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Lists

Some of the plants are already starting to show some Autumnal colours. It’s only August….

It’s 131 days to Christmas. In normal times 131 days sounds like ages. I suspect this year it may not seem such a generous amount of time for many people, including parents. Pandemic rules, shopping restrictions, reduced product availability, money just that bit tighter, many still isolating. Plus remember last year – one of Hawklads presents was ordered in November and finally arrived in March. Yep this might be a challenge. I think I need to write a list. Yes I am good at doing lists. Unfortunately I am not so good at following list. And as for trying to find those lists after a few days – I’m a complete disaster. I need a list to help find the lists.

Occasionally I do stumble across long forgotten lists. I found one recently dating back 15 years. It was a list of mountains I had set myself a goal of climbing. 60 bucket list climbs. 15 years and I had ticked three as climbed. Another one had been attempted but I had to turn round near the top as I came across someone who had hurt their knee. So ended up helping her back down. So that’s 4. In my book just attempting a climb and coming back in one piece counts as ticking it off. Basically been stuck on 56 to go for years now. That’s another one of my great lists just basically gathering dust. Maybe I can change the wording on that list. How about 56 bucket list climbs that I will never complete. Change the wording and suddenly the list is completed. I can then bin it.

But no. The original list went back into the cupboard. A bit of paper soon to be lost again. This time I took a photo of the 56 climbs still to be attempted. Actually added a couple of Himalayan mountains to the list – might as well make it more sexy. The list is on my iPad now. So it won’t be lost and actually it might be a rare useful Gary list. It’s a great reminder that I’ve STILL got stuff to do and achieve in my life. It might seem like that I have not yet ticked off many things from my life lists but from today that CAN start to change.

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1000 odd days

This is a photo from 3 years ago. I stumbled across it while looking for some old climbing ones. Another typical Yorkshire August day – all four seasons in one day. It got me thinking – what’s the same and what’s changed in those 1000 odd days. See that’s what a professional accountancy qualification can do for you – I’m good at those complicated adding up calculations.

THINGS WHICH ARE THE SAME

  • Getting no dyslexia support from school,
  • Getting no Aspergers support or accommodations from school,
  • Still bereaved,
  • Still a single parent,
  • Still a metal head at heart,
  • Hawklad is still a lovely character,
  • No holidays, no Switzerland,
  • Pets causing chaos,
  • My football team is still useless,
  • Still see myself as European,
  • Brexit is still a shambles and a monumental exercise of self destruction,
  • Vegetarianism,
  • Can’t cook,
  • Still exercising,
  • Still 5ft 10 and a half (don’t forget the half – it takes me beyond average height),
  • Still not climbing,
  • Still can’t work out the TV remote control,
  • The garden is still a mess,
  • Still don’t like U2,
  • Still haven’t seen Avatar without falling asleep,
  • Haven’t seen my brother even though we live only 50 miles apart,
  • The garden gate still needs fixing,
  • The washing machine is still possessed,
  • Still having bought myself that ginormous telescope,
  • The blog is still going,
  • Still writing about the same stuff,
  • Still waiting for official recognition of my stellar poetry skills,
  • Still haven’t won the lottery,
  • Still losing my car keys.

THINGS THAT HAVE CHANGED FOR THE WORSE

  • As Hawklad has reached the teenage stage many of the health support packages have been removed,
  • The waiting list to see The Paediatrician is now approaching 2 years,
  • A pesky pandemic,
  • Hawklads anxiety levels,
  • Hawklads isolation from the world and other kids his age,
  • Due to circumstances had to stop running,
  • Boris,
  • Trumps antics,
  • Might be a metal head but the days of skin tight jeans have gone,
  • Lost a couple of much loved pets,
  • Don’t really see my sisters anymore,
  • School’s view of Hawklad – definitely revising his perceived ability levels downwards,
  • The number of times I have to shout or pull my hair out at school is rising,
  • I’m physically meeting less people,
  • The list of things on the ‘need sorting out when funds are available‘ is growing.

THINGS THAT HAVE CHANGED FOR THE BETTER

  • Hawklad understands himself and his Aspergers much better now,
  • Hawklad is overcoming his dyslexia,
  • I understand now that it’s just as ok to Laugh as it is to Cry, YES it’s ok to live,
  • Friendship
  • Close Friendships,
  • Faith,
  • Love,
  • Happiness,
  • One step closer to home schooling (hopefully),
  • My dress sense – I finally chucked out some of my pink climbing shirts.

