Slow cooker

Tis the season for cobwebs.

Grief and Loss is an odd thing. I can feel fine then something unexpected sends those emotional waves crashing over me again. Four years ago those waves would be constant. Permanent high tide. These days the waves have largely ebbed with only the occasional rip tide. Because these tides are so unexpected, they really take the breath away.

The other thing is that these days it’s often random things that set me off. Definitely not the usual stuff. Not the kind of thing that I can prepare for. Just like last night.

I was trying to find a packet of microwave rice from the kitchen cupboard. It had clearly fallen off the back of the shelf. As I rummaged I came across a box. An unopened Slow Cooker. My partner must have bought this. I have been using the one I got from my mum’s house when I cleared it out. I now held this unopened kitchen gadget and felt incredibly sad. Those waves started to crash over me.

My partner never got round to using this. She never will…..

Not an old photo. Not a favourite song. Not an old letter. A SLOW COOKER had set me off.

Can walls come down

It’s like waiting for a bus. You wait ages and two come along at the same time. No posts about grief and then two arrive together.

It’s now four years since I lost my partner. Four years into the grief journey.

This morning I went to put the bin out onto the side of the road. When I looked down the street I noticed a ‘Sold Sign’ outside a house. It was outside the house of a couple I get on well with. Would often bump into them prior to the pandemic. Will be sad to see them leave. I know very few people in our small village now. The pandemic hasn’t helped but that’s the reality. Before the world changed for me in 2016 it was very much different. We knew many in the village. We would go to all the village events. Would visit people, people would visit us. Even when our son’s Aspergers stopped him going to village stuff, one parent would stay with him and the other could still go.

Then the world changed.

I didn’t want to venture out to these village do’s. I just wanted to build walls around myself. I lost touch with many. That was my bereavement. Not only did it rob me of my partner but it took many of my friends as well. That was partly my fault. The last thing I thought I wanted was company. It also didn’t feel right going out by myself. I had become programmed to being in a couple. Being single was something I had forgotten how to do. Most of my friends were now based on US being a couple. It must have been tough for those friends to adjust. To deal with someone grieving and now single. As a result over time many friends dropped off the radar. Increasing isolation. But at that time it was ok with me. It felt like how things should be. Me hiding behind the walls.

Then I began to change.

As my grief journey progressed suddenly those walls stopped being a useful self defence system. They became confines. Prison walls. Hemming me in. I came to realise just who much I missed company. Just maybe I had been wrong. When I was grieving and avoiding people, maybe that was when I needed company the most.

So now I’m trying to take those walls down. Sadly they go up easier than they come down. The pandemic doesn’t help. Being a single parent to a son with so many social fears certainly is restrictive. Also I’m nervous of social settings. But actually that’s not grief related, that’s going back to who I was when I was younger.

So here I am in 2020. Much further down the grief road now the question is can I bring those walls down.

Time to bring the walls down

I realised that it’s been a while since I mentioned grief. If I’m not careful I will need to change the name of the blog. Maybe it’s time to find something with ‘muppet’ or ‘most excellent baker’ as a new badge to work under. The possibilities are endless when you think about it. So many things to go for

Baking disasters

Parenting mishaps

Homeschooling meltdowns

Single parenting

Mental health

Trying to navigate the Asperger Parenting open waters

Yoga injuries

Truly shocking poetry

Badly behaved pets

Badly behaved wildlife

Village high jinks

Yorkshire tourism

The wonders of Switzerland

Hide behind the sofa politics

Bachelor life!!!!!

How many photos I can squeeze out of one back garden view

Fashion tips

Accountancy

Maybe not accountancy…. Definitely not that. I would actually rather listen to a U2 album than read about that subject. But maybe there is a key message here. Apart from I’ve actually found something I hate more than Bono singing. If you had asked me back in 2016 and 2017 to make a list then it would have been very short. Grief, single parenting and Aspergers. Bereavement and loss seems to rob you of your life. Your gaze drops to your feet, just can’t lift your head up. Walls begin to surround you. But with time, in your own time, things do improve. You can lift your head up again. You start to want the walls to come down again. Yes maybe Bereavedsingledad doesn’t quite fit anymore.

Childhood

So many pupils from our son’s year group are isolating. I’m also hearing that other pupils are being asked to isolate in other year groups as well. Many teachers are off. It’s all a bit of a mess really. Many schools are like this in the UK. They don’t feel like environments conducive to learning at present.

These are stressful times for many. I’m not sure the Government understands this. Or chooses to ignore this. Bland statements that ‘schools are the best place for children’ are recited everyday. It might be in terms of the Economy but….

Some children need to be in school. Some need to be at home. They definitely need to have the chance to have a childhood. A good childhood. It’s often too easily forgotten how much stress and anxiety they are under. Unable to see friends. Unable to do some of the stuff they love. Living in a stress filled world with so much confusion. Told to wear masks in buses and shops, yet told not wear them in classrooms. Frequent enforced teacher switches. Many sadly forced to isolate or deal with the actual virus. Living in a small world with few holidays and adventures. Watching never ending grim news reports. How much stress are many of our children under. We have to do something about this. To me that’s more important than the short term needs of the economy.

