Posted on by bereavedandbeingasingleparent · 73 Comments

See what the wind brings.

Sometimes you just have to sit back and see what the wind brings.

Drying clothes outside is proving a bit of a nightmare. Every few minutes the wind brings in another shower. Thankfully the bench cover is just about big enough to quickly chuck over the clothes horse. Given the dirty state of the cover rather defeats the purpose of washing. But needs must.

Sometimes you just have to sit back and see what the wind brings.

Further lockdown measures are set to be announced for northern areas next week. For the last month our part of the north has been an island. Surrounded by areas having significant pandemic outbreaks. Here it’s been reasonably calm. That means that things like shopping and daily life have continued without too much disruption. But is that about to change. Has our area succumbed.

Sons school has had confirmed cases. The local cafe had had to close due to a local outbreak. All public events are being cancelled (that includes Christmas events). Now the local city is reporting a huge growth in cases. 79% rise in 7 days, our rural area has gone up by 60%. Higher than some of the areas already under lockdown. Police are starting to enforce lockdown laws.

It’s the confusion that makes it so much harder for people. One week the PM tells people to grow a backbone and get out. Then suddenly the PM tells us it’s our fault fir getting out. Some places (often government supporting areas) have high infection rates but are excluded from lockdown while other areas with lower rates are forced into lockdown.

Feels like we as an area are about to be forced into a tough, restrictive extended period. All we can do is continue with our own family approach. Try to shield son from as much of the negative, doom loaded news. It’s the last thing he needs to hear. Much better for his (and my well-being) to sit in the back garden and see what the weather brings in.

Posted on by bereavedandbeingasingleparent · 70 Comments

Which way

In life you get asked so many questions. But some questions keep repeating themselves. Like the classics ‘Are we there yet?’ and ‘where’s the remote control?’.

Then there are other questions. More vexing questions. One question keeps popping up. I’ve been asked this by family members, other parents, teachers and even once a nurse. It does have a number of variants but it’s basically the same question

Will your son get better?

Will his Aspergers improve?

Will his Aspergers improve as he gets older?

I’m no clinical specialist. Just a bumbling parent. But here’s my take on the question.

Aspergers is a lifelong syndrome. It’s not going to get better. Its not going to be cured. It’s not going to disappear. What might change is that over time the individual and the family may develop strategies to help deal better with some of the situations life will throw at them. Also some of the specific symptoms may fluctuate over time. For example in a number of individuals something like repetitive hand flapping may become less prevalent with age. Also Aspergers often coexists with a number of other conditions – dyspraxia, ADHD, dyslexia…. It is possible that some of these conditions could improve with time. For example our son has with hard work started to overcome some of the issues which his dyspraxia and dyslexia had caused him in his earlier years.

So yes it is possible that improvements may occur. But here’s the thing, it’s not guaranteed. Each individual case is different, unique. Things may stay the same with age. They can also get worse with age.

So we just don’t know.

The Clinical Psychologist who did the full review of our Son was quite clear. The majority of his Aspergers related traits will stay with him over his life. However at around the teenage period changes may start to occur. It could go either way. He could become fully independent or he may regress and may need some form of life long support. She talked through a number of possible scenarios. One scenario was that some improvements would occur potentially in the areas of dyslexia and the diminishing of some of the repetitive behaviours. Another scenario painted a downturn in his existing anxieties and fears. This could occur naturally during his teenage years or could be triggered by a single significant event which effects his view of the world. Tips the balance in his risk assessments of the world. This could lead to significant mental health concerns and potentially social isolation. Where we are sat currently, we are not a million miles away from that scenario. The triggers – the death of his mum, a pandemic, his teenage years…. He is currently physically cut adrift from the world. His fears and anxieties ramped up to the rafters.

Nothing is set in stone. We just have to go with the flow and see what life brings. It could be still be a fully independent life. But it could also entail a lifelong requirement for support. In this country we don’t cater for the latter scenario. Support has to be fought and won for young children. That support is at best is patchy. During the teenage years the support tends to be reduced due to funding cut backs. By early adulthood the support has completely vanished. That’s a sobering thought for parents in this position. It really is.

Posted on by bereavedandbeingasingleparent · 43 Comments

Revolution

I was asked about if our son was any closer returning to school. This is his fourth week at home since the school returned full time. Well two things from today really paint the picture.

First an email from school advising that the school had now had its second confirmed case. This time a member of staff. Apparently the confirmed cases so far are not considered to be linked. A small number of individuals have been asked to isolate for 14 days and the school remains fully open.

The second was a conversation with our son. His words need no more elaboration.

“Dad I go into meltdown if the bedroom window is open. In fact I can’t even touch the window handle to close it. I just can’t go back. Can’t go back for some time to come.”

And there is our answer in a nutshell. At present government ministers are telling parents to ensure there kids go to school as it’s perfectly safe and is in fact our civic duty. To not do now apparently makes you a bad parent, someone who is not acting responsibly. Must get those words on a T-shirt.

