Posted on by bereavedandbeingasingleparent · 91 Comments

You

This was a year ago. I stopped on one of my long runs to take this photo. It would have been just after 9am and Hawklad would have been in school. After the run was finished I would then drag my muddy body to the supermarket. Definitely seems like an eternity ago. I wonder when I will go running here again. Probably not in 2020.

We all need those things in life to hold on to. A person, a friendship, a love, faith, a hobby, a destination. It will be different for everyone. Maybe it’s one thing. Maybe it’s a range of things. But we do need these in our worlds. For our health and wellbeing. I remember listening to a politician who I really respected. He talked about his love of hill walking. How walking had become such an important part of his life. But he was sad because due to work demands he had been forced to stop something he loved so much. Tragically it didn’t work out for him and his life was cut short. We do need to hold onto these things which lift us up. We all need to find the time. Listen to what our inner selves are telling us and needing from us. Hold onto and treasure those things and people we love.

So running has gone. I’ve found better more enriching things to focus and care for. But I realise that I do need a fitness activity to replace running. Ultimately the exercise bike is monumentally boring. So at present running has been replaced with yoga. Briefly stopping to take a photo has been replaced with failing to get anywhere near holding a handstand. Happy Days. I feel another lego yoga post coming on. You have been warned.

Joking to one side, please remember to find the time for YOU. You need that.

Posted on by bereavedandbeingasingleparent · 80 Comments

1000 odd days

This is a photo from 3 years ago. I stumbled across it while looking for some old climbing ones. Another typical Yorkshire August day – all four seasons in one day. It got me thinking – what’s the same and what’s changed in those 1000 odd days. See that’s what a professional accountancy qualification can do for you – I’m good at those complicated adding up calculations.

THINGS WHICH ARE THE SAME

  • Getting no dyslexia support from school,
  • Getting no Aspergers support or accommodations from school,
  • Still bereaved,
  • Still a single parent,
  • Still a metal head at heart,
  • Hawklad is still a lovely character,
  • No holidays, no Switzerland,
  • Pets causing chaos,
  • My football team is still useless,
  • Still see myself as European,
  • Brexit is still a shambles and a monumental exercise of self destruction,
  • Vegetarianism,
  • Can’t cook,
  • Still exercising,
  • Still 5ft 10 and a half (don’t forget the half – it takes me beyond average height),
  • Still not climbing,
  • Still can’t work out the TV remote control,
  • The garden is still a mess,
  • Still don’t like U2,
  • Still haven’t seen Avatar without falling asleep,
  • Haven’t seen my brother even though we live only 50 miles apart,
  • The garden gate still needs fixing,
  • The washing machine is still possessed,
  • Still having bought myself that ginormous telescope,
  • The blog is still going,
  • Still writing about the same stuff,
  • Still waiting for official recognition of my stellar poetry skills,
  • Still haven’t won the lottery,
  • Still losing my car keys.

THINGS THAT HAVE CHANGED FOR THE WORSE

  • As Hawklad has reached the teenage stage many of the health support packages have been removed,
  • The waiting list to see The Paediatrician is now approaching 2 years,
  • A pesky pandemic,
  • Hawklads anxiety levels,
  • Hawklads isolation from the world and other kids his age,
  • Due to circumstances had to stop running,
  • Boris,
  • Trumps antics,
  • Might be a metal head but the days of skin tight jeans have gone,
  • Lost a couple of much loved pets,
  • Don’t really see my sisters anymore,
  • School’s view of Hawklad – definitely revising his perceived ability levels downwards,
  • The number of times I have to shout or pull my hair out at school is rising,
  • I’m physically meeting less people,
  • The list of things on the ‘need sorting out when funds are available‘ is growing.

THINGS THAT HAVE CHANGED FOR THE BETTER

  • Hawklad understands himself and his Aspergers much better now,
  • Hawklad is overcoming his dyslexia,
  • I understand now that it’s just as ok to Laugh as it is to Cry, YES it’s ok to live,
  • Friendship
  • Close Friendships,
  • Faith,
  • Love,
  • Happiness,
  • One step closer to home schooling (hopefully),
  • My dress sense – I finally chucked out some of my pink climbing shirts.

