School, school, school

Captain Chaos is carefully guarding his new great tasting toys.

That Apple Tree needs a serious trim. I had a go today. Managed to fall out of the tree. Bruised shoulder but the fall ended with a fabulous forward role which was perfectly landed. The boy has still got the moves…..

School definitely still has some moves. Sadly not always great ones.

We are in the early stages of a long road trying to manage and help with our son’s serious anxieties. Anxieties about illness, unclean things, viruses and diseases. It’s so easy to tip him further into the realms of excessive hand washing and isolation. Yesterday started off heading a little too close to the rocks. News broke that the small local cafe had to close as two members of staff had tested positive for the pesky pandemic. I’ve managed to keep that from him so far. I can imagine his reaction to the thought that the pandemic was only a couple of miles away.

So while I was managing the news – SCHOOL got to work. Firstly an email was sent to him letting him know that the virus had arrived at the school. Then we got to the Food Technology lesson. All about poisoning, bacteria and viruses associated with food. James was asked to research the main offenders, the symptoms and the associated health risks. So now food has been added to his worry list.

A rather cheesed off email was sent to school…..

And today in Science it was all about diseases. The class being asked to research childhood diseases and viruses. Further they were asked to look at the risk of inherited medical problems.

Thanks that was a big help….

You couldn’t make it up…..

Strain

After 36 hours the rain finally stopped. How long before the broadband dries out enough to start working again? My poor mobile and it’s dodgy 4G signal are having to try and take up the strain. It’s struggling.

Strain is a quite a good word for the day.

I was trying to do my Sunday morning yoga. My online yoga expert Adriene is always very calm but even she sounds strained when she keeps freezing due to signal problems. Yoga is definitely not without stress when I keep having to try and reload the app as it’s crashed. It’s also a strain when you try to keep balanced when a dog is trying to lick my face and the big boy cat is trying to use the yoga mat as a scratching toy. Yoga is supposed to be a good fit with life. It does feel that way. Today trying to hold a position which is supposed to be good for me. Actually the longer it goes on it feels less good and more a strain.

Strain….. Trying to be ahead of the curve and get Hawklads Christmas presents sorted early. This year will not allow me the fun of Christmas shopping in the local city so its online only. I worked hard to come up with 6 ideas. Unfortunately 5 of those are already out of stock. Maybe others are further ahead of the curve than I am … Shopping strain.

Strain…..Not being able to find my bank card to pay for the one Christmas item… Bank card strain.

Strain….. Finally finding the bank card but then nit being able to find my glasses to read card numbers… Eye Strain.

Strain….. That’s now three weeks without any feedback on work Hawklad has submitted. Is it even been looked at?

Dad what we should do is for one subject not submit any work, rather we should send them a few screenshots of FIFA20. See what happens!!!!”

I’m so tempted to let him go ahead with his experiment. Maybe this week. It’s frustrating as it does look like it’s school at home for at least the next 3 months. Clearly unless the school is forced to shut and go full online tuition then things aren’t going to improve. This is it. It’s something but far from perfect. Will keep pushing school but I have a sinking feeling…. School strain.

Strain….. Trying to clean the kitchen and bathroom floors……. Knee strain.

Strain….. Trying to wash the house windows…….. Elbow strain.

Finally the thought of trying to get these words uploaded via the mobile. Not being able to easily read the posts I want to read. WP strain.

So yes definitely Sunday Strains.

Next stop

Ever got the urge to keep opening those gates. To just keep walking in one direction. To see what you find. No boundaries. No limits. To be free.

One day I will walk to the next stop.

Now if I packed enough egg sandwiches and tins of Pepsi!! then I will eventually arrive at the city of a Hull on the North East Coast. If I have been very organised and packed my floatation rings then it’s next stop Amsterdam.

What’s the next stop on the school at home journey?

I think Hawklad is now starting to realise that a return to school this month is out of the question. His fears and anxieties are not going to be overcome within weeks. So now he is starting to look at January as the next window of opportunity. So it’s looking like another 3 months of school at home (at least). We will continue to try to stick with the school teaching schedule. Cover the subjects they teach. Use whatever teaching materials they make available. If they don’t then we won’t lose any sleep over it. That’s more time for him to try and relax. To try and enjoy life. It’s often easily forgotten that too many are losing out on huge parts of their precious childhood. It’s not all about formal schooling and meeting government targets.

So be it. We have got this.

It’s completely his call. He decides what the next stop is.

Changes

Definitely it’s a time of change. The season of change. Yesterday was T-shirt and shorts. Today is wet, windy and chilly. 50F probably means the T-shirt season has gone and it’s time for woolly jumpers. Ice Cream replaced with Hot Chocolate.

It’s that time of year.

