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Back this week!

So much space…..

So all the schools are back this week. With some changes. A bit more of an encouragement to wear masks. All pupils to get a couple of rapid Covid tests per week. A test which gives inaccurate results in potentially 1 out of every 5 tests. But let’s not mention the giant elephant in the rather cramped classroom.

Most children and staff will be returning to classrooms in a country with rapidly emerging virus mutations without mandatory masks, in rooms likely to have really poor ventilation, with pupils definitely and staff probably without the security of a vaccination. And here’s the elephant entering the already cramped room. The PM has been doing repeated photo opportunities in classrooms. In carefully selected modern classrooms containing only a handful of children. Lots of space. But that’s not the reality for most schools. Too many are squeezed into small spaces. Nothing has been done to reduce the high classroom numbers. Not one thing. If Hawklad was returning then it would be to a class size which is between 30 to 32 pupils and 2 members of staff. In a building which is well over 50 years old.

Please tell me how this is a good idea.

Posted on by bereavedandbeingasingleparent · 45 Comments

Autism

It was such a grey day today. Couldn’t find anything to photograph so let’s see what happened a year ago. So back 2020 and guess what was back!!!! After a few really bad storms our lake made a brief appearance.

One of the questions I’ve been asked the most by other parents and a few teachers (but interestingly never by family and friends) is

‘Does Aspergers get better with age?’Even occasionally the question becomes ‘will he grow out of it….”

For every polite question I have trotted out the same answer

The condition will not change but the personality traits may well fluctuate over time. Some traits may become less noticeable while others may become more pronounced.

There is research in this area but I will leave others to discuss that. I will stick to my well trodden line of each child and adult is unique. With Hawklad it is very much on par with my standard answer. Some of the traits have become less apparent as he has got older. Some of his old repetitive behaviours like hand flapping are hardly seen these days. Where’s as some traits like fixation on objects and constant motion have stayed largely the same.

But there are also existing traits which are becoming far more pronounced. Verbal stimming (repetition of words and sounds) has dramatically increased with him. Phobias and social anxieties have increased but how I’m just not sure how much of that is down to the pandemic.

Aspergers is very much who Hawklad is. It’s his personality. It is him. Sadly there is still too often a fundamental misunderstanding of what being on the spectrum actually means. Not enough understanding of what it is to be Autistic. We have such a long way to go as a society.

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Frustrating

The sun goes down on another school at home day. It was one of those days where it feels like for every step forward we took two giant steps back. Such hard work.the really frustrating thing is that it wasn’t the actual learning which was the issue today. No the frustrations came from repeated system crashes, missing content, confusing instructions, formatting disasters and online tests that will only work with exactly the right spelling and format.

We can make home schooling so much easier for the pupils than this…

So with the frustrations still ringing in my head another school communication arrived. All about the required Covid testing to support the schools reopening next week. Each family will be required to self test families using the rapid result kits TWICE a week. On top of that all pupils will be tested with the same kits once a week in school.

My one question is that if our schools are completely safe and not hubs for virus transfer (according to our PM) – why is this level of testing required…..

The school letter also apologised to parents for the confusing over masks in the classroom. A few days ago the PM told schools that masks had to be worn in the classroom. Our school wrote to parents to inform them of the new rule. Unfortunately the rule has now changed again. The PM has now said they are only recommended and school can’t enforce them.

More frustrations……

Posted on by bereavedandbeingasingleparent · 60 Comments

Out of focus

Spring is coming.

Have you ever tried to take a simple photo of a bush. A bush in Yorkshire. That’s Yorkshire where the sun might be out but it’s blowing an absolute howler of a Gale. The perfect weather for out of focus photography.

Out of focus.

To be fair that’s been me since 2016. Better recently but still not completely focused.

So many reasons for that but one thing stands out. Let’s go back to the summer of 2016. I’ve driven my partner into hospital for a short stay so they can conduct some exploratory tests. Our son in the back seat. What did we talk about. Can’t remember. I’ve tried but can’t remember. Probably talked about visiting and picking her up again on Friday. Probably about some jobs to be done. Maybe some shopping…..

When I returned on the evening she was sleeping so we never spoke.

I returned the next day. She wasn’t feeling too good and was having tests so I didn’t see her.