Our son is racked with anxiety. Too much to allow him to venture through the front gate. A significant part of his precious childhood is being spent in isolation. That’s hard to take as a parent. All I can do is to keep him feeling safe, try to shutout the bad stuff from the world and to try to find ways to help him still enjoy his childhood. He’s had a tough one already. Loss of his mum, coming to terms with Aspergers and now a Pandemic. That’s why I’ve got to work all the more harder. There’s still a childhood to be enjoyed.

Which way

In life you get asked so many questions. But some questions keep repeating themselves. Like the classics ‘Are we there yet?’ and ‘where’s the remote control?’.

Then there are other questions. More vexing questions. One question keeps popping up. I’ve been asked this by family members, other parents, teachers and even once a nurse. It does have a number of variants but it’s basically the same question

Will your son get better?

Will his Aspergers improve?

Will his Aspergers improve as he gets older?

I’m no clinical specialist. Just a bumbling parent. But here’s my take on the question.

Aspergers is a lifelong syndrome. It’s not going to get better. Its not going to be cured. It’s not going to disappear. What might change is that over time the individual and the family may develop strategies to help deal better with some of the situations life will throw at them. Also some of the specific symptoms may fluctuate over time. For example in a number of individuals something like repetitive hand flapping may become less prevalent with age. Also Aspergers often coexists with a number of other conditions – dyspraxia, ADHD, dyslexia…. It is possible that some of these conditions could improve with time. For example our son has with hard work started to overcome some of the issues which his dyspraxia and dyslexia had caused him in his earlier years.

So yes it is possible that improvements may occur. But here’s the thing, it’s not guaranteed. Each individual case is different, unique. Things may stay the same with age. They can also get worse with age.

So we just don’t know.

The Clinical Psychologist who did the full review of our Son was quite clear. The majority of his Aspergers related traits will stay with him over his life. However at around the teenage period changes may start to occur. It could go either way. He could become fully independent or he may regress and may need some form of life long support. She talked through a number of possible scenarios. One scenario was that some improvements would occur potentially in the areas of dyslexia and the diminishing of some of the repetitive behaviours. Another scenario painted a downturn in his existing anxieties and fears. This could occur naturally during his teenage years or could be triggered by a single significant event which effects his view of the world. Tips the balance in his risk assessments of the world. This could lead to significant mental health concerns and potentially social isolation. Where we are sat currently, we are not a million miles away from that scenario. The triggers – the death of his mum, a pandemic, his teenage years…. He is currently physically cut adrift from the world. His fears and anxieties ramped up to the rafters.

Nothing is set in stone. We just have to go with the flow and see what life brings. It could be still be a fully independent life. But it could also entail a lifelong requirement for support. In this country we don’t cater for the latter scenario. Support has to be fought and won for young children. That support is at best is patchy. During the teenage years the support tends to be reduced due to funding cut backs. By early adulthood the support has completely vanished. That’s a sobering thought for parents in this position. It really is.

Vexing

Time passes. It keeps on passing. A wander round this small graveyard provides proof of this. Many of the once proud gravestones are now weathered beyond recognition. Time passes.

Five years ago I had just driven to the crematorium to pick up my partners ashes. They joined my mothers ashes on the sideboard. At that stage a real urge to get on with laying my those two precious spirits to the earth. Definite external pressure for this. I remember listening to one so called expert talk about it being unhealthy for society for people to linger on those who had left us. Maybe that’s the hidden message there – it might be ok for the person grieving but it’s uncomfortable for everyone else. Anyway it seemed like the right thing to do. The only thing to do.

Within weeks I had scattered mum on her family grave. I remember it so well and I have already wrote about a bizarre memory from that experience. I was alone in the graveyard. As I started to clear some earth away, to my side I noticed a little squirrel. A squirrel apparently doing the same thing on a neighbouring grave. Was it a case of burying nuts or was it a burial. It made me smile, two souls getting on with important stuff, maybe the same stuff, almost happy to have company there. Mum would have loved that sight.

Now time to get a move on laying my partner to the ground. Partly in England and partly in Switzerland. A bit of a logistical nightmare. I secured the paperwork to allow for the transport of ashes overseas. Ready to begin.

Five years later…..still waiting to begin.

Now I worry. Have I left it too late. Have I missed the window of opportunity to follow my partners wishes. Being a single parent and with son’s Aspergers, European travel is a nightmare – feeling like it gets more problematic every year. No similar excuse for the English sites. But it just didn’t feel right. Should I really put our son through more grief when he was still so young. No right or wrong answer here. We all need to do what’s best for our close ones and ourselves here. Unfortunately just like most things, just like European travel for us, it seems to get more daunting the longer it goes on.

Have I missed the best time to do it?

That feeling is making feel very anxious at present. Will we ever get round to doing what we have to do? Was life really supposed to be this vexing…..

Insignificant

It’s a big sky. Its easy to feel very small and insignificant stood under it.

