Grief and muddy puddles

A brief respite before the next storm arrives. Grey, cold and very muddy. Soon to be grey, cold, very muddy, very wet and stormy. It’s been one of those winters. Constantly just trying to avoid deep muddy puddles. Today I failed. My old running shoes have hardly any tread left on them. As I tried to sidestep a large puddle my foot slipped and I ended up standing in 4 inches of dirty water. Lovely. I really should buy a good pair of trail shoes but money is a little tight. Expenditure is prioritised. They will have to wait their turn.

If you we’re like me then you tried not to think about death and grief. I knew it would strike at some stage (that’s life) but best not think about it too much. I could understand the emotions as I had experienced losing my Dad when I was quite young. But I was shielded from much of the fallout. I really didn’t have the faintest idea about the practicalities. Years passed and I avoided thinking about death again. Then my mum died. This time no shield. Suddenly I was grieving again but this time I was also dealing with practicalities. So when my partner then died 6 weeks later. I was doubling up on the emotions and doubling up on the practicalities.

That is what’s tough about losing someone so close to you. At your lowest emotional point you are saddled with practicalities. You can’t think but you are trying to organise

  • Registering the death
  • Informing people
  • Organising a funeral
  • Sorting out your job
  • Sorting out your partners job. Returning work assets and documents.
  • Trying to work out finances
  • Trying to find the will and wade your way through probate
  • Dealing with Government Departments, Banks, Utility Companies
  • Trying to change the deeds to the house
  • Going through personal items and enduring countless trips to charity shops
  • Trying to change car ownership so I can sell her car
  • Sorting out what to do with the ashes

Your not even warned that the ashes come back in a glorified giant sweet jar. I wasn’t expecting an Egyptian Sarcophagus but I certainly wasn’t expecting a sweet jar shaped thing.

Like grief the practicalities tend to stick with you. As we were not married probate was brutal and took 15 months to finally bottom out. I didn’t expect that. I never considered that my career would have to be ditched quickly as it became incompatible with the now number one priority – single parenting. Suddenly two steady incomes dropped to one zero based hours contract income. Where did that practicality come from. I should have realised really. The sudden loss of someone your intrinsically linked with is going to send seismic waves through the very foundations of your life. Stuff will fall down. Things will change. Seismic waves – guess whose been trying to help son with Wave Theory for school.

So here we are in 2020 and I’m still dealing with grief. Still dealing with practicalities. I have managed to kinda stabilise the new post death financial world. But things are tight. Very tight. Again something I would never have immediately associated with losing someone close to you. But it is what it is. You prioritise the essential stuff. Unfortunately brand shiny mud loving trail shoes are not essential. So I guess it won’t be the last muddy puddle I end up standing in.

I guess I can forgive myself for not seeing that particular connection. Grief and muddy puddles.

It’s such a hard life

Time for some random words.

Subservient Tudor Expect Discipline Chaperone Accused Suspicious Breadwinner Complicated Stereotypical Shakespeare Elizabethan

A few beauties from this weeks school spelling test. Is this really a level playing field for kids with dyslexia. I remember joking that in a few months he will have to learn the spellings of dinosaurs. Dinosaurs like Micropachycephalosaurus. Well the way these spellings are going I’m not ruling it out now.

A bit of a test day today for me. Trying to work from home completing jobs usual done at the work base. Reassuringly it went well. So well that I managed to complete about an hour ahead of schedule. With an empty work list I managed to go for a run. A chilly and very windy run. It was also quite a ‘hurty’ one. I was convinced that my knee and foot were playing up. At the end the real reason became apparent. Thankfully not my body. The shoe soles had worn completely through. Might as well have just run in my socks. Captain Chaos was in raptures. Two old trainers and a pair of running socks to chew and bury. After a frantic hour of digging and re-digging the poor chap was tired out. He needed a few quiet moments with his teddy.

It’s such a hard life….

Maybe I don’t need to replace my running shoes. If and when homeschooling kicks off my opportunities to go out running will be severely curtailed. May need to think about looking out for a second hand treadmill. When Son caught me looking at eBay he added to the shopping list. So on top of a treadmill apparently we need a second hand cinema sized TV, a slush puppy machine and a chef. Maybe we could find a chef who specialises in funny coloured iced drinks. With that thought swirling in my head it was time to take The Cap for his walk. Luckily I do have an old pair of trainers which still have some tread. But strangely I couldn’t find them in the shoe rack. Oh hang on. Worryingly I found the sole-less running shoes next to the dog basket. So exactly which shoes did he bury then. Bugger. Yes in a hole in the garden are my one usable pair of trainers.

