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The River

A Yorkshire River. A bit of an odd Yorkshire River. It’s not in flood……

In winter the River is often several feet above the top of the sand banks. But in summer the banks provide a perfect place for Swift’s to nest.

As we walked along the river edge my thoughts drifted back to when Hawklad had just started school. It was the start of the Aspergers journey. it was before any expert help came our way. Two parents trying to get their head’s round our family life. We kinda knew he was on the spectrum but what did we know. Expert guidance was still 2 years away. It was such a confusing time. But one of my clearest recollections of that time was Hawklads’s reaction to people.

Hawklad struggled with meeting people. He wouldn’t make eye contact with anyone apart from his mum, dad and grannies. His hood was always over his head and pulled down over his eyes. He would freeze or have meltdowns if an outsider was too near. If he was in a room with others then he frequently would be found in a corner, facing the wall. Outside he would hide behind trees until the coast was clear.

Slowly over the following years things started to change. With so much hard work he became better able deal with people. Not comfortable but he found a way. He developed a slightly wider network of friends. Really close friendships formed.

Today we are walking along The River. We are avoiding people. We came off the path because Hawklad was struggling. The hood was over his head again. We headed in another direction as soon as an outsider came into view. If he couldn’t avoid them then he hid behind me. Down by The River he could hide away. He had the place to himself and he could tell his Dad all about the migrational pattern of Swift’s. It felt isolated but safe to him. Away from others. He’s comfortable with me and his best friends. Others just no way.

It feels like I have been here before.

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Anyone for croquet

Hawklad was feeling anxious. Really anxious. This time next week will be tough for him. It will be a tough call. Classroom or Home….

Sometimes it can feel very isolating just the two of us kinda cut off from the real world. Maybe there is a danger we take root.

So he needed a distraction. Something different. It was time to go hunting in the garage. What can I find. Imagine a place like the shop that Harry Potter got his wand from. Dark, cramped, filled to the brim with things that haven’t seen the light of day in years. Maybe decades. Some objects beyond rational comprehension.

As I rummaged deeper into the recesses my plight became more perilous. I stretched, bent and shakily balanced over box after box. Deeper I went into the precarious jungle of old toys and objects. Then I saw a very large old wooden box. It might as well have been an old precious wand. That will do nicely.

An old garden croquet set that came from his grannies house several years ago.

Yes it was fun. Definitely different. Some of the rules might have been loosely applied or invented. When did croquet become a contact sport. The long grass didn’t help. But the main thing is Hawklad was distracted.

Now was the time to get serious about this martial art called croquet. I got the lawnmower out and carefully cut out a croquet course. Incorporating obstacles. A Mole Hill. An Apple Tree. The Football Goal. Yorkshire Wet Grass.

Captain Chaos was a moving obstacle and introduced his own version of mayhem. Suddenly we have one of Europe’s Finest and Most Challenging Croquet Experiences.

Captain Chaos might be on to something. Croquet with a sock…..Yes Croquet is fun. And fun is needed some days…..

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Is it over

Is the pandemic over. Have I missed something.

Yesterday I took Hawklad for a drive through takeout at the local Taco Bells. The drive through was coned off. After much reassurance Hawklad let me go inside to buy him some food.

Well I was wearing a mask and keeping my distance……..

The only other person with a mask was the lad preparing the food. The girl taking the orders, the chap making drinks and the person on the till were maskless. Everyone inside at the tables were maskless. Even the customers who came in after me were maskless. I even had to ask the person behind me to move back as he was no more than a foot away from me. AND the looks I got. No comments this time as I think my eyes gave away the current mood level. What’s the phrase – if looks could kill……

So have I missed something. Is it over…..

Just had an email from school saying that masks are still recommended on school buses but they are not required in any part of the school including classrooms. All social distancing rules have ceased. This follows Government instructions to schools. The email also notified parents that from the opening of schools next week, classes will now not be sent home if there is a positive case in the class. A significant outbreak would have to occur for that to happen. That decision would now not be the schools to take, it was up to area officials. Further if positive cases occur in a household then the any pupils are expected to still attend school until they test positive. Parents will now not be automatically informed of any school or class outbreaks. They will not be informed of any close contact with confirmed cases. This will only occur when a threshold of infection is reached. The school is seeking clarification on these new rules but they will have to follow them as they are Government instructions.

So have I missed something. Is it over…..

ONE MORE THOUGHT….

The Government was asked in a Freedom of Information Request to reveal what its own expert advice said about its school mask removal policy. The Government has refused to release that advice or a summary of the expert opinion as it is ‘not in the public interest to release that information’. I wonder what it says…….

