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Well that will stop it

So today our so called Government announced that our local city is to be moved up the pandemic risk table. It’s now a tier 2 area risk. That’s officially HIGH. As a result additional rules will apply to those living in the city. One rule is that I can’t now visit my sister at her house in York. But here’s the thing.

Under the rules I could go to work with anyone from York – no issues there. But after work finishes I would then not be allowed to go for a coffee with those same co-workers. Suddenly mixing with them becomes too risky. Well that will fool the pesky virus…..

Bizarrely I have just noticed that my next nearest sister who lives in another city 100 miles away has also been classed as living in a high risk area. So I can’t visit her as well. Well this is going well…..

Posted on by bereavedandbeingasingleparent · 89 Comments

Kind

It’s autumn and the leaves are falling. Here when they fall they undertake a kind of heroic mass migration. They migrate to our front lawn. Has to be our lawn, never any of my neighbours. These fallen ones have just started their journey heading inevitably to just below our front window. Then they like to stay put. That’s so very kind of them.

I’ve been trying to be kind to myself as well. If I’m happy then I will be a better parent. Trying to find enjoyable things to do. Maybe discover some new hobbies. One of which is learning to play the piano. Finally making use of an electronic keyboard which has been basically just gathering dust. The piano tuition app I’m using is good. Quickly I can now start to read music. I can play a rustic version of Ode To Joy. But I couldn’t understand why the piano app kept talking about one key being middle C when with my careful marking out of the keys came up with a different answer. Then the penny dropped. Can you spot the deliberate mistake in the pink scrawls……

What a muppet. Ok the app might be right…..

Posted on by bereavedandbeingasingleparent · 68 Comments

Wet

It’s the perfect day to try to hand wash. Even better for drying said washing.

Under that bench cover is the washing. Marvellous…..

The washing is even too wet for the radiators and getting wetter.

I wonder if you can microwave washing?

Could I cook the washing at 200C?

Maybe if I run about really fast with it over my head it might dry?

Maybe I could hop on a plane and dry it in a warmer climate.

Or I could just say pants to it, leave it out in the rain. Shrug my shoulders and go eat some chocolate. Yes that sounds like a plan.

Posted on by bereavedandbeingasingleparent · 68 Comments

Golden times

Unlikely to get too many trips out to enjoy the wonderful autumnal colours this year. But at least I will spend more time looking at very our own mini displays. Too often these are not fully appreciated.

It is often the little things in life that we miss. Don’t fully appreciate. Take them for granted.

Before 2016 at this time of year we would drive as a family through the tree lined country roads to the local arboretum. A walk round the thousands of autumnal trees ending with a hot chocolate at the cafe. It’s not until these moments are gone that you realise how golden those times were.

After 2016 I would drive son to very the same arboretum. Trying to control a mad dog while son kicked around in the fallen leaves. Ending in the cafe now so he and the dog can enjoy a bacon butty. I would saviour a freshly ground full on caffeine burst. Golden days not possible this year.

So maybe those annoying fallen leaves in the front garden will actually come in useful. Let’s go and have a thrash about in them. Followed by a home made butty and yes a hot chocolate. Yes different times, but still golden times.

Posted on by bereavedandbeingasingleparent · 85 Comments

Challenging

It’s wet. It’s cold. It’s dark. It feels like winter. At least the leaves are still in autumn mode.

It’s going to be a challenging few months.

School has now contacted all parents following the recent in school positive covid cases. Our sons year group have been instructed to return to school. However a further 57 pupils are being asked to self isolate for 14 days. It’s not just our school. Another 5 local schools have at least one year group isolating, with another school reporting its first cases today.

This is on the same day that the government once again stressed the civic responsibility to attend school. Schools are perfectly safe and the risk of infection is extremely low.

Are we supposed to believe you Boris?

I remember you telling university students to go back to college as it was their civic duty, it was perfectly safe and students would risk losing places if they refused. Just a few weeks later and in one local city 1600 of the 2200 new infections are from university students. Nationally over 10000 students have now gone down with the virus In another city a number of the university students have required intensive care treatment due to the virus. Many other students are now on lockdown, confined to their rooms.

Apparently this is all the fault of the students…..

Are you supposed to be in charge Boris?

Going to be a challenging few months.

