Posted on by bereavedandbeingasingleparent · 86 Comments

Hard life

It’s a hard life for some. Not sure if the hard life applies to The Cap or to that old sofa. The Cap is resting after a hard morning of causing chaos. This sofa is 17 years old. Over the last few years it has had to endure sustained cat and dog attention. Currently it’s covers are being washed for the millionth time.

It’s a hard life for my bottom as well. This morning I was blasting out a few miles on my equally old exercise bike when it basically fell to bits. It collapsed. One minute I was dreaming of summiting the Alpe d’Huez and leading the Tour de France. Three seconds later I’m sat on the floor surrounded by bits of exercise bike. Oh how the mighty fall. Now I know what it feels like to fall of your bike and forlornly watch the peloton scream past you.

Thankfully ten minutes later the bike was reassembled and the snapped retaining bolt replaced. The rest of the stationary ride was completed while I sat on an ice pack and a soft cushion. Bruised buttocks are not fun. But on the bright side, it’s much easier to ice pack your posterior than it is to ice pack your ego.

Bizarrely we were watching the Dora The Explorer movie last night. Yorkshire really knows how to live the dream. Near the start of the movie, poor Dora was dancing at a school ball. It was such a random odd dance that all the other kids were laughing and poking fun at her. Poor Dora, I really felt for her.

“Dad she dances like you.”

Really, I’m not that bad am I….

“In fact worse, much worse. At least Dora is coordinated. Your dancing is that bad, that if I’m within 50 miles of you, you are banned from any dance floor.”

The shame. How the mighty have fallen. I’m telling you that I once won a New Years Eve Blues Brothers dance competition.

“That was thankfully before I was born Dad….”

It’s a hard life……

Posted on by bereavedandbeingasingleparent · 78 Comments

Money, money, money

Clearly the blueberry has given up on this Yorkshire Summer and just assumed it’s autumn already.

MONEY. Not listened to that Pink Floyd song in ages.

Get a good job with good pay and you’re okay….

That’s how the song goes. It’s funny that I love Floyd but this is the only song of theirs that I don’t like. The sound of the cash till just annoys me. It’s kinda nice that when I finally got to see them live, I can remember the concert so well yet I can’t remember them playing this song. It’s so good when the mind works like that.

MONEY. Before the world changed in 2016 we were doing alright. Finding a way to maintain two quite well paid jobs while making sure one of us was always there for Hawklad. It wasn’t easy and took a shed load of planning, but we found a way. We had a nice house, two cars (our jobs headed in different directions) and we could afford a trip to Switzerland every year. We tried to save for the future so we didn’t buy much. But it was a comfortable life and we could certainly pay the bills.

Then the world suddenly changed. I’ve just realised how lame that phrase sounds. Took me long enough. Seismic Rupture might be better. Need to think about that…

MONEY. The last thing you should be thinking about after a bereavement is money. But far too often MONEY quickly looms over you when you are at your lowest ebb. Bills still have to be paid. Food has to be bought. The government wants its pound of flesh, death brings the delights of Inheritance Tax. Two incomes suddenly became one. Even that one….. Single parenting, Single Aspergers parenting, Single parenting to a 9 year old who has just lost his mum. My job became impossible to maintain. Suddenly I was scrambling for a part time job which worked round Hawklad. MONEY became a very scarce commodity. Trying to get my head properly round these scary things is the last thing I needed when my world had just been shaken to the ground. Trying to look at a shrinking bank statement is bloody hard when it’s done through crying eyes.

That’s how it’s been with MONEY ever since 2016. I was so lucky to find a job which was flexible enough to fit round the single parenting gig. But I was still trying to pay the bills. Working out which repair jobs would have to be kicked into the future – which is most of them. Only trying to spend on the absolutely essential stuff. Funny thing is how often schooling costs suck up any spare cash. Holidays are just not happening – the last one was back in 2015. When we do have to buy items the first point of call is always the previously enjoyed or damaged sections. Our one extravagance, concerts, are always in the much cheaper – restricted view areas. We never turn down hand me downs. I’m currently looking at an exercise bike which was surplus to someone’s requirements and is held together with copious amounts of electricians tape.