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Responsibility 2

That’s a tree that’s seen some living. Too many storms and a couple of lightning strikes have permanently changed its shape. But it’s still standing. Standing on its own.

In the UK child mental health services have been cut to the bone. Rapidly escalating real need while resources are stretched to braking point. Children in need either do no get any support or minimal support has to be constantly fought for. Schools are forced to stick to the Government agenda with restricted budgets. Child Mental Health and Well-being is not seen as part of the school remit by the Government. Teachers are hamstrung with an inflexible curriculum with strict deadlines. Specialist Educational Services are just not available to most children who really need them.

In the UK families are basically on their own. If your child has an educational or mental health need then you can’t rely on help being there when you need it.

Government calls it’s ‘individual responsibility’.

So with 9 days left before Hawklad potentially returns to the classroom he is facing significant stress and anxiety. He has so many life defining challenges and social obstacles to overcome. Unpicking what can be done and assisting with those areas is a highly specialist area. A service which is currently unavailable to him. Any return to the classroom will require significant adjustments in school. It places significant requirements on teachers that they are not trained for and do not have the classroom time to handle. The school is unable to secure any specialist assistance – they are just not there. Apart from his muppet Dad, he is on his own. His Dad is out of his depth. Really out of his depth.

Individual Responsibility. What could possibly go wrong.

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Responsibility 1

Luckily Hawklad has found his way on to the replacement health specialist list. He has an appointment in the future. Really lucky as a 5 day a week full time specialist has been replaced with a one day a week specialist who has to cover over services on the other 4 days. Cut backs….. This Government does not take child mental health and well-being seriously. So much unmet need. Children let down by their own Leaders.

But our leaders don’t care full stop. As millions of the poorest loose £20 a week in benefits I hope the Chancellor taking that decision to cut enjoys his newly built heated swimming pool, tennis courts and state of the art gym. As the Prime Minister lectures those losing the losing the money that they most learn to stand on their own feet as he sits in his new apartments paid for by a rich donor. Oh sorry no, he is apparently on holiday again……

Apparently it’s all about personal responsibility.

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Twilight walk

Late evening dog walk. Normally a time of beauty, quiet and peace. A much needed feeling of solitude for Hawklad. But not this night. The sound of the farmer had at work as the light gives out. No sound of silence tonight.

Another day has started and the Government ‘schools are perfectly safe’ campaign is in full swing. Children are are very low risk of getting ill from COVID. Crossing the road is much more dangerous. So all children should return to school immediately and there is no need for any COVID mitigation strategies in the the classroom. Forget your masks and go for it. This even applies to Extremely Clinical Vulnerable children. A Government Health Agency has just wrote to over 55000 families to inform them that now their extremely clinical vulnerable child should not shield anymore. They are expected back at school. Previously they have been informed to fully isolate due to the health risks associated with COVID. Now it’s suddenly become safe. Reassuringly the Head of that Agency also claimed last year that the UK had a world leading COVID strategy. Also argued that effective track and trace of cases was not needed. Also claimed that Large Scale Mass Public Gatherings carried no risk at all (days before they were stopped on safety grounds). Argued that the UK would not suffer significant deaths (currently 132000). OK….

Covid is such a difficult area to manage. I accept that. But children are catching Covid. Are suffering from severe and long Covid. They are in intensive care. Too many have died. It’s time my Government was honest with us. We are averaging well over 30000 new cases per day. We have 26x more cases than this time last year. Most days sadly over 100 people die. Most other countries are vaccinating children. Most other countries are installing improved ventilation in classrooms. Most other countries are maintaining sensible precautions in schools. My Government has decided to drop all precautions. Let’s be clear the Government and it’s officials know this. They have an level of child illness, suffering and death which is acceptable to them. They will see that as manageable.

But then rather than trusting children and parents with making a decision on their families safety (which will be different for each family), they are forcing the issue. Forcing families into sending children back into school regardless of the individual circumstances. Threatening legal action. Sending Government Officials after families. Regardless of family health risk profiles. Regardless of any mental health concerns. The only view that matters is the Government’s.

Parent views only matter with this Government when they provide a convenient excuse for the friends of the PM to justify the few ignoring the rules while everyone else has to obey them. One rule for them, one rule for us.

And on top of that the Government is now saying that responsibility for controlling covid in schools is purely the responsibility of parents and teachers. It has nothing to do with the Government. I wonder why that is…

Hawklad will go back to school when he is ready. He knows best. I trust his judgement. It is his health and well-being. Sadly I don’t trust those in power who are supposed to be on his side. They don’t care.

