Baking hot

Don’t worry. No need for the panic room. It’s the other baking…..

Sometimes it’s hard to drag the body out of the warm bed and into the baking hot Yorkshire winter weather. I know what’s likely to greet me when I do finally get to the back room and my exercise bike.

It’s potentially colder in this room than it is outside. And it’s certainly cold outside.

That’s ice…..

I remember the days of jumping on the bike in pretty short shorts and a thin running top. At present it’s 97 layers, gloves and two wooly hats. I’ve got that many layers in that I have to peddle for at least a minute before my very outside legging layer starts to move.

Today the water and energy drinks have been replaced with hot chocolate and a hot water bottle.

So I was on my exercise bike and feeling like I was in an icy snow hole. What I couldn’t make me mind up about was….

Was the iced up windows annoyingly blocking the view of the outside world

OR

Was the iced up window forming a useful barrier, blocking out the reality of the outside world.

In the end I decided it was a bit of both.

Change

Sorry going to milk our temporary farmers field lake for photos while it’s here. It does make such a difference to the view.

Time does make a difference. Look at schools. On Monday morning our PM said schools were completely safe and parents should send them there right away. Monday evening suddenly according to the same PM schools were clearly vectors for transmission and had to close immediately. Then on Tuesday the very same PM said schools were completely safe again but unfortunately staying shut. Having said that he has a track record of this. The man who championed Brexit to become leader likes to forget that before that he said “I would vote to stay in the single market (EU). I’m in favour of the single market”…..

So things can clearly change. One day I was one of two parents, the next I crashed into single parenting and the world of bereavement. Things can change.

But here’s the thing when they do change THEY CAN ALSO CHANGE FOR THE BETTER. That’s why there is always hope. Good things can still happen. So yes I’m struggling through a period or depression. Yes it feels like Groundhog Day. But it can change.

I can do this. We can do this.

I would vote to stay in the single market. I’m in favour of the single market

Start with a change

It’s still a little cold here. Definitely a cold start to 2021.

We have a family tradition. For the last 7 years I’ve taken Hawklad on New Years Day to Yorkshire Wildlife Park. Set off at 8am. Get there for when it opens. Spend a few hours wandering round the animals. Then grab a burger and leave before the real crowds arrive.

It’s a lovely tradition that Hawklad loves.

But life happens. Only essential journeys are recommended. Avoid out of area travel.

AND

Hawklad just isn’t in the right frame of mind to go. He is seemingly a million miles from venturing into public places.

So no Wildlife Park visit this New Years Day. So we improvised. A homemade burger and a Pepsi, just like he would have had. A hot donut replaced with a warmed up cake. Then we sat and watched a David Attenborough wildlife TV series.

Not quite the tradition but a decent replacement given what was available to us. 2021 feels like a year for making the best of it.

Goodbye

It’s almost goodbye to 2020. Well that was a year. I blame one person for everything…

Boris Johnson on the 31st December 2019 “This is going to be a fantastic year……”

What an absolute Numpty. I guess it was for him and his cohorts in terms of corruption and feathering ones own nest.

But for the rest of us it was a challenge. I could have used so many other words here but let’s go for the one I can spell. I’m not going to go on about the obvious things this time. Let’s just hope that 2021 is better. This year has not exactly set the bar that high but let’s not tempt fate. I will leave that up to our so called leader.

But here’s the thing about 2020. It’s been truly horrid and tragic for so many. It’s been tough for our little family but let’s also remember the positive stuff as well. So many people have demonstrated what a wonderful, caring and beautiful world it can still be. Old friendships have strengthened. It’s also brought truly wonderful new friendships which have enriched my life.

We can do this.

Happy New Year. ❤️

To be or not to be

So finally an announcement on schools. Then follows the inevitable confusion, lies and burying heads in the sand. Best summed up by

  • The independent expert scientific panel urging schools to not open as it is not safe,
  • The governments own expert scientific panel demanding schools to be closed as they are not safe in the current environment,
  • Then our so called PM announces that schools are completely safe, it’s people mixing outside of schools which is the problem.

The upshot appears to be that secondary schools will stay shut for a few more days. Most secondary children are expected to be back by the 18th January. By that time a team of volunteers will then oversea a mass virus testing exercise for all pupils. Some schools will stay closed longer but the government won’t say which ones. Most Primary schools will open on the 4th January as normal.

Ok…. I would not be filled with so much cynicism if any Government announcement wasn’t worked out on the back of a cigarette packet and it wasn’t accompanied by a tirade of lies.

Anyway different people are saying different things. Clearly some of the Government including the PM haven’t read the Government’s own policy. So many questions are being ignored. For example why are the schools for younger children staying open when others are closed? Are those children and teachers somehow mysteriously protected? Why are face masks required in public places but not in the classroom? Any person working with children has to be officially vetted yet that’s been dropped for the Covid testing programme. Is that safe? The covid test that will be used is problematic, doesn’t have the greatest accuracy and is difficult to self administer. So how is that going to work with pupils self administering the test in a large group with unqualified volunteers and teachers who have little medical experience? No mention of Special Schools – what do they do? How are schools going to fund the infrastructure required to set up the covid testing. Why are the Government refusing to promote online education for those that it would suit?

Many more questions but you get the picture. It’s a mess…..

Silly little things.

I think I might be on top of things. The mind is heading in the right direction. I’m in a decent place and then….

And then something sneaks up on me. With me it’s often seemingly a silly little thing. Suddenly the friendly wind is taken from my sails.