You might be thinking that looking at the relative number of entries on these lists that the last 1000 odd days have been generally bad. But look at some of those things on the last list. It’s not about quantity it’s about quality. Yep looking at that last list, over the last 1000 odd days we have challenges but some really good stuff has still happened. That’s why there is always hope.

Posted on by bereavedandbeingasingleparent · 69 Comments

The Irony

The old Apple Tree. Definitely enjoying the sun and the rare windless conditions. A good day for a garden meeting.

Well today didn’t go as planned.

Son was primed for his garden meet-up with his new nurse counsellor. These things don’t come easy to him. Often it’s about trying to build a bond. A bridge. Only when that link is formed can any meaningful work be commenced. He had that link with his last person, we can only hope a similar one is formed again.

So yes he was as ready as he could be. The garden was setup…..

Then the call from Nurse Reception. Unfortunately the counsellor had taken ill in the car and had turned back. Headed home. Really sorry and they will rebook the session when the counsellor is back at work.

So hope that she is alright. These things happen. But the irony.

A session to work on Hawklads Health and Pandemic related fears cancelled due to illness.

The irony has not been lost on him. Oh sorry forget, HES not supposed to get things like irony….. A Doctor once said that to him during a consultation. Hawklad fixed him with a Paddington Bear Stare and said “Are you a proper Doctor?”. The Doctor looking a bit flustered and talked about his qualifications. Hawklad them calmly said “ok a Doctor but clearly not a very good one…..”.

So we just have to wait for another appointment. Absolutely no idea when that will be. Probably after schools go back in September? That’s another potential return complication. It’s certainly added a little to his fears, now. When the meeting does happen I’m betting on Hawklad asking for the garden chairs to be further spaced apart. Thats something which won’t happen at school.

We dust ourselves off and we just have to go again. The cancellation may be for the best. Stops anything unpleasant coming into our safe area. Plus it forces me to do something rather than rely on others. Just got to up my game.

Yes another odd Monday.

Posted on by bereavedandbeingasingleparent · 66 Comments

Reality

Late last night I was watching the news channel and a government expert was being interviewed about people struggling to leave the house since lockdown was eased. We will ignore the fact that the easing has been halted and areas are starting to fall back under emergency regulations. The experts take was that it was perfectly safe for everyone to go about their normal business. People should get out, go to the park or better to a restaurant. Those struggling should be brave and get out. Those still struggling to get out should arrange to see a health professional. This Government had put in support to facilitate this.

Ok…..

We’ve been lucky. We might get to see a nurse this month but we’ve had to fight tooth and nail for that. Because of cutbacks son has not been seen by a Paediatrician in well over 2 years now… 6 of his 7 support services have been removed. But again we are lucky. Far too many don’t get any support at all.

It’s 3am and I heard our son call. He had gone to the bathroom and because he had gone barefoot he desperately needed to wash his feet. So just before the morning bird chorus started I was running the bath so he could ease his anxieties. He is currently not able to touch taps. Towels can only be used once before they are washed. His bedding has to be washed daily. He has to wash his hands every few minutes. He can’t even touch is own shoes and clothes with his hands. Tell me how he is supposed to be brave and just get outside. The government just has not got the slightest idea of the problems facing so many in our communities. The health professionals just don’t have the resources to cope. It’s taken a pandemic to expose the true folly of focusing cutbacks on mental health and support services. When will our leaders wake up to the reality of life for so many households in our countries.

Posted on by bereavedandbeingasingleparent · 73 Comments

Groundhog Day

One of Hawklads favourite movies is Groundhog Day. Must admit a I’ve always liked that film. I’m showing my 1000 year plus age now by saying FILM. Anyway I liked that Bill Murray film because it was funny and a bit about redemption. Repeatedly through life I’ve had that Groundhog Day feeling. It’s so hard to put down on paper. That feeling that on this long journey, the circumstances and challenges remain unchanged. Never ending. What ever I do, they just seem to repeat. Slowly it’s starts to eat away at my inner self. Plays havoc with my emotions. My inner belief ebbs away. That’s when it feels like I need another caring hand to lead me into a new tomorrow. So yes I get this movie.