Posted on by bereavedandbeingasingleparent · 64 Comments

3am

Last night I was tired. Unusually tired for me. But it was one of those pesky tired setups. During the evening I could feel myself nodding off. Plenty of those ‘just starting to drift off while sat on the settee – then suddenly woken by those cataclysmic sudden neck snapping forward’ moments. This went on all evening until it was bed time. But then I just wasn’t tired. Pigging fiddlesticks……

Finally sleep came but all too soon…..

“DAD, DAAAAAADDDD!”

What’s up son.

“Dad I’ve forgotten, sorry we’ve forgotten the art assignment.”

Ooh yeh, that one that isn’t due in until the 12th.

“That’s the one, But ITS THE 12th.”

Oh big pants. Can you do it as soon as you get up?

“No it’s due at the start of the first lesson.”

***********

I could see by the look in his eyes that until it was done, sleep would be impossible. So a few minutes later I was in the kitchen making hot drinks. Years ago a late night session would have had a very different meaning to tonight’s version. 3am and rocking out to Japanese Art.

Basically I sat there looking vacant, occasionally nodding (in a of course I knew that kinda way) and asking Google such questions as ‘what on earth does wabi and sabi mean’. It took an hour before Hawklad had convinced himself that he had done enough. The school panic in his world was over. His completed presentation was significantly more robust than his Dads initial suggestive assignment text

Japanese Art is cool but Godzilla is real cool. Now it’s time for bed….

Hawklad got to bed and immediately fell asleep. I guess at about 4.30am I found some sleep. I woke up a couple of hours later with one overriding thought. How can you write two pages on Japanese Art and not mention Godzilla‘s Atomic Breath just once. What has become of Art.

Posted on by bereavedandbeingasingleparent · 56 Comments

New Sport

It’s dark, bit of blue sky, very windy. Good drying weather.

Friday was one of those days. Hassle from school. Missing items. Me being a walking accident magnet. My favourite music magazine, one I’ve been reading for ages, went out of business. And the washing machine….. it decided to eat itself. Two hours of fruitless home repair confirmed that in the words of Monty Python –

E’s kicked the bucket, ‘e’s shuffled off his mortal coil, run down the curtain and joined the bleeding choir invisible!! THIS IS AN EX-WASHING MACHINE…..

A bit of disaster when we have such a heavy lockdown washing requirement. A replacement one was finally sourced that has an expected delivery window of less than 3 months!! So it’s the delights of hand washing for a while. Given Hawklads anxieties – lots of it. I guess it’s a good arm workout.

I need the weather to be nice and cooperate. Outdoor drying would really help. Please help me dry the washing, pretty please….

So here’s the new sport. It’s great for endurance and reactions. Much bending over and sprinting. It’s called ‘catching my pants as they hurtle across the farmers field’. The sizeable wind was clearly trying to turn my underwear into a new post brexit export to Belgium. In fact given the colossal size of my pants they would constitute a bigger new trade deal than anything our clowns of a government have secured in one year…..

Posted on by bereavedandbeingasingleparent · 73 Comments

See what the wind brings.

Sometimes you just have to sit back and see what the wind brings.

Drying clothes outside is proving a bit of a nightmare. Every few minutes the wind brings in another shower. Thankfully the bench cover is just about big enough to quickly chuck over the clothes horse. Given the dirty state of the cover rather defeats the purpose of washing. But needs must.

Sometimes you just have to sit back and see what the wind brings.

Further lockdown measures are set to be announced for northern areas next week. For the last month our part of the north has been an island. Surrounded by areas having significant pandemic outbreaks. Here it’s been reasonably calm. That means that things like shopping and daily life have continued without too much disruption. But is that about to change. Has our area succumbed.

Sons school has had confirmed cases. The local cafe had had to close due to a local outbreak. All public events are being cancelled (that includes Christmas events). Now the local city is reporting a huge growth in cases. 79% rise in 7 days, our rural area has gone up by 60%. Higher than some of the areas already under lockdown. Police are starting to enforce lockdown laws.

It’s the confusion that makes it so much harder for people. One week the PM tells people to grow a backbone and get out. Then suddenly the PM tells us it’s our fault fir getting out. Some places (often government supporting areas) have high infection rates but are excluded from lockdown while other areas with lower rates are forced into lockdown.

Feels like we as an area are about to be forced into a tough, restrictive extended period. All we can do is continue with our own family approach. Try to shield son from as much of the negative, doom loaded news. It’s the last thing he needs to hear. Much better for his (and my well-being) to sit in the back garden and see what the weather brings in.