You might be thinking that looking at the relative number of entries on these lists that the last 1000 odd days have been generally bad. But look at some of those things on the last list. It’s not about quantity it’s about quality. Yep looking at that last list, over the last 1000 odd days we have challenges but some really good stuff has still happened. That’s why there is always hope.

Posted on by bereavedandbeingasingleparent · 86 Comments

Cool

It’s hot in Yorkshire. Very hot for us. 🥵 86F (30C). That’s officially beyond Yorkshire’s Safe Operating Temperature. Law and Order will break down. The Ferrets will start to get unusually frisky. The Rhubard will go on strike. Cricketers might even have to unbutton their top shirt buttons. Those rather fetching knitted handkerchief hats will need to be donned….

In Yorkshire we have two expressions for this type of unusual weather.

It’s Mafting…….

It’s crackin’ t flags ……. translates to – it’s so hot the the paving stones are starting to crack.

It was too hot for my outside weights and kettlebell session. I definitely left a water trail marking out where my exercises took me. A nice run through a cool forest would have been ever so nice. The photo was from August 2019. Seems like a lifetime ago. Almost seems like a different world. A lot of things have changed for the worse. Some new really bad things have hit. Yes some life stuff has remained unchanged. And here is the crucial thing. A few things, some new stuff have definitely been an absolute blessing. It’s so easy to focus on the bad stuff but actually some wonderful things have happened. My Life is better because of those things.

So in 2020 when some days life seems unduly bad, I need to remember the good stuff. Yes life can and still will be tough. BUT it can also still be exceptionally beautiful. It can be a wonderful life.

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The Irony

The old Apple Tree. Definitely enjoying the sun and the rare windless conditions. A good day for a garden meeting.

Well today didn’t go as planned.

Son was primed for his garden meet-up with his new nurse counsellor. These things don’t come easy to him. Often it’s about trying to build a bond. A bridge. Only when that link is formed can any meaningful work be commenced. He had that link with his last person, we can only hope a similar one is formed again.

So yes he was as ready as he could be. The garden was setup…..

Then the call from Nurse Reception. Unfortunately the counsellor had taken ill in the car and had turned back. Headed home. Really sorry and they will rebook the session when the counsellor is back at work.

So hope that she is alright. These things happen. But the irony.

A session to work on Hawklads Health and Pandemic related fears cancelled due to illness.

The irony has not been lost on him. Oh sorry forget, HES not supposed to get things like irony….. A Doctor once said that to him during a consultation. Hawklad fixed him with a Paddington Bear Stare and said “Are you a proper Doctor?”. The Doctor looking a bit flustered and talked about his qualifications. Hawklad them calmly said “ok a Doctor but clearly not a very good one…..”.

So we just have to wait for another appointment. Absolutely no idea when that will be. Probably after schools go back in September? That’s another potential return complication. It’s certainly added a little to his fears, now. When the meeting does happen I’m betting on Hawklad asking for the garden chairs to be further spaced apart. Thats something which won’t happen at school.

We dust ourselves off and we just have to go again. The cancellation may be for the best. Stops anything unpleasant coming into our safe area. Plus it forces me to do something rather than rely on others. Just got to up my game.

Yes another odd Monday.

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Time for a winge

Our so called leader has dragged himself away from his champagne glass and has spoken. Apparently it is morally indefensible to keep schools closed. After his little bit of work he can go back to doing what he likes doing best. Looking after himself.

Schools do need to reopen when it is safe to do so for kids, teachers, support staff, families and the wider community. No one will argue with that. We need to strengthen the support to families whose kids cannot return.

But I’m sorry. I am not going to take moral lectures from that man. A man who won’t even admit how many kids he actually has fathered. A man who claims 60000 deaths is a great result for him. A man who turned his back on care homes in their hour of need. A man who demanded complete adherence to lockdown rules then turned a blind eye to his chief adviser and father when they broke them. A man who is more than happy to dish out millions to his friends via dodgy contracts, all in the name of emergency rules. A man prepared to send in warships to stop a handful of desperate migrants (including children) reaching our shores. A man who has been repeatedly sacked for lying. A man whose government views kids taking time off for bereavement as an extended holiday.

I will take moral guidance from other sources but most certainly not from him.

Posted on by bereavedandbeingasingleparent · 66 Comments

Reality

Late last night I was watching the news channel and a government expert was being interviewed about people struggling to leave the house since lockdown was eased. We will ignore the fact that the easing has been halted and areas are starting to fall back under emergency regulations. The experts take was that it was perfectly safe for everyone to go about their normal business. People should get out, go to the park or better to a restaurant. Those struggling should be brave and get out. Those still struggling to get out should arrange to see a health professional. This Government had put in support to facilitate this.