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Moors

A short drive takes us into the heart of the Yorkshire MOORS. A stunningly moody setting for generations of fantastic storytellers. Wuthering Heights could only be set here in Yorkshire.

Today seemingly a perfect place for a trip out for Hawklad. He wanted to go out but to somewhere quiet and remote. The busiest time of the year for tourists yet we had the place to ourselves. Often it felt like we were the only two humans in these lands. That’s what Hawklad needed.

The setting perfect for forgetting the anxieties starting to build around the upcoming school return decision.

Then the decision was back centre stage for me. One small occurrence bringing the enormity of what Hawklad may soon be facing into clear focus.

A wall to be climbed. A set of steep, uneven narrow steps to be navigated. Helpfully a wooden handrail helped with my balance. But Hawklad couldn’t touch the handrail. Didn’t matter that I was probably the only person to touch the surface in hours. He just couldn’t touch it. Don’t laugh but he found a use for his old Dad. I stood next to the steps and he used the top of my head as a temporary balance aid. We laughed.

If he can’t touch surfaces how can he return to an overcrowded classroom with shared learning materials and equipment. He can’t touch door handles. He won’t even be able to touch his desk.

Two weeks to go and how can this school return happen.

Moody Moors. Moody Dad.

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A Yorkshire Summer

Almost too wet for the iPhone to cope….. That’s wet……

Later in the day, thankfully we can finally record a few hours of sunshine.

It doesn’t look like it but the fields are drenched. Two miles away a large concert became a mud bath at the weekend. Thankfully tractors came to tow cars out of the field car park. A Yorkshire summer….

As clouds roll in and the once again hidden sun sets, I find myself in the backroom. Putting off work that needs to be done this evening by writing these words. Listening to crackly copy of The Godfather soundtrack on vinyl which kinda sums up my mood. Drinking Chamomile tea to try to sooth a nervous stomach which isn’t very happy. Feeling fatigued after far too little sleep again, yet realising insomnia will win out again tonight. Hawklad is in the living room trying to forget about his rising anxieties. He’s playing games online with a close friend who has COVID. Yes a very Yorkshire summer……

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Autumn

Autumn is coming…..

Basically we have had about 36 hours of rain and drizzle. I looked up the weather stats and for hours of sunshine it has ZERO for two days now. I can’t remember the last time I went looking for the sun cream. Probably back into early July.

Perfect weather for rhubard….

Another hit on the return to school journey for Hawklad.

He is still struggling to be close to others, even outside. His trusted Psychologist has now left and we are waiting news on a replacement. The one restaurant he was considering trying to go inside for a meal, burnt down….

So it’s not been straightforward but he is still trying.

He was hoping to see a close friend early this week. Spend time at the friends house. Another important step. But we got a telephone call. His friend has Covid.

A September classroom return is seemingly becoming more problematic for Hawklad. A

utumn might see more homeschooling.

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Birds at dawn

Another early start. This time a seriously early one. A perfect insomniac storm. 3am. Hawklad has woken and can’t sleep. I have not been to bed yet and sleep feels a million miles away.

Hawklad wonders if we can see the dawn brake. On the coast.

So a few moments later and after I had sampled the meanest of espressos, we are driving. Driving past badgers, foxes and owls. Before 4am we arrive at RSPB Bempton Cliffs. It’s still pitch black and we have the site to ourselves. It’s such an eerie feeling walking in the complete absence of light and sound. Even to early for the thousands of seabirds perched precariously on the cliffs. No wind and even the sea was strangely becalmed.

In perfect time to watch dawn brake. No thoughts of an Albatross who was apparently out at sea. Who needs one bird when you get to watch all this unfold.

The dark was a challenge to my iPhone camera but it gave it a go.

By 7am a few people had started to arrive, mainly here to take up prime spots and wait. Hoping on catching sight of one particular bird. They had no idea what they had just missed. The deafening sound of seabirds hides the peace that existed just 2 hours ago.

We were back in the car and driving a few minutes later. The site had lost its appeal to Hawklad. Even a handful of strangers proving too much for him. But he had got to see a spectacular show first hand. Just the two of us so without his anxieties. He slept during the ride home.

Yes it was a ridiculously early start. Yes I went more than 24 hours without sleep. But it was worth it for those couple of hours when Hawklad felt that he had the world to himself. I suspect it won’t be the last time we do this. Yes there will be time for trips out to build those social bridges but those come with anxieties. We all need these times and places of sanctuary. Hawklad does. Yes even a worn down parent needs them.