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Little things

A beautiful little thing from warmer months.

Unfortunately many little things are not so enjoyable.

Little things are sent to test us. The one day when it had to be a full day at the work base would also have to be the day the office heating failed. The heating failure had to be on the coldest day of the year so far. In the morning the thermometer was resolutely stuck at -2C. In the afternoon the thermometer reached the heady heights of 1C. Sat huddled over the computer with a coat stretched like a tent over me and the screen. Inside the makeshift tent hoping that the hot tea and the heat from the CPU would fend of frost bite. Lovely

Little things are sent to test us. Maybe it’s the frostbite but as soon as I got into the car a warning light came on. Car Key Battery Low – Change Battery. Not a problem as we have a vast collection of various types of batteries at home. Guess what. Having ransacked the house I found 11 different types of battery but unbelievably not one which would fit the key. So let’s hope the key has enough juice left to allow me to get to the shop in the morning.

Little things are sent to test us. Like WordPress being most vexing. For the last 6 months the WP Ipad app has been hopeless. Well not sure what has happened but it is now firing on at least 3 cylinders. Best it’s been for a while. Not saying much but at least it’s partly working. Unfortunately we come to the Yang. Now my WP email updates are a disaster. They arrive as normal but it’s impossible to do anything with them. That leaves trying to read and comment using the app – that is the cylinder which is misfiring. How can it be so difficult to leave a comment or just like something. Just so frustrating.

Little things are sent to try us. Spelling Tests for a Dyslexic. If son doesn’t sit the test then he will be given zero marks and this will rule out any chance of him moving up sets this year. But if he does sit the test he will be given no help and no marking adjustments – setup to fail. As son has decided to try the test he has been practising the words. After much frustration (from both child and parent) Son announced.

This is not happening. I’ve got a photograph in my head of all the words and will just see what happens on Thursday. I can find better things to spend my time on. I can name every English Monarch since 827. Their main achievements, notable events, claim to the throne and how they died. I know it been no use at this school but it’s fascinating. So I’m going to do the same with the French Monarchy. Much better use of my time.

And off he went on his quest. If a child has a passion then that passion should be given every opportunity to flourish. Our bureaucratic education system has forgotten this. Thankfully kids and many parents have not. That’s why there is always hope. Hope in little things.

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First letter

Friday has been distinctly chilly especially when you go running in shorts and T-shirt. Some muppet decided to wash his running kit 5 minutes before the run. Not good planning. So yes chilly. Now take the first letter away from chilly and that was the other feature of today’s run. Distinctly hilly. As many of the rivers have flooded the only paths which are passable are those which are on the high ground. So before I got stuck into today’s work I needed to defrost and sooth the aching muscles. I was that cold that when I got into the piping hot bath – it went cold within a couple of minutes. Sitting in a cold bath when your cold is not good. Not good at all.

Been asked about the subliminal message in this weeks Terrible Poetry content. See what the first letter of each line spells….

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Mind wrestling

Yorkshire weather. Good running weather. Why would I want to run in dry warm windless conditions. Well that’s what I tell myself. Maybe I’m like Count Dracula. I would turn to dust in direct sunlight. I wonder what I would do if someone offered me the chance though.

I’m mind wrestling with something at the moment. My partner was an epic traveller. She visited so many countries. It was her extravagance. From her late teens she would save up during the year for one great adventure. Family and her adventures was what she lived for. The adventures only stopped when we became a family. Her dream was that when our son became older we could have adventures together. The two places she always talked about was New Zealand (would have been her first time) and Chile. She always said that we would all love Chile.

Then life happened.

I really want to complete those journeys for her. Our Autism World may preclude that. Circumstances may preclude it. But we will see. I most admit a part of me doesn’t want to do those trips. It’s just not right that it would only be the two of us.