MONEY. How needs it. With hindsight it’s clear that we are so lucky. So many are in a much worse position than we are. I’ve found a job that kinda fits our lifestyle. We have a nice house and garden. Live in a lovely area. Friends are wonderful. Financially it’s challenging but we are just about stable. Money helps but it doesn’t buy you happiness. Thinking of Hawklad, memories and friends – money doesn’t buy you those things.

Posted on by bereavedandbeingasingleparent · 78 Comments

Flying

Wouldn’t it be great to fly. To just fly. No need for a baggage check in, security and long waits in the Terminal. Just to fly under your own steam, when and wherever. Given the size of my bum during these lockdown days, that would have to me some mighty wingspan to get me airborne. Buttocks like mine are the reason that they invented super sized planes like the 747 with those massive engines.

“Dad have you lost that weight you said you were going to before the summer…”

Yes I did set a goal of shedding some weight.

“You actually said it would be 14lbs which is 6.3kg’s. So how are you doing?”

I am probably about 6.3kg’s short of the goal currently…..

“So what’s gone wrong?”

I’m exercising really hard but I’m just not getting any long runs. Without the runs it’s a real struggle to get my heart rate above 100 during the exercise. But the main problem is the food. I’m having to eat Soya and some Gluten products. These just make me blow up as if I’m pregnant.

“Are you sure your not pregnant?”

Pretty sure, although we have some of your old baby clothes somewhere – just in case. Those food types just make my abdomen and face puff up. It takes ages for my system to try and process them. When the shop gets a better range of things back in, then things will improve.

“Arnold Schwarzenegger became pregnant in that movie. Look how much money he has now. Just saying……Instead of soya and gluten stuff, Dad, why don’t you just eat salads and soups…”

*******

Yes we could all do with some more money but call me a coward, not that way please…. But Hawklad does have a good point. I’ve just switched to the soya and gluten alternatives without really thinking. Salads would be far better for me. I’ve become lazy, stopped making things like soups and stews. So from today my body becomes a temple. A well cared for one. Now I don’t have an excuse, that weight has to come off now. Either that or it’s a remake of the movie Junior….

Posted on by bereavedandbeingasingleparent · 81 Comments

Needs trimming

That hedge needs trimming……

Hawklad likes to think that this bush has become so large and overgrown, that if it was one day cut then it might destabilise the earths orbit. Better not touch it then. That’s what I call a quality excuse to avoid hard work. A few minutes later it was absolutely chucking it down. At least we got a few minutes sun.

Well that dreaded day has arrived. Been trying to put it off. Yes Hawklad is now taller than me. Certainly if you include the hair…. Even discounting hair then he is now above me. Waiting till he was 15 or 16 would have been nice. But only just gone 13 – really….

I was happy at 5ft10.5 (179cm). I was just above average height. Yes a few more inches might have given my goalkeeping career a boost, but I was cool with my height. I was the tallest in our family. But deep down I knew my title would be lost. Especially when Hawklad was 9 and the Doctor told him that he was above the 97th percentile for height at his age. 97th is always going to tower over something like the 51st.

Now to work on his weight. He is tall but very slim. He struggles to maintain his weight. He’s underweight for his age and height. That’s a label that I have never, ever had. In the words of his Doctor – if he wants to eat chocolate then let him, no need for calorie counting, just eat…. It maybe that he is always moving, brain always in overdrive. It’s something I have to keep an eye on. Evidence is rising on the link between Autism and eating disorders. He is conscious of his weight but thinks he is overweight. He does love eating salads and vegetables. I need to find ways to get more calories in him in a sustainable way.

