Blinded by the light

Blinded by the light.

Ok which version is better Bruce Springsteen or Manfred Mann…..

The home at school project is rapidly feeling like it’s blinded by something. More lessons with no support or materials provided. More time spent trying to find any educational resources hidden on the confusing school system. Far fewer teachers making contact and trying to explain work requirements. When class materials are sent they are often only arriving at the end of lessons or hours late. Hardly any work feedback being sent back. Very few teachers checking in on Hawklad to see if it’s going ok.

Contacting school occasionally improves things for a lesson or two then things fall back again.

With national lockdowns, local school closures and family lockdowns its been over a year since Hawklads last in school classroom day. Maybe school have decided enough is enough. Falling in line with Government thinking. So with an imminent school return looking most unlikely, the educational future is so unclear. Blinded by something……

Mad

Blueberries just starting to develop.

It’s a mad world. A mad Britain.

So there are growing concerns over the use of the lateral flow rapid Covid tests. The Government has been pushing them in schools, forcing children to take them several times a week. The results available within minutes deemed perfectly robust as a basis of reopening schools. They worked so well that they were made available for free to everyone. I was sent 7 tests this week.

Then we here the the Governments own experts are questioning the accuracy of these quick results. They are potentially too unreliable to use on there own. Should be only used as a guide, a gateway to the more robust tests.

Then on Friday the Government talked about the frustration with testing. It’s keeping too many children and more importantly workers at home. To many false positives. Far too unreliable.

And today the Government announced that it will sanction a large scale indoor test event. A music concert with no social distancing and no masks. That’s 5000 people being used as guinea pigs. Anyone going would have to have a rapid Covid test the same day as the concert. Then the will have to be tested a few days afterwards…..

Can we make our mind up…..

Are we really happy to allow 5000 people to crowd together indoors as a number of troubling mutations are starting to take hold….

Are we happy that the only check is the unreliable test….

Are we happy that potentially clinically vulnerable and unvaccinated people and children are being used as test subjects…..

I remember the Government saying opening up for Christmas was perfectly safe. Just go and look at the death spike that caused. Do we remember just days before the first lockdown and the Government saying that it was safe to hold the countries largest horse racing festival. Studies have shown the large number of unnecessary deaths that lead to…..

Blue sky or not blue sky

Sunshine, blue sky, dark cloud, storm clouds, dry, rain, snow, bright, dark.

That Yorkshire sky really sums up perfectly my mood levels since lockdown started. It’s a bit of everything really. Swinging from smiles to tear. Feeling full of the joys of spring to darkest winter coldness. Optimistic then pessimistic. Feeling contented then feeling boxed in. Calm then anxious. At ease with the world then frustrated.

Emotional never ending tides.

Yesterday I was fighting the tears. Life seemed bleak and so restrictive. Definitely feeling cut adrift, isolated and alone.

Yet today I can’t stop smiling. Ok life feels constrained but it also feels good. Filled with HOPE and WONDERFUL thoughts. Most definitely not feeling alone rather feeling part of a BEAUTIFUL world.

Ask me yesterday and I would say what am I doing. Today it’s WE can do this.

I’m the same person, I’ve not moved, I’ve not won the money lottery. No person or no asset has entered my world. So why the swing in mood. Could it be that we are permanently riding those emotional waves. Swings in outlook are to be expected. Good moments, bad moments. Maybe the secret is to look at each day. What are the things that weigh me down and try to do something about those. Then most importantly work out what are the things that lift me up so much. If you can identify those things (maybe it’s just one important thing) then keep trying to move towards those wonderful things in life.

Yes WE can do this.

Walk

So each night Hawklad tries to walk a few more yards. To extend is external walk. To slowly start to build bridges again. Last night he bailed out early as he saw people in the distance. But it is progress. It’s a start. At some stage he will be ready to even face people again. But in his own time. Whether that happens before he leaves school, who knows.

I do worry that too many countries are just thinking vaccines. No other permanent changes required. The vaccine will beat the pandemic and return us to that wonderful former world….

But surely with a mutating virus which is still spreading and still so endemic, all a vaccine does is buy us time. It gives us a chance to make changes. To find ways to live safely. To get support out to the people who need it. To increasingly try to make it harder for the virus to spread and thus mutate.

But here’s the thing. The vaccine doesn’t really help with the growing tide of mental health issues facing our society. Speaking with the team trying to support Hawklad. They are being swamped by rising child mental health problems (and the identified problems are just scratching the surface of the real volume of problems out there). Plus was the old world that perfect. Even before a pandemic there was a mental health crisis.

Society and Governments need to quickly wake up to this. There are somethings a vaccine can’t fix for them…..

Perspective

Proper Easter weather…..

Nothing like a Yorkshire Spring. As the say round here. This kind of weather puts hairs on your back….

It definitely puts several jumpers over your back.

But here’s the thing. It might seem cold in Yorkshire but is it really. In Nunavut it is -34 today. That’s proper cold.

Perspective is required.

It’s the same with my life. Sometimes it might seem tough. Not much support. Single parenting is hard. Tired. Isolated. Few too many lows. Loss.