I will continue to act irresponsibly and avoid doing my civic duty. Our son will return to school when he is ready to do so, when it is safe and when he is comfortable doing that. Until then – Viva La Revolution…..

L

Posted on by bereavedandbeingasingleparent · 62 Comments

Help

Sometimes you need help. Help with routine stuff. Something like Broadband. So Saturday brought a broken service. Our broadband doesn’t like rain. Certainly doesn’t like 14 hours of solid rain.

No service, no internet on an afternoon is not going to cut the mustard with a teenager. So it’s time to make the dreaded call to the BT helpline. One hour later I finally speak to a human who then decides to play me some more annoying music. Another hour later I’m handed to a service engineer. Having explained the situation in some detail to the expert he agreed to look at his system. After 20 minutes of much tutting the expert told me that the service was ‘not optimal‘. When I told him it was in fact ‘not working’ I never did get to hear his response. Rather an automated voice kicked in to inform me that the department was now closed and would reopen again at 8am on Monday. Don‘t you just love service…..

So we have resorted to my very patchy mobile signal as our broadband option. It kinda reminds me of what it was like a few years back with dialup internet. How did we survive.

Posted on by bereavedandbeingasingleparent · 58 Comments

Changes

Definitely it’s a time of change. The season of change. Yesterday was T-shirt and shorts. Today is wet, windy and chilly. 50F probably means the T-shirt season has gone and it’s time for woolly jumpers. Ice Cream replaced with Hot Chocolate.

It’s that time of year.

Four years ago I would have been sat at home looking at the ‘Sincere Condolences’ cards on the mantelpiece. It was a couple of days after my partners funeral. Life was looking bleak. But as the years pass this time of year has increasingly felt like a time of personal change. The end of a period which marked the passing of my partner and mum. A time of sadness moving to thoughts of preparing for winter and all that entails. Thoughts of loss replaced by thoughts of short days and long nights. This year is complicated with our ongoing lockdown which is likely to stretch through the entire cold months. So yes this period of change feels different . Definite change but what? In previous years the next few months brought challenges but also things to look forward to. Concerts, Football Matches, Firework displays, Halloween parties, family meet-ups and meals, Christmas Markets, crisp winter walks and runs. This year these are all none starters. Could that tip the balance of the change. Only time will tell but the change is not yet set in stone. It can still be a positive period but it will need much work.

D

Posted on by bereavedandbeingasingleparent · 45 Comments

A window

A brief window to step outside and breath. Otherwise it’s been horrible. Many of the places around us have closed due to bad weather. Must admit education feels that way a bit currently.

UK School doesn’t really work for those with additional educational needs. The traditional classroom setup brings much stress. School at home brings a little respite.

So that’s two weeks ticked off from the next stage of the school at home approach.

I was asked why I didn’t call it homeschooling. Basically we are still trying to follow what the school is teaching. Not setting our own learning agenda. Having to do this just in case our son decides to return to school when he is able to. So it’s not the freedom of homeschooling, it’s basically school but at home.

So in two weeks we have kind of found a way of trying to keep up with the class. Covering the same subjects. In some lessons we are getting all of the material which is being used in class. In some we are getting some of the material and we are trying to fill in the gaps as best we can. In a few subjects we are basically getting nothing so we are just winging those – maybe we are following the class, maybe we are heading in completely the wrong direction.

He is getting virtually no pastoral care from school. Absolutely zero feedback on work submitted, not sure some of the teachers are even reading it yet. A couple of the teachers do occasionally send a message asking if he is ok with the work set. That’s it really. On a Thursday all the pupils have to select an option for an additional lesson. It’s supposed to cover non curriculum activities. It’s about learning new skills and building confidence. It could be a gaming option, archeology, performing arts, sports, astronomy. He hasn’t been included in this programme – says it all really.

In my mind I have already settled on the best way forward. It’s for our son to leave school and opt for full on homeschooling. But it’s his call. It’s his future. So when the time is right then he can make a decision. But I have to say school are not bending over backwards to sell themselves.

L

Posted on by bereavedandbeingasingleparent · 68 Comments

Family History

I was checking my phone for a photo for the blog and I came across this one. Yes Hawklad has been playing Pokémon Go again. Either that or my last selfie was a bit of a shocker.

I am listening to a cheery Pearl Jam cd and thinking about family history. For a lesson today he is trying to list some of his family tree. It’s easy with my partner as we can go back at least 300 years. Lots of documented history. Long line of Quaker and Liberal Political tradition. An MP. With mine it’s more patchy. Yes we can go back to someone born in 1805 but there are lots of blanks. Someone who refereed a big national football semifinal. Someone who walked on the Jarrow Poverty March. A female relative who went to be an exotic dancer in London at the turn of the last century. Someone who was gassed in World War One and survived. An uncle of mine who was a pilot during the Korean War. My Dad who fell in love with Iceland while serving during World War Two. But that’s about it. So many gaps.

