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Autism

It was such a grey day today. Couldn’t find anything to photograph so let’s see what happened a year ago. So back 2020 and guess what was back!!!! After a few really bad storms our lake made a brief appearance.

One of the questions I’ve been asked the most by other parents and a few teachers (but interestingly never by family and friends) is

‘Does Aspergers get better with age?’Even occasionally the question becomes ‘will he grow out of it….”

For every polite question I have trotted out the same answer

The condition will not change but the personality traits may well fluctuate over time. Some traits may become less noticeable while others may become more pronounced.

There is research in this area but I will leave others to discuss that. I will stick to my well trodden line of each child and adult is unique. With Hawklad it is very much on par with my standard answer. Some of the traits have become less apparent as he has got older. Some of his old repetitive behaviours like hand flapping are hardly seen these days. Where’s as some traits like fixation on objects and constant motion have stayed largely the same.

But there are also existing traits which are becoming far more pronounced. Verbal stimming (repetition of words and sounds) has dramatically increased with him. Phobias and social anxieties have increased but how I’m just not sure how much of that is down to the pandemic.

Aspergers is very much who Hawklad is. It’s his personality. It is him. Sadly there is still too often a fundamental misunderstanding of what being on the spectrum actually means. Not enough understanding of what it is to be Autistic. We have such a long way to go as a society.

Posted on by bereavedandbeingasingleparent · 63 Comments

It’s cooking Jim but not as we know it

Warning this post contains some disturbing baking images.

This house had an idea. Some next level pancakes….

Not content with messing up normal pancakes let’s go a stage further. Pancake sandwiches. So what filling could we go for?

Chocolate biscuits. Carefully warmed chocolate biscuits. How hard could that be.

First Try….

Erm…. As Spock would say ‘it’s a chocolate biscuit filling Jim but not as we know it’.

After a number of other shocking tries we finally produced this….

We can officially call this a warmed chocolate biscuit filled pancake sandwich.

The message here. If keep throwing punches, you might be the worst boxer ever, but eventually one will land.

Posted on by bereavedandbeingasingleparent · 63 Comments

Searching

It is a beautiful planet.

What is never beautiful is my food skills. What words are more appropriate.

Abomination

Shocking

Horrible

Disaster

Dreadful

Petrifying

Well today I almost outdid myself. Nearly messed up the easiest thing. All I had to do was make strawberry jelly. The supermarket didn’t send the Jelly Cubes but that was not a major issue. I had rather cleverly put aside a packet of the powder jelly just in case.

So I came to make the said jelly. All I had to do was add boiling water, stir then put the bowl in the fridge. So I emptied the powder into the bowl, added the water and stirred.

Ok why is strawberry jelly brown coloured……

I continued to stir expected it to turn red eventually. No that is definitely brown. Now it was time to check the jelly packet. Ok ot was the same shape as a jelly packet. The same colour as the normal brand of jelly we buy. BUT the words STRAWBERRY JELLY did not feature that prominently. What did feature prominently was the words CHINESE BROWN GRAVY.

In my defence why would you put Brown Gravy in a bright Red Jelly looking packet…

Jelly is off today’s menu, Stir Fry is strangely very much on….

Posted on by bereavedandbeingasingleparent · 84 Comments

Monday morning

A Monday morning. A school at home Monday morning. Don’t you just love them….

“Dad have you got your thinking hat on yet….”

Do I ever have my thinking hat on

“Not really Dad but it’s another view on a tough question”

Ok I will make a hit drink and prepare myself…

Ok I’m braced now. Hit me with the question.

“How do you spell Trigonometry?”

Oh is that it. Wow I thought it as going to be a shocker. I’m almost happy. I can Cole with that. Life is good. Hang on why are you giggling….

“That’s not the question, thought I’d trick you”

Pants. You got me there. Ok what’s the real question.

“Its Religious Education. I have to discuss sexuality and homosexuality. What are the various religious views and discuss.”

Wow…

“Dad I think you would call that a 3 coffee question.”

It’s definitely is and it’s definitely not a question for an early Monday morning.

Posted on by bereavedandbeingasingleparent · 79 Comments

Daffodil

Look at this. The first daffodil. It’s always such a lift when they appear. The return of a bit of warm colour. Much needed. Can we now officially call it SPRING. For what it’s worth a quick and very unscientific check of the photos is telling me that they have arrived one day earlier than last year.

If only WP was that reliable. Scheduled posts not working. Finding it harder to post comments that actually appear. Random unfollows. Likes not working. Photos refusing to publish. Messed up editing. Yep I think the WP IOS app has beaten me. Need to get myself a better laptop and switch to the web based option. See if it works better with Windows.

But until then we will soldier on. Do what I can. Don’t get too worked up if it refuses to work properly. There a great quote from The Book of Joy. A quote which has Buddhist traditions but was also told to me bizarrely by a cricket coach who was talking about getting out of a bad run of batting form. Basically it says….. Pointless worrying about what you can’t control and why are you worrying about stuff you can control.

Ok let’s try to remember that. Forget WP and my troubles. Think about the things in my life that lift me up and that I love. That will help push the negative thoughts away for some precious moments.

We can do this.

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Mist

I don’t know why but as soon as I saw our morning sky I immediately thought of two opposing medieval armies preparing for battle. Just waiting for the mist to lift before they crash into each other.

Our area has had so many bloody battles dating back to Viking times. Who is to say that these very fields have not witnessed that grim sight.