Friday I turned up and was taken to a separate room by the Doctor. Her condition had worsened overnight. The test results were appalling. She had at most a few weeks. She was drifting in and out of consciousness. If she woke then she would probably not be aware of who was around her.

That was it. No more conversations. We never discussed the new reality. The grim new future. The plans we had were in tatters. No new joint plans. As a result I’ve felt out of focus. Hesitant about my intentions. Trying to think about what we might have talked about and agreed if we had one more conversation. Guessing what she would have wanted. Trying to make decisions for the both of us.

It’s only recently that I’ve started to go fully with my views. Can I ever be certain what she would have wanted. It’s hard enough to work out what I’m thinking some days. So yes still probably out of focus but now it’s just through my eyes.

Posted on by bereavedandbeingasingleparent · 61 Comments

Mist

I don’t know why but as soon as I saw our morning sky I immediately thought of two opposing medieval armies preparing for battle. Just waiting for the mist to lift before they crash into each other.

Our area has had so many bloody battles dating back to Viking times. Who is to say that these very fields have not witnessed that grim sight.

Today’s grim sight was restricted to this unshaven, unkempt Bloke with zero fashion sense leaning against the fence. Coffee cup in hand, exposing his partly covered hairy legs to potentially the ghosts of the past. I guess in years gone by I would have opted for the kilt look. Need to get the air onto those ‘airy knees.

Mist is an apt way of describing my current thinking this morning. After a year of lockdown (now just two weeks short of that anniversary), I still can’t see the way forward. No nearer establishing when (or if) Hawklad will feel able to return to the outside world. Is it school or permanent homeschooling. Will my job survive. When will be our next holiday or excursion. Are my dreams on hold or permanently cancelled. Will I ever get to where my heart desperately wants to go. Is that it for concerts or football for us. When will we see friends and family. Is that it for hugs. Is the world still out there. Has anyone even noticed that we aren’t part of the crowds anymore.

A pandemic year and I still can’t answer those questions.

Mind and hope mist.

That is not a great feel.

Posted on by bereavedandbeingasingleparent · 60 Comments

Weather

It’s horrid weather today so let’s go back a few weeks. That’s better.

I heard someone from the Government brush off a parent talking about her daughters genuine fears and phobias about returning to school. Her daughter doesn’t think her classroom and school is safe enough. From the sound of it her daughter is in a similar place to Hawklad. Really struggling. The interviewer cut off the parent saying that she was in the minority and the vast majority would see things much more positively. The message from the Government followed instantly. People and kids who had concerns and fears needed to listen to the majority. Schools are completely safe, just get on with it. Parents have an obligation to send their children into schools when they open.

Meanwhile back here the NHS Psychologist is just at the early stages of a treatment programme to try and help with Hawklad’s deep seated anxieties. No guarantee that the programme will ever work. This week’s task is for Hawklad to try and stand in the front garden for 1 minute. The message is don’t worry if you can’t do that. Even a few seconds will be a massive leap of faith. And if he can’t do it at all then we can try another week. Pushing people with significant fears and ingrained anxieties can do so much harm to their long term mental health.

The Government and the ‘Majority’ are not trained mental health practitioners. They have absolutely no idea what some people are going through. On this issue they can stand out in the rain and whistle for all I care.

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It’s a plan

So the Government has set out the way forward. A roadmap. Starting with all schools opening on the 8th March with parents able to play golf or tennis is socially distanced way as soon as the school buses have left the street. Ending with getting the bunting out just before summer with every adult having been offered at least one shot of vaccine and virtually all restrictions lifted. That’s the plan.

This time they have introduced some gaps between the various stages to check on the impact. It’s an improvement on the first lockdown release. Not great but an improvement on the last shambles.

I’m already hearing people talk about booking summer holidays, binning the masks, going to nightclubs. The message is ‘soon it will be over, we will have won….’.

Sadly I’m not convinced yet….

