See the sun does shine in Yorkshire – occasionally.
How can baking be so hard. Everything seemed to be going so well and then you end up with very odd shape bread. One day, one day.
Maybe I can blame these baking woes on a lack of sleep. At least it ended up tasting ok. So it’s kind of a result.
I was sat drinking my herbal tea and having my misshapen bread with some hummus. Really, is this what life has become….. sudden urge for proper coffee and a sausage roll. But that is life currently for me. I might wish for something else but circumstances dictate otherwise. Wow that feeling could cover so many things. But at that precise moment my eyes wandered to a book on the table. A book about Ski Jumping. One small dream is remembered.
I have always wanted to go to and see just one Ski Jumping competition. Have never got round to doing that. Circumstances have repeatedly prevented that. Now as a single parent with a son who struggles to get to the front gate of the house, those circumstances seem to be even more insurmountable. Another winter will pass. It’s definitely not happening this season. Maybe not for a number of years.
Yes it’s a little deflating but don’t get me wrong. That dream hasn’t died. It’s still there. Still cherished. The future still offers hope. Just have to deal with the here and now. In all likelihood autumn and winter will see no real change in our circumstances. The next 6 months will be largely restricted to our house and garden. Very few social encounters. Single parenting day in day out. More days of dodgy bread and hummus lunches. But it is what it is. Will just deal with that. But I won’t forget those special dreams. That what keeps me going.
So here I go again. Starting another grief year. This will be the fifth one. Grief is not something that suddenly stops. It changes, it evolves but it doesn’t leave you. It becomes part of you. It’s part of me. It will always be part of me.
I remember back in 2016 thinking Life had made a terrible mistake. The roles should have been reversed. It should have been me that went first and my partner became the single parent. I must admit I had the same thought a few hours ago. Why her and not me. For whatever reason it just happened that way and I’ve had to get on with it. But it doesn’t stop me thinking that especially on the anniversary. These days I realise that I will never know the answer. It just happened that way. The key is make sure I’m the best parent I can be for our son. My partner would have done exactly the same thing. Being that parent will not happen if I am constantly inward looking. So let’s put that question back in its bid for another year. Let’s get on with the fifth year of grief by focusing on the here and now. Yes it’s the fifth grief year but more importantly it’s the fifth year of being a single parent. That’s got to continue to be my focus.
I accidentally stumbled across a social media post from a parent from Hawklads school. It contained a photo of a trip to the beach whichsome of the families had made last week. Clearly having great fun. It will do the kids so much good to start living again.
I was so happy for the kids and happy for the parents. They are really nice people. They deserve fun.
But the post brought a touch of sadness. Wouldn’t it have been lovely if Hawklad had been there. To be with kids his age. Enjoying himself. Enjoying being a teenager.
Actually it would have been good for me as well. The last time we went to the beach with other families was 2015. I’ve kind of forgotten what the feeling must be like. You get use to the isolated life style. It becomes all consuming. It becomes who you are. Back in 2015 I remember turning up. Watching Hawklad play with the other kids. The parents had a barbecue. We played games and sand cricket. Built sandcastles. We talked, laughed. We hugged.
But that was then. It’s 2020 now. Different world. It was a different world even before a pandemic. The last time I actually hugged someone was at my partners funeral. That’s virtually 4 years ago. It’s 5 years since we went to a meet-up with other families.
Not what I expected. I was sure this was a yellow rose last year!
It’s definitely red.
I was reading an article about the main things that have surprised people about the Pandemic and it’s impact on lifestyles. The author went for 5 things – Boredom of not physically meeting people, missing going to Pubs, Parties and Restaurants, missing playing Golf with friends, how hard mask wearing is and how much she misses going on holiday.
Ok let’s have a stab at this. What are the five things which has surprised me about the Pandemic. What was I not expecting.
