Whitby

I must admit even routine trips out seem like big adventures these days. Occasionally it’s good to return to the outside world. Makes me feel kinda grown up.

We had an afternoon trip to Whitby for a medical appointment. It was cold, wet, windy and misty. But as ever stunningly beautiful. It’s one of those places that when the sun shines it is just the most picturesque place. But in a wild storm it is truly a perfect place for Dracula to land and wreck havoc.

Son always calls Whitby Abbey, Dracula’s Castle.

If the weather had been kinder we would have ventured onto the beach and search beneath the cliffs. It’s a fantastic place to find fossils. It’s just wonderful to see him searching. Methodically digging and searching through stones. Then suddenly a bit of arm flapping and he is deep into a dream world of dinosaurs.

Once we leave Jurassic times a walk round the small port and Son is lost again in dream world. This time dreams drift 250 years ago to Captain James Cook. Whitby was his home port and his famous ship The Endeavour was built here.

At the medical appointment the consultant handed our son a sheet of paper which had his future appointment dates listed. Instantly son announced

I won’t sign anything before the terms are checked out by my lawyer”

Kids learn so quickly these days.

Feel the pain

I often hear fitness experts say that you know when exercise is really working because it starts to hurt. No pain no gain. Well I think I successfully disproved that theory this morning. Pain means PAIN.

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Somedays it’s good to be brought back down to earth. An Aspergers child with beautiful honesty is a perfectly designed tool for this job.

At school the kids had to tell the class one thing their parent(s) were brilliant at. Apparently talents such as football, rugby, accountancy, building, driving, cooking, singing, languages, science, nursing, making money, horse riding, swimming, judo, gardening, running, pottery and writing we’re all mentioned. But not in one case…

A certain boy said “well it depends on your exact definition of brilliant, in my Dads case I may need to think about this for a while….”

The boy knows me too well.

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Maybe his hesitation on awarding brilliance was influenced by a little accident this morning. I have a little bit of a sore eye. During my early morning workout I somehow managed to hit myself in the face with a 14lb Kettlebell… So going back to the pain theory – experts would say that my pain was a sign of a most rewarding workout. Really!!!!

Helpful Brexit

An advert on the radio caught my attention this morning

A very helpful sounding person speaking for the Government asked “If you had started thinking about Brexit yet” and helpfully suggested that “it may be worthwhile if people and businesses started to plan for it.”

Thank you very much.

Just a couple of teeny weeny points

  • It might be a tad late to remind people that as we are potentially only just over 20 days away from it,
  • Pot calling Kettle. Why don’t you shove that up your collective governmental backsides. Why don’t YOU start doing your job (rather than look after your own self interests) and actually make some decisions that allow people to know exactly what is going on.

I am putting forward our 3 gerbils as the new team to get us out of this Brexit mess.

Tree

“Dad did you just say a money tree. Can you really get a money tree?”

Son will often take things very literally. I’ve talked about this before. It is something which is fairly common with autism. I must admit I did this as a kid. You often find yourself trying to re-explain phrases that you often through into conversations (I am sure my parents had to do a similar thing).

My explanation of a money tree was rudely interrupted by Captain Chaos.

Dad the pup is running round the garden with a sock. Correction. He is now burying the sock.”

I really can’t wait for the Sock Tree to grow….

Then we started thinking about other really useful trees we wish we could grow in the garden

  • The Money Tree (obviously) or if that’s a problem then we would settle for a Pay Your Bills Tree,
  • The Hugging tree – readily available hugs would be nice,
  • The one our cat can climb without getting stuck Tree,
  • The Anxiety Absorbing Tree,
  • The Children’s Clothes Tree – not having to constantly go to the sewing basket and fix knee and elbow holes would be lovely,
  • The Pancake Tree – would have been really useful today after my rather soggy attempts,
  • The Remote Control Tree – why do remote controls have stealth technology built into them, bloody thing is always going missing,
  • The Brexit Tree – would have to grow within the next few days….,
  • The Prune itself Tree – really essential after my last eye injury,
  • The Mirror of Erised Tree – if Harry Potter can have his deepest desires mirror then surely we can have a tree that does the same thing. Having said that I would prefer a Take you back 6 years to happier times Tree,
  • The Bird Dropping Missile Defence Shield Tree – how good would it be to have a tree that can eliminate bird droppings before they hit the ground,
  • The Chocolate Tree – now we are talking,
  • The Donut Tree – horticultural heaven.