Hopefully I’m not as bad as Phil was at the start of the film – sorry movie. But again it is starting to feel like days are starting to repeat themselves. Even when I try to introduce something new, try just that little harder, then the next day starts very like the previous day. Stuff just keeps repeating itself.

  • A largely sleepless night,
  • Get up and do the same exercises in the garden,
  • Try to get the dog to go outside for his charge around and do his morning constitutional,
  • Check the news – these days it’s always the same headline and the same frustrations,
  • Sticking to the same fasting diet regime,
  • Cooking the same meals for Hawklad (he has the same 7 day food menu which he sticks to),
  • Sort out the mess the pets have made,
  • Hoover and clean the same rooms (we only have 5 small ones, a bathroom and a kitchen to worry about),
  • Try to get the old washing machine door to lock so I can do a wash,
  • Have the same thoughts about been able to run free beyond our garden fence enclosures, *** don’t get me wrong I am so thankful for the garden, so many wonderful people don’t have that***
  • Look at the same walls, with the same pictures, often feeling like they are closing in on me,
  • Spend far too long moaning about the weather,
  • Check the work system and email the same people, saying basically the same thing,
  • Wash up the same plates and cups,
  • Make a list of today’s challenges and they are the same as yesterday’s, the week before, last months…..
  • Jump on the scales and whisper PANTS,
  • Want to eat healthily but having to rely on Soya (Soy). Then watching my body just basically say NO,
  • Try to find my keys which are missing again,
  • Walk 40 yards to the post box to post a letter – my big trip out of the day,
  • Start the car up to make sure the battery doesn’t go flat,
  • The things that brought pain and doubt yesterday are still here today,
  • Check the bank account and whisper BIG PANTS,
  • Talk to Hawklad about hand washing every time he goes to the bathroom – which is about every 10 minutes,
  • Wash my hands constantly to help ease Hawklad’s fears,
  • Unblock the toilet and kitchen sink once a day, the builder who installed those was clearly having a laugh –
  • Reset the WiFi at about the same time every day as it’s gone down with cabin fever,
  • Try to get the cat to eat it’s gluten, grain, dairy free food when clearly it just wants to eat all the stuff that gives it diarrhoea,
  • Bake and Fail – that’s a great book title…..
  • Field the same calls, from the same companies offering the same services I don’t want,
  • If and when it rains, try to stop a flood next to the back door. Basically ends up mopping out the pools of water,
  • Paying bills,
  • Trying to chase moths and insects out of the house – the price you pay for living next to a farm,
  • Fight the same fears and demons,
  • Face the same self questioning,
  • Once a week cut the lawn with a lawnmower which basically hates cutting grass,
  • Every second Thursday realise the garden bin is still basically empty so have a mad gardening rush,
  • My dreams are still just dreams, seemingly no nearer becoming reality,
  • Go to bed so hoping for sleep, yet…..

Now don’t get me wrong some of the routine is just so fantastic. I just wouldn’t dream of changing those things. Going out in the garden at about the same time every day and talking with Hawklad. Spending time with him. Thinking of friends. Finding ways to make connections with those who are special to me. Looking at beautiful photos and videos – and smiling. Having fun playing games. Doing a bit of writing or waffling depending on your viewpoint. Saturday night movie night.

So yes it does feel like Groundhog Day. This time it may well keep feeling this way until our personal lockdown has been partially lifted. Maybe this time it’s could be labelled as Cabin Fever. Whatever it is, just like Phil in the movie, it often feels like I am the only one stuck in this repeat cycle. AND let’s not forget a really important factor – some people long for that repetitiveness. Hawklad is one. So maybe Groundhog Day can also be a good thing. Just got to go with the flow, make each day count as best I can and worry about tomorrow if it ever arrives.

