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Autism

It’s Autism Awareness week. It does feel like it should be Autism Awareness Week every week, every year until we finally start to make some real progress. Let’s not kid ourselves as we have are only just starting down that road.

This years theme is centred around inequalities. Inequalities that have become even more stark and exposed during the pandemic.

I tell you what is unequal. Bridge building. It’s always up to the autistic person to try and build those bridges. Our society, our institutions and too many of our communities are not interested. They see Autism through inaccurate stereotypes. Something to be ignored or brushed under the carpet. We’ve all experienced that approach. Individuality is frowned upon. People need to be forced into set moulds and templates.

Yesterday I was listening to the words of a really wonderful, unique and brilliant teenager. He was talking about his struggle with autism. His daily fight with inequalities and ignorance. Why was it so hard for people to understand. He was saying that every day he heard so many false stereotypes. But in fact he had a sense of humour, he liked having fun, he liked having friends, he had feelings, he cared. He was as valid as an individual as anyone else.

That lad wasn’t different he was UNIQUE. We all should be. It’s a better world for that.

We all should be welcomed and supported.

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Avengers

A day outside in the – wait for it – warm Yorkshire sunshine……

An afternoon of outdoor table tennis. An afternoon of losing my pride. It’s never been my sport. One of the few sports I can’t pick up.

“Dad Table Tennis is a MARVELlous sport. You do know the sport should be played like a game of chess. Carefully moving your opening around the table until an opening appears. That’s the idea. Your approach Dad is basically the Avengers Strategy. HULK SMASH…”

No need to mess about with the delicate strategy. Why waste time when with one massive swing of the bat you can immediately move to the ENDGAME

“But Dad you are supposed to play with VISION.

Ok I’m out now, you win the pun war. Pick up your crisp packet. If you do then you can be scaAVENGERS hero.

“I never THORt of that one Dad. Best keep the envIRON MANaged. I wonder if anyone else would understand these puns other THAN US.”

*********

Lets not forget the stereotype. Asperger Kids don’t have a sense of humour and can’t have fun ……….

Posted on by bereavedandbeingasingleparent · 70 Comments

They got me

Today I received my first dose of Covid Vaccine. The AstraZenenca version. The process was managed brilliantly by our wonderful NHS. Very thankful. It’s a start. But it’s not the complete solution.Will definitely continue to isolate. To social distance and be masked up. To try protect others and the NHS.

We have such a long way to go before can say this fight is over. We can just hope that something can begin to open up the world again for Hawklad.

Posted on by bereavedandbeingasingleparent · 48 Comments

Somersault

Almost a summer sky and most definitely a winter wind – it’s freezing. Definitely a two jumper day…. But still nice. Would have loved to be outside more but pesky school got in the way of that plan.

After two hours of trying to figure out how to insert graphs into an online test document…

“Dad I thought you had a degree in computing.”

Well kind of.

“Well it’s not much use here. Admit it you spent those university years in the bar…”

And on the sports pitches. Don’t forget in bed as well.

“Well that’s not helping with this is it Dad. Might as well ask the toilet seat for help.”

To be fair I focused on Artificial Intelligence and Expert Systems, not stupid school packages. What you sniggering at Son….

“You. Muppet Dad. Are you sure it wasn’t Artificial Incompetence. Useless. Looks like you’ve just crashed the system now.”

Yes definitely crashed. Think it didn’t like me pressing all the keys at the same time in a slightly angry manner.

“How on earth did they let you into a university.”

I think they were desperate. I was late for the entrance interview as well. I got lost and ended up at the wrong university, in the wrong city. When I did arrive i was 3 hours late only to find out that I had the wrong day as well. I had come a day early.

“No wonder as a toddler I would talk with mum and just bash you over the head with anything I could find.”

I’ve still got the bruises.

“No Dad those are from last week where you tried to show me that you could still do a somersault on the trampoline. “

I almost did it. Just my bum got in the way.

Posted on by bereavedandbeingasingleparent · 57 Comments

Report

The end of term report landed today. Whatever happened to the old paper report books I got as a child. Now it’s downloadable content. Handwritten teacher narrative replaced by numbers and symbol targets. My report was easy to follow. Just look out for the telling teaching phrases

“Must try harder”

“Falls asleep in class”

“Daydreamer”

“Always looking out of the window”

“Distinctly average”

“Oh dear, where do I start”

Hawklad’s report is much harder to fathom out. After several hours of review I’m still not entirely sure what it’s telling me. Maybe it’s telling me to dig out the chocolate and watch Ice Age.

At least the arrival of the Term Reports does reveal one fact. A pleasant fact. In just a couple of days the Term will end and it’s a couple of weeks off. Hawklad gets a break. I get a break. A break from school at home.

That’s a report finding I can fully get behind.

Posted on by bereavedandbeingasingleparent · 96 Comments

New Hope

I was trying to free up some space on the blog so I was looking what old stuff could de deleted. Can’t believe I’ve tortured people with 1600 posts since I started back in 2017. You know what, I never got round to deleting anything. I was too busy reading my first few posts. Wow they were bad (I’m not saying I’ve improved over the years as well….).

Reading those first posts a couple of message shine through. I was understandably messed up and I was at my lowest point. There was hardly any hope in my words. Hope is often the first thing that LOSS takes from you. It did with me.