The impact that just not being able to buy just a few of the useful foodstuffs can have on mine and Hawklads life,
How quickly you can settle in to new ways,
How much money you save if you avoid going to shops,
The way days and weeks can just merge into each other if you take out things like the school run and most shopping trips,
Just how difficult it is sometimes balance homeschooling, with work, domestic duties and things like running.
I guess a fundamental difference between me and the author is circumstances. She and her husband both work. They have one kid of a similar age to Hawklad but that child seems to spend a lot of the time with friends and doing group activities like sport. They use babysitters to allow for frequent social activities for her and hubby. So yes the Pandemic will have a major impact on her family’s social life. I can so understand why she would list those five things.
My life is currently different. I am a single parent to a kid with Aspergers. Even before the Pandemic I was partly cut off from society. Enforced isolation due to parental requirements. Many other people are in a similar position due to a range of circumstances. So if anything the Pandemic hasn’t really changed that much in terms of social contact for me. Yes it might have tightened things up a little further. But fundamentally there has been few radical changes. If anything it feels like for a few months some other people life’s have become a little more like my normal routine. Maybe it’s provided a glimpse for some people into what daily life actual feels like for many people out their. A daily life which existed before the pandemic.
I quite like this five unexpected things idea. Might see what if throws up in terms of things like grief and Aspergers.
This is a photo from 3 years ago. I stumbled across it while looking for some old climbing ones. Another typical Yorkshire August day – all four seasons in one day. It got me thinking – what’s the same and what’s changed in those 1000 odd days. See that’s what aprofessional accountancy qualification can do for you – I’m good at those complicated adding up calculations.
THINGS WHICH ARE THE SAME
Getting no dyslexia support from school,
Getting no Aspergers support or accommodations from school,
Still a single parent,
Still a metal head at heart,
Hawklad is still a lovely character,
No holidays, no Switzerland,
Pets causing chaos,
My football team is still useless,
Still see myself as European,
Brexit is still a shambles and a monumental exercise of self destruction,
Still 5ft 10 and a half (don’t forget the half – it takes me beyond average height),
Still not climbing,
Still can’t work out the TV remote control,
The garden is still a mess,
Still don’t like U2,
Still haven’t seen Avatar without falling asleep,
Haven’t seen my brother even though we live only 50 miles apart,
The garden gate still needs fixing,
The washing machine is still possessed,
Still having bought myself that ginormous telescope,
The blog is still going,
Still writing about the same stuff,
Still waiting for official recognition of my stellar poetry skills,
Still haven’t won the lottery,
Still losing my car keys.
THINGS THAT HAVE CHANGED FOR THE WORSE
As Hawklad has reached the teenage stage many of the health support packages have been removed,
The waiting list to see The Paediatrician is now approaching 2 years,
A pesky pandemic,
Hawklads anxiety levels,
Hawklads isolation from the world and other kids his age,
Due to circumstances had to stop running,
Might be a metal head but the days of skin tight jeans have gone,
Lost a couple of much loved pets,
Don’t really see my sisters anymore,
School’s view of Hawklad – definitely revising his perceived ability levels downwards,
The number of times I have to shout or pull my hair out at school is rising,
I’mphysically meeting less people,
The list of things on the ‘need sorting out when funds are available‘ is growing.
THINGS THAT HAVE CHANGED FOR THE BETTER
Hawklad understands himself and his Aspergers much better now,
Hawklad is overcoming his dyslexia,
I understand now that it’s just as ok to Laugh as it is to Cry, YES it’s ok to live,
One step closer to home schooling (hopefully),
My dress sense – I finally chucked out some of my pink climbing shirts.
You might be thinking that looking at the relative number of entries on these lists that the last 1000 odd days have been generally bad. But look at some of those things on the last list. It’s not about quantity it’s about quality. Yep looking at that last list, over the last 1000 odd days we have challenges but some really good stuff has still happened. That’s why there is always hope.
We all have a story to tell. Every persons story is just as precious and important as the next. Our life’s are filled with good and bad times. A rollercoaster of emotions. Filled with memories. Some bring smiles, others bring tears.
