Posted on by bereavedandbeingasingleparent · 51 Comments

Service

Maybe I can call our little part of the world a Rose Garden. Makes a change from Jungle or Weedville.

Well so far we have survived the boiler service. The chap turned up and to be fair to him, he did use a mask and gloves. He did confirm that it wasn’t me being a muppet. It had fuel. It was turned ON. He explained that it was the oldest boiler he had seen in ages. Possibly over 40 years old. It’s poor motor had finally died. Unbelievably he found a replacement motor in the van that just about fitted. So with a hefty bill winging my way he departed. Apparently after all those years it is still working at 90% efficiency. Wish I was that good at 40.

The thought of an outsider entering the house sent son into an anxiety meltdown. Unplanned visitors is not easy at the best of times for someone with Aspergers. But during a pandemic…..

To try and keep a lid on his anxiety we agreed a decontamination protocol. Thankfully this was carried out to the letter.

  • The service person wore masks and gloves,
  • He only entered the house via the back door,
  • He only ventured into one room,
  • After he finished I quickly disinfected the room and the door he used,
  • That room and that side of the house was then closed off for 3 days,
  • As was the path which the serviceman walked across,
  • I than had a shower and completely changed clothes.

It might seem OTT but to our son this was the bare minimum which was acceptable to him. His way of protecting his safe place. He will be much less stressed out when that part of the house comes out of lockdown. Later we had a chat about all things pandemic and his anxieties. Clearly we won’t be dropping our local procedures for a considerable time. Putting aside the merits of homeschooling debate, I just can’t see how he cope function in a public environment any time soon. Certainly not in a crowded school at the start of September. Thankfully the concerts we were due to see have been cancelled. (The Who, Whitesnake, Foreigner, Europe, Aerosmith, Hollywood Vampires). We are down to just two in October now. Deep Purple and Ozzy. But I just can’t see them happening as well.

So maybe we start to adopt a mindset that actually our enforced house and garden lockdown will last into 2021. Will need to think about that. What additional things do we have to put in place to ensure that we both can continue to enjoy life for all those months. Maybe that industrial sized ice cream and slush puppy machine is not such a far fetched idea……

Posted on by bereavedandbeingasingleparent · 81 Comments

Another day

Another hot one. One more day then proper weather sweeps back in.

Maybe it’s the heat. Maybe it’s overthinking. Maybe it’s these crazy times. Maybe it’s lack of sleep. Maybe it’s feeling just a little bit alone in this fight. Maybe it’s just one of those days. But today has been on off day. A down day. A misfiring day. A depressed day. I get these days. Not as many as I used to but it doesn’t really help when they strike. These days it definitely feels like good weeks and bad days. So it’s a bit of a surprise when the bad days sneak up on you. All the more frustrating because there is not a definite cause. No warning. Just wake up feeling this way.

A day when

  • The mojo has gone on holiday.
  • Life feels hard and unremittingly uphill.
  • Just feeling yucky.
  • Everything is an effort.
  • The daily workout was completed but never got out of 1st gear.
  • You just want to sit and slouch.
  • That smile is an effort.
  • Routine things become annoying.
  • Those various body injuries just hurt that little bit more.
  • An old photo which made you smile yesterday today brings a tear.
  • That inner demon is just a bit stronger today. The negative voice is just that bit louder.
  • Definitely a little snappy and quick tempered.

Basically low and deflated. It will pass but until it does then it’s no fun. I was going to swear but I won’t. Let’s get through the day and see what tomorrow brings. If it’s the same feeling then maybe a bit of shock therapy is required. I think I will ask son to fill a huge bucket with cold water then fill it with ice cubes and whatever else he fancies. Then he can dump it over me. It worked last time I was like this, maybe it will work again. Only one way to find out….

Posted on by bereavedandbeingasingleparent · 67 Comments

Wembley

The Yorkshire version of Wembley Stadium. Can you spot the pet trying to once again sneak into the photo.

Even comes with a discerning crowd.

If Aspergers Parenting was a football game, well today feels like we have had a key player sent off….