So as I go outside to see if the Sock Tree has started to grow (probably next to the Pants Tree) can you think of any better ones.

Tenacity

This was the Yorkshire summer last week. It’s now over for the year. We are now in Autumn.

Son told a story from school today.

A couple of weeks ago one of the kids in his class got an exclusion. Repeat rule breaker. Before the exclusion he racked up 110 negatives. So he was shown the big red card. Banned from school for 5 days. It was really convenient for the kid as it came immediately before the half term holiday. So he got two weeks off.

On his return the teacher confirmed that he now had a clean record and all his previous negatives had been wiped from the record. He then asked if that meant that his newly created clean record entitled him for the end of year clean record reward. Kids with clean records are entitled to go an a trip to the local amusement park. After checking it was confirmed that as long as he didn’t pick up another negative then yes he was eligible. He punched the air and shouted “get in”. Unfortunately the teacher took offence to this and gave him a negative.

After the class the kid apparently told the group that he now had 4 months to pick up another 109 negatives so he could get another isolation and have his record wiped again.

It’s a kinda tenacity. But you really couldn’t make it up….

I am walking

Well he survived the first day back at school. Currently he is bouncing on the trampoline. I have got no idea where the energy comes from. He trooped in from school. Gave the school day 2 out of 10. Demolished 3 tomatoes, an apple and a slice of cake. Gave me a run down on the newly announced Generation 8 of Pokemon. Apparently this generation is based on Britain – that’s going to the grumpiest bunch of Pokemon ever…. Then he set off for the trampoline.

This is all on the back of 2 hours sleep last night. Just too anxious to sleep.

His Dad is somewhat less energised. Evidenced by this morning. I had a morning meeting. So I left the house with car keys in hand. Ten minutes later I came to my senses. I had walked straight past the car, down the drive, out of the village and heading down the path towards the next village. No idea where I was walking. If it was work then that’s a 10 mile hike…….

Anxiety

Anxiety is far too often an unwelcome visitor to our house. I have suffered from it since childhood. It got so much worse after the world changed. Never ending road. Virtual all the worries now focused on our son. Not sure I am that bothered about myself these days….

This morning I woke to that unwelcome guest again. So many voices in my head. All saying the same thing … son is due a anxiety meltdown. Unfortunately that was the truth.

Anxiety and Depression are real inhibiting factors for so many in our society. Research clearly indicates that the risk of suffering from these awful conditions are increased for those living in the world of autism. At least a two fold increase is often reported. Yet from personal experience this was never identified in any of the briefings or guides we received during our journey. It is just not addressed appropriately by society. This can and does have catastrophic results. In our case it took several years of pushy parenting before our son started to get some help.

It’s so difficult to unpick the anxiety for our son. Is it Aspergers related, is it Dyslexia related, is it bereavement related, is it human life anxiety, is it all four….

With our son we have a frequently returning swirling mix of worries and demons. They recede then they blast back. On really bad days they all materialise at the same time. He has many repeating spectres.

  • Dyslexia and it’s unwanted consequences.
  • Friendships and social interaction.
  • Not understanding this strange, alien world.
  • Fear of death (his, mine, his pets, his remaining family, the people he cares for).
  • Related to the fear of death is his fear of illness. Everything is catchable. Everything can be a risk. Every sneeze, every ache, every speck of dirt is a potential harbinger of a health disaster.
  • School. Homework, rules, punishments, no support, cold and scary environments.
  • Feeling different, feeling inferior, fearing the finger pointing, fearing being laughed at.
  • Running out of money, going broke, losing everything.
  • The climate, wrecking the natural world, world politics, Brexit. World is going wrong.
  • Being alone.
  • Having to fit into large social groupings.
  • Fear of being long term depressed.