Ok…..

We’ve been lucky. We might get to see a nurse this month but we’ve had to fight tooth and nail for that. Because of cutbacks son has not been seen by a Paediatrician in well over 2 years now… 6 of his 7 support services have been removed. But again we are lucky. Far too many don’t get any support at all.

It’s 3am and I heard our son call. He had gone to the bathroom and because he had gone barefoot he desperately needed to wash his feet. So just before the morning bird chorus started I was running the bath so he could ease his anxieties. He is currently not able to touch taps. Towels can only be used once before they are washed. His bedding has to be washed daily. He has to wash his hands every few minutes. He can’t even touch is own shoes and clothes with his hands. Tell me how he is supposed to be brave and just get outside. The government just has not got the slightest idea of the problems facing so many in our communities. The health professionals just don’t have the resources to cope. It’s taken a pandemic to expose the true folly of focusing cutbacks on mental health and support services. When will our leaders wake up to the reality of life for so many households in our countries.

Posted on by bereavedandbeingasingleparent · 73 Comments

Groundhog Day

One of Hawklads favourite movies is Groundhog Day. Must admit a I’ve always liked that film. I’m showing my 1000 year plus age now by saying FILM. Anyway I liked that Bill Murray film because it was funny and a bit about redemption. Repeatedly through life I’ve had that Groundhog Day feeling. It’s so hard to put down on paper. That feeling that on this long journey, the circumstances and challenges remain unchanged. Never ending. What ever I do, they just seem to repeat. Slowly it’s starts to eat away at my inner self. Plays havoc with my emotions. My inner belief ebbs away. That’s when it feels like I need another caring hand to lead me into a new tomorrow. So yes I get this movie.

Hopefully I’m not as bad as Phil was at the start of the film – sorry movie. But again it is starting to feel like days are starting to repeat themselves. Even when I try to introduce something new, try just that little harder, then the next day starts very like the previous day. Stuff just keeps repeating itself.

  • A largely sleepless night,
  • Get up and do the same exercises in the garden,
  • Try to get the dog to go outside for his charge around and do his morning constitutional,
  • Check the news – these days it’s always the same headline and the same frustrations,
  • Sticking to the same fasting diet regime,
  • Cooking the same meals for Hawklad (he has the same 7 day food menu which he sticks to),
  • Sort out the mess the pets have made,
  • Hoover and clean the same rooms (we only have 5 small ones, a bathroom and a kitchen to worry about),
  • Try to get the old washing machine door to lock so I can do a wash,
  • Have the same thoughts about been able to run free beyond our garden fence enclosures, *** don’t get me wrong I am so thankful for the garden, so many wonderful people don’t have that***
  • Look at the same walls, with the same pictures, often feeling like they are closing in on me,
  • Spend far too long moaning about the weather,
  • Check the work system and email the same people, saying basically the same thing,
  • Wash up the same plates and cups,
  • Make a list of today’s challenges and they are the same as yesterday’s, the week before, last months…..
  • Jump on the scales and whisper PANTS,
  • Want to eat healthily but having to rely on Soya (Soy). Then watching my body just basically say NO,
  • Try to find my keys which are missing again,
  • Walk 40 yards to the post box to post a letter – my big trip out of the day,
  • Start the car up to make sure the battery doesn’t go flat,
  • The things that brought pain and doubt yesterday are still here today,
  • Check the bank account and whisper BIG PANTS,
  • Talk to Hawklad about hand washing every time he goes to the bathroom – which is about every 10 minutes,
  • Wash my hands constantly to help ease Hawklad’s fears,
  • Unblock the toilet and kitchen sink once a day, the builder who installed those was clearly having a laugh –
  • Reset the WiFi at about the same time every day as it’s gone down with cabin fever,
  • Try to get the cat to eat it’s gluten, grain, dairy free food when clearly it just wants to eat all the stuff that gives it diarrhoea,
  • Bake and Fail – that’s a great book title…..
  • Field the same calls, from the same companies offering the same services I don’t want,
  • If and when it rains, try to stop a flood next to the back door. Basically ends up mopping out the pools of water,
  • Paying bills,
  • Trying to chase moths and insects out of the house – the price you pay for living next to a farm,
  • Fight the same fears and demons,
  • Face the same self questioning,
  • Once a week cut the lawn with a lawnmower which basically hates cutting grass,
  • Every second Thursday realise the garden bin is still basically empty so have a mad gardening rush,
  • My dreams are still just dreams, seemingly no nearer becoming reality,
  • Go to bed so hoping for sleep, yet…..