It’s such a hard life….

Breaking his body

Running past this monumental feels like a daily privilege. Must admit running anywhere these days is a privilege.

The last two years brought injury after injury. Clearly doing the same thing over and over again was not working. Finally the penny dropped. But it did take the doctor warning me that actually I might have to PERMANENTLY STOP running and working out for common sense to finally take hold. Change was needed. A new exercise approach was put in place. Alternate Home CrossFit days with a day of running or cycling. No same exercise on two consecutive days. Sunday is a gentle exercise bike session and yoga. No pre exercise stretching warmup. If an exercise is causing the body pain stop it for a few days. If the exercise hurts again stop for a few weeks. If it hurts again then ditch the exercise. THATS IT. So far it’s working (touch wood). Four months of uninterrupted, mostly pain free exercise.

Change worked.

Our sons Aspergers journey continues. It’s a journey without a map. Who knows where it may lead. But I do have a gut feeling. The health professionals have talked about the possibility of our son becoming increasingly ill at ease with social interactions. Although from the age of 5 he has always struggled with this 2019 certainly has seen this intensify. Increasingly he just wants to spend his time in the safety of his home realm.

Although he seeks isolation from the outside world he struggles to be on his own. In our one parent, one child, mad pets kinda world that in practice means he struggles to be without me. With the advice from his health experts we have tried to gradually change things up to help with this. But it hasn’t worked. We tried things like him staying on his own at the house while I took the dog for a quick walk. Even though I would tell him the route. Stay in the village. Talk to him on the phone while I walked. The brief periods of solitude would throw him into a nervous meltdown. Any longer than 10 minutes and he would have to come looking for me. The only thing it achieved was to spike his anxiety levels. We decided to abandon the changes.

Whether this is Aspergers or whether it’s to do with losing his mum or both – who knows. But currently as a single parent I have to make the necessary adjustments to work around these constraints. One of which is that when he’s not at school my exercise programme is tied to the house or garden. Hence that rather puzzled look I got on Saturday. A group of walkers giving this rather odd looking chap a puzzled look. Even standing to watch for a few seconds. In the pouring cold rain why is a man in his garden dressed in shirts and a T-shirt jumping on and off an exercise bike to throw a 20lb kettlebell about.

It’s because I’m a single parent who can’t leave the house who has found a way to keep himself fit while not breaking his body. At least allow me that.

Pink

Colour hanging grimly on in Yorkshire. This is an oasis surrounded by unremitting greyness.

Truly dreadful weather day. The wind has been blowing horizontal rain at the back door all day. Currently on the third towel trying to keep the utility room dry. It’s a bit of a losing battle. Let’s hope it’s the only losing battle today. I went to vote straight after the morning’s school run. Let’s leave it as that. Tomorrow will either be a hopeful post or a monumental rant of a post. You have been warned.

I’m writing this as son sits on the sofa watching a documentary on his tablet about Auschwitz. Yesterday he watched a few videos on the plight of the Palestinians. Puts everything into perspective. The fact that the youth of today watch this gives me hope for the future. Let’s hope we leave the next generation with a habitable planet so that they can mould a far better world.

With work for the day completed I set off for a run. Better described as a splash. Wow it was wet. After a few miles my poor hands were frozen so I foolishly put them in my waterproofs pockets for a warm. Rather than finding a haven of warmness they found a hidden pool of cold rain water. Lovely. I’m pleased that I opted for shorts. Not sure I fancied my leggings shrinking. My mind goes back to a mountain marathon during my university days. A six hour night drive to the Highlands of Scotland ready for the 9am race start. Everything was going so well until we arrived and changed for the race. I had forgotten my shorts. 30 minutes to the start time and the nearest sports shop was 20 miles away. The strange looks I was was getting as I walked around the runners saying ‘have you got a spare pair of shorts’. Looking like I would have to sit out the race when my race partner came to the rescue. ‘I can wear my shorts and you can try to use my leggings’. The problem was my partner was called Suzanne and she was somewhat more petite than me. To much laughter on her part I squeezed into the tight leggings. I was the only male competitor running in bright pink. It was also the only competitor that completed the race in with tears. Must admit the constrictor leggings did wonders for my dodgy hamstrings. But since then tight leggings have gone nowhere near my nether regions.