I always naively assumed that if and when son got an official diagnosis then a support package would be out in place to help with his life chances. How silly of me. I didn’t count on year after year, having to fight the system. Trying to prize just the hints of support from a system which has been hammered into the ground by a Government which only looks after itself and it’s friends. To summarise

  • A school system repeatedly fails kids who do not fit into the factory production line which is the UK school system. Two options, either fight for a place in one of the few special schools or accept your child being bracketed as ‘low attainment’ and consigned to the bottom set. The school will then forget about the child and then pat itself on the back if the child gets just one certificate.
  • Letter after letter, call after call trying to find a clinician who is prepared to look at your child’s case.
  • Passed from specialist to specialist who don’t have the time or resources to add your child onto their case load.
  • Service after service cut by a Government which believes that only the rich should be able to buy access to essential healthcare. A Government that sees Mental Health as no more than an excuse to avoid work. Let’s not forget they described a child taking time off from school after a bereavement as an extended holiday.
  • When you do finally get access to a service you then join the growing waiting list. Finally when your child is seen it’s virtually always by someone new, with no understanding of the back story.
  • Finally your child starts to get older and the few services he has had access to are withdrawn as he is now above the age threshold. You see the Government likes to think that after 13, services are pointless and far too expensive. Adults have to sort themselves out.

We have had three brilliant exceptions to this.

  • A Clinical Psychologist who worked with out son consistently for three years. She even delayed her retirement to ensure son’s diagnosis was officially approved.
  • An Occupational Therapy service that worked with him every few months to help with things like coordination. A service which was cut when he reached 13.
  • A wonderful Nurse Counsellor who worked with our son for 3 years helping with his anxieties and joining the fight for additional help.

We entered June 2020 with just the Nurse Counsellor left from his entire care package. And now the player is sent off.

The Nurse phoned today to let us know that she had been reassigned. She is great and some other kids are really going to really benefit from her time. We are eternally grateful for everything she has done. She is going to desperately try to find another clinician to take over from her. I know she will really try. We may get a replacement. The Nurse was the only clinician he really has connected with. Those connections are rare for him. Making a new connection is going to be tough and most certainly not guaranteed. As the Nurse said it feels like we have lost the progress made over the last few years.

Today feels like one of those tough parenting days. As a friend wrote recently we pick ourselves up, dust ourselves down and start again. We most certainly do. But it feels like it’s a much depleted team taking on the struggle. Forgive me I’ve not used a Lord of the Rings metaphor for a while. It feels like the heavens have opened. The hordes are massed outside the walls and I’m stood alone on the Battlements of Helms Deep. Just me protecting our son now. Doesn’t feel like Gandalf is riding over the horizon in the morning. I’m going to have to just find a way of doing this myself.

I’m off now to kick the ball into the net a few times. Maybe with a bit more force than usual. Then the fight starts again.

Posted on by bereavedandbeingasingleparent · 101 Comments

Fragmented

Good to see the local motorway is busy…. It’s still too busy for our son. I got special dispensation to step 10 yards out of the front gate to take this photo. Life on the edge.

It really does feel a bit like that at present. On one hand we have what apparently counts as our Government rapidly relaxing restrictions and on the other hand kids like our son….

His social and health phobias are in a pandemic fuelled maelstrom. Every few minutes he feels the need to wash his hands. To repeatedly rinse his mouth out. The fear of germs and hidden dangers becoming a real nightmare for him. He struggles to touch items like taps and handles. Even putting potentially unclean shoes on is a challenge these days. Deliveries have to go into garage quarantine for at least 4 days. Clothes need changing every few hours. And then another spanner in the works. The old house boiler completely failed. So a service call out is required. It’s now way beyond a temporary Dad patch up. That means an additional new threat to sons safe area. A house visitor! After much discussion we agreed a plan. The service engineer would come into the house only via the back door. The engineer must wear a mask at all times. I will keep 2m away from the engineer at all times. When the work is finished we will effectively lock down half of the house. We won’t venture into the areas the engineer visited for three days. Not ideal but it’s a plan. Son’s stress levels will rise but hopefully not too far. The damage to his safe area minimised.

Yet individuals like our son are expected to just re-enter the world by July 4th. The date our part time PM is declaring as the day he defeated the virus. The date he can heroically restart England. It’s perfectly fine to open overcrowded public schools in September. A few more hand sanitisers in the corridors and relaxing the rules further to allow for even larger class sizes to cope with increased teacher sickness is now the best way to deal with a pathogen. We are told ‘everything is now fine’ by the very leaders who have been proven to be wrong on virtually every single major decision they have made over the last 6 months. The very leaders who now widely seen as charlatans and pathological liars. People see this. Our son sees this. This just adds fuel to his anxieties. It’s making a bad situation even worse.

