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Heatwave is here – kinda

Blue skies are coming

I have given the weather a hard time recently. A few too many rainy shots through the window. So let’s correct the balance. This is today through the window.

Summer

Blue skies, very warm but with a Yorkshire twist. Blowing a gale. The perfect weather for standing on flimsy plastic chairs looking like a star from Texas Chainsaw Massacre. Only joking, I suspect my bruised rump would seriously object.

We’ve been doing a little routine which does help Hawklad put things into perspective. It’s so easy for him to get overwhelmed with the negative. I wonder who else that could apply to….. Basically it involves an empty sweet jar and some brightly coloured sweets. Here Skittles or Smarties work well.

Notice I went for the old Rowntree’s version, rather than Nestle. One day will tell you why. Anyway the secret is to pick a colour which is to represent good things and a colour to represent bad things. Then every time something happens Hawklad decides if it is good or bad. He then picks the appropriate colour sweet. The sweet then goes into the jar. Over time it’s an easy way to see what happens more, good or bad stuff. Thankfully for Hawklad it is usually a jar filled largely with good things. That would be mainly a blue colour then – assuming we can get blue sweets. Depending on who you listen to, blue colouring is either dangerous or difficult to source naturally. This little technique has helped Hawklad. Basically it shows him that yes bad stuff happens but actually more good stuff is out there. You also get to eat the sweets after the experiment has finished.

It’s strange that for such a clever little technique that works, I have never tried it on me. Someone who does have to fight negative thoughts. Someone who can see the world in a dark light. So here goes. This weekend this little muppet with his big bruised posterior is going to try this. Let’s see what happens and what it tells me about life.

Take care.

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Doubts

Much needed colour on a very grey and damp start to the day.

Some days are just greyer than others. Yes still smiles. Somethings just don’t fail. But then you come up to the surface again and it’s still grey. Crack on with stuff until you can immerse yourself in the good stuff again. Up and down. Swings and roundabouts.

Might have said that before. Sounds familiar. Sounds a bit like the lines ‘I’m going on a diet’ and ‘I’m going to have an early night’.

Another thing I’ve said over the last few hours – a one day heat wave is due on a Friday. Every time I look excitedly at the forecast, it just gets warmer. Now it’s supposed to be 29C (84F). That’s really hot for Yorkshire. Now I wonder what the reality will actually be. Let’s show you the current weather.

Wet, windy and definitely not warm…. Less than 24 hours until we are supposed to be hot then. Doubts definitely building.

I read some haunting words last night that brought tears. A really good person having so much to deal with in life. Honesty about the pain and sadness suffered. Yet unbroken with so much spirit, heart and love. Definitely made me think about that person and what a symbol of hope they represent. It also made me think about my life. Its too easy for me to take so many things for granted. I’ve been a bit up and down recently. A few too many down moments. Far too many doubts. Yet I have so much to smile about. Things which I far too easily take for granted. That needs to change. I’m not saying it’s going to transform me into a constantly smiling creature but maybe it will make me more balanced and honest with myself. I might believe my life is tough but looking at others, it really isn’t that bad at all. I’ve been so fortunate in many areas. I need to remember that and be more mindful of what others are dealing with. I’ve had opportunities which have been cruelly denied to others.

So it’s time to be much more thankful for what I have.

It’s a good life for me and actually it’s frequently a wonderful life.

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Hard life

It’s a hard life for some. Not sure if the hard life applies to The Cap or to that old sofa. The Cap is resting after a hard morning of causing chaos. This sofa is 17 years old. Over the last few years it has had to endure sustained cat and dog attention. Currently it’s covers are being washed for the millionth time.

It’s a hard life for my bottom as well. This morning I was blasting out a few miles on my equally old exercise bike when it basically fell to bits. It collapsed. One minute I was dreaming of summiting the Alpe d’Huez and leading the Tour de France. Three seconds later I’m sat on the floor surrounded by bits of exercise bike. Oh how the mighty fall. Now I know what it feels like to fall of your bike and forlornly watch the peloton scream past you.

Thankfully ten minutes later the bike was reassembled and the snapped retaining bolt replaced. The rest of the stationary ride was completed while I sat on an ice pack and a soft cushion. Bruised buttocks are not fun. But on the bright side, it’s much easier to ice pack your posterior than it is to ice pack your ego.

