Gluten and dairy

Sorry having to milk the red flowers. They don’t last long and then that’s it for another year. Sadly shopping comes round much more frequently.

Another weekend shopping experience to be quickly forgotten. Yes we are always thankful to get some stuff. Things like bathroom rolls (toilet paper) and soap are getting easier to find. Finally some popcorn. Ok it’s just salty but we can add honey to it. But then the inner grump comes out in me.

So many items we take for granted are now becoming a luxury. The words out of stock, no alternatives, unavailable are becoming such a frequent part of the wonderful shopping experience. In terms of our Son it applies to a number of his favourites

  • Tomato ketchup (has to be Heinz)
  • Pasta
  • Skinless sausages
  • Baguettes
  • Tortilla wraps
  • Mini fairy cakes
  • Tinned carrots
  • Corn on the cob.

For me it’s the gluten free and IBS friendly alternatives. Yesterday I drew a complete blank. Yes you could get a few glutenless meat sausages and a couple of soya based meal options. Not great when you are trying to be a veggie and soya blows you up like a balloon. No dairy free milk option except Soya. Not one single gluten free bread based option. Looks like I’m trying to bake my own again – the last one ended up painted and used as Jurassic World play island… Yes we got some jacket potatoes but they look like they have just been used as projectiles in the latest Highland Games, then sent to the army range for target practice.

So unless I can find some super expensive options on Amazon then this weeks meal options will be another challenge. I’m ok, I can just walk around looking permanently pregnant thanks to my inflamed IBS. It’s more of a challenge for our Son with his set eating patterns. Moving from them causes so much anxiety for him.

Dad I’ve got an idea. Let’s just have a week eating crisps and chocolate. Wash it down with full sugar coke. Not good for us but at least it will be fun.”

I’m so into this idea. Yes I will end up very round. Having a body that looks like the perfect figure. A 6. But is that not a better option than looking pregnant from dairy and soya intake. Decision made. Where’s that family sized packet of potato crisps.

Finding Popcorn

The very observant amongst you will notice a plant pot which looks remarkably like a drum from a tumble drier. Best and safest use for those which had a habit of catching fire. Ours did get modified to make it less likely to explode (after many months of waiting) then promptly died one day after the new warranty period ran out. So better get some use out of it. So we acquired a large metal plant pot.

Some things are more challenging to find and acquire.

Things like Popcorn. It’s a staple part of our Saturday Night Home Movie Experience. Well it has been until now. At the moment it is like gold dust at the supermarket which is our only real pandemic option. For two weeks it’s been sold out. Maybe it’s become the new currency of the survivalists. Replacing bathroom paper (toilet paper). As a result I suddenly have a real urge to go popcorn hunting. Must be able to find some popcorn somewhere. Must have a rummage.

Another challenge which is far less enticing and attractive is the prospect of trying to get our son to venture past the front gate. So far the tentative attempts have failed. Even just venturing onto the road, just a few paces from the front gate is proving a challenge for him. This won’t be just isolated to this family. So many others will be in a similar position. Trying to deal with these issues largely without any help. Our leader of the opposition party has been pushing the need to address the mental health consequences of the last few months. Sadly our government doesn’t seem to get it. The response seems to be well we have released the lockdown, just go out and act normally. Unfortunately that response is typical of the last 10 years. Mental Health funding has been one of the easy targets for government cutbacks. This has led to untenable waiting lists for some essential children services and worse. Many parts of children and adult support have just disappeared. You can just see the likes of Johnson and Hancock smirking while telling us

If you have the money then you can buy help, if you can’t then tough. It’s your fault for not having massive bank accounts. Let’s think of the real issue. How can we get our hands on the profits from a switch to a US type health care system.

So we will keep trying to take those little steps. Trying to raise awareness of this issue. This is going to be a long and very winding road. Importantly it’s a road which will be driven by our son. He will decide when and where to take those steps. He has to find his own way and be comfortable with it. Today he won’t be going down that road. That’s for another day.

So I will go back to dreaming about popcorn hunting.

Chaos Theory

Guard duty…

Scrap the guard duty, is that a biscuit I can smell….

I think we all have that sixth sense. Mine kicked in during the early hours. Son had just popped his head round the bedroom door.

Are you awake Dad?”

At the time I was reading about chaos theory. Got to explain my cooking disasters somehow.

I’ve got a question in my head and I can’t sleep.”

