Posted on by bereavedandbeingasingleparent · 36 Comments

Time to breathe

Maybe too many days we feel hemmed in. Surrounded by the same walls. Dealing with unyielding constraints. Fighting seemingly never ending battles. Difficulty trying to believe in dreams. Struggling to breathe.

Well that’s certainly me…..

The days of climbing rock faces in Scotland and the Lake District. Walking and running along wind swept beaches. Standing under the mighty Eiger and Matterhorn. Walking and touching history. These all sometimes seem such a distant memory. Things which might never happen again.

But there is always hope. Who knows what tomorrow will bring. Yes it could be those four walls again but it could just be somewhere else. Somewhere we can breathe. A chance to spread our wings and soar again. That’s a lovely feeling. So I dived into my photo library and randomly picked a journey. A time when the wings were unfolded. Yes that is in the past BUT it could also be tomorrow.

Posted on by bereavedandbeingasingleparent · 66 Comments

Reality

Late last night I was watching the news channel and a government expert was being interviewed about people struggling to leave the house since lockdown was eased. We will ignore the fact that the easing has been halted and areas are starting to fall back under emergency regulations. The experts take was that it was perfectly safe for everyone to go about their normal business. People should get out, go to the park or better to a restaurant. Those struggling should be brave and get out. Those still struggling to get out should arrange to see a health professional. This Government had put in support to facilitate this.

Ok…..

We’ve been lucky. We might get to see a nurse this month but we’ve had to fight tooth and nail for that. Because of cutbacks son has not been seen by a Paediatrician in well over 2 years now… 6 of his 7 support services have been removed. But again we are lucky. Far too many don’t get any support at all.

It’s 3am and I heard our son call. He had gone to the bathroom and because he had gone barefoot he desperately needed to wash his feet. So just before the morning bird chorus started I was running the bath so he could ease his anxieties. He is currently not able to touch taps. Towels can only be used once before they are washed. His bedding has to be washed daily. He has to wash his hands every few minutes. He can’t even touch is own shoes and clothes with his hands. Tell me how he is supposed to be brave and just get outside. The government just has not got the slightest idea of the problems facing so many in our communities. The health professionals just don’t have the resources to cope. It’s taken a pandemic to expose the true folly of focusing cutbacks on mental health and support services. When will our leaders wake up to the reality of life for so many households in our countries.

Posted on by bereavedandbeingasingleparent · 73 Comments

Groundhog Day

One of Hawklads favourite movies is Groundhog Day. Must admit a I’ve always liked that film. I’m showing my 1000 year plus age now by saying FILM. Anyway I liked that Bill Murray film because it was funny and a bit about redemption. Repeatedly through life I’ve had that Groundhog Day feeling. It’s so hard to put down on paper. That feeling that on this long journey, the circumstances and challenges remain unchanged. Never ending. What ever I do, they just seem to repeat. Slowly it’s starts to eat away at my inner self. Plays havoc with my emotions. My inner belief ebbs away. That’s when it feels like I need another caring hand to lead me into a new tomorrow. So yes I get this movie.

Hopefully I’m not as bad as Phil was at the start of the film – sorry movie. But again it is starting to feel like days are starting to repeat themselves. Even when I try to introduce something new, try just that little harder, then the next day starts very like the previous day. Stuff just keeps repeating itself.