Sorry I digress. Back to my mind wrestling. So many adventures and so many photographs. All sat neatly and well organised in carefully stored albums. Here is the dilemma. Part of me wants to do a retrospective photo journal. Tell her travel story. Her trip to the Soviet Union (gives you an idea of the timeframe) maybe would be a great starting point. YET another part of me recoils at the idea. What if she hates that idea. What if I’m breaking some unwritten bond of trust. It’s like having two competing voices on either shoulder each shouting differing viewpoints on life.

She’s not here anymore. What’s the problem!

YOU KNOW SHE WOULD SAY NO. I CAN’T BELIEVE YOUR SERIOUSLY THINKING ABOUT THIS!

But this feeling is something I’ve grown used to over these three years. On virtually every major decision I have these doubts. ‘What do I want to do’ balanced against ‘what would she do’. I try to see the world through my eyes and at the same time through her eyes. Problem is that we were two completely different characters. We each had our own unique take on the world. We would frequently disagree on the right answer. Often we would compromise. I’m still trying to compromise now. Yet I can’t replicate her thought process. I never could and I never will. I’m probably getting her point of view completely wrong. But I still do it.

Maybe other people do this. Maybe it’s just me sinking further into cabin fever.

So am I going to publish this travel journal? I don’t know. WE still haven’t decided.

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Waterfall

Although England does do an awful lot of water it’s not blessed with that many truly epic waterfalls. But we do have the occasional spectacular one.

High Force in Teasdale.

The Falls are about an hours drive from us. We haven’t been since our world changed. We had planned to go there as part of our school holiday road trip. But as I was packing up the picnic

Dad I’m not sure I’m ready to go there yet.

I can so understand. It had suddenly dawned on our son the importance of the memory associated with High Force. It was 2016. The three of us spent a lovely hour walking around the waterfall then we ended up in the local pub for lunch. Son had sausages and chips. We had soup and fresh bread. Finished off with some highly calorific sweet. It was the last time we went out for a meal as a family.

This had completely slipped my mind. Not the forensic mind of number one son.

“It’s a long drive son.”

It’s a very long drive, probably bad for the environment.

“Its raining and very grey. Probably going to be cold.”

It’s very wet Dad.

“What do you fancy doing then.”

How about having the picnic in front of the television while watching the new Scooby Doo movie.

“That sounds a cracking plan Son.”

So we enjoyed sandwiches, crisps, fruit and cakes watching Return to Zombie Island. Yes a change of plan. But the right change of plan. We will visit High Force one day. But not this wet Friday.

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Where are the cobwebs

Autumn is definitely here. The flowers have gone. Many of the trees are bare. The leaves that remain have increasingly turned vivid red. My partner loved this time. She would find any excuse to spend time outside. Just looking at the colours. Today looking at the reds in the garden I have purpose. These eyes are looking for her as well. I try to spend an extra minute. Spending as much time as she would.

Before the world changed my partner would be fixated on the colours but I would have other things on my mind. Cobwebs. I love Autumn for the intricate and beautiful cobwebs which begin to take over our world. The young spiders have had all summer to grow. It’s also a time when spiders are out looking for mates. AND the weather and the dampness are perfect for adding to the cobwebs drama.

The weather is perfect but for some reason the cobwebs are largely missing. Still no abundant arachnid display. Maybe next week. Then we can be both happy. But at least this weekend we did get one cobweb. Hopefully it’s the start of Autumn becoming complete.

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Commitment

This photo is from a couple of days ago. It was reasonable weather.

Over the last couple of days the weather here has been a little more damp. The Photograph below from The Guardian sums up today’s dampness. Welcome to Yorkshire – the worlds best cyclist competing at the UCI World Championships and enjoying the welcoming Yorkie weather. As my Dad would have said that will put hair on their chests. Bet the poor riders didn’t expect to be riding through lakes. Amazingly the race was completed. Thats commitment for you.

Parenting is about commitment. Even I realised that before our son was born. The bizarre assumption we made was that at some stage the kid(s) would fly the nest and we would go back to something like our old life’s. Maybe after school, after college, after university, maybe a bit later. But at some stage it was happening. At some stage parenting becomes more part time and the stuff we had to park can be resurrected. In my case socialising with friends, climbing, playing sport, career, astronomy….