2016, it’s August. A week before I had been to my mums funeral. My partner had not been well but currently no reason to be truly worried. A Wednesday afternoon and we drove her to the Hospital for an overnight stay and some routine tests. I can see her walking across the lawn to the car. We talked in the car. Can’t remember what about. Just general stuff I guess. After she is settled on the ward we are asked to leave so the medics could start the tests. Told to come back tomorrow to visit, maybe even to pick her up. It’s now Thursday lunchtime and I’ve returned to the ward. The Doctor pulls me to one side. A sudden collapse in her condition. I sit in stunned silence. Tests results are shocking and grave. The prognosis horrific. 95% chance that she will be dead within a couple of weeks. Zero chance of making Christmas. She is in and out of consciousness. It’s extremely likely that she is not aware anymore. If family need to say goodbyes then you need to do it really quickly. Driving from the hospital like a zombie – how do I explain this to our 8 year son. She never regained consciousness and died in a hospice a few weeks later. We never did have a conversation again. The last time we talked was in the car and I can’t remember what it was about.
That’s one of my stories. It’s not easy to tell even now. I can feel the darkness starting to sweep over me. But there are other stories. Stories which bring light and are easier to tell.
Holding our son for the first time after the birth. Looking into his eyes and thinking I’M A DAD. Then thinking he’s very small – don’t drop him. Then one overriding thought. How can something so small be so pigging LOUD.
Sat on a scary rollercoaster with Hawklad as we slowly pick up speed. Hearing his must reassuring words echo along the suddenly panic filled seats – “Dad I’ve just spotted two missing nuts and one support joint without any bolts.”
Sat watching a 4 year old Hawklad in Switzerland. He runs up to a man trying to do some post run stretches. He then spends 5 minutes excitedly telling this man all about Dr Who and The Tardis. Speaking to the man later to apologise we found out that the man had never heard of Dr Who and didn’t speak a word of English. What a poor confused person he must have been.
So we all have stories. Some bad and some good. That’s life for you. They add together to make up who we are. Actually taking the time to listen will open your eyes to another person. If you are fortunate you might even hear some back stories. Gain an understanding of who that person really is. What makes them tick. Without that understanding it’s not wise to jump to assumptions. Without those back stories you really don’t know anything about that person.
We all have a story to tell. All stories are just as valid and important as the next one. Sadly many stories are not told. Well actually that’s incorrect. Sadly many stories are not heard. They are replaced by stereotypes. Too many jumping to conclusions. A view that fits better into the needs of so called modern society.
This week again stories of single parents coming from The Government and it’s Friends. Scrounging off society. Shying away from work. A life of luxury…. That fits in with the message. BUT Cut to a supermarket. A parent is struggling to control a child. Those knowing looks and tuts from other shoppers. They have no idea of the back story. Just how tired that parent is. Trying to figure out a way to feed the family with so little money. Trying to cope with zero help. Being crushed by anxiety and living no life at all. Crushed by circumstances. It’s often easier for some people to cast the first stone rather than offer a hand of support.
The story of kids with Autism and Aspergers again often not heard. Drowned out by stereotypes and unfounded assumptions. Each and every child is different, unique. Each child has their own back story. But so often we here – uncaring, cold, demonic, unfeeling, lacking empathy, no sense of humour, unable to love, a burden on society, low attainment, not really like a kid should be.
Wrong, wrong , wrong. Every child is unique. That’s the point of this blog. Others bloggers do it far better than my drivel. But we try to show the real story of our kids. Hawklad has Aspergers yet he can be funny, caring, have empathy, play games, understand others, be funny, have talents, be lovely, have dreams they want to achieve, have a sense of humour and love. All kids deserve a chance. Deserve a childhood. All kids.
Everyone has a unique story. Maybe as a society we need to start listening.
It’s been a hot day for Yorkshire. Not as hot as many places, but still hot for us.