I couldn’t sleep late last night. Just wasn’t feeling tired so I decided to watch a movie. Something requiring no thinking power. So I went for a mindless comedy. Planes, Trains and Automobiles. Haven’t seen that in decades.

The last time I watched this movie I was in a different place in life. Life was still yet to really hit me. So the movies ending never really registered. Well it did last night. Wow did it register.

Spoiler alert………

The jolly and silly little movie closes with Steve Martin sudden realising that the chap he had spent the last 48 hours in travelling hell might not be as happily married as he had thought. He goes back to find him sat alone in a cold train station waiting room. His wife had died 8 years ago, he was alone and suffering.

That scene just really hit me. So unexpected. I’ve been there. I was that man. I might still be that man. I so could imagine what he felt like, sat alone in that cold bleak place. Watching others live and seemingly having no where to go.

The movie ended well but I was shaken. Sad, confused, anxious. Even after many hours I’m still feeling shaky. All from one silly movie.

The next time I watch a late night thing then let’s play it safe. It’s QVC or Scooby Doo or the Real Fire Channel for me…..

Who knows

Dog really wants to walk through that. I’m not so keen. Who wins the battle of minds.

I’ve got wet feet….

So the schools are here are due to go back next Monday. The hospitals are full to busting. Infection rates are rising fast.

The Government says the situation is in hand. The scientists and doctors are pleading for more action. They want schools to stay closed and use online education for a few weeks. The Government is resisting the move to that. They might stagger the return over a week with a good portion of pupils back in 7 days. They want to test all pupils with the unreliable, quick results method in the first week. That’s the answer apparently.

So as I’m writing this most parents just don’t know what’s happening next week.

I guess it doesn’t effect our little family that much. Hawklad is not starting back next week anyway. He just can’t. Maybe more online support will be opened up. How knows. We just have to make the best of it. Go with the flow.

It’s all such a huge mess.

Worn out

It’s a cold, bleak start to the day. Kind of feels like a black and white photo is the way to go.

I was thinking about how a break would be most welcome. Especially today.

We all need a break every so often. Either a change. Or a time to relax. Or a chance to really let the hair down. A chance to experience new lands. Or just a time to breathe.

Don’t get me wrong. I know that I am so fortunate with my life. Far too many have so little and are in such dark place. But today I’m feeling just a little worn out. Tired. Thinking back to my last break back in 2015. A lots happened since then. Some good but some really bad. Since 2016 it’s been single Aspergers parenting, fighting the system for our son and trying to eke out an income to pay the bills. Feels like it’s been non stop. A few concerts with Hawklad and taking him to see the occasional sport event. A few walks and up to this year, trail runs. So yes things to be thankful for. But…

But today I just feel worn out. In need of a break. Even just a night away from the house. A different bed. It’s been over 5 years since I’ve done that. But deep down I know that’s not happening any time soon. Asperger parenting is something that you can just can’t drop. Certainly not for a few more years. Maybe longer. So it’s about finding other ways to feel less worn out. Exploiting the options that are open to me and also being thankful for what I have. There are such beautiful things in my life.

We can do this.

Plague Island

So that’s the shopping done for the week. We are now officially closed for Christmas. Time to get behind our fence and shut the world out for 7 days. Or longer if we are plunged into a Tier 4 lockdown (more of the country will go that way on Boxing Day apparently).

So it’s Christmas Eve on Plague Island. It’s not entirely sure if its a virus related Plague or a Plague of self absorbed, imbecilic, on the take, cretins apparently running this country.

We have enough food and drink to last us weeks. We have enough options to cobble together a couple of special holiday meals for two. Certainly not Plan A or B food options, but the C menu will be just fine. Actually with my Thanos like cooking skills at the click of the fingers any food taste can be suddenly turned to dust. So it really doesn’t matter in the end.

A few days of being an island cut adrift from the world has started to take its toll. Hardly any fresh fruit or veg in the store. The stuff which is still there is getting snapped up instantly. No chocolate ice cream. I will say that again. No chocolate ice cream. Oh the humanity….

But in the scheme of things. We are so fortunate. Too many are not so lucky.

So we are lucky to be on the right side of our fence. Hawklad is definitely not on Santa’s naughty list. Me – I’m not so sure. Yes the weather is horrible but actually if you close your eyes, the sun will still shine.

Yes it’s alright in this side of the fence, living on Plague Island.

Fence

Which side of the fence is best?

I had a call with Hawklads new health specialist. She will (pesky pandemic dependent) come out to see him for the first time in January. Continuity is so important for someone on the spectrum. It takes time to earn trust and confidence. Those bridges when they come down are slow to be rebuilt. Having had a wonderful health lead for three years we are now in a spell of meet one, quickly see one disappear. Fingers crossed this time.

It’s clear what the medical opinion still is. Any meaningful progress is extremely unlikely until this virus is well under control. When it’s clear that the vaccine which has been administered works effectively and does protect. Only then can any progress be realistically contemplated. Prepare to bunker down for 2021. 2022 might be the first gateway to a more open life for our little family. I also have to accept the risk that progress does not happen for Hawklad. Bridges are not built. This is the new world.

I remain clear. It’s Hawklads life. He makes the call. I will support which ever route he goes down.

So will he return to school in January? Most likely NO. Will he make it back before the end of the school year in July. Probably NO. Will he start the new school year in September. Definitely no guarantee.

It feels like we are in one side of a fence. The side that feels limited but safe. The other side of the fence opens up the world, broadens his horizons but…….