Now don’t get me wrong some of the routine is just so fantastic. I just wouldn’t dream of changing those things. Going out in the garden at about the same time every day and talking with Hawklad. Spending time with him. Thinking of friends. Finding ways to make connections with those who are special to me. Looking at beautiful photos and videos – and smiling. Having fun playing games. Doing a bit of writing or waffling depending on your viewpoint. Saturday night movie night.

So yes it does feel like Groundhog Day. This time it may well keep feeling this way until our personal lockdown has been partially lifted. Maybe this time it’s could be labelled as Cabin Fever. Whatever it is, just like Phil in the movie, it often feels like I am the only one stuck in this repeat cycle. AND let’s not forget a really important factor – some people long for that repetitiveness. Hawklad is one. So maybe Groundhog Day can also be a good thing. Just got to go with the flow, make each day count as best I can and worry about tomorrow if it ever arrives.

Posted on by bereavedandbeingasingleparent · 62 Comments

With one hand

August 2018

It’s been too long since I stood by the sea. Far too long. For someone born in a small north eastern seaside town, that’s tough. Genuinely don’t know when it will happen again. My gut feel is not in 2020. Our Government of Fools has now start reversing it’s rushed reopening plans. Yesterday it was perfectly safe to visit cinemas without a mask. Today you MUST wear a mask for your favourite movie. Yet kids and teachers are still expected to go mask free in classrooms. Last Friday we were being told to support the holiday industry and travel as it was safe. Just days later that all changed and more countries are being urgently added to the quarantine list with thousands of tourists now already out there. Even though those countries have much lower rates of deaths and infections than the UK.

Tougher lockdown regimes are being reintroduced into some areas with significantly rising infection rates . One such area is uncomfortable close to us. That is doing nothing for Hawklads anxiety levels. And now his garden consultation with his new health worker is in doubt. Such visits are now under review again. Somedays it feels like it’s one step forward and then one back. That’s at a time when his obsessive hand washing and fear of touching surfaces continues to mount.

But there is always hope and is it really one step forward, one step back…

When I first started climbing I hated having to retrace steps. One step forward, one step back seemed such a waste. A failure. Something to be avoided at all costs. But over time I learnt wiser ways. Things like climbing in things like pink compression tops and tight blue leggings is really not cool at all. Things like collecting rain water from rocky pools to drink might be a life saver but it doesn’t taste as nice as a can of coke stuffed into my climbing pack. Things like it’s not a great team building idea to lead a pitch when you have spilt asunder your tight blue leggings. I also learned that retracing steps is often a good thing. The times a few moments of retreat and sideways steps actually leads to a much easier and safe climbing way forward.

So yes things are tough and that garden visit would be useful but…..

The word BUT sounds to negative, maybe however is better.

However we do at least have access to the service still. That’s a huge bonus. The garden visit would bring stress currently, so if it doesn’t happen then it’s one less thing for Hawklad to worry about. It also encourages us both to try new things, see if we can find our own way through this maze. There will be things we haven’t tried. Maybe potential help has been there all the time and we just haven’t looked hard enough for it. Too much relying on someone else to find it for us. Maybe the only solution for Hawklad is to bunker down for a few more months until those clever vaccine people find something that works. So maybe retracing some steps is the best way forward.

There is always hope and yes I still have a pair of tight blue leggings…..

Posted on by bereavedandbeingasingleparent · 89 Comments

Guides

Nice weather

I needed to remind myself of some nice weather as the actual weather is more like this….

Wet, wet, wet. 20 hours of non stop winter weather. I do love a Yorkshire summer. I guess we should call it grand weather for the Rhubard…..

Work is similarly frustrating. Since the so called government (sorry trying to cut back on my rants…) announced the relaxing of the rules we had a number of events put on our books for September and October. But as fast as I start to schedule them and fill in the details, THEY GET CANCELLED. Unless we manage to run a few of these then our organisation will have to mothball and hope to hibernate through to 2021. No guarantee that it would survive that. Sadly like so many other places.

I keep saying this but I do need to spend some time on employment options. Find some other options that can fit round Hawklad. But what…

“Dad maybe it’s time to take those Dummy Guides further. Take them to a whole new level. Dummy doesn’t go far enough. Must be people needing the Full Muppet Guide to Life. Only one person truly qualified for that job…..”

Thinking about it, it’s an endless source of material.

