Posted on by bereavedandbeingasingleparent · 39 Comments

Jarrow March

This photo was taken 4 years ago to the day. A day in October. A day early in my grief journey. A moment in our family history.

Time to turn back the hands of the clock back to before the Second World War. To another moment in our family history.

October 19th, 1936. Chesterfield to Mansfield.

From the 5th to 31st, the Jarrow March took place. 200 men walked 300 miles from the north eastern town of Jarrow to London. Jarrow was like many northern towns in that period. Bleak, stagnant and forgotten. The impact of a world wide depression was hitting this area hard. There was no employment. Unemployment was endemic. In Jarrow the unemployment rate was near 70%. The Government seemingly did not care, blind to the suffering. The Government even blocked loans that would have saved the town’s industries. Rising anger at gross inequality and injustice. The growth of racism and extreme right wing politics.

That was the context as 200 men set off on their crusade. A peaceful and dignified protest, carrying a 12000 signature petition asking for their industry to be reopened. A simple message. We want to work. We want hope.

The marchers were treated as heroes on the route. Galvanised a growing mood in the country. The petition was handed into the government with so much dignity and respect. In the short term the March failed. The Baldwin Conservative Government brushed the march and the petition aside. Clearly in their eyes some people were more equal than others. But in the long run the Jarrow March delivered. It set a new agenda. After the war the new Labour Government set about writing the wrongs. A comprehensive welfare state was introduced. Government with a conscious was established. One that cared for the less fortunate. Sadly a conscious which has started to be unpicked and now unravelled.

We live in a time of rising unemployment. Inequality and injustice are ripe. The growth of extreme politics. Sound familiar. We could learn so much from the Jarrow March. A Crusade marked down in English history. A family history as well. My family was on that march.

Posted on by bereavedandbeingasingleparent · 62 Comments

Ghosts

I was listening to the new David Gilmour song and one line really hit me.

Yes, I have ghosts, not all of them dead.

For me that is so true….. Often the ones which are not dead are the hardest ones to deal with. They can appear at any time. They fill my head with negative thoughts. Once there they can haunt me for days. Missed opportunities. Past mistakes. Errors. Broken promises. Heartaches. Dead ends. Let downs. Sad memories. Inhibitions. Self inflicted hurt. Bleak times. They can hold me back, stop progress, bring on self doubt and herald the return of depression.

Those thoughts still live within me. They aren’t dead. Ready to reappear when I drop my guard. When I am low. When I am tired. When I’m facing a leap of faith. They all relate to past events but the memory still lives on within me. They try to shape my present day mood and choices.

Maybe it’s time to deal with them. Exorcise them. End the hold they have over me. Life is too short to waste. Its time to fill my soul with positive thoughts and memories. Ghosts should be dead.

Posted on by bereavedandbeingasingleparent · 89 Comments

Kind

It’s autumn and the leaves are falling. Here when they fall they undertake a kind of heroic mass migration. They migrate to our front lawn. Has to be our lawn, never any of my neighbours. These fallen ones have just started their journey heading inevitably to just below our front window. Then they like to stay put. That’s so very kind of them.

I’ve been trying to be kind to myself as well. If I’m happy then I will be a better parent. Trying to find enjoyable things to do. Maybe discover some new hobbies. One of which is learning to play the piano. Finally making use of an electronic keyboard which has been basically just gathering dust. The piano tuition app I’m using is good. Quickly I can now start to read music. I can play a rustic version of Ode To Joy. But I couldn’t understand why the piano app kept talking about one key being middle C when with my careful marking out of the keys came up with a different answer. Then the penny dropped. Can you spot the deliberate mistake in the pink scrawls……

What a muppet. Ok the app might be right…..

Posted on by bereavedandbeingasingleparent · 68 Comments

Golden times

Unlikely to get too many trips out to enjoy the wonderful autumnal colours this year. But at least I will spend more time looking at very our own mini displays. Too often these are not fully appreciated.

It is often the little things in life that we miss. Don’t fully appreciate. Take them for granted.