With my wet run completed it was a quick change and off on the school run. As a I arrived a very sodden Son trudged across the car park still in his sports gear. You could see him shaking with cold and the water dripping off his clothes. With the car heating full on he tried to get changed into his dry school uniform.

*****

“You’re drenched why didn’t you get changed out of your wet kit”

I didn’t want to risk it. We only get 5 minutes to change. If we are not out in that time you get a negative from the teacher.

Have any kids been given negatives”

Virtually every week at least one kid gets a negative. It’s unfair especially as it’s the last lesson of the day.

*****

And another telephone call will be made to school. Five minutes. When I played football it would take me at least 10 minutes to get changed. It took five minutes just to prize my constrictor pink leggings off my butt all those years ago. Five minutes sounds tight before you factor in Aspergers and Dyspraxia. Getting changed does not come easy to him. School have been told this on several occasions by me and in writing by the Paediatrician. So much for the school making positive adjustments to make his school life comfortable and enriching.

It’s the frustration felt by far too many children and their parents. Everything has to be fought for. It’s a battle to get a diagnosis in the first place then the real fight starts. Trying to get any positive adjustments and help. As much as the media try to paint a different story … we are not looking for special treatment … we just want our kids (all kids) to get a fair chance in life. Is that too much to ask for.

*** late addition *** it WILL be a monumental rant….

First letter

Friday has been distinctly chilly especially when you go running in shorts and T-shirt. Some muppet decided to wash his running kit 5 minutes before the run. Not good planning. So yes chilly. Now take the first letter away from chilly and that was the other feature of today’s run. Distinctly hilly. As many of the rivers have flooded the only paths which are passable are those which are on the high ground. So before I got stuck into today’s work I needed to defrost and sooth the aching muscles. I was that cold that when I got into the piping hot bath – it went cold within a couple of minutes. Sitting in a cold bath when your cold is not good. Not good at all.

Been asked about the subliminal message in this weeks Terrible Poetry content. See what the first letter of each line spells….

The Poorly Car Run

There is a run I do all too frequently. It’s a lovely run. It’s particularly lovely as it’s flat. But it’s a few miles away from my usual haunts. The run starts and ends at the garage. You see it’s a run which happens when my car is poorly. Today it was the tyres. So off the car went to the garage. So off I went on my Poorly Car Run. Nothing was than sitting in a garage waiting area reading about cars I can’t afford.

The run closely follows one of our larger and most beautiful rivers. The Ouse. As it’s a river that regularly floods you can see the river depth marker. Today it is quite high but thankfully below flooding levels. It did flood a few weeks ago and in the woods you can see the remnants of those high waters.

If I wasn’t about to be hammered financially by the Garage this run would be a truly stunning experience.

The run crosses the flood plains. Today it’s dry but when it floods here can be under 3ft of water. Cold Dark Yorkshire water.

It’s sad that it takes a Poorly Car to bring me here.

So the car has been returned. Monopoly money has been handed over to the Garage. It was a shorts run so my legs got well and truly muddy. Can’t imagine what a dry run feels like. So it was back to work but this muppet had forgotten a change of clothing. Work, autumn, shorts and dirty legs is not a great combo. Luckily it was a solo office stint today.

Few hours later it’s back to the latest school soap story. Another subject test sat without any reading help, no reading pen and no additional time. Even the questions are worded in such a way to make it harder for kids with Aspergers. Set up to fail. Set up to justify the schools assessment of low attainment. I really need another run to release the anger. Anger at the School. Anger at the Council. Anger at me. Anger at the Government. Above all anger at those who will flock in their millions to vote for this Government. A Government for the few.

Maybe tomorrow I will return to the Poorly Car Run. But hopefully it will be the ‘Nothing to do with the car, here out of choice to heal my soul Run’.

Clueless

It’s been a clueless type of day.

The company I have been doing some work for asked me if I would phone up the Brexit Helpline to ask some technical questions. Apparently because I talk tosh they thought I might be better placed to understand the helplines answers. I won’t bore you with the whole conversation but basically this was the nub of it.