Posted on by bereavedandbeingasingleparent · 62 Comments

Snappy

Lockdown did have some advantages. One being – No Aeroplanes. Something about seeing a sky without any evidence of man made birds which are polluting the atmosphere. Now the number of vapour trails are slowly rising but clearly not back to the crowded skies of pre pandemic times. Which is still a bit of a win for the planet. Got to be pleased about that.

I did something that I’m not pleased about. Not at all. I snapped at Hawklad. Not a massive snap, but still a snap. Some post arrived and I quickly put the offending letters into the designated quarantine area. I quickly washed my hands then headed out to cut the grass.

“Dad have you washed your hands.”

“Which towel did you use.”

“Which soap did you use.”

Then…

“I don’t think you washed your hands for long enough. Can you wash them again.”

Maybe I was tired. Maybe it’s because I had gone 16 hours without food. Maybe I just wanted to get the grass cut before it rained. Maybe I was annoyed at myself for not washing my hands for long enough in the first place. Maybe it’s being seemingly stuck in Groundhog Day. For whatever reason, I snapped. Slammed the front door shut, did that teenage sigh, let out a little mild expletive, stomped to the bathroom and purposely washed in the noisiest fashion possible. Not massive stuff but unusual for me. We’ve all been there. Even Super Hero Parents are human…….

I quickly apologised and went outside to cool down. Easily done in today’s Yorkshire weather. All I could think about was school. What happens if he does decide to go back on the 11th September. His hyper hygiene mode will meet a school system which is basically winging it. Maybe they could make Hawklad into the Hygiene Monitor. Wow he would sort out the teachers and pupils. Definitely the iron fist of authority. But in all seriousness, the teachers and other kids will just not have the time or inclination to get anywhere near the hygiene levels that he’s got used to at home. The levels he needs for his own well-being. I can see some of the less patient teachers issuing so many negatives to him. But that was me just a few moments ago.

So more food for thought. As is the fact that in the broken cloudy skies, I can see three vapour trails. That’s the most in months…..

Posted on by bereavedandbeingasingleparent · 62 Comments

With one hand

August 2018

It’s been too long since I stood by the sea. Far too long. For someone born in a small north eastern seaside town, that’s tough. Genuinely don’t know when it will happen again. My gut feel is not in 2020. Our Government of Fools has now start reversing it’s rushed reopening plans. Yesterday it was perfectly safe to visit cinemas without a mask. Today you MUST wear a mask for your favourite movie. Yet kids and teachers are still expected to go mask free in classrooms. Last Friday we were being told to support the holiday industry and travel as it was safe. Just days later that all changed and more countries are being urgently added to the quarantine list with thousands of tourists now already out there. Even though those countries have much lower rates of deaths and infections than the UK.

Tougher lockdown regimes are being reintroduced into some areas with significantly rising infection rates . One such area is uncomfortable close to us. That is doing nothing for Hawklads anxiety levels. And now his garden consultation with his new health worker is in doubt. Such visits are now under review again. Somedays it feels like it’s one step forward and then one back. That’s at a time when his obsessive hand washing and fear of touching surfaces continues to mount.

But there is always hope and is it really one step forward, one step back…

When I first started climbing I hated having to retrace steps. One step forward, one step back seemed such a waste. A failure. Something to be avoided at all costs. But over time I learnt wiser ways. Things like climbing in things like pink compression tops and tight blue leggings is really not cool at all. Things like collecting rain water from rocky pools to drink might be a life saver but it doesn’t taste as nice as a can of coke stuffed into my climbing pack. Things like it’s not a great team building idea to lead a pitch when you have spilt asunder your tight blue leggings. I also learned that retracing steps is often a good thing. The times a few moments of retreat and sideways steps actually leads to a much easier and safe climbing way forward.

So yes things are tough and that garden visit would be useful but…..

The word BUT sounds to negative, maybe however is better.