At the moment we are probably just about maintaining a balanced approach, but only just. I don’t want to make light of this. Many families and adults are so struggling with eating disorders, which too often end tragically. Much more needs to be understood and done. We will treat this so seriously and will continue to look at options. In our case the best approach often involves humour, so…. So maybe a better baker than me is required in our house. That’s something Hawklad would sign up to.

Posted on by bereavedandbeingasingleparent · 71 Comments

Life snapshot

The Aspergers life can be racked with anxieties and obsessive behaviours. Additionally Aspergers can frequently coexist with OCD. Add the death of a mum and both grannies. Then on top of that you add a pandemic. Something has to give with that kind of pressure building up. That’s what our son is dealing with and it is so very tough for him. What does that mean in practice. Well here is a snapshot of life and the impact it has on him.

Every ache, every sneeze, every spot, every pain is seen as a potential sign of a serious disease or the C word. Anxieties bring on indigestion and constipation. These are then seen by him as more potential warnings of serious, life threatening health conditions. The natural response was to frequently wash his hands. It was both to cleanse his hands but also an attempt to pour water on the raging anxiety wildfire. Washing to the point of red raw skin. These issues have existed for years but slowly during 2019 slow progress started to happen. The hand washing was just about brought under control. Then the pandemic hit. The progress was instantly lost. Suddenly the months of reassuring talk a out avoiding serious illnesses, the bodies capacity to fight back and the advances in medical science are basically blown out of the water. The problems started to mount up again and escalate to new heights.

  • Hand washing every few minutes. From 15 second washing now to washing for minutes at a time.
  • A reluctance to dry washed hands as towels might be a source of germs.
  • Harmful germs are seen to exist everywhere. Suddenly it’s difficult for him to touch taps, toilet handles and door knobs. Sheets of paper have to be left next to these so he can avoid touching them directly. Even pulling on a shirt may result in the potentially unclean sleeves coming into contact with his hands. Shoes have to be put on without using his hands.
  • iPads and joysticks have to be washed frequently and definitely before he touches them. It’s the same for things like pens.
  • When he strokes his pets he will immediately run to wash his hands.
  • He needs to see evidence that I wash my hands before I touch any of his items.
  • Clothes have to be frequently washed often multiple times a day.
  • Outside he is constantly looking out for flies and flying bugs. If they come too close then he will need to go inside to wash.
  • He has to have his own seat and no one is allowed to touch it. If they do then the seat has to be cleaned.
  • When he goes out the the front door then he consciously tries to avoid walking over any areas that the postman or others might have walked across. When he comes back in them his shoes will need to be completely cleaned. If he ventures through the front gate and into the outside world then on his return he will completely strip, shower and change to new clothes. Those rules apply to me as well.
  • Mouth-washing and gargling is frequently repeated during the day.
  • Any item which hits the ground (inside or out) will need to be deep cleaned.
  • Any new food items have to go into the garage and complete a quarantine period if at least three days.

This is daily life in our little home. I do my best to reassure, reason and modify behaviours. But it feels nothing more than trying to plug a leaking dam at present. One hole maybe plugged but in the meantime another two new holes have appeared. Counselling was there but government cutbacks have taken their toll on services. The pandemic has temporarily suspended specialist help. The result is massive backlogs and no access to help. These are tough times. For him and yes me as well. As a parent you feel helpless, definitely so underprepared for these challenges. But we keep going. We pick ourselves up and go again. Yes we will get there. We will. But it will take time. Realistically maybe well into 2021. In practice timescales don’t matter, we take each day as it comes, fortified by the love of friends.

Posted on by bereavedandbeingasingleparent · 74 Comments

Schools out for now

Today we received an email from the Headteacher setting out the plans for the coming school year. Clearly he is being hamstrung by both government rules and the lack of any clarity on those rules. But currently this is the plan.