So as Hawklad thinks about being partly English, Welsh, Scottish and German (maybe even more diverse), I have a new project. Time to try and fill in some of these family gaps. I owe that to my son.

It’s so important that we keep our own history alive because it forms a narrative to how we are.

Posted on by bereavedandbeingasingleparent · 69 Comments

Grouse

Most definitely not like this today. The strange yellow thing in the sky has most definitely gone on holiday. Hopefully not a long one.

Currently I am looking out of window into the rainy garden and thinking. I’m guessing this home at school project has many months to run. As a single parent it’s trying to get my head round the logistics of that. At present there is not much work and what work there is can be done at home. Shopping can be done through a combination of home delivery and very quick trips to the small local store. But what happens if I need to make a longer trip out. Hawklad is not comfortable at all being left alone.

The options are limited at the best of times and these are not the best of times.

Normally our options would be one of two sisters (but one-off those is 2 hours drive away, and both don’t drive) and a couple of local parents who have known Hawklad since the age of 5 (they are busy so are not often available). Unfortunately under the new Government Lockdown rules all four options are now banned. Breaking those would leave us open to heavy fines. The Government has even encouraged people to contact the police if neighbours flout the rules. The irony here is not lost, flouting rules if you are a member of the government or the dad of the PM is said to be entirely reasonable. Under the new rules our only option would be for a grandparent to stand in. Unfortunately ours have all left this world. But here’s another irony, those grandparents would fall into high risk groups. Those who should be shielding. Are grandparents seen as expendable….

The other irony is that those who would be an option before they were banned fall into much lower risk groups. They can’t babysit for us but I could go to work with them and sit alongside them in an office – that’s apparently fine. We could even put on green camouflage and go grouse hunting together without any punishment. Maybe that’s the childcare answer, we set up a grouse hunting lodge in the garden. The first ever vegetarian one….

Posted on by bereavedandbeingasingleparent · 93 Comments

It’s wet

It’s definitely wet today. Pouring down and very cold. All rather depressing so let’s take the time to look at a bit of nature’s colour.

Do you ever have those conversations. Those conversations where the words seem to head in one direction but actual the conversation clearly ends up in a totally different place. Ever so frustrating.

I’ve spoken to school about Hawklads enforced school at home project. I thought I had explained to school that although it’s kind of working it was far from ideal. In particular

  • He is getting absolutely zero feedback. He is submitting work but getting nothing back. The other kids are clearly getting marks and comments back. That’s clear from some of the teacher comments on the set work tasks. But those comments are always aimed at other pupils. If he doesn’t get feedback then what is the point.
  • Have the teachers forgotten that he is dyslexic. Comments like ‘if I don’t get round to sending you tasks for the lesson then just read a book on the subject’ don’t really help….
  • Have the teachers forgotten that he has difficulty in hand drawing. He struggles with fine motor skills. I can’t believe the number of times the set task is to hand draw something – unbelievably that is currently not Art.
  • Some of the subject teachers are still completely forgetting about Hawklad. No subject material at all has been made available.

Anyway the school seemed very supportive, so surely job done. Clearly not as the school responded with an email basically saying that they were happy that things where going so well. They will keep going with the current approach and they hoped that we would keep in touch…..

Sounds like it’s time for me to most definitely stay in touch with them right now.

Posted on by bereavedandbeingasingleparent · 108 Comments

Working hard on harvesting

Apparently we are enjoying the last few days of summer weather. It’s kinda sunny and kinda warm – if you ignore the cold wind. The forecasters are warning that soon the weather will be most definitely very different. Very cold, wet, grim and grey. As a result the farmers around here are desperately trying to get on with stuff. Even working when it’s dark.

It’s also time to start harvesting our own little garden crop. Today it’s a few apples, onions, carrots, tomatoes and potatoes. Some have done better than others……

Can anyone speak carrot. What’s the carrot for ‘you do know this is Yorkshire and you are about to be given a right weather spanking. You don’t have months of sunny growing weather left, you have no more than 3 days. So get a move on….’

Why is it so simple to grow weeds yet those so called easy grow carrots prove so pesky. It’s as if the carrots pop out of the seeds, feel the Yorkshire soil and go ‘YOU HAVE GOT TO BE JOKING’.

So if the carrots play ball then we are moving into a spell of living off stews, soups and apple crumble. I can happily live with that. I’m always thankful for whatever the garden yields. It does have to contend with the muppet gardener and Captain Chaos.

So yes it’s that time of year. The weather starts to break OR in our case, break even more. It starts to get colder and darker. For many it can be a tough change. Heralding a long period of what feels like ever increasing claustrophobic imprisonment. Me included. That’s where friendships, happy things and dreams are so important. They can help soften the sadness, even lift us into a better place. So for me it’s time to increasingly focus on those things. I can’t do anything about the weather but I can do influence the truly important stuff. Soon the autumn colours will become spectacular. The important stuff can lift the soul. Yes the following months can be bleak BUT they can also yield so much beauty and wonderful moments as well

Now it’s time to give those carrots a good talking to.