Can I ask you some technical questions relating to Brexit and my company?

Please do. That’s what we are here for.

If we have staff who need to work in the EU for a short period of time what are the new regulations we must observe?

Don’t know

If we undertake work in the EU but need to employ EU based subcontractors what are the tax implications?

The current tax and excise regime will change on the 31st October. You will need to start planning for the changes now.

Yes I realise that but what will be the new regime.

It’s still being formulated

If we have web based sales to the EU what will be the export tax position?

Don’t know.

And on and on. To all my questions I received three basic replies.

  • We leave the EU on the 31st October and things will change. You will need to plan.
    The Government is still working on the details.
    Don’t know.

Anyway it proves that Brexit is a typo. It should be Breshit….

Absolutely clueless

*******************

I spoke to school again about our son. He’s had zero additional help so far this school year. It’s actually got worse. At least last year the teaching staff got to know him and some of teachers did try to help. We even had a couple of teachers who really got to understand him and they did try to modify the programme for him. For this school year his teaching staff and teaching assistants have all changed. So we are back to square one.

In terms of support for Aspergers the school provides no support. It has established a quiet room which kids can go to. But this is a small, cramped room which is frequently used for teacher meetings and storage. Even our gerbils would be able to design a more autism friendly space than the schools attempt. The only area the School has talked about was maybe giving our son more time to change when doing sports – but this in practice has never happened. That’s it – no other help. It’s not seen as a school problem it’s something the NHS deals with.

In terms of dyslexia school argues that it provide a Teaching Assistant in each lesson to provide support. This is not dedicated support. The TA has to try and support the whole class. Our son’s class also has a profoundly dyslexic child and the TA helps this child during any reading elements of the teaching. Again school argue that our son should put his hand up and ask for help. Unfortunately the TA is frequently already occupied. More fundamentally requiring a dyslexic child to put his or her hand up and ask for help completely misses the point. Most dyslexic kids won’t put their hand up because of the stigma still associated with not been able to read. Putting your hand up is seen as flagging up that you are different. Consequently son never puts his hand up anymore. So school argues that the lack of support is down to our son not requiring it. They can’t seem to get their head round being proactive.

Absolutely clueless

*******************

It’s Autumn so it must be time for home made soup. So the chef places the ingredients in the slow cooker and lets them stew for a few hours. Then it was time for the chef to blend the ingredients in the smoothie maker (it’s a multitasker). Unfortunately the chef forgot to put the lid on . So now the kitchen has gone from a magnolia paint feel to one more a kin to a Ghostbuster ectoplasmic theme.

Absolutely clueless

*******************

To try and calm down after my two earlier conversations I went for a run. Within minutes my running to the beat of Mongolian Heavy Metal came to a halt as the mp3 batteries died. Still it’s a pleasant day for a run. Halfway round I stopped to tie my shoelaces while a rather inquisitive cow peered over a gate. Thirty minutes later I arrived back at the house. Where’s the MP3 player? Pants I must have put it down when I tied my shoelaces. So I had to run back to that gate. Visions of a head banging cow thinking why she had never come across Mongolian music before.

Absolutely clueless

*******************

So whether it’s been Government Officials, Teachers, Parents, Chefs or Runners. It’s been a day for the clueless.

Feel the pain

I often hear fitness experts say that you know when exercise is really working because it starts to hurt. No pain no gain. Well I think I successfully disproved that theory this morning. Pain means PAIN.

*******************

Somedays it’s good to be brought back down to earth. An Aspergers child with beautiful honesty is a perfectly designed tool for this job.

At school the kids had to tell the class one thing their parent(s) were brilliant at. Apparently talents such as football, rugby, accountancy, building, driving, cooking, singing, languages, science, nursing, making money, horse riding, swimming, judo, gardening, running, pottery and writing we’re all mentioned. But not in one case…

A certain boy said “well it depends on your exact definition of brilliant, in my Dads case I may need to think about this for a while….”

The boy knows me too well.

*******************

Maybe his hesitation on awarding brilliance was influenced by a little accident this morning. I have a little bit of a sore eye. During my early morning workout I somehow managed to hit myself in the face with a 14lb Kettlebell… So going back to the pain theory – experts would say that my pain was a sign of a most rewarding workout. Really!!!!