However we do at least have access to the service still. That’s a huge bonus. The garden visit would bring stress currently, so if it doesn’t happen then it’s one less thing for Hawklad to worry about. It also encourages us both to try new things, see if we can find our own way through this maze. There will be things we haven’t tried. Maybe potential help has been there all the time and we just haven’t looked hard enough for it. Too much relying on someone else to find it for us. Maybe the only solution for Hawklad is to bunker down for a few more months until those clever vaccine people find something that works. So maybe retracing some steps is the best way forward.

There is always hope and yes I still have a pair of tight blue leggings…..

Posted on by bereavedandbeingasingleparent · 89 Comments

Heatwave is here – kinda

Blue skies are coming

I have given the weather a hard time recently. A few too many rainy shots through the window. So let’s correct the balance. This is today through the window.

Summer

Blue skies, very warm but with a Yorkshire twist. Blowing a gale. The perfect weather for standing on flimsy plastic chairs looking like a star from Texas Chainsaw Massacre. Only joking, I suspect my bruised rump would seriously object.

We’ve been doing a little routine which does help Hawklad put things into perspective. It’s so easy for him to get overwhelmed with the negative. I wonder who else that could apply to….. Basically it involves an empty sweet jar and some brightly coloured sweets. Here Skittles or Smarties work well.

Notice I went for the old Rowntree’s version, rather than Nestle. One day will tell you why. Anyway the secret is to pick a colour which is to represent good things and a colour to represent bad things. Then every time something happens Hawklad decides if it is good or bad. He then picks the appropriate colour sweet. The sweet then goes into the jar. Over time it’s an easy way to see what happens more, good or bad stuff. Thankfully for Hawklad it is usually a jar filled largely with good things. That would be mainly a blue colour then – assuming we can get blue sweets. Depending on who you listen to, blue colouring is either dangerous or difficult to source naturally. This little technique has helped Hawklad. Basically it shows him that yes bad stuff happens but actually more good stuff is out there. You also get to eat the sweets after the experiment has finished.

It’s strange that for such a clever little technique that works, I have never tried it on me. Someone who does have to fight negative thoughts. Someone who can see the world in a dark light. So here goes. This weekend this little muppet with his big bruised posterior is going to try this. Let’s see what happens and what it tells me about life.

Take care.

Posted on by bereavedandbeingasingleparent · 78 Comments

Money, money, money

Clearly the blueberry has given up on this Yorkshire Summer and just assumed it’s autumn already.

MONEY. Not listened to that Pink Floyd song in ages.

Get a good job with good pay and you’re okay….

That’s how the song goes. It’s funny that I love Floyd but this is the only song of theirs that I don’t like. The sound of the cash till just annoys me. It’s kinda nice that when I finally got to see them live, I can remember the concert so well yet I can’t remember them playing this song. It’s so good when the mind works like that.

MONEY. Before the world changed in 2016 we were doing alright. Finding a way to maintain two quite well paid jobs while making sure one of us was always there for Hawklad. It wasn’t easy and took a shed load of planning, but we found a way. We had a nice house, two cars (our jobs headed in different directions) and we could afford a trip to Switzerland every year. We tried to save for the future so we didn’t buy much. But it was a comfortable life and we could certainly pay the bills.

Then the world suddenly changed. I’ve just realised how lame that phrase sounds. Took me long enough. Seismic Rupture might be better. Need to think about that…

MONEY. The last thing you should be thinking about after a bereavement is money. But far too often MONEY quickly looms over you when you are at your lowest ebb. Bills still have to be paid. Food has to be bought. The government wants its pound of flesh, death brings the delights of Inheritance Tax. Two incomes suddenly became one. Even that one….. Single parenting, Single Aspergers parenting, Single parenting to a 9 year old who has just lost his mum. My job became impossible to maintain. Suddenly I was scrambling for a part time job which worked round Hawklad. MONEY became a very scarce commodity. Trying to get my head properly round these scary things is the last thing I needed when my world had just been shaken to the ground. Trying to look at a shrinking bank statement is bloody hard when it’s done through crying eyes.