  • A largely sleepless night,
  • Get up and do the same exercises in the garden,
  • Try to get the dog to go outside for his charge around and do his morning constitutional,
  • Check the news – these days it’s always the same headline and the same frustrations,
  • Sticking to the same fasting diet regime,
  • Cooking the same meals for Hawklad (he has the same 7 day food menu which he sticks to),
  • Sort out the mess the pets have made,
  • Hoover and clean the same rooms (we only have 5 small ones, a bathroom and a kitchen to worry about),
  • Try to get the old washing machine door to lock so I can do a wash,
  • Have the same thoughts about been able to run free beyond our garden fence enclosures, *** don’t get me wrong I am so thankful for the garden, so many wonderful people don’t have that***
  • Look at the same walls, with the same pictures, often feeling like they are closing in on me,
  • Spend far too long moaning about the weather,
  • Check the work system and email the same people, saying basically the same thing,
  • Wash up the same plates and cups,
  • Make a list of today’s challenges and they are the same as yesterday’s, the week before, last months…..
  • Jump on the scales and whisper PANTS,
  • Want to eat healthily but having to rely on Soya (Soy). Then watching my body just basically say NO,
  • Try to find my keys which are missing again,
  • Walk 40 yards to the post box to post a letter – my big trip out of the day,
  • Start the car up to make sure the battery doesn’t go flat,
  • The things that brought pain and doubt yesterday are still here today,
  • Check the bank account and whisper BIG PANTS,
  • Talk to Hawklad about hand washing every time he goes to the bathroom – which is about every 10 minutes,
  • Wash my hands constantly to help ease Hawklad’s fears,
  • Unblock the toilet and kitchen sink once a day, the builder who installed those was clearly having a laugh –
  • Reset the WiFi at about the same time every day as it’s gone down with cabin fever,
  • Try to get the cat to eat it’s gluten, grain, dairy free food when clearly it just wants to eat all the stuff that gives it diarrhoea,
  • Bake and Fail – that’s a great book title…..
  • Field the same calls, from the same companies offering the same services I don’t want,
  • If and when it rains, try to stop a flood next to the back door. Basically ends up mopping out the pools of water,
  • Paying bills,
  • Trying to chase moths and insects out of the house – the price you pay for living next to a farm,
  • Fight the same fears and demons,
  • Face the same self questioning,
  • Once a week cut the lawn with a lawnmower which basically hates cutting grass,
  • Every second Thursday realise the garden bin is still basically empty so have a mad gardening rush,
  • My dreams are still just dreams, seemingly no nearer becoming reality,
  • Go to bed so hoping for sleep, yet…..

Now don’t get me wrong some of the routine is just so fantastic. I just wouldn’t dream of changing those things. Going out in the garden at about the same time every day and talking with Hawklad. Spending time with him. Thinking of friends. Finding ways to make connections with those who are special to me. Looking at beautiful photos and videos – and smiling. Having fun playing games. Doing a bit of writing or waffling depending on your viewpoint. Saturday night movie night.

So yes it does feel like Groundhog Day. This time it may well keep feeling this way until our personal lockdown has been partially lifted. Maybe this time it’s could be labelled as Cabin Fever. Whatever it is, just like Phil in the movie, it often feels like I am the only one stuck in this repeat cycle. AND let’s not forget a really important factor – some people long for that repetitiveness. Hawklad is one. So maybe Groundhog Day can also be a good thing. Just got to go with the flow, make each day count as best I can and worry about tomorrow if it ever arrives.

Posted on by bereavedandbeingasingleparent · 74 Comments

Kinda

One of those weather days. Kinda sunny, kinda cloudy, kinda windy, kinda warm, kinda chilly, kinda dry and kinda wet. I guess it’s a kinda Yorkshire day. Rather excitingly I walked to that Tree today and back. Keep it quiet, Hawklad doesn’t know. He was too busy watching a Sherlock episode. It was funny as I had just finished my fitness programme for the morning. Definitely slightly out of breath. Probably not the best time to try and sing The Hills are Alive with the Sound of Music. Probably better trying to sing in the more deeper tones of four fine Yorkshire born Rock front men, Joe Cocker, Paul Rodgers (Free, Bad Company), David Coverdale (Deep Purple, Whitesnake) or Joe Elliot (Def Leppard). Better off probably dressing like them as well, rather than Julie Andrews. That would kinda make more sense.

I’ve now got this bizarre thought in my head. Monty Python skipping over that hill, signing that song about The Alps, all in a deep Yorkshire accent while wearing wellies and a knitted handkerchiefs on their heads. That’s kinda disturbing.