This is someone so young.

Today it is the return to school and fear of illness. The anxiety vortex is building strength. The bag of tricks we try only helps take the edge off but doesn’t fix today. All we can do is just be busy. Constant activity. Try to stop the mind thinking. These apply to both of us. My world is full of anxiety today as well….

Sequel

When you need a smile here comes our own member of the Avengers. Captain Chaos.

As we surveyed the second attempt at a fudge cake.

Well Dad the first one was burnt to a crisp. However the sequel has completely collapsed in the middle and smells of curry….”

This brought on a discussion about sequel (sort of) films.

Son thought the Depp Charlie and the Chocolate Factory was warmer and did not feature Charlie breaking rules. In his opinion Mike TV should have won the first movie.

The first Guardians of the Galaxy beating the sequel. Son believing the second was too sad at times.

The second Paddington movie just edging out the first one. Son thought the first one had a better story but the second was funnier.

The first Home Alone winning over its sequel. Son thought Kevin was just too annoying in the second and that the poor criminals were just unnecessarily tortured.

The second Jumanji edging the first one. Son found the second one just a bit more funny.

Any thoughts. Now onto the third fudge cake attempt.

Sun sets.

We took the dog for an evening constitutional. This was three nights ago. Lovely sunshine then as the sun sets – suddenly the light was transformed. Not day and yet not night. The colours just so dramatic against the advancing black. Then just a few moments later – all gone. Just blackness. But no surprises, we know exactly when the sun was going to set.

Fast forward 3 nights.

That evening scene is etched in my brain. It’s such a metaphor for life, well my life. Happily walking along the path of life – so much light. Then suddenly a dramatic transition and everything changes. Within such a brief period of time the light is replaced with darkness. The big difference is that in life we just don’t know when this is going to happen.

I wish I had understood this a few years ago. We had plenty of time. We had years. So much time to have a second child, visit New Zealand, take our son to Lapland, spend every available hour together……. So wrong, so very wrong. So many unfinished dreams.

Please don’t make the same mistake. Seize the day before the sun sets…..

Frazzled

Frazzled that’s a good word. When I was younger I used it to describe the dreaded over heating meltdown the early laptops would often descend into. These days my laptop is that old and slow that it can’t even get warm – except for when the fat boy cat decides to sleep on it.

But now I have adopted Frazzled as my most common state of mind…..that’s even before school holidays start.

School holidays are fantastic as I get to spend even more quality time with our son. Yes I would prefer to sit with a cup of coffee in the happy knowledge that he is having wonderful adventures with friends. But this is a great backup option.

But one downside of school holidays is an outbreak of acute Frazzlement.

I start from a point of parenting fatigue. Then from breakfast until bed time I engage continually with a mind that operates on a completely different level to mine. One that runs at a speed way beyond the capacity of my really outdated brain. So many questions, so many different facts, so many different logic constructs. No outside world to help reset the brain. Rapidly my brain overheats and becomes frazzled. Son calls it Zombie Parenting. I’m there but the brain has shutdown. The simplest tasks become impossible. By the end of the day I am spent. Then you wake up even more tired and the cycle continues.

A blogger far cleverer than me talked about the desirability of having a backspace button options in life. I so so want a brain reset button. That would be fantastic. The chance to press reset then sit 5 minutes while the brain clears out the crap and reloads itself again. I would then be good to go again. Rather than wandering around for hours with an overheating and completely useless brain. System error messages pinging around the head. That’s my excuse for the poor level of my parenting currently. Today’s highlight has to be peeling a banana then handing our son the banana skin. Yes the actual banana had been binned. Not far behind that was trying to unload the bag from the Hoover … while the Hoover was still switched on… had to clean the ceiling.

Bring on Frazzled Friday.