Bizarrely we were watching the Dora The Explorer movie last night. Yorkshire really knows how to live the dream. Near the start of the movie, poor Dora was dancing at a school ball. It was such a random odd dance that all the other kids were laughing and poking fun at her. Poor Dora, I really felt for her.

“Dad she dances like you.”

Really, I’m not that bad am I….

“In fact worse, much worse. At least Dora is coordinated. Your dancing is that bad, that if I’m within 50 miles of you, you are banned from any dance floor.”

The shame. How the mighty have fallen. I’m telling you that I once won a New Years Eve Blues Brothers dance competition.

“That was thankfully before I was born Dad….”

It’s a hard life……

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Money, money, money

Clearly the blueberry has given up on this Yorkshire Summer and just assumed it’s autumn already.

MONEY. Not listened to that Pink Floyd song in ages.

Get a good job with good pay and you’re okay….

That’s how the song goes. It’s funny that I love Floyd but this is the only song of theirs that I don’t like. The sound of the cash till just annoys me. It’s kinda nice that when I finally got to see them live, I can remember the concert so well yet I can’t remember them playing this song. It’s so good when the mind works like that.

MONEY. Before the world changed in 2016 we were doing alright. Finding a way to maintain two quite well paid jobs while making sure one of us was always there for Hawklad. It wasn’t easy and took a shed load of planning, but we found a way. We had a nice house, two cars (our jobs headed in different directions) and we could afford a trip to Switzerland every year. We tried to save for the future so we didn’t buy much. But it was a comfortable life and we could certainly pay the bills.

Then the world suddenly changed. I’ve just realised how lame that phrase sounds. Took me long enough. Seismic Rupture might be better. Need to think about that…

MONEY. The last thing you should be thinking about after a bereavement is money. But far too often MONEY quickly looms over you when you are at your lowest ebb. Bills still have to be paid. Food has to be bought. The government wants its pound of flesh, death brings the delights of Inheritance Tax. Two incomes suddenly became one. Even that one….. Single parenting, Single Aspergers parenting, Single parenting to a 9 year old who has just lost his mum. My job became impossible to maintain. Suddenly I was scrambling for a part time job which worked round Hawklad. MONEY became a very scarce commodity. Trying to get my head properly round these scary things is the last thing I needed when my world had just been shaken to the ground. Trying to look at a shrinking bank statement is bloody hard when it’s done through crying eyes.

That’s how it’s been with MONEY ever since 2016. I was so lucky to find a job which was flexible enough to fit round the single parenting gig. But I was still trying to pay the bills. Working out which repair jobs would have to be kicked into the future – which is most of them. Only trying to spend on the absolutely essential stuff. Funny thing is how often schooling costs suck up any spare cash. Holidays are just not happening – the last one was back in 2015. When we do have to buy items the first point of call is always the previously enjoyed or damaged sections. Our one extravagance, concerts, are always in the much cheaper – restricted view areas. We never turn down hand me downs. I’m currently looking at an exercise bike which was surplus to someone’s requirements and is held together with copious amounts of electricians tape.

MONEY. How needs it. With hindsight it’s clear that we are so lucky. So many are in a much worse position than we are. I’ve found a job that kinda fits our lifestyle. We have a nice house and garden. Live in a lovely area. Friends are wonderful. Financially it’s challenging but we are just about stable. Money helps but it doesn’t buy you happiness. Thinking of Hawklad, memories and friends – money doesn’t buy you those things.

Posted on by bereavedandbeingasingleparent · 89 Comments

Guides

Nice weather

I needed to remind myself of some nice weather as the actual weather is more like this….

Wet, wet, wet. 20 hours of non stop winter weather. I do love a Yorkshire summer. I guess we should call it grand weather for the Rhubard…..

Work is similarly frustrating. Since the so called government (sorry trying to cut back on my rants…) announced the relaxing of the rules we had a number of events put on our books for September and October. But as fast as I start to schedule them and fill in the details, THEY GET CANCELLED. Unless we manage to run a few of these then our organisation will have to mothball and hope to hibernate through to 2021. No guarantee that it would survive that. Sadly like so many other places.

