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Time

Finding time to live.

I think as you get older you start to realise the true value of time. We don’t have a finite amount of time to do the things we want to in life. In 2016 that point was brought into the starkest focus for me. Time can suddenly run out…..

So when the penny starts to drop the question then becomes Do you then do anything about it.

We all need to find time to really live.

I remember taking a job on the south coast of England. In Portsmouth. I was there for 6 months. It’s such a cool town, with much to see and do. It was new to me. In those 6 months I spent one afternoon wandering along the beach and looking at the naval history. That was it. The rest of the time I worked and basically just existed. Don’t get me wrong I had the opportunities to do much more with my time but I didn’t. Not much living went on there. Was I happy – certainly NOT.

Things are different now. Life has become a little too out of synch. Much feels out of my control. Beyond reach. Opportunities are not so apparent. But that fact doesn’t stop time slipping by.

Still need to find ways to live. Seize whatever opportunities that do present themselves.

We can do this. We can do some of that living.

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Trying

Sunny but cold. Cold we are used to, sunny feels like a pleasant change.

Spot the photobombing bug.

How can hand stands be so difficult. I have been trying to do one in decades. As apparently I’m hundreds of years old well then that’s a lot of decades of failure. Today joined the long line of those. But what chance do I have. I can’t even balance on one leg (somedays two legs is even beyond me). I tried the old wall trick again. Slowly raise myself against a wall. Let the wall provide balance. All goes swimmingly. Well for about second. Then the gravitational pull on my excessively large bum takes over and I hit the ground. Somedays my backside feels like a villain in the Marvel movies. It is inevitable….

But I keep trying.

One day just maybe.

There is always hope.

I remember back in 2016 and thinking I’m never going to be able to do this single parenting gig. I’m going to collapse. And yes I have repeatedly fallen over. Can’t blame my inevitable rear ended for most of those….. But I’m kinda still here. Still trying. Still doing that parenting gig. You never know I might actually get it right one day. There is always hope.

Now let’s have one more go at a handstand.

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Autism

It’s Autism Awareness week. It does feel like it should be Autism Awareness Week every week, every year until we finally start to make some real progress. Let’s not kid ourselves as we have are only just starting down that road.

This years theme is centred around inequalities. Inequalities that have become even more stark and exposed during the pandemic.

I tell you what is unequal. Bridge building. It’s always up to the autistic person to try and build those bridges. Our society, our institutions and too many of our communities are not interested. They see Autism through inaccurate stereotypes. Something to be ignored or brushed under the carpet. We’ve all experienced that approach. Individuality is frowned upon. People need to be forced into set moulds and templates.

Yesterday I was listening to the words of a really wonderful, unique and brilliant teenager. He was talking about his struggle with autism. His daily fight with inequalities and ignorance. Why was it so hard for people to understand. He was saying that every day he heard so many false stereotypes. But in fact he had a sense of humour, he liked having fun, he liked having friends, he had feelings, he cared. He was as valid as an individual as anyone else.

That lad wasn’t different he was UNIQUE. We all should be. It’s a better world for that.

We all should be welcomed and supported.

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Back then

Hawklad is a cheeky one. Every time we watch something on TV that refers to a historical incident he always asks ‘you were there Dad so what was it really like….”. Last night he said it when the programme mention the American Civil War. What was it like Dad….

Every so often he catches me off guard with a different line of attack.

“Dad has your musical tastes changed with age. What are your favourite 5 bands now…”

Ok that would be

Whitesnake

Pink Floyd

Shinedown

Iron maiden

Blue Oyster Cult.

“Ok Dad what were your 5 favourite bands when you were young…”

I think they were

Whitesnake

Blue Oyster Cult

Iron Maiden

Black Sabbath

Scorpions

So they hadn’t changed too much.

“Was that pre CD times Dad”

Yes it was, not invented yet.

“Not much point inventing CDs back then when you were a kid as they hadn’t discovered electricity yet. Are you sure it wasn’t Beethoven you were listening to back in the medieval times.”

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White rabbits

A cold, wind swept day. Definitely two jumper weather.

So it’s not quite sunbathing weather here. We did sit outside for a while. That’s with winter coats on while holding hot water bottles.

While outside we talked. Well when I say talked it was more about trying to reassure Hawklad. He was worried, really worried. April 1st and he had forgotten to say ‘white rabbits’. In Britain and also I believe in North America there is a tradition that saying ‘white rabbits’ as the first words of the new month brings good luck. Pilots had a similar superstition during the last war. Saying that phrase as the first words of each day apparently helped provide protection during the daily upcoming flying endeavours.