There are so many times when parenting is the best gig on the planet. Then there are other times…

I was trying to convince our son that he had washed his hands enough. He had been at the soap and water for nearly five minutes. Everything I said didn’t seem to have any impact. Finally he decided that was enough. He asked if the towel was clean and had it been washed that day. I assured him that was the case. He left the bathroom and I looked at his hands. His very red and sore skin. That’s what happens when you wash as often as he does. We are using skin friendly soap. I water it down further. But his hands are still red. I encourage him to use his skin care lotion. But his hands are still sore.

These are the times I feel inadequate as a parent. Missing the support of another person. Someone to share the load. Definitely running out of things to try. Actually ran out of things to try. His health professionals try to help but they see this intrinsically linked to the pandemic. Get the pandemic under control and we can start to bring his hand washing under control – hopefully. But that doesn’t make me feel any better as a parent. Feels like I had one job and I dropped the ball on it.

So I’m stood under that big sky. Feeling insignificant. Time to breathe. Reset and go again. Yes significant but definitely not beaten yet.

Tomatoes

Sometimes it’s the little things….

I’ve just started my fifth year on my grief journey. A journey I would must definitely would rather had not started but now I’m on it, well I might as well make the best of it. And that’s what I am trying to do. For several years it was a nightmare. Just awful. But over time things have slowly moved on. Now it’s definitely good weeks and bad days.

I still get so many reminders of the process I am going through. Many of those are repeated experiences but every so often I still find new reminders.

I was checking the garden for things I could harvest for tonight’s meal and I came across these small tomatoes. Then a thought struck me. There was a time when this was not something I would do. Yes I would grow the tomato plants but that was it. My partner loved tomatoes. She would go out every day I see what could be picked and eaten right there and then. Those days have gone and now the ripe fruit sits and waits for me. That thought made me sad. But life has to go on. Hawklad would like a few fresh tomatoes on his plate. He currently doesn’t feel comfortable touching items outside so it’s down to me. Life goes on. Pick some tomatoes, think of my partner then it’s time to get on with living. Time to focus on the here and now. Find happiness in the world around me. It is most definitely there.

Pointing

One of the advantages of exercising first thing in the morning is once I’ve finished I get a chance to enjoy the view. It always amazes me how damp our ground can get when we have had no rain for days.

Clearly it’s very easy to feel damp. The weather can cause such sudden changes. It like life and the soul.

I was putting together a post for tomorrow. A Swiss Sunday post. Looking through some photos. Then I came across one. Looks like one of those family photos. I’ve cropped this one down severely. The photo is my partner sitting next to our son on a bench.

How had I missed this photo for so many years. It’s from 2015 and our last trip to Switzerland. The last day of the trip. My partner was not very well and on a lot of medication. We didn’t know how ill she was. The doctors didn’t. Exactly one year later she was in a hospice and she was gone a few days later.

Finding this photo shook me in two ways.

Firstly this might be our very last family photo. The last photo of Hawklad with his mum. Don’t think there was another photo with my partner in. I had never thought about that . Never thought about the last photo. Well this is probably it.

Then there is one more thing about this photo. A completely forgotten memory. It’s what my partner is pointing at. I think she knew what was on the horizon. That afternoon we randomly seemed to get onto the subject of where she would like her ashes scattered. She is pointing at one of the places . A rocky outcrop overlooking a beautiful lake. It wasn’t a serious conversation. Our son helpfully suggesting some interesting places to consider. I didn’t take it seriously. We surely had many years to go. Finding this photo has really shaken me. As I say I had forgotten about the photo. I didn’t know she was actually pointing at where she wanted her ashes scattering.

I really don’t know what to say.

One thing is that it’s a beautiful location.

I wasn’t sure about posting this at all. But what did convince me was one thought. You just don’t know what is around the corner. Don’t assume you have time. If you have dreams to live, don’t wait, try to do them now.

The shape of bread to come

See the sun does shine in Yorkshire – occasionally.

How can baking be so hard. Everything seemed to be going so well and then you end up with very odd shape bread. One day, one day.

Maybe I can blame these baking woes on a lack of sleep. At least it ended up tasting ok. So it’s kind of a result.

I was sat drinking my herbal tea and having my misshapen bread with some hummus. Really, is this what life has become….. sudden urge for proper coffee and a sausage roll. But that is life currently for me. I might wish for something else but circumstances dictate otherwise. Wow that feeling could cover so many things. But at that precise moment my eyes wandered to a book on the table. A book about Ski Jumping. One small dream is remembered.

I have always wanted to go to and see just one Ski Jumping competition. Have never got round to doing that. Circumstances have repeatedly prevented that. Now as a single parent with a son who struggles to get to the front gate of the house, those circumstances seem to be even more insurmountable. Another winter will pass. It’s definitely not happening this season. Maybe not for a number of years.

Yes it’s a little deflating but don’t get me wrong. That dream hasn’t died. It’s still there. Still cherished. The future still offers hope. Just have to deal with the here and now. In all likelihood autumn and winter will see no real change in our circumstances. The next 6 months will be largely restricted to our house and garden. Very few social encounters. Single parenting day in day out. More days of dodgy bread and hummus lunches. But it is what it is. Will just deal with that. But I won’t forget those special dreams. That what keeps me going.