Sixth sense fully kicked in. My mind better get up to speed quickly.

It’s to do with the Royal Family and the rules surrounding the line of Succession.”

Relief as I feared a bird and the bees type question.

I’m guessing my question won’t be adequately covered in the Succession to the Crown Act”

Must admit in all my many years, I still haven’t got round to reading that real page turner.

I bet the Act doesn’t reflect the progress made in genetics, physics and quantum theory.”

No, I think that is a safe bet. Already my mind is braced for impact. A wander into his world is truly joyous but often feels like my mind isn’t quite able to take it all in. Maybe a bit like a modern and much safer version of a Psychedelic Trip.

Ok the rules on succession are quite straightforward and a lot fairer now. But what happens if we spiced it up a bit. What happens if through the advancement in genetics we managed to bring back a former King or Queen. Or maybe we develop time travel and can bring forward a previous monarch. A King or Queen who didn’t lose the throne in battle. Say Henry V or Queen Victoria. So the question is…. Would they still have a claim to the throne. Maybe it would lead to a civil war between those supporting the current monarch and those supporting Henry V or Victoria. Victoria won’t be best pleased with the current state of her empire. Henry V will be distinctly horrified at the current leadership of the country.”

And with that mind altering nugget he went back to sleep on it. Suddenly chaos theory seems so clear now.

Over my head

One of the advantages of not cutting the hedge. A bit of overhead yellow is always very nice.

Dad this is just going over my head.”

He wasn’t referring to the hedge as well…

“This is refusing to enter my brain. Sometimes dyslexia is a right pain in the butt….”

He was referring to French. In particular today’s lesson. All about grammatical gender. It’s not an easy concept for English speaking numpties like me as we don’t tend to get so focused on gender and nouns. Which is most odd as our language is heavily derived from Anglo-Saxon and French, which are. So you can hear my brain chug away when it sees

A simple word like HAPPY become in French either HEUREUX (masculine) or HEUREUSE (feminine).

Hard for me, a nightmare for a dyslexic. So a lesson of writing these out for an hour is just torture for him. Yes you can try and learn the rules. But when you struggle to pick up word and letter patterns – it’s not much help.

Hey Dad I’m dyslexic in multiple languages. Surely I get a badge for that.”

We should really be switching dyslexic kids to different learning techniques. Maybe focusing just on visual and verbal learning. Using fun, online teaching resources. Finding out what works and what doesn’t work for each industry child. Unfortunately teachers are given so little flexibility by our Government. They have to stick to the national curriculum. Sadly the factory education approach doesn’t work for many. So we try to make the best of it. But it’s not easy seeing your child struggle.

It feels like you are holding onto the side of a giant bolder as it tumbles down a hill. Not in control and just grimly trying not to fall off. But eventually you reach the bottom. You can take a breather before you start tumbling again. I guess the secret is to make the most of the flat bits. Grab that ice cream and think of ways to make the tumbling down hill more fun. Must be possible. Remember being a kid and rolling down the slopes. As long as you avoided the nettles and animal droppings, it was the best laugh ever. So we will put our thinking hats on, how to make learning French fun.

Bonne journee (yes I know I’ve dropped a mark for the missing thingy off the e, but my keyboard doesn’t do French)….

Please note one of my great regrets is that I’m not multilingual. I love talking to people who can effortlessly switch languages. So I will keep going. You never know, one day…

What does it teach us

Dad I’m seeing either a new element which will make up the next Ironman reactor or a distant multiverse….”

Strangely I was thinking

Better pull the little blighter up, that’s where the tomatoes are going…..

It’s all about different perspectives. That’s reflected in two conversations I’ve had with teachers today. Same child, two different teachers, two different takes.

  • He’s been doing so well. Worked his socks off. Have to find ways to allow him to shine. Need to try and get him into much higher teaching group.
  • Bottom set is his level. He does struggle with the basics of reading and writing.

Again let’s not forget, teachers are humans and it’s down to individual perspectives. You agree with some you don’t with others. But they are human.