Time to do some gardening. For the observant amongst you
Yes that conservatory has been taken over by Dinosaurs. I blame them for the mess,
Yes that ghostly and out of focus apparition in a red T-shirt is me. That’s the closest your going to get to a photo….. That’s how us with ‘faces made for radio’ like to do things….
An hours weeding. Lots of weeds pulled up and yet seemingly so little progress. But at least I’ve made a start.
Hoping for another clear night. A night of shooting star spotting. The Perseid Meteor Shower is currently ongoing. Last night at 1am we were outside. Sheet lightening frequently flashing across the sky. We always have a little game – who can spot the most… It was close last night.
Hawklad – 50 meteors
Dad – 4
“Dad what are you doing?”
I’m lying on the ground, why don’t you join me…
“Certainly not AND why?”
I’m thinking that if I’m lying down then I’m comfortable. Don’t have to strain my neck. I get to lie down and scan the sky. I think it’s the best way to see meteors.
*******Not the first time I’ve tried this approach – it worked well but one important safety point. Don’t put your cup of hot drink on the ground next to you.That last time my cup was visited by a slug. That’s not what I want in the darkwhen I’m taking a swig of warming brew********
“ReallyDad. I have a problem with your technique?”
Go on then Hawklad what possible problem can you find with lying on the back while meteor hunting.
“Well Dad. I’m standing up. So that takes me at least 5feet closer to the sky action. Maybe that’s why I’m at 40 meteors and you are at TWO….”
For a couple of weeks I had been thinking about doing a list of things which might help make homeschooling work. But then Robyn published her wonderful post about Successful Online Learning. Robyn said it way better than I could ever do, so I thought let’s forget about my post. But then the inner muppet took over. How about tips on making a complete dogs dinner of Online Learning. I can do that. So here goes a Muppet Guide to Homeschooling.
Don’t bother checking the unused school bags which have been sat next to the front door since March. There is absolutely no chance that half eaten sandwiches and bananas might be still squashed in there. Even less chance that damp PE kit might still be festering under the mouldy school lunch.
Make sure you buy new and expensive school uniform items a week before schools shutdown for a pandemic. Absolutely no possibility that your kid will shoot up several sizes in those few months.
When the PE teacher asks for the parent to also take part in home games lessons, you have only one sensible response. Absolutely, it will be fun to show off to your child that you are still a sporting Super Being. There is no conceivable risk that you will pull every single muscle in your body and that you will be completely humiliated by your beloved offspring.
The Xbox is a perfectly acceptable online educational tool.
When you hear the words SCIENCE LESSON and MOLECULAR STRUCTURES in the same sentence then immediately pretend to be on a works call for the next two hours. The same principle also applies to the words MATHEMATICS and CALCULUS.
On a similar theme the words RELATIONSHIP And SEX EDUCATION should immediately bring the response – “go and speak to the other parent”. If that is not practical then it is perfectly acceptable to run outside and spend the next hour cutting the grass in the pouring rain.
Letting your child watch wrestling videos during a Citizenship Lesson is perfectly in line with governments curriculum.
It is perfectly acceptable to attach a profanity to any reference to DRAMA lessons.
A can of Pepsi, bag of crisps and a chocolate bar represents a balanced school lunch.
When homeschooling first starts you have this real commitment to fully focus on your child’s education. To sit with them. To be that one on one teacher. That feeling lasts for at most a couple of hours. You start to waiver with frequent trips to the kitchen for a hot drink and a biscuit. Next you sit next your child but secretly try to look at your emails and news feeds. It finally breaks down as your openly start playing Crossy Roads.
You don’t need to worry about charging the school iPad up. Your diligent child will always do that…..
It doesn’t make you a bad parent when you tell your child to ignore the instructions of the French Teacher and to use the Google Translation App.