  • Muppet guide to Government (Co author Dominic Cummings),
  • Muppet guide to Brexit (Co author Boris Johnson),
  • Muppet guide to Parenting,
  • Muppet guide to IKEA flat pack furniture,
  • Muppet guide to weapons grade baking,
  • Muppet guide to finding your car keys,
  • Muppet guide to poetry and making it so unremittingly awful,
  • Muppet guide to homeschooling,
  • Muppet guide to shouting at school,
  • Muppet guide to animals taking over your home,
  • Muppet guide to falling asleep during Avatar,
  • Muppet guide to getting lost,
  • Muppet guide to putting your subway (Tube) ticket safely in your pocket and then not being able to find it as soon as a Ticket Collector appears,
  • Muppet guide to trying to remember where you were going in the first place,
  • Muppet guide to losing socks,
  • Muppet guide to getting paper jammed in a photocopier,
  • Muppet guide to learning and then forgetting a foreign language.
  • Muppet guide to becoming a famous Mills & Boon author,
  • Muppet guide to ineffective house work,
  • Muppet guide to understanding Tolkien’s Silmarillion,
  • Muppet guide to juggling,
  • Muppet guide to singing in the bath so out of tune you end up sounding like Bono and U2,
  • Muppet guide to healthy weeds,
  • Muppet guide to arm wrestling and shin kicking,
  • Muppet guide to getting the cellophane wrapper off a cd with a kitchen knife and then not being able to open a sticking plaster with the one remaining good hand,
  • Muppet guide to growing old disgracefully.

Posted on by bereavedandbeingasingleparent · 71 Comments

Life snapshot

The Aspergers life can be racked with anxieties and obsessive behaviours. Additionally Aspergers can frequently coexist with OCD. Add the death of a mum and both grannies. Then on top of that you add a pandemic. Something has to give with that kind of pressure building up. That’s what our son is dealing with and it is so very tough for him. What does that mean in practice. Well here is a snapshot of life and the impact it has on him.

Every ache, every sneeze, every spot, every pain is seen as a potential sign of a serious disease or the C word. Anxieties bring on indigestion and constipation. These are then seen by him as more potential warnings of serious, life threatening health conditions. The natural response was to frequently wash his hands. It was both to cleanse his hands but also an attempt to pour water on the raging anxiety wildfire. Washing to the point of red raw skin. These issues have existed for years but slowly during 2019 slow progress started to happen. The hand washing was just about brought under control. Then the pandemic hit. The progress was instantly lost. Suddenly the months of reassuring talk a out avoiding serious illnesses, the bodies capacity to fight back and the advances in medical science are basically blown out of the water. The problems started to mount up again and escalate to new heights.

  • Hand washing every few minutes. From 15 second washing now to washing for minutes at a time.
  • A reluctance to dry washed hands as towels might be a source of germs.
  • Harmful germs are seen to exist everywhere. Suddenly it’s difficult for him to touch taps, toilet handles and door knobs. Sheets of paper have to be left next to these so he can avoid touching them directly. Even pulling on a shirt may result in the potentially unclean sleeves coming into contact with his hands. Shoes have to be put on without using his hands.
  • iPads and joysticks have to be washed frequently and definitely before he touches them. It’s the same for things like pens.
  • When he strokes his pets he will immediately run to wash his hands.
  • He needs to see evidence that I wash my hands before I touch any of his items.
  • Clothes have to be frequently washed often multiple times a day.
  • Outside he is constantly looking out for flies and flying bugs. If they come too close then he will need to go inside to wash.
  • He has to have his own seat and no one is allowed to touch it. If they do then the seat has to be cleaned.
  • When he goes out the the front door then he consciously tries to avoid walking over any areas that the postman or others might have walked across. When he comes back in them his shoes will need to be completely cleaned. If he ventures through the front gate and into the outside world then on his return he will completely strip, shower and change to new clothes. Those rules apply to me as well.
  • Mouth-washing and gargling is frequently repeated during the day.
  • Any item which hits the ground (inside or out) will need to be deep cleaned.
  • Any new food items have to go into the garage and complete a quarantine period if at least three days.

This is daily life in our little home. I do my best to reassure, reason and modify behaviours. But it feels nothing more than trying to plug a leaking dam at present. One hole maybe plugged but in the meantime another two new holes have appeared. Counselling was there but government cutbacks have taken their toll on services. The pandemic has temporarily suspended specialist help. The result is massive backlogs and no access to help. These are tough times. For him and yes me as well. As a parent you feel helpless, definitely so underprepared for these challenges. But we keep going. We pick ourselves up and go again. Yes we will get there. We will. But it will take time. Realistically maybe well into 2021. In practice timescales don’t matter, we take each day as it comes, fortified by the love of friends.