I keep saying this but I do need to spend some time on employment options. Find some other options that can fit round Hawklad. But what…

“Dad maybe it’s time to take those Dummy Guides further. Take them to a whole new level. Dummy doesn’t go far enough. Must be people needing the Full Muppet Guide to Life. Only one person truly qualified for that job…..”

Thinking about it, it’s an endless source of material.

  • Muppet guide to Government (Co author Dominic Cummings),
  • Muppet guide to Brexit (Co author Boris Johnson),
  • Muppet guide to Parenting,
  • Muppet guide to IKEA flat pack furniture,
  • Muppet guide to weapons grade baking,
  • Muppet guide to finding your car keys,
  • Muppet guide to poetry and making it so unremittingly awful,
  • Muppet guide to homeschooling,
  • Muppet guide to shouting at school,
  • Muppet guide to animals taking over your home,
  • Muppet guide to falling asleep during Avatar,
  • Muppet guide to getting lost,
  • Muppet guide to putting your subway (Tube) ticket safely in your pocket and then not being able to find it as soon as a Ticket Collector appears,
  • Muppet guide to trying to remember where you were going in the first place,
  • Muppet guide to losing socks,
  • Muppet guide to getting paper jammed in a photocopier,
  • Muppet guide to learning and then forgetting a foreign language.
  • Muppet guide to becoming a famous Mills & Boon author,
  • Muppet guide to ineffective house work,
  • Muppet guide to understanding Tolkien’s Silmarillion,
  • Muppet guide to juggling,
  • Muppet guide to singing in the bath so out of tune you end up sounding like Bono and U2,
  • Muppet guide to healthy weeds,
  • Muppet guide to arm wrestling and shin kicking,
  • Muppet guide to getting the cellophane wrapper off a cd with a kitchen knife and then not being able to open a sticking plaster with the one remaining good hand,
  • Muppet guide to growing old disgracefully.

Posted on by bereavedandbeingasingleparent · 78 Comments

Flying

Wouldn’t it be great to fly. To just fly. No need for a baggage check in, security and long waits in the Terminal. Just to fly under your own steam, when and wherever. Given the size of my bum during these lockdown days, that would have to me some mighty wingspan to get me airborne. Buttocks like mine are the reason that they invented super sized planes like the 747 with those massive engines.

“Dad have you lost that weight you said you were going to before the summer…”

Yes I did set a goal of shedding some weight.

“You actually said it would be 14lbs which is 6.3kg’s. So how are you doing?”

I am probably about 6.3kg’s short of the goal currently…..

“So what’s gone wrong?”

I’m exercising really hard but I’m just not getting any long runs. Without the runs it’s a real struggle to get my heart rate above 100 during the exercise. But the main problem is the food. I’m having to eat Soya and some Gluten products. These just make me blow up as if I’m pregnant.

“Are you sure your not pregnant?”

Pretty sure, although we have some of your old baby clothes somewhere – just in case. Those food types just make my abdomen and face puff up. It takes ages for my system to try and process them. When the shop gets a better range of things back in, then things will improve.

“Arnold Schwarzenegger became pregnant in that movie. Look how much money he has now. Just saying……Instead of soya and gluten stuff, Dad, why don’t you just eat salads and soups…”

*******

Yes we could all do with some more money but call me a coward, not that way please…. But Hawklad does have a good point. I’ve just switched to the soya and gluten alternatives without really thinking. Salads would be far better for me. I’ve become lazy, stopped making things like soups and stews. So from today my body becomes a temple. A well cared for one. Now I don’t have an excuse, that weight has to come off now. Either that or it’s a remake of the movie Junior….

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Needs trimming

That hedge needs trimming……

Hawklad likes to think that this bush has become so large and overgrown, that if it was one day cut then it might destabilise the earths orbit. Better not touch it then. That’s what I call a quality excuse to avoid hard work. A few minutes later it was absolutely chucking it down. At least we got a few minutes sun.

Well that dreaded day has arrived. Been trying to put it off. Yes Hawklad is now taller than me. Certainly if you include the hair…. Even discounting hair then he is now above me. Waiting till he was 15 or 16 would have been nice. But only just gone 13 – really….