So when England reopens on the 4th July a small bungalow in Yorkshire will not. It stays on lockdown until son is able to face the world again. Who knows how long that will take. Much patience is required. We won’t be the only family facing this prospect. Again my country further fragments. I’m not entirely sure it’s ever really going to come back together again.

Posted on by bereavedandbeingasingleparent · 90 Comments

Donuts – Really

July will see the second Great Bloggers Bake-off (18/19th). This year it’s a massive picnic. So in the spirit of things here is this weeks baking submission from Yorkshire. Oh it’s a doozie….

These are supposed to be donuts.

As son rather harshly pointed out.

“Looks nothing like any donut I’ve ever seen…”

“More life a UFO”

“Your not going to get much Jam in that one…”

Well I think I’ve set the bar very high on the donut front.

Remember the Bake-off is for everyone, including those like me who can’t bake. It’s not often we get a chance to show off our complete incompetence in the kitchen. Lets embrace our inner baking muppet. Let’s have a laugh and give everyone a giggle as well. You know it makes sense.

So from now until the big weekend I am going to do at least one bit of baking each week. No practice runs. Photograph the disaster.

Remember to send in your baking creations (you can start early) to Mel so that they can be featured in the Great Bake-off.

crushedcaramel@gmail.com

Posted on by bereavedandbeingasingleparent · 56 Comments

Needs work

Another moody Yorkshire summer afternoon. Everyday it’s such a blessing to wake to this view. No wonder my partner fell in love with this house within seconds. And as ever she was on the right side of the conversation. The ‘needs work’ line was a little weak. Actually it still needs work but that view is still here. Tell me what’s more important.

Looking back my line about ‘needs work’ was more about avoiding change. Sticking with what we had. Avoiding that leap of faith. That’s been a theme of my life story so far. I always think my past climbing hobby is a perfect reflection of life. Many goals set but never attempted. It was easier to avoid them, find excuses. Too much caution climbing routes. Using fear and self doubt as an excuse to avoid those more challenging climbs. Backing away from leaps of faith. Yes I had fun but what could have been.

Now the life safety net has been removed. Single parenting and being without that person who held my hand on those big steps. Life has changed but so am I. It’s a slow process but it’s happening. Now is the time to face some of those fears which have held me back. Time to start ditching those constraints that have grounded me. Time to re-evaluate myself. Only by doing that can I be that parent our son truly deserves. Yes the one who protects him but the one who also encourages him to truly flourish. To be that person who he truly wants to be. To live his life.

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Rain…

Rain, rain, rain.

Chucking it down.

Raining cats and dogs.

Hammering it down.

Siling down.

Bucketing down.

Teeming.

Nice weather for ducks.

I think we are moving from weather for ducks to weather for fish. It’s a good job we are on top of a little hill. Any lower down and we might be considering a life raft.

“Dad what are you doing?”

Listening to the rain.

“Why?”

Because it’s almost hypnotic. It’s kinda nice.

“The only reason I would listen to the rain is to workout when it’s stopped…. Dad I‘ve got a little question….”

He does have a point with listening to the rain. That last line is his favourite saying. He is always asking questions. Dozens and dozens every hour. When he says a little question he really means one question followed quickly by a bombardment of another 30 questions. Random questions to me but completely linked to his way of thinking. Often it seems like the same question but in fact each question is subtly different. Questions followed by a chance to demonstrate his Dads rather sketchy knowledge in these areas. Then a chance for son to instruct his Dad. This happens always in the garden, every day. If it’s raining then on go the coats.

Today it was three hours of football and fantasy world related questions. Looking at player stats, team records, form, tactics and formations. Intertwined with questions about characters, storylines, plot arcs and new worlds. Yesterday it was 4 hours of questions about politics and history.

Over time the daily fact and knowledge bombardment can tire my mind. Lack of sleep doesn’t help. Two parents allowed some time to share the questioning. A time to rest the mind. But it is what it is. Constantly walking about and hot drinks keep me going. But here’s the key thing to remember. It’s an absolute privilege to be granted this time with our son. To be welcomed into his world. A beautiful world which is more pure than ours. It’s what life is all about. So yes it can sometimes feel like it’s wearing me down BUT I wouldn’t swap it for the world.

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Not my berries

Wild strawberries get everywhere. Now they have found a way into the large tub which contains the old blueberry bush. This raises one of the great life mysteries. Wild strawberries are cropping up all over the garden. Even on the stone drive. Yet I find it impossible to grow them when and where I want them to. Nothing ever happens with my strawberry seeds. Most frustrating….