“WE” would get our life’s back – yes I never envisaged one tragedy…..

But maybe the full time parenting commitment may last longer. I remember our sons lead health professional telling us

“It is possible that your son will be largely independent at some stage. However on the current evidence this might be the least likely outcome. You need to prepare yourselves that he may find it very difficult to live independently at any stage.”

As a family we are so fortunate. Son is making great progress in many areas. So many families don’t get this level of progress. But there are clear areas where progress is not being made. We have to be realistic that progress may never be made. Support may be needed life long. That’s a sobering thought and raises so many knock on considerations.

Those parts of my life I assumed would restart at some stage may in fact not happen. I don’t like admitting it but this thought makes me sad. But that’s life. I now realise bad things happen and you have to deal with them. You never know son might one day take up something like climbing. I suspect not in the case of climbing. He is a natural risk assessor. He might make sufficient progress to become fully independent. We just have to see what happens.

I know I’m not the only one who is in this position. I was reading a similar thing from a blogger I really respect just the other day. Parenting sometimes doesn’t work out the way you have imagined. Parts of your world are lost. Dreams become unattainable. Although parenting is the best gig in the world it is so hard to explain to others how part of you can still feels so sad.

I now know that this is parenting. Its about sacrifices. It’s about commitment.

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Burns

It’s hot. That’s Yorkshire hot. Which probably means mild in other parts of the world. My Dad would have called it mafting. It’s that mafting that even the Yorkshire Farm Machinery can’t cope. The photo shows the smouldering wreck of an unfortunate tractor with a badly burnt field. That’s a first on the dog walk.

Our Son does suffer from stress and overpowering fears. When he took one look at the burnt carnage he immediately panicked that our house would soon be engulfed in flames. It’s understandable as the field is less than a mile from us. I tried to calm his fears with words but with no luck. So actions are required. A mad Dad sat down in the blackened field. Look son my bum is getting a little warm but my shorts are not ablaze. Although it did demonstrate a point I should have thought the plan through a bit. Light grey shorts are maybe not that fetching when they have two buttock shaped black marks on the rear.

Although our son’s wild fire fear has been dampened down a little. Sometimes silliness works better than rational argument. It is still there and will be until normal Yorkshire weather returns.

When you have a child who suffers from these inhibiting fears it is vital that you try and keep on top of them. Working in partnership with school and health services is vital. At his last school they were usually on the ball. The teacher would catch me at the end of day or send a quick email to let me know if something had happened. If it was particularly significant school would phone immediately.

Unfortunately at his new school this has completely stopped. I fully understand that it’s a much bigger school and he has different teachers for each subject. But surely they still have a duty of care. I know speaking with the health professionals they say unfortunately most schools in they area are the same now. The close partnership working which was in place a few years ago has dried up. Again and again it comes back to the same reason. Government. As one Doctor said

Under the last Labour Government it was about the patient. Now the patient is a secondary consideration to income generation, competition and profit. Money is now king.

So increasingly it’s just left to parents, families and friends. The days of government for the greater good are over. Its all about self help and what the individual can afford. Must deliver tax cuts. It’s back to Victorian ethics. Days when democracy could be overridden by the powerful and the rich. A time when it was ok to send poor kids up chimneys. When hatred and discrimination was the norm.

Maybe it’s just me and I’m in the minority. Just my irrational fear. But increasingly my country is becoming alien to me. I hate what is becoming. Too many kids do not get the support they badly need. As a generation we have really messed up our priorities. Our leaders happily play fiddles while Rome burns. Or maybe we should now change that to our leaders go to comedy clubs while the Amazon burns.

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Kielder Water

The last post left the unscripted day trip deep in Kielder Forest.

Right Dad it’s time to have a closer look at one of Northern Europe’s largest man made Lakes. Rutland is larger but Kielder holds more water. Don’t worry I’m not expecting you to go swimming. The water will be too cold.