I was happy at 5ft10.5 (179cm). I was just above average height. Yes a few more inches might have given my goalkeeping career a boost, but I was cool with my height. I was the tallest in our family. But deep down I knew my title would be lost. Especially when Hawklad was 9 and the Doctor told him that he was above the 97th percentile for height at his age. 97th is always going to tower over something like the 51st.

Now to work on his weight. He is tall but very slim. He struggles to maintain his weight. He’s underweight for his age and height. That’s a label that I have never, ever had. In the words of his Doctor – if he wants to eat chocolate then let him, no need for calorie counting, just eat…. It maybe that he is always moving, brain always in overdrive. It’s something I have to keep an eye on. Evidence is rising on the link between Autism and eating disorders. He is conscious of his weight but thinks he is overweight. He does love eating salads and vegetables. I need to find ways to get more calories in him in a sustainable way.

At the moment we are probably just about maintaining a balanced approach, but only just. I don’t want to make light of this. Many families and adults are so struggling with eating disorders, which too often end tragically. Much more needs to be understood and done. We will treat this so seriously and will continue to look at options. In our case the best approach often involves humour, so…. So maybe a better baker than me is required in our house. That’s something Hawklad would sign up to.

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Remember

Sadly I won’t be able to visit here today. Its 50 miles away and currently just so out of reach. My mind will wander there today. Not for too long as my mother would give me a stern talking-to for fussing too much. So I will make myself a cup of tea and take a few moments to remember some mum memories.

  • Her famous meat and two vegetables Sunday lunches. She even amended that to Quorn and two vegetables for an awkward son. Followed by the best ever apple crumble and custard.
  • How she would call everyone (including the pets) Pidge so that she never forgot a name. You knew you were in trouble when she called you by your real name,
  • Going to her house and hearing Sinatra or Cash singing as you went through the door,
  • Walking into her living room and her first words being, Do you want a cup of tea and a biscuit,
  • Sat on a plane at Heathrow Airport with her and she started eating toffees to stop her ears popping. She finished all three packets of sweets before the plane had even started taxiing. And yes her ears popped,
  • The day she went into a small shop for a paper and she ended up being smiled at by one of Europe’s best footballers, who had come in for a prematch chocolate bar,
  • Every year asking me to put a 10p bet on the big horse race. I never told her that I always made the bet up to a £1,
  • Her refusing to be called Granny or Great Granny, so she became little Nan,
  • Every time I would take Hawklad round to see Little Nan on a Sunday and she would somehow have managed to find another Mr Men book which he had never read,
  • Mum with my oldest sister running out of the Dracula museum in a fit of giggles when a man dressed up as the Prince of Darkness had unexpectedly appeared behind them,
  • On a morning finding various little garden birds stood patiently in her kitchen waiting to be fed.

And so many more memories from a truly wonderful mum. So it’s time for a cup of tea and a biscuit. Time to remember. Days like this that photographs from so many years ago become treasures.

Posted on by bereavedandbeingasingleparent · 71 Comments

Life snapshot

The Aspergers life can be racked with anxieties and obsessive behaviours. Additionally Aspergers can frequently coexist with OCD. Add the death of a mum and both grannies. Then on top of that you add a pandemic. Something has to give with that kind of pressure building up. That’s what our son is dealing with and it is so very tough for him. What does that mean in practice. Well here is a snapshot of life and the impact it has on him.

Every ache, every sneeze, every spot, every pain is seen as a potential sign of a serious disease or the C word. Anxieties bring on indigestion and constipation. These are then seen by him as more potential warnings of serious, life threatening health conditions. The natural response was to frequently wash his hands. It was both to cleanse his hands but also an attempt to pour water on the raging anxiety wildfire. Washing to the point of red raw skin. These issues have existed for years but slowly during 2019 slow progress started to happen. The hand washing was just about brought under control. Then the pandemic hit. The progress was instantly lost. Suddenly the months of reassuring talk a out avoiding serious illnesses, the bodies capacity to fight back and the advances in medical science are basically blown out of the water. The problems started to mount up again and escalate to new heights.