Hawklad has been doing the ‘white rabbits’ thing for a while now. I think he picked it up from me one time. I’m a bit annoyed with myself as I try to avoid Hawklad seeing me with any superstitions . Well this month he forgot. I would never give it a second thought but Hawklad was spooked. He takes things very literally. That can be a common personality trait with people with Aspergers. So I tried to reassure him but rather unsuccessfully. I will keep working on that. But it’s so difficult for him. More things to worry about. Life is so complicated…..

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Avengers

A day outside in the – wait for it – warm Yorkshire sunshine……

An afternoon of outdoor table tennis. An afternoon of losing my pride. It’s never been my sport. One of the few sports I can’t pick up.

“Dad Table Tennis is a MARVELlous sport. You do know the sport should be played like a game of chess. Carefully moving your opening around the table until an opening appears. That’s the idea. Your approach Dad is basically the Avengers Strategy. HULK SMASH…”

No need to mess about with the delicate strategy. Why waste time when with one massive swing of the bat you can immediately move to the ENDGAME

“But Dad you are supposed to play with VISION.

Ok I’m out now, you win the pun war. Pick up your crisp packet. If you do then you can be scaAVENGERS hero.

“I never THORt of that one Dad. Best keep the envIRON MANaged. I wonder if anyone else would understand these puns other THAN US.”

*********

Lets not forget the stereotype. Asperger Kids don’t have a sense of humour and can’t have fun ……….

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Needs must

Taking just a few moments to breathe. To enjoy what is close by. The beauty in life. The simple things.

A report on the news was talking about the UK Covid vaccine strategy. Currently no plans to extend shots to the under 18s. A child vaccine might be licensed after Autumn in some other countries. Again there are no plans to roll that out in the UK.

Ok so unless there is a real shift in the trajectory of the virus then we are on effective lockdown for the rest of the year.

That makes seeking out those moments to breathe even more important. If that means getting on my hands and knees, then so be it. Needs must.

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Vegetate

I’ve been trying to practice yoga and tai chi for months now. I diligently watch and follow the videos. All the really glossy and professional videos. I was trying again this morning. Following the instructor through her perfect routine. Even her dog sits beside her perfectly. Never moving. In the background the gentle sound of peaceful music. Perfect.

Meanwhile in deepest Yorkshire.

A muppet is seamlessly moving from one body creak to the next groan. Losing balance and crashing into furniture. Constantly fearing my pants are going to split under the galactic pressure being exerted on them. Every time I hit the ground a mad dog instantly leaps on me and I replay the Bill Murray Ghostbusters scene – I’VE BEEN SLIMED. And no gentle sound of peaceful music here. Rather the sound of derision and laughter….

“What on earth are you doing Dad”

“If this was on TV it would be banned”

“You look a right sight”

“Funnier than a Will Ferrell movie”

“Say that again Dad. Golden Rooster. More like drunken Pigeon”

“Are you supposed to be balancing on one leg or head butting the wall”

“My Dad has turned into Homer Simpson”

“Please never do this when any of my friends visit”

“Your just embarrassing yourself now”

Technically speaking this probably means that I still have a long way to go on my spiritual exercise journey. Or more likely …. time to get the mega pack of biscuits out and vegetate.

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Terminator

Kinda feels like the type of sky you get just before it all goes horribly wrong in a Terminator movie. This time no coming storm. Just me in the kitchen making a curry. Actually very similar when you think about it. Especially if you have ever seen or unfortunately tasted one of my Saag Aloo horrors.

As I watched that cloud formation role through my thoughts had moved from terrible cooking to more important stuff. Doesn’t that cloud look like a polar bear lying flat out on its tummy. Well it did to me….

We spent an hour or so playing the cloud spotting game today. Fantastic free garden entertainment, the kinda stuff you need during a prolonged lockdown. While we were cloud spotting I kept hearing a nagging voice in my head. We could be so easily playing this in a years time. It’s not unreasonable to assume that Hawklads anxieties and phobias will still be here in a years time. If so then our lockdown will still be in place in March 2022. That would make it TWO years. TWO years. Maybe that is what the clouds are telling me. There is a storm coming. A long protracted one.

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Schools Out

Schools Out, Schools Out for Easter.

The last day of term was marked with another school letter. Another positive pupil case with 45 other pupils in isolation for 10 days. Across the country infection rates amongst the 5 to 14 age group are rising since schools returned. On Monday some of the country’s lockdown rules are eased.

Well at least everyone is still wearing masks…..

On the way back from the vaccination centre yesterday I stopped off for petrol. Straw pole. Me and the person behind the till had masks fully on. One lady appeared to have a mask but she was carrying it in her hand. Another guy had a mask hanging loosely around his neck. Everyone else, no mask.

Lockdowns Out, Lockdowns Out for Easter

So the two week break has started. Started with sitting out in the baking sun. Talking with Hawklad on what he would like to do over the next few days. First ice creams of the break. Sat outside in the freezing wind.

Wooly Jumpers Out, Wooly Jumpers Out for Easter.