Before 2016 at this time of year we would drive as a family through the tree lined country roads to the local arboretum. A walk round the thousands of autumnal trees ending with a hot chocolate at the cafe. It’s not until these moments are gone that you realise how golden those times were.

After 2016 I would drive son to very the same arboretum. Trying to control a mad dog while son kicked around in the fallen leaves. Ending in the cafe now so he and the dog can enjoy a bacon butty. I would saviour a freshly ground full on caffeine burst. Golden days not possible this year.

So maybe those annoying fallen leaves in the front garden will actually come in useful. Let’s go and have a thrash about in them. Followed by a home made butty and yes a hot chocolate. Yes different times, but still golden times.

Posted on by bereavedandbeingasingleparent · 64 Comments

3am

Last night I was tired. Unusually tired for me. But it was one of those pesky tired setups. During the evening I could feel myself nodding off. Plenty of those ‘just starting to drift off while sat on the settee – then suddenly woken by those cataclysmic sudden neck snapping forward’ moments. This went on all evening until it was bed time. But then I just wasn’t tired. Pigging fiddlesticks……

Finally sleep came but all too soon…..

“DAD, DAAAAAADDDD!”

What’s up son.

“Dad I’ve forgotten, sorry we’ve forgotten the art assignment.”

Ooh yeh, that one that isn’t due in until the 12th.

“That’s the one, But ITS THE 12th.”

Oh big pants. Can you do it as soon as you get up?

“No it’s due at the start of the first lesson.”

***********

I could see by the look in his eyes that until it was done, sleep would be impossible. So a few minutes later I was in the kitchen making hot drinks. Years ago a late night session would have had a very different meaning to tonight’s version. 3am and rocking out to Japanese Art.

Basically I sat there looking vacant, occasionally nodding (in a of course I knew that kinda way) and asking Google such questions as ‘what on earth does wabi and sabi mean’. It took an hour before Hawklad had convinced himself that he had done enough. The school panic in his world was over. His completed presentation was significantly more robust than his Dads initial suggestive assignment text

Japanese Art is cool but Godzilla is real cool. Now it’s time for bed….

Hawklad got to bed and immediately fell asleep. I guess at about 4.30am I found some sleep. I woke up a couple of hours later with one overriding thought. How can you write two pages on Japanese Art and not mention Godzilla‘s Atomic Breath just once. What has become of Art.

Posted on by bereavedandbeingasingleparent · 70 Comments

Which way

In life you get asked so many questions. But some questions keep repeating themselves. Like the classics ‘Are we there yet?’ and ‘where’s the remote control?’.

Then there are other questions. More vexing questions. One question keeps popping up. I’ve been asked this by family members, other parents, teachers and even once a nurse. It does have a number of variants but it’s basically the same question

Will your son get better?

Will his Aspergers improve?

Will his Aspergers improve as he gets older?

I’m no clinical specialist. Just a bumbling parent. But here’s my take on the question.

Aspergers is a lifelong syndrome. It’s not going to get better. Its not going to be cured. It’s not going to disappear. What might change is that over time the individual and the family may develop strategies to help deal better with some of the situations life will throw at them. Also some of the specific symptoms may fluctuate over time. For example in a number of individuals something like repetitive hand flapping may become less prevalent with age. Also Aspergers often coexists with a number of other conditions – dyspraxia, ADHD, dyslexia…. It is possible that some of these conditions could improve with time. For example our son has with hard work started to overcome some of the issues which his dyspraxia and dyslexia had caused him in his earlier years.

So yes it is possible that improvements may occur. But here’s the thing, it’s not guaranteed. Each individual case is different, unique. Things may stay the same with age. They can also get worse with age.

So we just don’t know.

The Clinical Psychologist who did the full review of our Son was quite clear. The majority of his Aspergers related traits will stay with him over his life. However at around the teenage period changes may start to occur. It could go either way. He could become fully independent or he may regress and may need some form of life long support. She talked through a number of possible scenarios. One scenario was that some improvements would occur potentially in the areas of dyslexia and the diminishing of some of the repetitive behaviours. Another scenario painted a downturn in his existing anxieties and fears. This could occur naturally during his teenage years or could be triggered by a single significant event which effects his view of the world. Tips the balance in his risk assessments of the world. This could lead to significant mental health concerns and potentially social isolation. Where we are sat currently, we are not a million miles away from that scenario. The triggers – the death of his mum, a pandemic, his teenage years…. He is currently physically cut adrift from the world. His fears and anxieties ramped up to the rafters.