  • Hand washing every few minutes. From 15 second washing now to washing for minutes at a time.
  • A reluctance to dry washed hands as towels might be a source of germs.
  • Harmful germs are seen to exist everywhere. Suddenly it’s difficult for him to touch taps, toilet handles and door knobs. Sheets of paper have to be left next to these so he can avoid touching them directly. Even pulling on a shirt may result in the potentially unclean sleeves coming into contact with his hands. Shoes have to be put on without using his hands.
  • iPads and joysticks have to be washed frequently and definitely before he touches them. It’s the same for things like pens.
  • When he strokes his pets he will immediately run to wash his hands.
  • He needs to see evidence that I wash my hands before I touch any of his items.
  • Clothes have to be frequently washed often multiple times a day.
  • Outside he is constantly looking out for flies and flying bugs. If they come too close then he will need to go inside to wash.
  • He has to have his own seat and no one is allowed to touch it. If they do then the seat has to be cleaned.
  • When he goes out the the front door then he consciously tries to avoid walking over any areas that the postman or others might have walked across. When he comes back in them his shoes will need to be completely cleaned. If he ventures through the front gate and into the outside world then on his return he will completely strip, shower and change to new clothes. Those rules apply to me as well.
  • Mouth-washing and gargling is frequently repeated during the day.
  • Any item which hits the ground (inside or out) will need to be deep cleaned.
  • Any new food items have to go into the garage and complete a quarantine period if at least three days.

This is daily life in our little home. I do my best to reassure, reason and modify behaviours. But it feels nothing more than trying to plug a leaking dam at present. One hole maybe plugged but in the meantime another two new holes have appeared. Counselling was there but government cutbacks have taken their toll on services. The pandemic has temporarily suspended specialist help. The result is massive backlogs and no access to help. These are tough times. For him and yes me as well. As a parent you feel helpless, definitely so underprepared for these challenges. But we keep going. We pick ourselves up and go again. Yes we will get there. We will. But it will take time. Realistically maybe well into 2021. In practice timescales don’t matter, we take each day as it comes, fortified by the love of friends.

Posted on by bereavedandbeingasingleparent · 74 Comments

Schools out for now

Today we received an email from the Headteacher setting out the plans for the coming school year. Clearly he is being hamstrung by both government rules and the lack of any clarity on those rules. But currently this is the plan.

  • Each year group will be largely kept apart from other year groups.
  • Each year group will return to school on a different day. For our sons new year group that will be September 11th.
  • School buses will run but each child will have a named seat and the bus will be split into year groups. That will mean son will have to sit with 3 girls and separate from the boys he would normally sit with. All pupils will need to wear a mask on the bus and use hand sanitizers when they board the bus.
  • Masks will not be worn at any other time during the day.
  • Corridors will operate as normal but pupils will be encouraged to maintain as much social distancing as possible.
  • Social distancing will not be enforced within the classroom, so room layouts will remain unchanged.
  • No catering facilities will be available at break times.
  • Access to the canteen will be restricted at lunchtime. Pupils will only be allowed to have lunch within narrow timeframes.
  • More hand sanitizers will be available but it will be up to the pupils when they use them.
  • Toilets will be restricted to only 3 people at a time.
  • Year groups will be kept where possible in there own area of the school. Sons area would mean that he does not have access to the quiet room which is set aside for children with autism.
  • Parents will be given details of mental health services available to those children struggling.
  • No onsite temperature checking will take place, that is the responsibility of the parent.
  • If any child is showing a Covid symptom then they should be kept off school. They are also encouraged to undertake a virus test.
  • Class sizes may have to be increased to take account of increased teacher sickness.
  • Pupils will be encouraged to avoid meeting with friends who are not in their year group.
  • School will not be closed if virus cases are recorded.
  • Online tuition will have to be abandoned with the government dictating a full return to normal schooling.

So that’s the plan. I’m so hoping son decides to opt for homeschooling. Frankly opening up large schools during a pandemic with only the minimum of additional safeguards, appears reckless. So many unanswered questions, which the headteacher openly refers to. Why would you shutdown online tuition in schools which are actually up for awards on the quality of that online service. What do families do when they have several children in different year groups. Most people with the virus show no symptoms yet testing is being restricted. Why masks for buses yet no masks for classrooms. How do kids with autism access the autism services which are in a restricted parts of the school. It’s ok giving out mental health service details but those services are already overrun with significant service backlogs (waiting lists of up to 12 months) – kids need help now….. And on and on.

It’s all a bit of a mess really.