Our current Government and media fail to recognise that human element. For the last few days teachers have been demonised. Their crime being to raise safety concerns about the proposal to reopen parts of the school system. They have been branded cowards, lazy, lefties, traitors. The nurses have risked their life’s so the teachers should pull their weight and get back into schools. Those making these comments are currently working from the safety of their own living rooms. It’s so easy to attack people, to ask others to accept risk when you are bunkered down in your little safe area. To call for sacrifices from the comfort of your armchair. Tell you what why don’t we do something. Before we send teachers and young kids back to school why don’t those demanding these sacrifices volunteer to work in a care setting for a week. Until they are prepared to do this then they should crawl back quietly into their nest of vipers. Leave sorting this mess out to those who will treat people as humans. Understand them, support them, be honest with them, work with them.

What a drama

“Son, just go outside and look at the flowers. At this rate the school iPad is going to smash into the wall”

It was one of THOSE lessons. Why is it so often Drama…..

Dad I just can’t do this. It’s only the first task and it’s going to take forever.”

Tell me what will you learn about acting and the performance arts by doing a glorified word search. Read a 29 page script and find which character had to say these short phrases. Most of the phrases were in the middle of long paragraphs. On what planet is that exercise tailored to help kids with dyslexia.

Only after you had successfully completed that exercise was Son allowed to move on to the half term assessment. And what a beaut that was as well. Three options.

  • Costume design for a character in the play. Describe the theory behind your choice, draw the design and then develop the design with what materials you have at home. The pupil must then model the costume and be photographed.

Just NO Dad. We don’t have any clothes we can use, I can’t draw AND if they think Im having my photo taken wearing it – they have another thing coming.”

  • Learn the role for one character. Describe the theory behind your acting approach and then film yourself acting the role.

And that’s a big fat NO as well. I’m not being filmed for anybody.”

  • Design the stage set. Describe the theory behind your design. Draw a detailed picture of the stage. Then build the stage with resources you have at home.

Well I guess it will have to be this option. At least I don’t have to suffer being filmed. But looking at the example then we don’t have any of that stuff in. Suddenly Drama has become Art. Painting backdrops. Making or drawing miniature curtains. Building miniature props. And I will be starting after everyone else because the word search took me longer than probably all the other kids. Deep Joy.”

And he was right. We don’t even have a cardboard box to build a rubbish one. The teacher clearly doesn’t live in a house with three gerbils… Thankfully Son understands that I don’t care what grade he gets for this assignment. Let’s just get it done and then we forget about it. So after he had cleared his mind looking at the flowers, he did a quick paper stage design. Then for next weeks final assessment lesson he will build a Lego stage. I wonder if the teacher will appreciate Darth Vader and IronMan mini figures playing completely different roles. I do hope so.

Lollies and homeschooling

Somebody waiting to share my ice lolly.

This weekend the weather is going to be mad. For a start it’s dry (which is mad for Yorkshire). But the temperature. Midday today it was 21C (70F). Midday tomorrow is due to be 2C (35F). On the Yorkshire temperature scale that’s going from a string vest to two jumpers.

This week it was a 4 day school session. Definitely into a pattern now. Some subjects working well using an iPad and online resources. Some lessons not working well. But what have we learnt this week from the school at home project.

  • School are looking at how to enforce social distancing when they reopen. They are doing this without any help or information or resources from the so called Government. The only way they have managed to find a practical way is to split the existing classes up. Maximum Class sizes have to a third of what they are now. This basically means that it only works if many kids are homeschooled for at least part of the week.
  • The secret with about teaching is understand the particular needs of the child. With our Son and a subject like a History, it’s not about getting new information into him. Already he has a staggering encyclopaedia stored. It’s finding ways to get that knowledge out of him.
  • It’s basically impossible to free hand draw a circle and a pentagram on a tablet.
  • Even at home we have a stationary leak. Pens, pencils, erasers, rulers …. are going missing. I can understand losing them at school but at home …. really. Where are they?
  • When did long divisions become so complicated.
  • Son is enjoying having a regular school lunch. He says that his work on an afternoon has improved. He’s less tired. At school because of too many kids trying to use overstretched catering facilities, Son often doesn’t eat or drink. It’s certainly not helped by government pressure to cut break and lunch times.
  • Kryptonite won’t count when you are trying to name inert elements.
  • Son, the IPad and I do not agree on how most words are spelt.
  • One of the great feels is Son completing a lesson with 30 minutes to spare. Son can go outside and I can hover.
  • I am becoming a bit of an expert in Russian geography. Begs the question why I was so rubbish at Geography when I was at school.
  • The French I learned (or thought I learned) is fundamentally different to the French Son is learning now.
  • In all the weeks we have done this thing at home, most subjects have not set additional homework. Yet we are told that the kids are keeping up on the curriculum requirements. So what is the point of setting heaps of daily homework when they are at school

And the last thing we have learnt. Ice lollies during subjects like Drama really do ease the pain.