  • Each year group will be largely kept apart from other year groups.
  • Each year group will return to school on a different day. For our sons new year group that will be September 11th.
  • School buses will run but each child will have a named seat and the bus will be split into year groups. That will mean son will have to sit with 3 girls and separate from the boys he would normally sit with. All pupils will need to wear a mask on the bus and use hand sanitizers when they board the bus.
  • Masks will not be worn at any other time during the day.
  • Corridors will operate as normal but pupils will be encouraged to maintain as much social distancing as possible.
  • Social distancing will not be enforced within the classroom, so room layouts will remain unchanged.
  • No catering facilities will be available at break times.
  • Access to the canteen will be restricted at lunchtime. Pupils will only be allowed to have lunch within narrow timeframes.
  • More hand sanitizers will be available but it will be up to the pupils when they use them.
  • Toilets will be restricted to only 3 people at a time.
  • Year groups will be kept where possible in there own area of the school. Sons area would mean that he does not have access to the quiet room which is set aside for children with autism.
  • Parents will be given details of mental health services available to those children struggling.
  • No onsite temperature checking will take place, that is the responsibility of the parent.
  • If any child is showing a Covid symptom then they should be kept off school. They are also encouraged to undertake a virus test.
  • Class sizes may have to be increased to take account of increased teacher sickness.
  • Pupils will be encouraged to avoid meeting with friends who are not in their year group.
  • School will not be closed if virus cases are recorded.
  • Online tuition will have to be abandoned with the government dictating a full return to normal schooling.

So that’s the plan. I’m so hoping son decides to opt for homeschooling. Frankly opening up large schools during a pandemic with only the minimum of additional safeguards, appears reckless. So many unanswered questions, which the headteacher openly refers to. Why would you shutdown online tuition in schools which are actually up for awards on the quality of that online service. What do families do when they have several children in different year groups. Most people with the virus show no symptoms yet testing is being restricted. Why masks for buses yet no masks for classrooms. How do kids with autism access the autism services which are in a restricted parts of the school. It’s ok giving out mental health service details but those services are already overrun with significant service backlogs (waiting lists of up to 12 months) – kids need help now….. And on and on.

It’s all a bit of a mess really.

Posted on by bereavedandbeingasingleparent · 60 Comments

Telepathy

Free Gardening Tip Number 1: Clearly if you leave the garden long enough it will sort itself out. You can just stand back and enjoy the results.

If I was listing my many wonderful features I might start with

  • Chiselled Features
  • Thor like body
  • Razor sharp intellect
  • Reactions of a cat
  • Chef supreme
  • Cunning linguist
  • Sporting Superbeing

And on and on. The list would be extensive but one word that does not appear is Telepathic.

“Dad we have a problem. Class have been working on a project for the last two weeks. It’s going to be used as this terms evaluation mark. The project has to be finished in one hours time. I didn’t know about it.”

The two week project period almost perfectly mirrored the time Hawklad had been off from school since his unplanned operation. Now in the normal scheme of things this would not be a problem. He had a valid reason to be unavailable for schoolwork. School was notified of this. Common sense would surely prevail……

Oh no……no, no, no, no, pigging NO.

It is the responsibility of the pupil and the parent to be fully aware of all assignments. These are clearly communicated via class lessons and the class notes. Failure to be aware of an assignment is not a valid exception to the rule. This applies to ALL parents and pupils. So basically if your sick and return to school then you should ensure you read all class documentation before your first day back. You can then immediately start working on any projects. This bad, bad, bad parent did not do this. So I never came across the assignment. That’s where the power of telepathy would have been most useful.

Free Parenting Tip Number 1: So clearly what any responsible parent should have done is read all the class notes, work out deadlines for the various projects and then return your child back to school THE DAY AFTER THE PROJECTS HAD TO BE HANDED IN. Job done and no need for a one hour mad scramble to cobble together a project….