Changing the subject rapidly. I was doing today’s workout outside in the garden when that Tree caught my eye. I thought about it being months since I ventured there. I decided it was kinda time to revisit there. Sit a few minutes under the branches. Well I did. That’s where I noticed that I was slightly out of breath. But I kinda have an excuse. It was straight after my workout. A slightly longer one.

I have this silly little ritual. Every year I add on one more minute to my exercise sessions. The thinking is that yes that’s one year older but my body is coping with one more minute of workout than it did last year – so I must still be improving. Rather than getting older I’m getting fitter. Kinda getting better, still improving. Well that’s the thinking anyway….. Kinda makes sense to me.

Posted on by bereavedandbeingasingleparent · 71 Comments

Life snapshot

The Aspergers life can be racked with anxieties and obsessive behaviours. Additionally Aspergers can frequently coexist with OCD. Add the death of a mum and both grannies. Then on top of that you add a pandemic. Something has to give with that kind of pressure building up. That’s what our son is dealing with and it is so very tough for him. What does that mean in practice. Well here is a snapshot of life and the impact it has on him.

Every ache, every sneeze, every spot, every pain is seen as a potential sign of a serious disease or the C word. Anxieties bring on indigestion and constipation. These are then seen by him as more potential warnings of serious, life threatening health conditions. The natural response was to frequently wash his hands. It was both to cleanse his hands but also an attempt to pour water on the raging anxiety wildfire. Washing to the point of red raw skin. These issues have existed for years but slowly during 2019 slow progress started to happen. The hand washing was just about brought under control. Then the pandemic hit. The progress was instantly lost. Suddenly the months of reassuring talk a out avoiding serious illnesses, the bodies capacity to fight back and the advances in medical science are basically blown out of the water. The problems started to mount up again and escalate to new heights.

  • Hand washing every few minutes. From 15 second washing now to washing for minutes at a time.
  • A reluctance to dry washed hands as towels might be a source of germs.
  • Harmful germs are seen to exist everywhere. Suddenly it’s difficult for him to touch taps, toilet handles and door knobs. Sheets of paper have to be left next to these so he can avoid touching them directly. Even pulling on a shirt may result in the potentially unclean sleeves coming into contact with his hands. Shoes have to be put on without using his hands.
  • iPads and joysticks have to be washed frequently and definitely before he touches them. It’s the same for things like pens.
  • When he strokes his pets he will immediately run to wash his hands.
  • He needs to see evidence that I wash my hands before I touch any of his items.
  • Clothes have to be frequently washed often multiple times a day.
  • Outside he is constantly looking out for flies and flying bugs. If they come too close then he will need to go inside to wash.
  • He has to have his own seat and no one is allowed to touch it. If they do then the seat has to be cleaned.
  • When he goes out the the front door then he consciously tries to avoid walking over any areas that the postman or others might have walked across. When he comes back in them his shoes will need to be completely cleaned. If he ventures through the front gate and into the outside world then on his return he will completely strip, shower and change to new clothes. Those rules apply to me as well.
  • Mouth-washing and gargling is frequently repeated during the day.
  • Any item which hits the ground (inside or out) will need to be deep cleaned.
  • Any new food items have to go into the garage and complete a quarantine period if at least three days.

This is daily life in our little home. I do my best to reassure, reason and modify behaviours. But it feels nothing more than trying to plug a leaking dam at present. One hole maybe plugged but in the meantime another two new holes have appeared. Counselling was there but government cutbacks have taken their toll on services. The pandemic has temporarily suspended specialist help. The result is massive backlogs and no access to help. These are tough times. For him and yes me as well. As a parent you feel helpless, definitely so underprepared for these challenges. But we keep going. We pick ourselves up and go again. Yes we will get there. We will. But it will take time. Realistically maybe well into 2021. In practice timescales don’t matter, we take each day as it comes, fortified by the love of friends.