That’s how it’s been with MONEY ever since 2016. I was so lucky to find a job which was flexible enough to fit round the single parenting gig. But I was still trying to pay the bills. Working out which repair jobs would have to be kicked into the future – which is most of them. Only trying to spend on the absolutely essential stuff. Funny thing is how often schooling costs suck up any spare cash. Holidays are just not happening – the last one was back in 2015. When we do have to buy items the first point of call is always the previously enjoyed or damaged sections. Our one extravagance, concerts, are always in the much cheaper – restricted view areas. We never turn down hand me downs. I’m currently looking at an exercise bike which was surplus to someone’s requirements and is held together with copious amounts of electricians tape.

MONEY. How needs it. With hindsight it’s clear that we are so lucky. So many are in a much worse position than we are. I’ve found a job that kinda fits our lifestyle. We have a nice house and garden. Live in a lovely area. Friends are wonderful. Financially it’s challenging but we are just about stable. Money helps but it doesn’t buy you happiness. Thinking of Hawklad, memories and friends – money doesn’t buy you those things.

Posted on by bereavedandbeingasingleparent · 71 Comments

Life snapshot

The Aspergers life can be racked with anxieties and obsessive behaviours. Additionally Aspergers can frequently coexist with OCD. Add the death of a mum and both grannies. Then on top of that you add a pandemic. Something has to give with that kind of pressure building up. That’s what our son is dealing with and it is so very tough for him. What does that mean in practice. Well here is a snapshot of life and the impact it has on him.

Every ache, every sneeze, every spot, every pain is seen as a potential sign of a serious disease or the C word. Anxieties bring on indigestion and constipation. These are then seen by him as more potential warnings of serious, life threatening health conditions. The natural response was to frequently wash his hands. It was both to cleanse his hands but also an attempt to pour water on the raging anxiety wildfire. Washing to the point of red raw skin. These issues have existed for years but slowly during 2019 slow progress started to happen. The hand washing was just about brought under control. Then the pandemic hit. The progress was instantly lost. Suddenly the months of reassuring talk a out avoiding serious illnesses, the bodies capacity to fight back and the advances in medical science are basically blown out of the water. The problems started to mount up again and escalate to new heights.

  • Hand washing every few minutes. From 15 second washing now to washing for minutes at a time.
  • A reluctance to dry washed hands as towels might be a source of germs.
  • Harmful germs are seen to exist everywhere. Suddenly it’s difficult for him to touch taps, toilet handles and door knobs. Sheets of paper have to be left next to these so he can avoid touching them directly. Even pulling on a shirt may result in the potentially unclean sleeves coming into contact with his hands. Shoes have to be put on without using his hands.
  • iPads and joysticks have to be washed frequently and definitely before he touches them. It’s the same for things like pens.
  • When he strokes his pets he will immediately run to wash his hands.
  • He needs to see evidence that I wash my hands before I touch any of his items.
  • Clothes have to be frequently washed often multiple times a day.
  • Outside he is constantly looking out for flies and flying bugs. If they come too close then he will need to go inside to wash.
  • He has to have his own seat and no one is allowed to touch it. If they do then the seat has to be cleaned.
  • When he goes out the the front door then he consciously tries to avoid walking over any areas that the postman or others might have walked across. When he comes back in them his shoes will need to be completely cleaned. If he ventures through the front gate and into the outside world then on his return he will completely strip, shower and change to new clothes. Those rules apply to me as well.
  • Mouth-washing and gargling is frequently repeated during the day.
  • Any item which hits the ground (inside or out) will need to be deep cleaned.
  • Any new food items have to go into the garage and complete a quarantine period if at least three days.

This is daily life in our little home. I do my best to reassure, reason and modify behaviours. But it feels nothing more than trying to plug a leaking dam at present. One hole maybe plugged but in the meantime another two new holes have appeared. Counselling was there but government cutbacks have taken their toll on services. The pandemic has temporarily suspended specialist help. The result is massive backlogs and no access to help. These are tough times. For him and yes me as well. As a parent you feel helpless, definitely so underprepared for these challenges. But we keep going. We pick ourselves up and go again. Yes we will get there. We will. But it will take time. Realistically maybe well into 2021. In practice timescales don’t matter, we take each day as it comes, fortified by the love of friends.