Flight

Such a rare site these days. A plane…. According to the flight app it’s on the way to Houston. I wonder how many are on the flight? With so many unseen enemies I don’t imagine it’s a particularly pleasant experience.

I was never the greatest of flyers. I was always one of those who kept one beady eye on fellow passengers for unusual behaviour and the other on the structural integrity of the plane. Luckily I never had too many bad experiences.

  • A landing at Geneva which was a tad extreme. I heard one flight attendant say – that’s the co pilot, he drives his car just as bad….
  • An argument with English Border Security why they were body searching our 3 year old toddler who was holding a cuddly dinosaur and his 73 year old granny, yet waving through adults my age. I wonder if that got me onto the security watch list….
  • A last second aborted landing at Leeds Bradford. Sudden pull up with feet to go. Then 10 minutes circling at an extremely low height with no pilot update. Finally the pilot announced that the power had gone out at the airport during the landing.
  • A year later circling Leeds Bradford airport for far too long waiting for the wind to drop. The pilot didn’t help the mood by announcing that the plane was low on fuel so they could only circle one more time before they he would have to find another airport that was open.

But then you balance that out with great memories

  • That first glimpse of The Alps through the plane window.
  • On a flight to Amsterdam telling son a story about a talking mole who would sneeze so hard he would blow clothes off washing lines. People and other talking animals would stand in front of the mole hoping for a sneeze and a free journey. A mole whose best friends are an overweight tea drinking cheetah and a crocodile who was scared of everything. When I finished I heard the toddler behind us laughing her head off. Her parents asked if I would tell another one for her. Ended up doing stories until we landed.
  • Our toddler son telling the the flight attendant on a Lufthansa flight that the in flight cakes were the best thing he had ever had. Just before we left the plane, the flight attendant returned with a huge box of the cakes. Kept him going for months.
  • As we boarded a Swissair flight the pilot clearly took a shining to our son. Seconds later son was sat in the pilots seat with her pilot hat on. He was shown how to fly the plane. That’s an awful lot of things to look at.
  • Swissair was always so much fun. Just before you landed they would dish out free goodies for you to take with you. Free chocolate, free small wine bottles, free sweets and a free soft toy for the kids. Sadly they went bankruptI wonder why….

Back to that one flight in the air heading to Houston. It got me thinking about when I would fly again. The question rapidly changed into if I would ever fly again… Aspergers and modern flying are not natural partners. Too many people squeezed into confined spaces. In your face security. Never ending queues. Unpredictable timings designed around the planes rather than the individual. The sensory overload and lack of personal space or quiet areas. Maybe the answer is never.

If and when travel resumes for the world…. if and when travel resumes for us then we have options. Train journey is still not subject to many of the burdens that go with flying. Car travel can be so much fun …..just need a car that could make it out of Yorkshire. And yes air travel may still be an option.

Or maybe I can find a talking mole who has a talent for massive sneezing. Maybe mole sneeze induced travel is the eco friendly option for the future.

New Style

Some objects look spectacular and then you have me……

“Dad the lockdown means that it doesn’t matter what you look like. We have seen one person in 7 weeks. No one is going to see you. Which in your case today is a real bonus.”

Last night was spent listening to songs from the Stranglers and Bad Company. On Tuesday the music world lost Dave Greenfield the brilliant Stranglers keyboard player to this dreadful virus. Only a few months back we had seen him so full of life and at the height of his form playing in Leeds.

Then yesterday Brian Howe the wonderful Bad Company vocalist was lost to a heart attack. I only got the chance to see him once. A night I will never forget. It was the night my dad died. So yes I listened to some music. Music with mixed emotions. But thankfully most of my thoughts stayed on legacy. Focusing on what those two fine musicians had contributed to my musical journey.

As we all know – life has to go on. The world keeps turning. Got to keep listening to the music. Often music and life are intertwined.

So why was I looking so beautiful this morning, so deserving of that comment from our Son. I had been sneakily trying to regrow my beard. Hoping Son wouldn’t notice. Well it was spotted and I was ordered to shave. I did a beautiful job shaving the left side of my face. Then abruptly the electric razor stopped working. It went bang. So now I’m left with half a beard and half a moustache until a new shaver arrives on Monday. Strangely I can’t remember that look ever catching on.

