Pain

I couldn’t sleep last night. Maybe two hours max. Event after I abandoned and a few minutes later I had a chamomile tea in hand and was channel hoping. I stumbled across some really cheesy B-movie. Then one of the actresses delivered this line

The hardest thing for me after my husband died was having to be nice to my family.”

Wow. That must have been some family. But it got me thinking. What was the hardest thing about losing my partner back in 2016. Strangely worrying about being nice to my family didn’t feature. The Worst Thing Thoughts that did pop into my head were.

Telling a young son his mum had died

Empty beds

Feeling utterly alone

The dark thoughts

Losing all my dreams

Getting up in the morning and facing the world

That final goodbye at the funeral

Trying to sort through my partners clothes and favourite possessions

Hearing her favourite song on the radio

The deathly silence in the house when our son was at school or asleep

Those were the emotions that I went through in the immediate aftermath. But then something else kicked in a few months later. As I started to clear my head this thought kept dominating my thought. Going forward – “I didn’t want to feel this pain of loss again“. The pain was too much for me. I needed to stop myself from getting close to people again. The feeling of isolation that came from thinking that was utterly soul destroying.

So there you go. I’m disagreeing with a cheesy B-movie, but every loss is different. So family pains can be just as intense as the many I went through. The B-movie did pass some time. It ALSO was so boring that I nodded off. Nodded off still holding my mug of tea. Yep I ended up wearing most of that. Thankfully only lukewarm. Yes piping hot tea would have been a pain I could definitely do without.

Terminator

Kinda feels like the type of sky you get just before it all goes horribly wrong in a Terminator movie. This time no coming storm. Just me in the kitchen making a curry. Actually very similar when you think about it. Especially if you have ever seen or unfortunately tasted one of my Saag Aloo horrors.

As I watched that cloud formation role through my thoughts had moved from terrible cooking to more important stuff. Doesn’t that cloud look like a polar bear lying flat out on its tummy. Well it did to me….

We spent an hour or so playing the cloud spotting game today. Fantastic free garden entertainment, the kinda stuff you need during a prolonged lockdown. While we were cloud spotting I kept hearing a nagging voice in my head. We could be so easily playing this in a years time. It’s not unreasonable to assume that Hawklads anxieties and phobias will still be here in a years time. If so then our lockdown will still be in place in March 2022. That would make it TWO years. TWO years. Maybe that is what the clouds are telling me. There is a storm coming. A long protracted one.

Grim

Just let this research finding sink in (press on the link for the details)

Autistic people are four times as likely to experience depression over the course of their lives as their neurotypical peers

In the UK the approach is that parents have to fight tooth and nail for any kind of support. The fortunate ones who get some support find out all too frequently that support starts to be withdrawn around the teenage years. Adult autism support is basically non existent for the vast majority.

In our little family world Hawklad is struggling. His anxieties are on the rise. He is stressed out. Trips outside of the house and the garden are currently impossible for him. We are fortunate in that we do have access to some psychological support. Sadly from a Team who are stretched to breaking point. But we still have some support. For how long that support continues – who knows. He’s a teenager. This is the only support he gets now as all the other services have already been withdrawn.

How many other of autistic families are facing the same challenges. TOO MANY. How many autistic adults have been let down by society. TOO MANY.

This is grim.

Typical Sunday

Sunday morning in Yorkshire. Like every Sunday morning for over a year now. Not enough sleep. Get up. Feed the pets. Exercise. Housework. Give Hawklad his breakfast. Feel frustratingly hemmed in. Isolated. Overthink life.

But eventually I start to breathe. Remembering what is important in life. In my life. Remembering those personal treasures that are so close to my heart. That always lift me up. That make me smile inside and out. And I realise just how truly fortunate I am.

Yes it’s been a typical Sunday. Well almost

It’s not RAINING…

WE can do this.

Come again

When we first moved into our little bungalow on the hill we had a beautiful Daffodil patch on the shared area in front of our house. At the time I would never have thought that 20 years later I would still be here. Certainly not still here as a widow and a single parent.

Over the next few years the daffodil patch seemed to flower less and less. The daffs would appear each year but more and more would just not bloom. The area was becoming such a shadow of its former self. Eventually I planted some new bulbs and now there is colour again.

This morning it dawned on that there is a message to all this. Life happens and sometimes things fade and leave us. But with patience and hard work life can happen again. That works for the daffodil patch and it works for me as well.

Are we really happy about this

It’s still not even midday on this stormy Monday and it already feels like it’s been a long week. Much shaking my head at the areas and topics Hawklad is having to learn. Really how will these facts and skills set him up for the future.

Then he listens to the news. It’s filled with talk of pandemics, nepotism and a country rapidly appearing to be an inwardly looking police state. Women having to protest because they don’t feel safe. A complete and utter Brexit shambles. Ongoing environmental disasters. Lots of waving the flag and saying we are better than anyone else. Look how much we can blame on immigration. Everything has a price. Profit is king. A world where the makeover of the PMs flat is more important than a pay rise for nurses. Leaders talking about bringing Victorian values back into schools.

Hawklad hears this. He talks about this.

Are we really happy that our children are being exposed to this. Being brought up in this type of world. Learning this stuff. Are we happy that the likes of these people are in charge of our child’s education.