Never get drawn into debates on History. You have zero chance of winning those – you haven’t read a history text in decades and watching the Ozzy Osbournes history tv show does not count as an Academic Qualification. Best approach is to just smile and nod.
For absolutely any Geography question your only responses should be – ‘The Himalayas’, ‘The Nile’, ‘Coastal Erosion’ or ‘Go and watch the Discovery Channel’.
When you restock on pens from Amazon never buy the cheap multipacks. You will never use the Red and Green ones.
For Food Technology it is perfectly acceptable to let your child watch any Gordon Ramsey Show.
Try to avoid saying things like ‘In my day’, ‘That’s not what I was taught’, ‘The Dinosaurs were not extinct yet when I was in school’. These all may give the false appearance that you are in fact an old fossil.
When your child has to do an art project never say ‘what is it supposed to be’ when you see the completed work for the first time. That’s not cool parenting at all. Much better to say ‘that’s nice’ or ‘that’s better than an Andy Warhol masterpiece’.
You might think you are an expert in computing. This might be backed up with academic qualifications. But never ever get involved in anything to do with technology. Trust me, let your child deal with the computer stuff. In fact let your child sort out your mobile at the same time.
There you go. Don’t follow any of my tips and you might make homeschooling work for you. Even better go and read a post like Robyn’s, she knows what she’s talking about….
MONEY. Not listened to that Pink Floyd song in ages.
Get a good job with good pay and you’reokay….
That’s how the song goes. It’s funny that I love Floyd but this is the only song of theirs that I don’t like. The sound of the cash till just annoys me. It’s kinda nice that when I finally got to see them live, I can remember the concert so well yet I can’t remember them playing this song. It’s so good when the mind works like that.
MONEY. Before the world changed in 2016 we were doing alright. Finding a way to maintain two quite well paid jobs while making sure one of us was always there for Hawklad. It wasn’t easy and took a shed load of planning, but we found a way. We had a nice house, two cars (our jobs headed in different directions) and we could afford a trip to Switzerland every year. We tried to save for the future so we didn’t buy much. But it was a comfortable life and we could certainly pay the bills.
Then the world suddenly changed. I’ve just realised how lame that phrase sounds. Took me long enough. Seismic Rupture might be better. Need to think about that…
MONEY. The last thing you should be thinking about after a bereavement is money. But far too often MONEY quickly looms over you when you are at your lowest ebb. Bills still have to be paid. Food has to be bought. The government wants its pound of flesh, death brings the delights of Inheritance Tax. Two incomes suddenly became one. Even that one….. Single parenting, Single Aspergers parenting, Single parenting to a 9 year old who has just lost his mum. My job became impossible to maintain. Suddenly I was scrambling for a part time job which worked round Hawklad. MONEY became a very scarce commodity. Trying to get my head properly round these scary things is the last thing I needed when my world had just been shaken to the ground. Trying to look at a shrinking bank statement is bloody hard when it’s done through crying eyes.
That’s how it’s been with MONEY ever since 2016. I was so lucky to find a job which was flexible enough to fit round the single parenting gig. But I was still trying to pay the bills. Working out which repair jobs would have to be kicked into the future – which is most of them. Only trying to spend on the absolutely essential stuff. Funny thing is how often schooling costssuck up any spare cash. Holidays are just not happening – the last one was back in 2015. When we do have to buy items the first point of call is always the previously enjoyed or damaged sections. Our one extravagance, concerts, are always in the much cheaper – restricted view areas. We never turn down hand me downs. I’m currently looking at an exercise bike which was surplus to someone’s requirements and is held together with copious amounts of electricians tape.
MONEY. How needs it. With hindsight it’s clear that we are so lucky. So many are in a much worse position than we are. I’ve found a job that kinda fits our lifestyle. We have a nice house and garden. Live in a lovely area. Friends are wonderful. Financially it’s challenging but we are just about stable. Money helps but it doesn’t buy you happiness. Thinking of Hawklad, memories and friends – money doesn’t buy you those things.