Posted on by bereavedandbeingasingleparent · 62 Comments

Uncertain

Over the last few days nature has been providing its very own washing service.

Many people are doing more and more washing over the last six months. Especially hand washing. That’s certainly the case here in our little corner of the world. Since about the age of 6 son has had anxieties relating to touching unclean objects. This would result in fairly frequent hand washing exercises. Thankfully only a few seconds of soap and water was sufficient to calm the fears.

That all changed in 2016 when his mum died at a relatively young age. Suddenly the world was filled with uncertainty and unseen dangers. His hand washing rapidly spiralled out of control. It became more frequent and went on for up to a minute at a time. Thankfully he started working with a wonderful nurse counsellor who over a couple of years brought his hand washing back under control. He was taught to wash like a nurse and get it done in under 20 seconds.

Then a pandemic hit. All the reassurances, all the hard earned confidence was blown out of the water. His fears re-emerged worse than ever. Life is now an ‘avoid touching anything and hand washing’ fest. He will wash his hands several times an hour. When he starts washing, he will wash for anywhere up to 5 minutes. All without trying to touch the tap and only using elbows (usually my elbow).

Any delivery or letter has to be taken into the garage for several days of quarantine before it is opened. After I have touched the item then I need to change my clothes completely and be seen to wash my hands. If I venture out then almost full decontamination procedures have to be followed.

Welcome to 2020.

This time it feels different. More engrained. The health professionals agree. All we can do is try to manage the situation until he sees that the pandemic is under control. A vaccine works and he has had it. But even then there are no guarantees. His fears and anxieties may never truly fade. Maybe they will but only until the next killer bug emerges. The future is uncertain. It is uncertain for many.

Posted on by bereavedandbeingasingleparent · 70 Comments

Which way

In life you get asked so many questions. But some questions keep repeating themselves. Like the classics ‘Are we there yet?’ and ‘where’s the remote control?’.

Then there are other questions. More vexing questions. One question keeps popping up. I’ve been asked this by family members, other parents, teachers and even once a nurse. It does have a number of variants but it’s basically the same question

Will your son get better?

Will his Aspergers improve?

Will his Aspergers improve as he gets older?

I’m no clinical specialist. Just a bumbling parent. But here’s my take on the question.

Aspergers is a lifelong syndrome. It’s not going to get better. Its not going to be cured. It’s not going to disappear. What might change is that over time the individual and the family may develop strategies to help deal better with some of the situations life will throw at them. Also some of the specific symptoms may fluctuate over time. For example in a number of individuals something like repetitive hand flapping may become less prevalent with age. Also Aspergers often coexists with a number of other conditions – dyspraxia, ADHD, dyslexia…. It is possible that some of these conditions could improve with time. For example our son has with hard work started to overcome some of the issues which his dyspraxia and dyslexia had caused him in his earlier years.

So yes it is possible that improvements may occur. But here’s the thing, it’s not guaranteed. Each individual case is different, unique. Things may stay the same with age. They can also get worse with age.

So we just don’t know.

The Clinical Psychologist who did the full review of our Son was quite clear. The majority of his Aspergers related traits will stay with him over his life. However at around the teenage period changes may start to occur. It could go either way. He could become fully independent or he may regress and may need some form of life long support. She talked through a number of possible scenarios. One scenario was that some improvements would occur potentially in the areas of dyslexia and the diminishing of some of the repetitive behaviours. Another scenario painted a downturn in his existing anxieties and fears. This could occur naturally during his teenage years or could be triggered by a single significant event which effects his view of the world. Tips the balance in his risk assessments of the world. This could lead to significant mental health concerns and potentially social isolation. Where we are sat currently, we are not a million miles away from that scenario. The triggers – the death of his mum, a pandemic, his teenage years…. He is currently physically cut adrift from the world. His fears and anxieties ramped up to the rafters.

Nothing is set in stone. We just have to go with the flow and see what life brings. It could be still be a fully independent life. But it could also entail a lifelong requirement for support. In this country we don’t cater for the latter scenario. Support has to be fought and won for young children. That support is at best is patchy. During the teenage years the support tends to be reduced due to funding cut backs. By early adulthood the support has completely vanished. That’s a sobering thought for parents in this position. It really is.