Four years ago I would have been sat at home looking at the ‘Sincere Condolences’ cards on the mantelpiece. It was a couple of days after my partners funeral. Life was looking bleak. But as the years pass this time of year has increasingly felt like a time of personal change. The end of a period which marked the passing of my partner and mum. A time of sadness moving to thoughts of preparing for winter and all that entails. Thoughts of loss replaced by thoughts of short days and long nights. This year is complicated with our ongoing lockdown which is likely to stretch through the entire cold months. So yes this period of change feels different . Definite change but what? In previous years the next few months brought challenges but also things to look forward to. Concerts, Football Matches, Firework displays, Halloween parties, family meet-ups and meals, Christmas Markets, crisp winter walks and runs. This year these are all none starters. Could that tip the balance of the change. Only time will tell but the change is not yet set in stone. It can still be a positive period but it will need much work.

D

Insignificant

It’s a big sky. Its easy to feel very small and insignificant stood under it.

There are so many times when parenting is the best gig on the planet. Then there are other times…

I was trying to convince our son that he had washed his hands enough. He had been at the soap and water for nearly five minutes. Everything I said didn’t seem to have any impact. Finally he decided that was enough. He asked if the towel was clean and had it been washed that day. I assured him that was the case. He left the bathroom and I looked at his hands. His very red and sore skin. That’s what happens when you wash as often as he does. We are using skin friendly soap. I water it down further. But his hands are still red. I encourage him to use his skin care lotion. But his hands are still sore.

These are the times I feel inadequate as a parent. Missing the support of another person. Someone to share the load. Definitely running out of things to try. Actually ran out of things to try. His health professionals try to help but they see this intrinsically linked to the pandemic. Get the pandemic under control and we can start to bring his hand washing under control – hopefully. But that doesn’t make me feel any better as a parent. Feels like I had one job and I dropped the ball on it.

So I’m stood under that big sky. Feeling insignificant. Time to breathe. Reset and go again. Yes significant but definitely not beaten yet.

It has started

I love the Autumn colours. The hot chocolate. The coming prospect of winter sports on the telly. An excuse to snuggle into warm, thick jumpers (sweaters). The dark skies filled with stars.

Some things I don’t like so much.

The dark days. The sense of isolation. The sense of foreboding. The rain. The mind numbingly cold wind. The rain seeping through the back door.

AND the leaves. Thousands of fallen leaves. For some reason our garden is seemingly the final destination for all the trees in the area. Today I looked at the neighbouring gardens, at most a couple of lonely leaves – all missing their buddies. Well I can tell them where they are. In my garden….

So it has started. Going to get a lot worse, well in our garden anyway…..

L

Grouse

Most definitely not like this today. The strange yellow thing in the sky has most definitely gone on holiday. Hopefully not a long one.

Currently I am looking out of window into the rainy garden and thinking. I’m guessing this home at school project has many months to run. As a single parent it’s trying to get my head round the logistics of that. At present there is not much work and what work there is can be done at home. Shopping can be done through a combination of home delivery and very quick trips to the small local store. But what happens if I need to make a longer trip out. Hawklad is not comfortable at all being left alone.

The options are limited at the best of times and these are not the best of times.

Normally our options would be one of two sisters (but one-off those is 2 hours drive away, and both don’t drive) and a couple of local parents who have known Hawklad since the age of 5 (they are busy so are not often available). Unfortunately under the new Government Lockdown rules all four options are now banned. Breaking those would leave us open to heavy fines. The Government has even encouraged people to contact the police if neighbours flout the rules. The irony here is not lost, flouting rules if you are a member of the government or the dad of the PM is said to be entirely reasonable. Under the new rules our only option would be for a grandparent to stand in. Unfortunately ours have all left this world. But here’s another irony, those grandparents would fall into high risk groups. Those who should be shielding. Are grandparents seen as expendable….

The other irony is that those who would be an option before they were banned fall into much lower risk groups. They can’t babysit for us but I could go to work with them and sit alongside them in an office – that’s apparently fine. We could even put on green camouflage and go grouse hunting together without any punishment. Maybe that’s the childcare answer, we set up a grouse hunting lodge in the garden. The first ever vegetarian one….

Odd sandwiches

The one thing that you get used to as an Aspergers parent is routine. Lots of routine. That’s tough for parents like me as I am not really a routine person. I’m a bit more impromptu. Bit more going with the flow, see what happens person. Maybe some would call it winging it. Which is most odd. On most of the old Aspergers tests I would score very highly yet on one I was way down. Routine.

On this Hawklad is completely different to me. He needs his routine, his order, his plans. He needs to have that safety net and he needs to follow them. It’s reflected in so many things. If we are driving somewhere then we need to follow the usual route, even if that means a much longer journey. He likes to wear the same types of clothing – if he grows out of them then we need to replace with almost exact copies. He has a TV and movie schedule which he sets way in advance. We will often watch the same movie over and over again. School lessons have to follow the timetable without variation. We need to buy the same types of pens and pencils. He likes to go out in the garden and talk at the same times. He doesn’t like me to do things like change my hairstyle or try new clothes. It’s funny I’ve been wanting to shave my hair off for years but that’s just not allowed.