  • Schools are being fully reopened against the advice of many of the Government’s own scientific advisers. Reopened with no meaningful additional safety measures put in place.
  • No plans to prioritise front line groups like teachers or police for vaccines. Apparently this will just complicate things.
  • No thought given to the Health and Care sectors that have been stretched to breaking point for a year now. They can’t keep functioning like this.
  • No plans for under 18 vaccines at all as schools are ‘perfectly safe’ and the kids can develop herd immunity without getting too sick. Yet no mention of the increasing number of under 18s suffering long covid symptoms. No mention of school outbreaks that are already happening even with 3/4 quarter empty schools. No mention of overcrowded classrooms with no ventilation. No mention of the scores of children going down with associated diseases which have been brought on as a result of a seemingly mild Covid bout. No investment in home schooling resources to take pressure off classrooms and create another avenue for education – just threats of fines for parents.
  • The plans assume that the vaccine is the way out of the crisis. No mention of virus related mutations becoming resistant to the vaccine. A real risk when you have high infection rates and delayed second shot vaccine delivery. The vaccine is good but it’s not 100% effective. Plus we just don’t know how long the protection will last for in individuals.
  • The plan is in tatters if a change in the virus makes current vaccines less effective. In that increasingly like scenario the vaccine programme has to completely reset and start again.
  • No thought on making changes to how we work, study and play to make them safer going forward. We seem to be happy going back to the status quo which so spectacularly failed only a year ago.
  • The plan assumes an acceptable level of Covid infections and casualties. This is not a zero virus plan.
  • No mention of the mental health crisis facing young and old in this country.
  • The Virus will still be here…..

So no I’m not planning for a pandemic free future just yet. I hope we are fortunate and the plan does work. But when do things ever go to Plan.

Posted on by bereavedandbeingasingleparent · 58 Comments

Let’s be honest

Could I argue that this was a Golden Eagle catching fish over a mountain lined lake. I could but others might have a different view. If we don’t listen then we often get the wrong answer….

I was listening to a member of the Government being interviewed about schools on the BBC. The interviewer listened politely to the answers agreeing with everything that was said. Never asking for the evidence or questioning the view. All very friendly and very smily. Then a scientist was interviewed with a differing view. The interview was very different. The scientist was constantly interrupted, never allowed to answer fully. Often basically accused of being biased. Part of the problem. A very hostile interview.

That’s the problem we are not allowed to have a balanced open discussion anymore. It’s very much you are with us or against us. It’s not just Covid, it’s everything. I heard a leading Government MP say that any Firm that doesn’t support Brexit fully would be penalised.

So where are we with schools. They largely remain shut until the 8th March. Next week our so called Leader will tell us the plan. There seems to be a media blitz telling parents that schools are perfectly safe. Children have to be in schools as no other options exist. Nothing to worry about. The only change needed is to get pupils to wear a mask in a few more shared areas but definitely not in classrooms. Parents will be issued with Covid test kits so they can test their family regularly. The evidence from Europe and here shows that schools don’t spread the pandemic at all. Children are getting infected only in households. Infection rates are falling. More people have been vaccinated. Doubting parents will be subjected to a Advertisement campaign to reassure them. Those still doubting will be warned about fines and penalties to if they fail to send their children back.

That’s one view….

There are other views.

  • Respect individual children views. Some will be keen to return others will not feel safe. It’s a personal judgement about risk.
  • People are being vaccinated but most only with one of the two required shots. This runs the risk of reduced effectiveness and virus resistant mutations.
  • The vaccine varies on how much protection it provides to individuals, how long it is before the protection starts to tail off and how effective it is at stopping people spreading the virus.
  • There are NO plans to vaccinate children. The Government believes they are a key way to develop herd immunity. A strategy which has little expert support.
  • Comparing UK schools with many of the European ones misses a key point. UK classrooms are much more overcrowded with less opportunities for social distancing than European ones.
  • Infection rates are falling but still are higher than under the first wave. The death rate is still daily well over 500 a day. So falling YES but no where near under control.
  • The number of virus mutations being detected are rising rapidly.
  • The virus is now spreading fastest amongst the young and under 18 age groups.
  • Even with a lockdown and with schools only accepting a small number of pupils (essential worker children), Public Health England are still reporting that about 100 schools a week are still encountering pandemic outbreaks.
  • Our Leader only a few weeks ago called schools completely safe and told parents to send their children into school. 8 hours later he was saying schools were Vectors for Transmission and had to be closed. Make your mind up….
  • Children are getting serious long term Covid. They are being hospitalised.
  • Children are being admitted to hospital with associated serious diseases which are linked to an initial mild Covid infection.
  • The quick self administered tests which are going to be used are not particularly accurate or reliable. Only really effective as a guide not a determinate.
  • Many scientists and experts are arguing for caution on school reopenings. For the foreseeable future they are arguing for investment in homeschooling to allow for more classroom space. This would also allow time for schools to implement change to permanently move away from overcrowded learning environments.