Posted on by bereavedandbeingasingleparent · 56 Comments

Mothballed

This is a mothballed Coal Power Station that is right on the furthest horizon we can see. We can only see that far as we are on top of a hill. It takes an effort to find it from here. Can only see it from one extreme corner of the garden. This is also at my poor old camera’s maximum zoom. I guess it’s a reminder of a rapidly receding age and will be getting demolished soon.

Last school week and it’s trying to end the year on a most vexing high….

Let’s see how many assessments we can squeeze into 5 days. The answer ….. TOO MANY.

I had spoken to school and told them that son was still not 100% following his hospital visit but would give the last school week ago. However he wasn’t firing on all cylinders. School assured me that they would go easy on him. ASSESSMENTS are clearly easy on him. That’s so how I remember school tests in my day. Then we come to English. He completed the online lesson and submitted a rather fine gothic story. I was impressed with the storytelling and especially the writing. It was grammatically very good. Whisper it, spelling was almost perfect. That is some progress for him. So I was a little surprised to receive an email from school at 11.30pm to inform me that his work in the lesson had been below standard and incomplete. Really. The teacher has not responded to my query as the email failed to provide any details. Well that’s helpful. Having reviewed the lesson material several times I can only assume that he failed to respond to one rather vague question. A hard to spot question requiring a one sentence answer. Son had actually answered it but forgot to upload a photo of the one line answer. Unsurprisingly not a mention of the story he had submitted. If I wasn’t already convinced about the failures of mainstream education then this has finally clinched the deal. Well stuff school. I’ve assessed his work as brilliant and he will be getting a reward for it.

Maybe it’s time to mothball our countries factory farming educational approach…

Posted on by bereavedandbeingasingleparent · 58 Comments

Live on the edge

This counts as excitement here in Yorkshire. We know how to live on the edge.

I don’t really celebrate my birthday anymore. It’s more associated with being the day that we lost our mum. But I did start a new tradition. It would almost become a second birthday for our son. If the Queen can have two birthdays then so can Hawklad. So I get him his favourite cake, that’s buy it not bake it (wouldn’t do that to him). He gets to eat his favourite meal which is probably pizza at the moment. We would normally have a trip out somewhere but not this year…. Finally he gets a present. So what present does he want this year.

“I’ve been giving it some thought and decided.”

My money is on either a computer game or maybe a wrestling figure.

“I would like Chilli Soup.”

What as your special meal?

“No as my present. That way I get two special meals.”

Well you can have two special meals this year and still have a present.

“No will stick to the Chilli Soup as a present. “

I’m not like the Genie in the Lamp. Not going to hold you strictly to three wishes. Plus I struggle to count past 2 these days. You can still have a present.”

“No that’s the deal this year.”

*******

Well he’s going to get his Chilli Soup. It’s either going to be Beef Or Pumpkin Chilli. He’s going to get his pizza night. AND yes he’s going to get a present, just need to think of one now. Maybe a joint present. One we both can enjoy. That would kinda work.

Posted on by bereavedandbeingasingleparent · 61 Comments

Biscuit inspiration

Flowers never fail to take my breathe away.

Sadly on too many days, school has the same effect on me

I contacted school to let them know that son was still struggling but as it was the last week of school, he would give the online lessons a go. School said that they would let all his teachers know and would appropriately restrict his work demands. This week had to be a phased return. That was 8.30am on Monday morning. His first lesson went ok then it was time for the second to start. He was told to complete a one hour test (starting in 5 minutes) which the rest of the class has had a week to revise for. In fact some of the questions related to course material which was only introduced during the week he was absent. Apparently even if a child is sick, that child should still log into the school system and check all class lesson notes.

So much for a phased return to schooling.

This called for the inspirational powers of hot milk, digestive biscuits and toast. The test was completed with much common sense and quite a bit of creative guesswork. Looking at some of the questions – his Dad would have been as much use as air conditioning is in Yorkshire.

That was the first morning of the school week. This could be a long one. Good job we have many packets of biscuits and chocolate ready to go…