But in reality it’s a GOOD life. I don’t need much support. I get some sleep. Single parenting means more quality time my son. I have wonderful friends. There have been many HIGHS. Still much to gain.

Perspective is always required.

Time

Finding time to live.

I think as you get older you start to realise the true value of time. We don’t have a finite amount of time to do the things we want to in life. In 2016 that point was brought into the starkest focus for me. Time can suddenly run out…..

So when the penny starts to drop the question then becomes Do you then do anything about it.

We all need to find time to really live.

I remember taking a job on the south coast of England. In Portsmouth. I was there for 6 months. It’s such a cool town, with much to see and do. It was new to me. In those 6 months I spent one afternoon wandering along the beach and looking at the naval history. That was it. The rest of the time I worked and basically just existed. Don’t get me wrong I had the opportunities to do much more with my time but I didn’t. Not much living went on there. Was I happy – certainly NOT.

Things are different now. Life has become a little too out of synch. Much feels out of my control. Beyond reach. Opportunities are not so apparent. But that fact doesn’t stop time slipping by.

Still need to find ways to live. Seize whatever opportunities that do present themselves.

We can do this. We can do some of that living.

Autism

It’s Autism Awareness week. It does feel like it should be Autism Awareness Week every week, every year until we finally start to make some real progress. Let’s not kid ourselves as we have are only just starting down that road.

This years theme is centred around inequalities. Inequalities that have become even more stark and exposed during the pandemic.

I tell you what is unequal. Bridge building. It’s always up to the autistic person to try and build those bridges. Our society, our institutions and too many of our communities are not interested. They see Autism through inaccurate stereotypes. Something to be ignored or brushed under the carpet. We’ve all experienced that approach. Individuality is frowned upon. People need to be forced into set moulds and templates.

Yesterday I was listening to the words of a really wonderful, unique and brilliant teenager. He was talking about his struggle with autism. His daily fight with inequalities and ignorance. Why was it so hard for people to understand. He was saying that every day he heard so many false stereotypes. But in fact he had a sense of humour, he liked having fun, he liked having friends, he had feelings, he cared. He was as valid as an individual as anyone else.

That lad wasn’t different he was UNIQUE. We all should be. It’s a better world for that.

We all should be welcomed and supported.

Needs must

Taking just a few moments to breathe. To enjoy what is close by. The beauty in life. The simple things.

A report on the news was talking about the UK Covid vaccine strategy. Currently no plans to extend shots to the under 18s. A child vaccine might be licensed after Autumn in some other countries. Again there are no plans to roll that out in the UK.

Ok so unless there is a real shift in the trajectory of the virus then we are on effective lockdown for the rest of the year.

That makes seeking out those moments to breathe even more important. If that means getting on my hands and knees, then so be it. Needs must.

Pain

I couldn’t sleep last night. Maybe two hours max. Event after I abandoned and a few minutes later I had a chamomile tea in hand and was channel hoping. I stumbled across some really cheesy B-movie. Then one of the actresses delivered this line

The hardest thing for me after my husband died was having to be nice to my family.”

Wow. That must have been some family. But it got me thinking. What was the hardest thing about losing my partner back in 2016. Strangely worrying about being nice to my family didn’t feature. The Worst Thing Thoughts that did pop into my head were.

Telling a young son his mum had died

Empty beds

Feeling utterly alone

The dark thoughts

Losing all my dreams

Getting up in the morning and facing the world

That final goodbye at the funeral

Trying to sort through my partners clothes and favourite possessions

Hearing her favourite song on the radio

The deathly silence in the house when our son was at school or asleep

Those were the emotions that I went through in the immediate aftermath. But then something else kicked in a few months later. As I started to clear my head this thought kept dominating my thought. Going forward – “I didn’t want to feel this pain of loss again“. The pain was too much for me. I needed to stop myself from getting close to people again. The feeling of isolation that came from thinking that was utterly soul destroying.

So there you go. I’m disagreeing with a cheesy B-movie, but every loss is different. So family pains can be just as intense as the many I went through. The B-movie did pass some time. It ALSO was so boring that I nodded off. Nodded off still holding my mug of tea. Yep I ended up wearing most of that. Thankfully only lukewarm. Yes piping hot tea would have been a pain I could definitely do without.

Terminator

Kinda feels like the type of sky you get just before it all goes horribly wrong in a Terminator movie. This time no coming storm. Just me in the kitchen making a curry. Actually very similar when you think about it. Especially if you have ever seen or unfortunately tasted one of my Saag Aloo horrors.

As I watched that cloud formation role through my thoughts had moved from terrible cooking to more important stuff. Doesn’t that cloud look like a polar bear lying flat out on its tummy. Well it did to me….

We spent an hour or so playing the cloud spotting game today. Fantastic free garden entertainment, the kinda stuff you need during a prolonged lockdown. While we were cloud spotting I kept hearing a nagging voice in my head. We could be so easily playing this in a years time. It’s not unreasonable to assume that Hawklads anxieties and phobias will still be here in a years time. If so then our lockdown will still be in place in March 2022. That would make it TWO years. TWO years. Maybe that is what the clouds are telling me. There is a storm coming. A long protracted one.