Different views but we are only supposed to hear one. Just maybe the best way going forward is to be open with what we know and what we don’t know. Let individual schools work with the local health services, parents and pupils. Develop local solutions that work the local circumstances. Give them the support to make long term changes. Provide an enhanced national home schooling resource pool. Then trust parents and children to make the right call for them. Surely that’s a better route out of this mess.

Posted on by bereavedandbeingasingleparent · 86 Comments

Meaning behind the door

My partner loved the Moors. She was always happy there. When our own family lockdown ends it will be one of the first places we visit again. It was one the first places visited after she had left us. It did take quite a while but we made it.

Is it really 4 and half years.

I have often talked about a vivid image that really helped me over that time. My grief felt like I was stood next to a closed door. A door that had suddenly locked shut and would never open again. I could see what’s behind the door. Memories. I can’t change or add to them. Just look at them.

So I had a choice. To stand by that locked door or take a leap of faith. Set off into the dark and see if I could find some new doors. Doors that are open allowing new memory experiences. I could either can actor or just a memory viewer.

I have mostly set off in search of new doors. Mostly…..

This door image has worked for me but I never fully understood its meaning. I always had a feeling that there was to it than life needs living. Why did it help with my grief. Why did it make me feel more at ease with myself.

I’m currently reading The Book of Joy by the Dalai Lama and Archbishop Desmond Tutu. Suddenly the penny dropped.

In the book they talk about grief and dealing with suffering. They made a simple point that really struck home. Grief can either help lift a person up or drag them down. The secret is the focus. If you focus on the person you have lost, what they believed in, what they hoped for, their dreams THEN grief can have a positive side. It demonstrates LOVE. It can motivate you to live. ‘A determination to fulfil their wishes’. But if you focus on yourself then grief can bring you down. Focusing on things like how can I cope, how can I manage as a single parent, how bad will my life become. Those thoughts are negative and run the risk of dragging a person down.

Suddenly my image has meaning to me. Remaining stood by that locked door was not about my partner. It was about me. I was doing what I thought I needed to do. My partner had hopes and dreams that would not be nurtured by me remaining by that door. To keep those hopes and dreams alive, I HAD TO MOVE. Searching for new doors is best for my partners legacy, it’s best for our son, and yes it’s best for me. The end result is much more likely to be positive and uplifting.

It’s taken me over 4 years to suss that out. I actually don’t feel to bad about that. It took the great minds of the Dalai Lama and Desmond Tutu to work it out for me. That’s not a bad couple of minds to defer to.

We can do this. It will take time but WE can do this.

Posted on by bereavedandbeingasingleparent · 50 Comments

Shrinkage

The snow has gone. The temporary lake is starting to shrink. Signs that Spring is on its way.

Another work call confirming that the work plans involving me are as empty as the tyres on my bike which hasn’t been used since 2019. Thats completely airless. Not going to loose any sleep over that. No point. Maybe next year. A quick scan of the new job situation indicates a job market that is as fiat as my last loaf of bread which actually reduced in size when it should have risen. It really is just a case of battening down the hatches until things pick up again.

In our case that is not a band thing.

Hawklads fears are still there. If anything a bit worse. Absolutely zero chance of him being able to cope in the outside world any time soon. Getting through the front door is too much at present for him. Even me venturing out into the front garden really spooked him. So that’s stopped. The Front Door has not been unlocked in days. Once a day I sneak out the back gate and feed the birds, check on the rust bucket car, put the rubbish into the bin and pick up any deliveries that are sat on the front step.

Our world has shrunk further. The house and the back garden now is all that’s left. So no work allows me the time to focus on Hawklad. Try to give him the support he needs. Try to give him a reasonable quality of life and as much fun as can be found.

Hopefully Spring will arrive and the garden will become more enticing. It will be nice to sit outside with a coffee without 25 layers on. But I will miss our lake…. miss the world.