That’s a good job as a I can’t swim and I don’t fancy a bout of frostbite. I later checked those facts. Apparently Kielder holds 44 billion gallons of water. That’s an awful lot of trips to the toilet. It tends to be full at all times. It has a number of natural springs feeding it plus let’s not forget the weather.

With the autumnal like wind whipping across the lake and the breaking waves – it did feel like a seaside walk.

I’m guessing it is just under York Minster deep. That’s about 235ft. I’m going to say about 70 metres as Boris Johnson will hate that. He hates everything from Europe or that is what he wants people to think. Some people will fall for that.

Ok can’t miss a bit of of annoying our Buffoon of a Leader – so Kielder holds 200 billion litres.

Wouldn’t it be great if Kielder had its very own Loch Ness Monster. Ok it’s a manmade lake built in 1982. But the monster could have migrated here. What do you think Dad.

How about a Megalodon.

No legs or wings so it’s not migrating in a hurry. I’m seeing either a Spinosaurus or a very large otter.

Unfortunately I didn’t have the opportunity to explore the monster otter concept as suddenly a large military plane swept low over us and across the lake. My ancient mobile didn’t do it justice.

Dad what time is it. Have we got time for one more place. We are on a roll now.

It’s 3pm let’s see what we can find. So back at the car. Is it Left or Right.

East.

Final part of the road trip takes us back in time.

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And still it rains

The heatwave is here in Europe but it’s refusing to cross the North Sea. While Bern is getting 34C, Madrid gets 35C and blazing sunshine good old Yorkshire gets drizzle and 12C. So still it’s proper weather.

And so as the weather sticks to my post from earlier today, the system also continues to follow that posts script.

Another day and another system letter. A service we did have access to but which has dried up recently. Today brings the confirmation. Government cut backs so the service provider has to prioritise and our son is currently seen as a low priority. So it’s another service we have to reapply for and go through a new assessment process. It’s just not fair on kids like our son.

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Waiting

Apparently a heatwave is about to hit Western Europe. I’m not sure the required paperwork and clearances have been signed off for Yorkshire yet. As a result it’s gone back to cold, cloudy and very wet. Here this is called proper weather.

Anyway let’s see if the much vaunted hot stuff arrives. Knowing our luck it could be a long wait. But we are accustomed to waiting for things.

  • Snow at Christmas … 10 years
  • My so called football team winning a domestic trophy … 64 years
  • A U.K. Van Halen Tour … 35 years
  • Last Total Solar Eclipse in Yorkshire … 92 years, next U.K. one 2090

We can add to these the following waits.

  • Bereavement counselling for son … over 2 years and counting
  • Waiting to have son’s dyslexia initially assessed by an Education Psychologist … over 3 years
  • Aspergers Review and Assessment … 2 years
  • Dedicated Aspergers Therapy … 1 year
  • Anxiety Therapy … 6 months
  • Speech Therapy … 4 years
  • Paediatrician Assessment … 1 year
  • Parent Training on Autism … Never going to happen So far 5 years

You get the picture. Nothing comes easy. As a parent. As an Autism Parent. As a Aspie Parent. You have to push for the support your kid needs. Constantly chasing up contacts. Everyday seems like a new or recurring battle. Letter after letter. Chasing up phone calls. That’s something which isn’t mentioned when you start your new life journey. You sort of assume that the professional help will be there when you need it. You quickly find out that the professional help is withheld or is delivered at times to suit the system rather than the child.

What the system doesn’t seem to appreciate is that you get such a short window of time to foster real progress. As one psychologist said

Up to about 14 years is the development sweet spot. That’s when the real, long lasting progress is usually made. That’s when you have a chance to start closing the educational gap. After that it becomes increasingly difficult. If it’s left too long then its probably just about trying to stop the educational gap widening too quickly.

The frustration that causes you. It’s hard to explain that feeling. Maybe constantly walking in treacle. Every step forward is such an effort and yet you are so far away from your destination. But the fight has to be fought. As long as our son wants me to keep pushing then I will keep pushing. That’s what parents do.