Nothing is set in stone. We just have to go with the flow and see what life brings. It could be still be a fully independent life. But it could also entail a lifelong requirement for support. In this country we don’t cater for the latter scenario. Support has to be fought and won for young children. That support is at best is patchy. During the teenage years the support tends to be reduced due to funding cut backs. By early adulthood the support has completely vanished. That’s a sobering thought for parents in this position. It really is.

Posted on by bereavedandbeingasingleparent · 73 Comments

It’s Yoga but not as we know it

Why do I always hear Spock’s words to Captain Kirk whenever I try to do yoga.

“It’s life Jim but not as we know it!”

It’s yoga just not as we know it. That sums up my yoga talents perfectly. I do try. I guess it’s like my parenting as well – it’s parenting but not as we know it. Anyway back to that instrument of torture which is yoga. I’m part of the Yoga with Adriene App community. She’s really really good but even she can’t sort some people out. This person out. But at least I can laugh at the many times I lose balance and then hit the ground.

Like most things in life, we have to find our own way.

The last ME/MUPPET guide to yoga went down so well and it guided so many lost souls to yoga perfection – well then clearly you need another one. Again I will be assisted by some brave and fearless (mostly) mini lego figures. I will be played this time by Shaggy. Bizarrely the rest of the yoga group are Star Wars characters.

First point is that it’s so important that you get yoga mats, leggings and blocks that are the right size for you. Anything other than a perfect fit could lead to injury or worse, embarrassment.

A perfect fit for a yoga block

Remember to place your mat next to people who have similar abilities to yourself. In my case I tend to look at for certain key signs in the other yoga attendees. Badly fitting gym clothes, a few spare tyres round the middle, scrapes and bruises to the knees, bandages on the elbows, squashed nose and a slightly bemused look.

Perfect person to be next to ?

Be careful if you get your selection wrong then it will only ever end in disaster. Some people are better equipped to do certain yoga positions than others…..

Motorised hips, no arms and no knees make the crow pose so much easier.

Remember it’s a badge of honour to be the only person in the session standing on the wrong leg repeatedly.

I’m on the correct leg everybody else is wrong…

There will come a time when you will be asked to do a one legged dancer’s pose. Don’t be fearful, embrace it. Especially when you find out your the only person in the room who can’t do it.

Can you explain that move just one more time….

Breathe deeply. Struggle onto one leg. I find swearing really helps. Then as gracefully as possible try to headbutt the floor. You may get a sensation something equivalent to five neutron stars exploding in your hips. That will be the correct Dancer’s pose. A certain feeling of lower half detachment may follow.

That hurt…..

The other important tip is to embrace the journey you go on with the instructor. At the start of the session he or she may seem the nicest and most kind person you could ever hope to meet. In my case Adriene’s words are like a warming blanket, settling deep inside my soul. Then the true journey of discovery begins. After about 10 minutes your instructor will start to talk about ‘nice detoxifying hip openers’. At this stage you will now start to view the instructor as more akin to a prison guard, barking out instructions with the threat of a gun.

Do as you are told…

Your yoga journey will be complete when your instructor tells you to adopt the crow position so you can be ‘truly grounded and at one with the earth’. At that stage you will see the instructor as a predator, a carnivore about to feed on your lifeless and broken carcass . Don’t worry this is completely normal and just means that you still have 5 minutes to go before the session has ended.

Only 5 minutes to go before you have been properly tenderised.

I hope this has been of some use to you. Remember your body is a temple. Probably in urgent need of a preservation and restoration order. You can do this. NAMASTE….