Deciding exactly what they learn, how they learn it, where they can source there information from. What part of the economy they can be slotted in to.

Is it really about the children or is just about the economy. If it is really about the children then why don’t we ask them what they want. What interests them. What works for them. What world do they want to grow up in.

I bet it’s not this type of world….

This time

I can’t blame him for these, this time. But it does explain why he keeps coming in the house with muddy paws.

I had a post yesterday about Autism. When I wrote it things seemed ok with it. But then something happened. I happened….

I’m still working through this pcurrent bout of depression. Won’t be the first or last time I do this. When depression becomes DEPRESSION with me I start to doubt myself. Question my worth. That’s what happened yesterday. I reread the post and didn’t like it. The words were wrong. Uncertain of the message. Why was I bothering. If people want to read about Autism and Autism Patenting then they would be so much better off going to other blogs. Go to a blog like Robyn’s wonderful one. Nothing I said could change my mind. The voices in my would not be satisfied until I deleted the post. Eventually that is what happened.

Today the voices are not so strong. I guess today the post would have had a slightly better chance of being published. With my depression it comes in waves. Bad days then better days. Will be that way until I finally get on top of this run of D. In the meantime I will plod on. Trying to not listen to the voices in my head too much. Focusing on those things in my life which bring joy and happiness.

I can do this

We can do this.

Out of practice

It was a three cups of Decaf problem. Trying to explain Displacement Chemical Reactions to Hawklad. Problem is that it’s been decades since I last thought about them. I was clearly so out of practice.

Out of practice….

That got me thinking. Yes I do think somedays. Just how much I am out of practice in SO many areas. That’s not just in the area of Homeschooling. Lots of areas. Out of practice because of lockdown, because of single parenting, because of life.

  • Haven’t been on a bike in over a year,
  • Similarly my last run was back in March 2020,
  • Haven’t been out to a restaurant in 5 years,
  • Over a year since I watched a movie at the cinema,
  • Not experienced a Quickening in ages (That wont make any sense unless you’ve seen the Highlander movie). Quickening is the name I gave to family gatherings. The last time someone potentially lost their head at these get together was back in 2018,
  • Over 8 years since I tried my hand at climbing AND
  • Over 8 years since I tried my hand at falling off a cliff,
  • Not played team sports in 10 years,
  • Not had to give a speech at an audience in 7 years,
  • Not danced in a nightclub this century,
  • Not done any paid work in months,
  • Not been paddling in the bracing North Sea since 2019,
  • Not slept away from our house since the summer of 2015,
  • That was also the last time I went on holiday and had to look innocent on my way through passport control,
  • Haven’t had a hug or kiss since 2016,
  • Haven’t met up with friends since 2018,
  • Not ironed a shirt in a year,
  • Not packed an elephant sized amount of gear into a school bag in the same time.

So yes I’m definitely out of practice. It’s going to seem really odd when I do finally get back to doing some of these things. Really odd.

Street View

There are things which I should not be allowed to do when I am are feeling depressed. Here’s are a few things that can send me spiralling downwards.

Watching my so called football team

Look at the news

Anything to do with Boris Johnson

Standing on a Lego piece

Listening to Roger Waters

Weighing myself

Looking at the bank account

Watching the first 10 minutes of UP!

Looking at my face in the mirror

Now I can add something else to that list. Going on Street View…

I don’t know how but I ended up on that App, randomly looking at a street in New York. I had been searching for Science news items. But now I was in Street View. Thats when I made my first mistake. I looked up my old childhood home town. It’s a clever app as I could effectively wander the old routes I would walk when I was young. Seeing just how much had gone and just how run down it had become really made me feel even more down.

Then the next big mistake. I looked up the town we used to stay at in Switzerland. I wandered that beautiful place. At first it cheered me up. Remembering sights and sounds. But then pangs of sadness. Reminders of just how long it’s been since I was there. Then a nagging feeling. If I do ever make it back here I’m doing it as a single parent or probably on my own. Suddenly going back seemed even more unlikely.

Now I’m getting really down.

As I navigated the streets I caught sight of a building we would always walk past on the way to the train station. A shop window I would always look at. It was a steep climb up that street and it would give my partner a chance to catch her breath. But now it looks like it’s gone. Turned into luxury apartments. That made me really really sad.

A few minutes later I was stood outside in the garden. Stood alone in the darkness. Feeling really low. Yes definitely time to start avoiding Street View.

Whip

The sun almost shines down on a Monday morning. So the schools are now open again.

A real media blitz is underway telling parents just how safe things are and also reminding them of the fines that can be given out for keeping children off school. The Education Secretary is talking about change. Changes he thinks are necessary. Ways to extend the school day so children learn more. Changes to the school year drastically cutting back on school holidays. Finding ways to get pupils to keep studying during weekends and those reduced holidays. Changes he thinks are long overdue.

Strangely no mention of changes to make schools better places to learn and have fun. No mention of changes to the Government’s dogmatic national curriculum. No mention of investment in home schooling. No mention of changes to the funding cuts the Government has made to child mental health services. No mention of more input from pupils, teachers and parents in shaping a better future. The only change required is clearly to make children work longer.

But what do we expect from a politician who is supposed to be in charge or our schooling system and who makes a point of having a horse whip on the front of his desk. Photo from The Guardian