Posted on by bereavedandbeingasingleparent · 86 Comments

Really

There was a time when you could put some faith in the UK Government doing the right thing and providing a modicum of truth…….

So the Government are instructing parents to send their kids back to school after the summer holidays. The clear message is that it is perfectly safe. No need to worry. In fact no need for schools to observe most of the current pandemic and social distancing regulations. Those things just complicate the return process. Parents who fail to comply will be fined.

On the other hand….

A number of areas are reporting spikes in Corona Virus cases particularly amongst the younger age groups. The Director of Public Health from Liverpool issued the following warning – “this is a really dangerous moment for case numbers and we need people not to let their guard down.”

When the Prime Minister’s Chief Advisor broke lockdown rules he was defended by our so called leader. Johnson said the following “he behaved responsibly and with integrity and followed the instincts of every father.”

I will happily see you in court Boris….

Posted on by bereavedandbeingasingleparent · 65 Comments

Hunting

Everyday a large bird of prey has decided to spend some of its hunting time in the field next to us. A free nature cinematic thrill ride. Now if it would just come a little closer and not fly so fast then I might get some closer shots.

Hawklad (son) is so happy that this can now be seen from the safety of his garden. This is such a bonus. With it looking like a few more months of isolation we look to nature to bring the world to us. With patience it never lets us down.

Posted on by bereavedandbeingasingleparent · 51 Comments

Service

Maybe I can call our little part of the world a Rose Garden. Makes a change from Jungle or Weedville.

Well so far we have survived the boiler service. The chap turned up and to be fair to him, he did use a mask and gloves. He did confirm that it wasn’t me being a muppet. It had fuel. It was turned ON. He explained that it was the oldest boiler he had seen in ages. Possibly over 40 years old. It’s poor motor had finally died. Unbelievably he found a replacement motor in the van that just about fitted. So with a hefty bill winging my way he departed. Apparently after all those years it is still working at 90% efficiency. Wish I was that good at 40.

The thought of an outsider entering the house sent son into an anxiety meltdown. Unplanned visitors is not easy at the best of times for someone with Aspergers. But during a pandemic…..

To try and keep a lid on his anxiety we agreed a decontamination protocol. Thankfully this was carried out to the letter.

  • The service person wore masks and gloves,
  • He only entered the house via the back door,
  • He only ventured into one room,
  • After he finished I quickly disinfected the room and the door he used,
  • That room and that side of the house was then closed off for 3 days,
  • As was the path which the serviceman walked across,
  • I than had a shower and completely changed clothes.

It might seem OTT but to our son this was the bare minimum which was acceptable to him. His way of protecting his safe place. He will be much less stressed out when that part of the house comes out of lockdown. Later we had a chat about all things pandemic and his anxieties. Clearly we won’t be dropping our local procedures for a considerable time. Putting aside the merits of homeschooling debate, I just can’t see how he cope function in a public environment any time soon. Certainly not in a crowded school at the start of September. Thankfully the concerts we were due to see have been cancelled. (The Who, Whitesnake, Foreigner, Europe, Aerosmith, Hollywood Vampires). We are down to just two in October now. Deep Purple and Ozzy. But I just can’t see them happening as well.

So maybe we start to adopt a mindset that actually our enforced house and garden lockdown will last into 2021. Will need to think about that. What additional things do we have to put in place to ensure that we both can continue to enjoy life for all those months. Maybe that industrial sized ice cream and slush puppy machine is not such a far fetched idea……

Posted on by bereavedandbeingasingleparent · 99 Comments

Not had a rant for days…..

I came outside to look at the roses. And breathe..