So officially no work until September at the earliest now. I guess it gives me more time to tend my strawberries. But we are SO fortunate compared to many others. We have beautiful memories. We have a nice (if slightly chaotic) garden with a lovely view. We are relatively secluded. Son can feel safe here. We can scrape by and pay the bills. We can still have fun and enjoy life. Yes another 3 months of this self contained world can at times seem a claustrophobic thought. But that thought is there only if I let it exist. In reality I’m losing a few brief encounters, some knee jarring runs and an occasional trip out. Counter to that – Son is gaining a feeling of security. For that security I can more than cope with a few inconveniences. Everyday we still have the ability to create memories and live out our dreams. Maybe not my frequent night dreams featuring talking cows and dinosaurs. But you know what I mean.

So let’s be thankful for what we have. Let’s use what we have. Let’s remember to live.

Let’s take the time to watch the wild berries grow…

The other thing about the wild strawberries is that they don’t last long. The are stripped bare by our frequent garden visitors. That’s fine with me. I guess they were the ones who brought the seeds here in the first place. So they grew them, so why not let them enjoy the rewards. And the answer to the great life mystery. I should leave the gardening to the experts. The wildlife. Having said that – they don’t seem very willing to cut the lawn.

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Pathway

The gap between the hedge and the Apple tree has basically disappeared. All this enforced time at home and somebody has been neglecting the garden. Unbelievable. But I quite like the results. Often it’s best to let nature takes its own course. So much easier that way as well…..

Every second Wednesday is becoming a right bind. Our bins are emptied every two weeks. This includes the garden waste bin. So when it comes to the day of putting out the bins I get that sinking feeling. Please let the green bin (now a brown bin for some reason) be at least half full. When I open the lid, I want to see plenty of grass cuttings, hedge trimmings and pulled up weeds. I want that feeling of elation that comes from two weeks worth of gardening. So I can close the bin lid and wheel it out onto the road. A job well done.

That’s the theory.

In practice I open the bin lid to find its completely empty. Oh big pants. Now I feel bad. I clearly have been wearing my laziest big pants. The inner shame drives me to fill the bin before the refuse wagon arrives. This being Yorkshire means a mad couple of hours gardening in driving rain and hail. That regular routine was repeated this morning. While I’m fighting the gardening elements I can hear my Mums words echoing around my exceedingly wet head. You just need to do 10 minutes a day of weeding and you get the perfect garden without breaking your back. One day I will follow this sage advice.

So the bin was filled. It was wheeled out onto the road and it felt like that was the gardening done for another two weeks. See I never learn.

Posted on by bereavedandbeingasingleparent · 68 Comments

Useful Book

Yes we can do blue skies…..

It didn’t last long but it was most gratefully received.

Trying to facilitate son’s return to the big bad world is not going to be easy. It’s going to take a long time and much patience. It has to be done at a pace which he is comfortable with. That’s the plan but then the real world comes a knocking.

His fears of bugs and illnesses have gone into overdrive in 2020. Can’t think why! We have established routines for accepting deliveries and post. Any trip through the front door requires what feels like full biological decontamination protocols. It’s not really about blocking out a virus, it’s about managing anxiety.

Over the last three months we have managed two very short circular car drives. But now we face our first real test. A phone call from my garage telling me that finally an essential car part has made its way from China. So it’s time to get the car’s breaking system fixed. So on Monday I have to drive 20 miles, drop off the car and pick up a garage pool car. Then later in the day return to the garage and pick up a fixed car. Normally this process would be done seamlessly. Now it’s a logistical and anxiety nightmare.

Does son stay at home while I go to the garage? On my return I can undertake full biological decontamination. Son struggles with being alone. He will be stressed out with being by himself for a couple of hours. He will be super stressed out with my exposure to the real world.

Or does he comes with me? Yes that avoids the stress of being alone BUT…. Suddenly son would be exposed to the real world. And lots of it. A garage filled with strangers. A pool car which will have had other people sat in the seats. Touching the surfaces. Another stress inducing nightmare for him….

So currently I don’t know what will happen on Monday. I’m getting stressed out trying to run through all the possible logistical permutations. But that pales into insignificance to the bucket loads of stress which will be hitting our son. Again I can’t find a helpful section on this in the How To Be Parent Book. One day someone is going to make a bucket load of money writing this. Well if they could get it published within the next few days you can count on one sale from me…..