 minutes of basically hearing my body crack and creak. What are the official yoga terms for ‘that pigging hurts’, ‘are you kidding me’, ‘oh no I’m falling over’, and ‘I’m stuck’. Elastigirl, you try relaxing in the plank position when a dog is washing your face and the cat is scratching your heel. And while I’m on with it, Elastigirl my heel has never been designed to touch the back of my head – strangely my backbone makes that a physical impossibility. Lying on my back with my feet in the air might be doing something for my posterior but it’s playing havoc with my acid reflux. Where’s the warning to not get too close to glass windows when you try to balance on one leg while trying to get into the Superman flying position. It’s so far been beyond me to get into one position without farting…. Yes I can hold that press-up position for as long as you want but do you know the agony I’m in trying to hold a position which is basically me tied up in a knot. In fact most of the positions I’ve been instructed to hold while relaxing have quickly deteriorated into violent twitching and shaking episodes.

So yes I want serious words with the person who invented yoga. Tomorrow I’m going back to CrossFit training and weights. Those will now feel like an absolute delight. All that’s to yoga.

Reality

Late last night I was watching the news channel and a government expert was being interviewed about people struggling to leave the house since lockdown was eased. We will ignore the fact that the easing has been halted and areas are starting to fall back under emergency regulations. The experts take was that it was perfectly safe for everyone to go about their normal business. People should get out, go to the park or better to a restaurant. Those struggling should be brave and get out. Those still struggling to get out should arrange to see a health professional. This Government had put in support to facilitate this.

Ok…..

We’ve been lucky. We might get to see a nurse this month but we’ve had to fight tooth and nail for that. Because of cutbacks son has not been seen by a Paediatrician in well over 2 years now… 6 of his 7 support services have been removed. But again we are lucky. Far too many don’t get any support at all.

It’s 3am and I heard our son call. He had gone to the bathroom and because he had gone barefoot he desperately needed to wash his feet. So just before the morning bird chorus started I was running the bath so he could ease his anxieties. He is currently not able to touch taps. Towels can only be used once before they are washed. His bedding has to be washed daily. He has to wash his hands every few minutes. He can’t even touch is own shoes and clothes with his hands. Tell me how he is supposed to be brave and just get outside. The government just has not got the slightest idea of the problems facing so many in our communities. The health professionals just don’t have the resources to cope. It’s taken a pandemic to expose the true folly of focusing cutbacks on mental health and support services. When will our leaders wake up to the reality of life for so many households in our countries.

Dieting

What are they talking about

Dad the government is telling everyone to go on a diet. Boris apparently is going on one, bet that Cummings told him to do that.

Like everything else my money is on our so called Leader delegating his dieting to someone else. He’s far too busy having time off for things like that.

Dad your on a diet….”

☹️☹️☹️☹️☹️☹️

And with those words from Hawklad, I’m on a diet. I’ve been on this temporary fasting diet for a while now but it’s been an effort. I just haven’t been able to get the food alternatives that my body will accept. So I’ve been forced into eating and drinking far too much soya (soy) 🙄…. Basically my body and face balloon up with the stuff. Not helpful when your trying to look like your losing weight. But hopefully I’ve managed to get hold of a few more nicer foods this time. So here goes. Going to combine my partial fasting diet with a significantly healthier food range. It helps as my garden has finally decided to yield some vegetables. Just got to find them amongst the weeds.

But dieting is only part of it. Need to do something with exercise as well. I am working out each day and pushing myself. But I’m missing the long runs. They are just not happening due to circumstances. So I need a challenge. I had this initial idea of trying to build up to run a garden marathon. Others have done this. I’ve managed 50 minutes of running round our small garden. But I was so dizzy and cheesed off after that, the prospect of 4 hours worth of that is just a complete nonstarter. Lets not forget the epic route map from that.

What was I doing on some of those outlying paths….

So here’s Plan B. At the end of August I want to build up to a mega exercise bike marathon. Let’s see how far I can get on the bike in 4 straight hours. But to ensure it’s not just a gentle peddle session, I’m going to dig out the old HR sports watch. 4 hours with the BP somewhere near 150. That sounds like a challenge which I can do in the garden. Watch it rain and watch the bike collapse again….

Ok Boris for once I’m going to listen to you. I’m going to lose some weight. Are you?

Kinda

One of those weather days. Kinda sunny, kinda cloudy, kinda windy, kinda warm, kinda chilly, kinda dry and kinda wet. I guess it’s a kinda Yorkshire day. Rather excitingly I walked to that Tree today and back. Keep it quiet, Hawklad doesn’t know. He was too busy watching a Sherlock episode. It was funny as I had just finished my fitness programme for the morning. Definitely slightly out of breath. Probably not the best time to try and sing The Hills are Alive with the Sound of Music. Probably better trying to sing in the more deeper tones of four fine Yorkshire born Rock front men, Joe Cocker, Paul Rodgers (Free, Bad Company), David Coverdale (Deep Purple, Whitesnake) or Joe Elliot (Def Leppard). Better off probably dressing like them as well, rather than Julie Andrews. That would kinda make more sense.

I’ve now got this bizarre thought in my head. Monty Python skipping over that hill, signing that song about The Alps, all in a deep Yorkshire accent while wearing wellies and a knitted handkerchiefs on their heads. That’s kinda disturbing.

Changing the subject rapidly. I was doing today’s workout outside in the garden when that Tree caught my eye. I thought about it being months since I ventured there. I decided it was kinda time to revisit there. Sit a few minutes under the branches. Well I did. That’s where I noticed that I was slightly out of breath. But I kinda have an excuse. It was straight after my workout. A slightly longer one.

I have this silly little ritual. Every year I add on one more minute to my exercise sessions. The thinking is that yes that’s one year older but my body is coping with one more minute of workout than it did last year – so I must still be improving. Rather than getting older I’m getting fitter. Kinda getting better, still improving. Well that’s the thinking anyway….. Kinda makes sense to me.

Flying

Wouldn’t it be great to fly. To just fly. No need for a baggage check in, security and long waits in the Terminal. Just to fly under your own steam, when and wherever. Given the size of my bum during these lockdown days, that would have to me some mighty wingspan to get me airborne. Buttocks like mine are the reason that they invented super sized planes like the 747 with those massive engines.

“Dad have you lost that weight you said you were going to before the summer…”

Yes I did set a goal of shedding some weight.

You actually said it would be 14lbs which is 6.3kg’s. So how are you doing?”

I am probably about 6.3kg’s short of the goal currently…..

“So what’s gone wrong?”

I’m exercising really hard but I’m just not getting any long runs. Without the runs it’s a real struggle to get my heart rate above 100 during the exercise. But the main problem is the food. I’m having to eat Soya and some Gluten products. These just make me blow up as if I’m pregnant.

Are you sure your not pregnant?”

Pretty sure, although we have some of your old baby clothes somewhere – just in case. Those food types just make my abdomen and face puff up. It takes ages for my system to try and process them. When the shop gets a better range of things back in, then things will improve.

Arnold Schwarzenegger became pregnant in that movie. Look how much money he has now. Just saying……Instead of soya and gluten stuff, Dad, why don’t you just eat salads and soups…”

*******

Yes we could all do with some more money but call me a coward, not that way please…. But Hawklad does have a good point. I’ve just switched to the soya and gluten alternatives without really thinking. Salads would be far better for me. I’ve become lazy, stopped making things like soups and stews. So from today my body becomes a temple. A well cared for one. Now I don’t have an excuse, that weight has to come off now. Either that or it’s a remake of the movie Junior….