The UK Government has a natural ability to take the breathe away. What are the words I am looking for

Self-serving

Incompetence

Charlatan

Criminally negligent

Fraud

Part timers

Out of their depth

Nest of vipers

Dangerous

Liars

Elitist

One rule for the many, doesn’t apply to them

When you think it can’t get any worse and then they take it a new level……

So on the 4th July Britain is open for business again. Something we all can sign up to if it’s done properly and safely. But this is Boris Johnson we are talking about. The laziest and most inept Prime Minister in over 150 years. So here are just a few nuggets of his so called plan

  • The governments own scientists have warned against easing restrictions too soon. If we do the safe way is to do that carefully and in small stages. The PM has said oh tish to that. British wartime spirit apparently is all we need to follow. It clearly does help a leaders senses when he has rich backers and views the world through the bottom of an empty champagne glass….
  • For months we have been told that masks are a waste of time and that we should be keeping at least 2 metres apart. Suddenly 1m is cool as long as your wear those marvellous masks (but only if you really want to).
  • Since March we have been told that the key to beating this virus is the Tracking and Tracing App. Rather than go with the Google and Apple one we decided to give a contract to friends of the Government. This world class app was promised to go live in April, then May, then June. Then suddenly it’s dropped because it didn’t work (not the Government’s fault of course, it was all down to those pesky people at Apple). Now it won’t be ready until the winter but it’s ok as it was never a priority – everyone must have repeatedly misheard the PM and the Health Secretary …..
  • This scene according to the PM is perfectly safe, carries no pandemic risk and so can happen freely (this was our nearest beach yesterday) …..
  • However this scene is not allowed, carries huge pandemic risks and deemed unsafe….
  • People are not allowed to attend live theatre due to the risks yet our PM is delighted to allow pubs to open. The PM clearly trusts Joe Bloggs and his drunken mates to act responsibly and stay 1m apart at all times (wearing a mask) after 10 pints of strong lager.

But no they haven’t finished yet. Apparently schools will reopen fully in September. The plan is to ditch all social distancing rules for children. All we need to do is to tell the kids not to sneeze on others. Squeeze them back into cramped classrooms and act as if nothing has changed. Just in case each class should try not to spend too much time with other classes. Really. It’s ok for the Government as they send their kids to private schools where class sizes are less than 15, here social distancing can still happen. But not for the state schools with class sizes of over 30. In fact the PM has dropped rules so that the class sizes can go much higher than 30. If teachers become sick then you can just have supersized classes.

Well they can just sod off. They are no Government of mine. Time to bunker down.

So back to the roses and breathe.

Posted on by bereavedandbeingasingleparent · 81 Comments

Another day

Another hot one. One more day then proper weather sweeps back in.

Maybe it’s the heat. Maybe it’s overthinking. Maybe it’s these crazy times. Maybe it’s lack of sleep. Maybe it’s feeling just a little bit alone in this fight. Maybe it’s just one of those days. But today has been on off day. A down day. A misfiring day. A depressed day. I get these days. Not as many as I used to but it doesn’t really help when they strike. These days it definitely feels like good weeks and bad days. So it’s a bit of a surprise when the bad days sneak up on you. All the more frustrating because there is not a definite cause. No warning. Just wake up feeling this way.

A day when

  • The mojo has gone on holiday.
  • Life feels hard and unremittingly uphill.
  • Just feeling yucky.
  • Everything is an effort.
  • The daily workout was completed but never got out of 1st gear.
  • You just want to sit and slouch.
  • That smile is an effort.
  • Routine things become annoying.
  • Those various body injuries just hurt that little bit more.
  • An old photo which made you smile yesterday today brings a tear.
  • That inner demon is just a bit stronger today. The negative voice is just that bit louder.
  • Definitely a little snappy and quick tempered.

Basically low and deflated. It will pass but until it does then it’s no fun. I was going to swear but I won’t. Let’s get through the day and see what tomorrow brings. If it’s the same feeling then maybe a bit of shock therapy is required. I think I will ask son to fill a huge bucket with cold water then fill it with ice cubes and whatever else he fancies. Then he can dump it over me. It worked last time I was like this, maybe it will work again. Only one way to find out….