Posted on by bereavedandbeingasingleparent · 65 Comments

Strain

After 36 hours the rain finally stopped. How long before the broadband dries out enough to start working again? My poor mobile and it’s dodgy 4G signal are having to try and take up the strain. It’s struggling.

Strain is a quite a good word for the day.

I was trying to do my Sunday morning yoga. My online yoga expert Adriene is always very calm but even she sounds strained when she keeps freezing due to signal problems. Yoga is definitely not without stress when I keep having to try and reload the app as it’s crashed. It’s also a strain when you try to keep balanced when a dog is trying to lick my face and the big boy cat is trying to use the yoga mat as a scratching toy. Yoga is supposed to be a good fit with life. It does feel that way. Today trying to hold a position which is supposed to be good for me. Actually the longer it goes on it feels less good and more a strain.

Strain….. Trying to be ahead of the curve and get Hawklads Christmas presents sorted early. This year will not allow me the fun of Christmas shopping in the local city so its online only. I worked hard to come up with 6 ideas. Unfortunately 5 of those are already out of stock. Maybe others are further ahead of the curve than I am … Shopping strain.

Strain…..Not being able to find my bank card to pay for the one Christmas item… Bank card strain.

Strain….. Finally finding the bank card but then nit being able to find my glasses to read card numbers… Eye Strain.

Strain….. That’s now three weeks without any feedback on work Hawklad has submitted. Is it even been looked at?

“Dad what we should do is for one subject not submit any work, rather we should send them a few screenshots of FIFA20. See what happens!!!!”

I’m so tempted to let him go ahead with his experiment. Maybe this week. It’s frustrating as it does look like it’s school at home for at least the next 3 months. Clearly unless the school is forced to shut and go full online tuition then things aren’t going to improve. This is it. It’s something but far from perfect. Will keep pushing school but I have a sinking feeling…. School strain.

Strain….. Trying to clean the kitchen and bathroom floors……. Knee strain.

Strain….. Trying to wash the house windows…….. Elbow strain.

Finally the thought of trying to get these words uploaded via the mobile. Not being able to easily read the posts I want to read. WP strain.

So yes definitely Sunday Strains.

Posted on by bereavedandbeingasingleparent · 62 Comments

Help

Sometimes you need help. Help with routine stuff. Something like Broadband. So Saturday brought a broken service. Our broadband doesn’t like rain. Certainly doesn’t like 14 hours of solid rain.

No service, no internet on an afternoon is not going to cut the mustard with a teenager. So it’s time to make the dreaded call to the BT helpline. One hour later I finally speak to a human who then decides to play me some more annoying music. Another hour later I’m handed to a service engineer. Having explained the situation in some detail to the expert he agreed to look at his system. After 20 minutes of much tutting the expert told me that the service was ‘not optimal‘. When I told him it was in fact ‘not working’ I never did get to hear his response. Rather an automated voice kicked in to inform me that the department was now closed and would reopen again at 8am on Monday. Don‘t you just love service…..

So we have resorted to my very patchy mobile signal as our broadband option. It kinda reminds me of what it was like a few years back with dialup internet. How did we survive.

Posted on by bereavedandbeingasingleparent · 58 Comments

Questions

This is a little tree which is close to our house. It sits at the side of the farmers field which backs onto our garden. It’s close by as a couple of my garden football shots have nearly hit it….. In the years that we have lived here it has never grown. It just seems to lean over a little further each year. I know how it feels…..

So many questions today. So many school work queries.

“Dad what are your thoughts on Gladstone‘s and Disraeli‘s political reforming achievements. They didn’t go far enough and do you think their colonial record negated what good they did do?”

“Dad what do you know about DNA structure and it’s impact on identical and fraternal twins?”

“Dad how would you write the mass of the earth in standard notation?”

“Dad in Animal Farm what does the character Moses represent and his relationship to Soviet history?”

“Dad have you ever studied John Agard’s poem FLAGS. Is it about the dangers of patriotism?”

“Dad I can’t get my head round French Verb Conjugation. Can you explain it to me?

As any self respecting parent would do I looked suitably vacant and thought wishfully back to the questions about which was my favourite Tellytubby. I was good at those questions.