Break the routine and he is immediately hit with waves of self doubt and fear. Over the years we have tried to work on this. Slowly trying to introduce change. Occasionally trying to introduce unplanned but definitely fun routine changes. But it’s never really worked. Routine is just a key part of who Hawklad is.

Another area of much needed repetition is food. He has the same seven day food menu. The same foods on the same days, year after year. Trying new foods is just not something he does really. Normally ends in failure.

Dad what on Earth is that.”

It’s a sandwich.

Yes I can see the bread but it’s what is between that which is the worry.”

That will be cheese and onion crisps. It’s going to be one of the great gourmet experiences. A crisp butty. A crisp sandwich.

Really. That is just wrong on so many levels.”

It’s fantastic. Go on try it. It’s a family tradition. Your Little Nan would always be treating herself with one. But her crisp butty would be made with Ready Salted crisps.

Just No Dad.”

Ok. But if it’s not a crisp butty then what about a chip butty. A sandwich made from fried chips (fries) with heaps of tomato ketchup. Another true taste sensation.

Erm NO. You can keep that as well.”

Ok Hawklad what about a fish finger sandwich. Fantastic.

Not happening. That’s a tradition which is not passing down the gene line anymore. It ends with you.”

Working hard on harvesting

Apparently we are enjoying the last few days of summer weather. It’s kinda sunny and kinda warm – if you ignore the cold wind. The forecasters are warning that soon the weather will be most definitely very different. Very cold, wet, grim and grey. As a result the farmers around here are desperately trying to get on with stuff. Even working when it’s dark.

It’s also time to start harvesting our own little garden crop. Today it’s a few apples, onions, carrots, tomatoes and potatoes. Some have done better than others……

Can anyone speak carrot. What’s the carrot for ‘you do know this is Yorkshire and you are about to be given a right weather spanking. You don’t have months of sunny growing weather left, you have no more than 3 days. So get a move on….’

Why is it so simple to grow weeds yet those so called easy grow carrots prove so pesky. It’s as if the carrots pop out of the seeds, feel the Yorkshire soil and go ‘YOU HAVE GOT TO BE JOKING’.

So if the carrots play ball then we are moving into a spell of living off stews, soups and apple crumble. I can happily live with that. I’m always thankful for whatever the garden yields. It does have to contend with the muppet gardener and Captain Chaos.

So yes it’s that time of year. The weather starts to break OR in our case, break even more. It starts to get colder and darker. For many it can be a tough change. Heralding a long period of what feels like ever increasing claustrophobic imprisonment. Me included. That’s where friendships, happy things and dreams are so important. They can help soften the sadness, even lift us into a better place. So for me it’s time to increasingly focus on those things. I can’t do anything about the weather but I can do influence the truly important stuff. Soon the autumn colours will become spectacular. The important stuff can lift the soul. Yes the following months can be bleak BUT they can also yield so much beauty and wonderful moments as well

Now it’s time to give those carrots a good talking to.

Pointing

One of the advantages of exercising first thing in the morning is once I’ve finished I get a chance to enjoy the view. It always amazes me how damp our ground can get when we have had no rain for days.

Clearly it’s very easy to feel damp. The weather can cause such sudden changes. It like life and the soul.

I was putting together a post for tomorrow. A Swiss Sunday post. Looking through some photos. Then I came across one. Looks like one of those family photos. I’ve cropped this one down severely. The photo is my partner sitting next to our son on a bench.

How had I missed this photo for so many years. It’s from 2015 and our last trip to Switzerland. The last day of the trip. My partner was not very well and on a lot of medication. We didn’t know how ill she was. The doctors didn’t. Exactly one year later she was in a hospice and she was gone a few days later.

Finding this photo shook me in two ways.

Firstly this might be our very last family photo. The last photo of Hawklad with his mum. Don’t think there was another photo with my partner in. I had never thought about that . Never thought about the last photo. Well this is probably it.

Then there is one more thing about this photo. A completely forgotten memory. It’s what my partner is pointing at. I think she knew what was on the horizon. That afternoon we randomly seemed to get onto the subject of where she would like her ashes scattered. She is pointing at one of the places . A rocky outcrop overlooking a beautiful lake. It wasn’t a serious conversation. Our son helpfully suggesting some interesting places to consider. I didn’t take it seriously. We surely had many years to go. Finding this photo has really shaken me. As I say I had forgotten about the photo. I didn’t know she was actually pointing at where she wanted her ashes scattering.

I really don’t know what to say.

One thing is that it’s a beautiful location.

I wasn’t sure about posting this at all. But what did convince me was one thought. You just don’t know what is around the corner. Don’t assume you have time. If you have dreams to live, don’t wait, try to do them now.