Well 4 years later HOPE has returned. I now have a better perspective on life. LOSS is still the worst feeling. Loss of Hope is just as soul destroying. But now I can see a number of new more hopeful dimensions to this dreadful process. It wasn’t all bad. My life focus changed. I realised just how unimportant a career is in the scheme of things. A career is not about personal development rather its often a way of missing out on those important family moments. Single parenting is a tough gig but you get more time with your kids. More quality time. Time is the most precious commodity. And yes doors to close permanently but life eventually does go on again. New pathways open up. Pathways which would not have been found without LOSS. New OPPORTUNITIES, new FRIENDSHIPS. New HOPE.

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Delightful

Red sky at night Shepherds delight.

I’m taking Boris Johnson so I guess I might be getting some of those delightful fan mail messages again.

Watching the news and again shaking my head. Just maybe the UK could vote for a leader next time who could be bothered to comb his hair or dress in front of a mirror. So our esteemed PM has been talking again. Amazing considering he has just got others to pay for a £200000 makeover on his flat.

Apparently 120000 deaths is in fact a sign of a job well done. Something to be proud of. It’s silly to compare us with other countries with much lower death levels as comparisons are meaningless. Soon things will be apparently back to normal with most of the restrictions lifted. Crowds will be back. Football grounds, restaurants and pubs will be full again. Life will be good within months. Which is bizarre as he then mentioned that (entirely down to Europe and absolutely nothing to do with lifting restrictions) a third wave will likely hit the UK real soon.

Ok….. Didn’t we already go through our really bad third wave after Christmas when the PM lifted restrictions against the advice of his medical experts. If a FOURTH wave hits then it’s not down to Europe. The threats sources are clear. From vaccine resistant mutations spreading far more rapidly due to premature restriction easing. The threat comes from still not having any meaningful Covid screening checks at many airports and ports. It comes from a bizarre refusal to address overcrowding, design failings and poor ventilation in our schools, offices and public places. It comes from using schools as a way of promoting a discredited ‘herd’ strategy. It comes from pinning all our hopes on a ‘vaccinate out of this mess strategy’ and close our eyes to other long overdue changes. It comes from still not having an effective track and trace system. It comes from a wonderful health service which has been cut back over far too many years and is now utterly exhausted. It comes from mixed messages from the top which is resulting in some people following social distancing and others thinking the pandemic is over.

Moan over….

That sky was delightful.

Posted on by bereavedandbeingasingleparent · 55 Comments

Advertising

Technology is definitely trying to take over. On the last post I did about ‘Sunday’s’ my autocorrect was clearly not impressed with the overall message. That would explain its desire to change every SUNDAY to SUBWAY. That would give that post a very different feel. But hang on… Is it on to something.

Maybe I’m missing out on a real money spinner. Product placement. Hidden advertisements. How much would SUBWAY pay for some subliminal advertising. Maybe it’s not too late to dream of that apartment overlooking Lake Lucerne.

WORDPRESS is really playing up. Randomly refusing to accept any editing and posting the first, rough cut of posts. Refusing to let me comment or like on some sites. Messing up the formatting. Deleting comments and removing some of my posts. Unfollowing without telling me. So frustrating that is MARS my day. What a great idea, I fancy a really healthy and tasty chocolate bar.

We soldier on with WORDPRESS. So the school at home week starts again. The last one before the Easter holiday. No actual holidays this break again. No trips to the hills and FjORDs. No need to hire a fine FORD car. At least I won’t need to worry about cutting my hair. No SAMSON nITEmares at the barbers required. But if I was going on holiday I can’t think of a finer brand of luggage to take with me than SAMSONITE.

The NEXT benefit of no holidays is I don’t need to do any holiday clothes shopping. Shopping to the wonderful and certainly not overpriced NEXT clothes stores…

But a couple of weeks will hopefully allow me to catch up on some MARVELlous DISNEY offerings. Enjoy the wonderful story telling and the hidden alLEGOries. More time to play with our LEGO sets and never stand barefooted on those really value for money LEGO mini figures.

Anyway that’s enough of me waffling on. I will get back to my grAPPLEs with WORDPRESS. But I can’t think of a finer technological platform to fight those battles on than APPLE. Thinking often requires a large amount HEINZ -sight.

Posted on by bereavedandbeingasingleparent · 58 Comments

Typical Sunday

Sunday morning in Yorkshire. Like every Sunday morning for over a year now. Not enough sleep. Get up. Feed the pets. Exercise. Housework. Give Hawklad his breakfast. Feel frustratingly hemmed in. Isolated. Overthink life.

But eventually I start to breathe. Remembering what is important in life. In my life. Remembering those personal treasures that are so close to my heart. That always lift me up. That make me smile inside and out. And I realise just how truly fortunate I am.

Yes it’s been a typical Sunday. Well almost

It’s not RAINING…

WE can do this.

Posted on by bereavedandbeingasingleparent · 63 Comments

Sanity

Its now officially over a year since our family lockdown started. A whole year. How spooky is that. Well at least I’ve kept my sanity.

Well that’s what the Apple Tree told me but the Nettle Patch wasn’t so sure. Unbelievably this Flower Patch thought I had completely flipped my lid. But these have always been PERENNIAL troublemakers. With feedback like that no wonder I talk to myself.