Well if someone comes to the door you will just have to stand side on Dad. You can decide if you go for the beard look or the shaved look. It’s your call. You could even try and confuse them. Every time they look away, turn to the other side.”

Never thought I would be such a trend setter….

The Big Screen

Sometimes sitting in the garden feels like the biggest ever BIG SCREEN.

Dad I’ve really got use to our home based movie nights. I was thinking that I’m not sure I ever want to go to the cinema again. Too many people. Too much stress.”

Going to the cinema has always been a bit of a lottery with our Son. We need to carefully manage the process. Arrive before the queues start to form. Carefully select a movie time which will be quiet. Sit on the very front row as this is likely to be empty and you won’t get anyone in front of you. Then keep you fingers crossed that no one sits close to us. Wait till everyone else has left before we depart. So many stress points for both our son and parents. We’ve had to leave movies within minutes (or even before they have started). Slowly the number of movies he would endure the cinema stress would reduce rapidly. Before the virus took hold it was down to just Marvel movies. So no I am not surprised that he’s backing away from cinemas. Sadly I think he won’t be the only one.

It’s not helped that our cinema options are limited. The only cinema he would go to in the end was a large muliplex in the city. It ran early morning showings which where usually empty. Unfortunately they have redesigned the cinema. Bigger, armchair like seats have been installed. Bigger seats means less seats. Less seats means fewer chances to find space. Which means the screenings feel so much busier. For someone with Aspergers that is a major issue. So are the cinema trips over? Well if they are then I have so many memories from them

  • Taking mum to see the Horse Whisperer. She hadn’t been to a cinema in many many decades. She was a little taken aback (and very relieved) that PATHE News wasn’t shown before the movie and she was amazed that people didn’t wait for the credits to finish – as a child she had to wait for the national anthem.
  • Taking son to see one of the Smurf movies and realising we were the only people watching it. Having your very own giant big screen is such a cool feeling.
  • My first date with my partner was to see The Phantom Menace. Unbelievably our relationship survived that experience.
  • Going to our local cinema in the nearest market town. It always looked such a small cinema from the outside. Unbelievably it was actually way smaller. We watched Black Panther with a couple of his old school friends and it felt like we took up half the seats. A screen probably smaller than most peoples TV and with just a handful of rickety old seats. That was the main screen, lord knows how small the second screen is.
  • I was brought up in a seaside town where the cinema was on the beach. During a high tide the gents toilets would flood.

Photo from Trip Adviser

  • Went to see the Blues Brothers at that cinema and someone let off a stink bomb. Only the very hardy got to see the end of that one. Luckily a head cold and a blocked up nose gave me a distinct advantage.
  • Went to see BMX Bandits there as well. It was absolutely heaving. Unbelievably two kids sneaked in bikes and started riding them around during the film. A week later a famous Oscar winning movie was on and no one turned up. Summed up the town really.
  • My first trip to a cinema was to see Digby The Biggest Dog in the World. Yes I am that old.
  • Before I met my partner I remember going to see JFK with a long time girlfriend. Foolishly it was the midnight screening. I fell asleep after the first few minutes and woke as the credits started to role. Strangely I was able to fill in the missing 3 hour gap and actually felt that I had not missed anything.
  • My partners mum wanted to go to the cinema as she hadn’t been in years. She was a devout Quaker so we looked at various religious film options which the local specialist cinema would offer. One film looked very promising. It was a 2 hour documentary about monks living on a remote site. The monks had taken a vow of silence so the movie only featured background sounds, no talking and no music. After seeing the various options her mum opted for the cartoon, Chicken Run and loved it.
  • I took son to see Captain Marvel. Unfortunately his muppet Dad took him into screen 3 rather than screen 2. As soon as the movie started it was clear that the movie running here was Dumbo. Unfortunately Dumbo in 3D. We didn’t have any 3D glasses so we had to rather embarrassingly trudge out.

So just maybe our cinema days are over for the foreseeable future. That’s kinda sad but if that makes our Son happier then that’s fantastic. There is something reassuringly nice about watching a movie premiere wearing your old comfy jogging pants with a big bowl of popcorn on your lap. Also in full control of the movie options, so we can decide to switch films at any stage. So here’s to the days of the home based cinematic experience. Time to create some new memories.