Today’s grim sight was restricted to this unshaven, unkempt Bloke with zero fashion sense leaning against the fence. Coffee cup in hand, exposing his partly covered hairy legs to potentially the ghosts of the past. I guess in years gone by I would have opted for the kilt look. Need to get the air onto those ‘airy knees.

Mist is an apt way of describing my current thinking this morning. After a year of lockdown (now just two weeks short of that anniversary), I still can’t see the way forward. No nearer establishing when (or if) Hawklad will feel able to return to the outside world. Is it school or permanent homeschooling. Will my job survive. When will be our next holiday or excursion. Are my dreams on hold or permanently cancelled. Will I ever get to where my heart desperately wants to go. Is that it for concerts or football for us. When will we see friends and family. Is that it for hugs. Is the world still out there. Has anyone even noticed that we aren’t part of the crowds anymore.

A pandemic year and I still can’t answer those questions.

Mind and hope mist.

That is not a great feel.

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Cars

The Head Gardener seems to be enjoying his work…..

Don’t you just love cars. My car went into the garage to get its breaks fixed, the petrol tank made less corroded and then pass its annual test. The brakes and tank have been delayed since February due to parts being on back order. They can only be sourced from China for my car. Getting the parts was a tad difficult because of the pesky virus. Well a year later we tried again.

All good until the dreaded phone call. The petrol tank needs another part which is still unavailable from the Chinese supply chain. So the car has been partly fixed and partly patched up. It’s somehow fudged its way through the test. So I can drive it but not too far until the other part turns up.

Oh what fun. But as the car is doing about 0 miles a week at present. It’s not an issue.

However

What the Head Gardener is doing to the garden might be an issue.

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Weather

It’s horrid weather today so let’s go back a few weeks. That’s better.

I heard someone from the Government brush off a parent talking about her daughters genuine fears and phobias about returning to school. Her daughter doesn’t think her classroom and school is safe enough. From the sound of it her daughter is in a similar place to Hawklad. Really struggling. The interviewer cut off the parent saying that she was in the minority and the vast majority would see things much more positively. The message from the Government followed instantly. People and kids who had concerns and fears needed to listen to the majority. Schools are completely safe, just get on with it. Parents have an obligation to send their children into schools when they open.

Meanwhile back here the NHS Psychologist is just at the early stages of a treatment programme to try and help with Hawklad’s deep seated anxieties. No guarantee that the programme will ever work. This week’s task is for Hawklad to try and stand in the front garden for 1 minute. The message is don’t worry if you can’t do that. Even a few seconds will be a massive leap of faith. And if he can’t do it at all then we can try another week. Pushing people with significant fears and ingrained anxieties can do so much harm to their long term mental health.

The Government and the ‘Majority’ are not trained mental health practitioners. They have absolutely no idea what some people are going through. On this issue they can stand out in the rain and whistle for all I care.

Posted on by bereavedandbeingasingleparent · 46 Comments

Garage

Who would have thought a year a go that a trip to the garage would so resemble a decontamination scene from the movie Outbreak. You arrive and you are greeted by someone in a full face Perspex visor and gloves. A clear bag is held out at arms length for me to drop my car keys into. They are sprayed with something before the bag is closed. I’m asked a number of health questions and told to keep my face mask on at all times. Then ushered into the building through a roped off side door. I’m then directed to a clear screen and the masked service engineer discuss my 4 wheeled bag of rust. I’m then pointed to a tray with a car key – clearly recently sprayed. After I have picked the key up another person with full head protection takes through a separate door and pointed towards the service pool car parked in a separate roped off part of the car park. I’m then given verbal instructions on how to return with the car. I have to park next to the car wash in the roped off return zone.

Wow.

Kind of makes me wish I had cleaned my car now. It is a right state. Feeling guilty about that….

And if you think that’s decontamination. It’s not a patch on what I had to go through on my return to our house. Hawklad wasn’t taking any chances.

Posted on by bereavedandbeingasingleparent · 32 Comments

Pop Art

And still it shrinks. I’m going to miss it when it’s gone.

Back to school at home and back to the daily fun…. Started with the usual happy pep talk from a teacher. To paraphrase.

‘Remember I’ve set some work before the week off. It’s voluntary but I can see what people have done and how long you have spent on it. I am checking….I’m about to do your assessment….”

Ok….

Then I accidentally phoned the school. Who hasn’t done the ‘put the mobile in your back trouser pocket just to see how long it takes for your bum to unlock the phone and dial a number’ trick. The mobile can’t have been in the pocket for 2 minutes before suddenly I heard a strange voice coming from my nether regions. How is it that it takes me hours to figure out how to unlock the mobile, find the phone app, then repeatedly fail to type in the number. Yet my butt can unlock the phone and successfully call someone in a fraction of that time…..

So after I had apologised to school reception it was back to the usual fight with submitting pieces of work and trying to find the class work on Teams. Fights with explanations, hidden meanings and unclear instructions.

Quickly followed by the ritual Dad humiliation.

“Dad apart from Andy Warhol what other Pop Art practitioners can you name.”

Erm……..

“Ok can you at least name a few famous Pop Art pieces and before you say it, NO Godzilla doesn’t count.”

Erm there was that picture with about 100 Madonna’s replicated.

“Dad. You mean Monroe and it was 50 times…”

That’s the one. Then there was the soup tin. Erm Andy Warhol was in Men in Black 3, does that count?

So basically no help…….

But maybe my backside could become Pop Art. Probably not. Not sure how big the canvas would have to be to get 50 replicas of my butt on. But if they could then I could literally be sat on an important piece of avant garde culture. Sat on a fortune.