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Red

A trip out to the village post box feels like a real adventure. The stuff you can find even on a two minute walk. Definitely saviour those moments.

Today provided a longer trip out. This time a trip pharmacy to pick up a prescription. It felt odd driving in the local town. Actually it just felt odd driving. I admit that I needed to work out which of the 3 peddles was the clutch – how bad is that. Clearly cars are more than just point and go. In the town definitely more signs of the impact of the pandemic. Some places have closed down. Controlled entry queues outside the stores. 2m spacing tape on the pavements. Definitely more masks on view. In the pharmacy Perspex screens and staff dressed like they are about to perform surgery on the customers. Missing items on the prescription, some medicines are just not available. Sign of the times.

School emailed all the parents to let them know that the school has had its first confirmed coronavirus case. It’s stays open and carries on. Will be such a worry for everyone there. Sadly it won’t be the last one. It certainly doesn’t do anything to change the narrative for our son. He’s schooling at home. He’s schooling at home for the foreseeable future.

We carry on.

Posted on by bereavedandbeingasingleparent · 81 Comments

Insignificant

It’s a big sky. Its easy to feel very small and insignificant stood under it.

There are so many times when parenting is the best gig on the planet. Then there are other times…

I was trying to convince our son that he had washed his hands enough. He had been at the soap and water for nearly five minutes. Everything I said didn’t seem to have any impact. Finally he decided that was enough. He asked if the towel was clean and had it been washed that day. I assured him that was the case. He left the bathroom and I looked at his hands. His very red and sore skin. That’s what happens when you wash as often as he does. We are using skin friendly soap. I water it down further. But his hands are still red. I encourage him to use his skin care lotion. But his hands are still sore.

These are the times I feel inadequate as a parent. Missing the support of another person. Someone to share the load. Definitely running out of things to try. Actually ran out of things to try. His health professionals try to help but they see this intrinsically linked to the pandemic. Get the pandemic under control and we can start to bring his hand washing under control – hopefully. But that doesn’t make me feel any better as a parent. Feels like I had one job and I dropped the ball on it.

So I’m stood under that big sky. Feeling insignificant. Time to breathe. Reset and go again. Yes significant but definitely not beaten yet.

Posted on by bereavedandbeingasingleparent · 81 Comments

It has started

I love the Autumn colours. The hot chocolate. The coming prospect of winter sports on the telly. An excuse to snuggle into warm, thick jumpers (sweaters). The dark skies filled with stars.

Some things I don’t like so much.

The dark days. The sense of isolation. The sense of foreboding. The rain. The mind numbingly cold wind. The rain seeping through the back door.

AND the leaves. Thousands of fallen leaves. For some reason our garden is seemingly the final destination for all the trees in the area. Today I looked at the neighbouring gardens, at most a couple of lonely leaves – all missing their buddies. Well I can tell them where they are. In my garden….

So it has started. Going to get a lot worse, well in our garden anyway…..

L

Posted on by bereavedandbeingasingleparent · 88 Comments

Is the world crumbling

An apple crumble. One of my apple crumbles. Actually not a bad one at all. Very tasty.

Unfortunately not all crumbles are the same. Certainly not mine. Like the one I made a couple of nights back. All seemed on track. Apples picked from the tree. Apples cored, peeled and cut into pieces. Placed in a bowl and seasoned – generous helpings of sugar added – these are sour apples. Then a fine gluten free crumble was made and applied lovingly to the pie dish. The crumble was cooked at the right temperature and for the right time. A beautiful custard was prepared. Just perfect. What could possibly go wrong.

“Dad I can’t taste any apples. In fact I can’t find any apples in my portion!”

Nonsense must be there Hawklad. Your just imagining that……

Oh hang on I can’t find any apples in my portion as well, just crumble and custard….

**** So I went into the kitchen and there on the table was the unused bowl of apples. I had made Apple Crumble Surprise. The surprise being that it contained no apples. ****

Posted on by bereavedandbeingasingleparent · 45 Comments

A window

A brief window to step outside and breath. Otherwise it’s been horrible. Many of the places around us have closed due to bad weather. Must admit education feels that way a bit currently.

UK School doesn’t really work for those with additional educational needs. The traditional classroom setup brings much stress. School at home brings a little respite.

So that’s two weeks ticked off from the next stage of the school at home approach.

I was asked why I didn’t call it homeschooling. Basically we are still trying to follow what the school is teaching. Not setting our own learning agenda. Having to do this just in case our son decides to return to school when he is able to. So it’s not the freedom of homeschooling, it’s basically school but at home.

So in two weeks we have kind of found a way of trying to keep up with the class. Covering the same subjects. In some lessons we are getting all of the material which is being used in class. In some we are getting some of the material and we are trying to fill in the gaps as best we can. In a few subjects we are basically getting nothing so we are just winging those – maybe we are following the class, maybe we are heading in completely the wrong direction.

He is getting virtually no pastoral care from school. Absolutely zero feedback on work submitted, not sure some of the teachers are even reading it yet. A couple of the teachers do occasionally send a message asking if he is ok with the work set. That’s it really. On a Thursday all the pupils have to select an option for an additional lesson. It’s supposed to cover non curriculum activities. It’s about learning new skills and building confidence. It could be a gaming option, archeology, performing arts, sports, astronomy. He hasn’t been included in this programme – says it all really.

In my mind I have already settled on the best way forward. It’s for our son to leave school and opt for full on homeschooling. But it’s his call. It’s his future. So when the time is right then he can make a decision. But I have to say school are not bending over backwards to sell themselves.

L

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Family History

I was checking my phone for a photo for the blog and I came across this one. Yes Hawklad has been playing Pokémon Go again. Either that or my last selfie was a bit of a shocker.

I am listening to a cheery Pearl Jam cd and thinking about family history. For a lesson today he is trying to list some of his family tree. It’s easy with my partner as we can go back at least 300 years. Lots of documented history. Long line of Quaker and Liberal Political tradition. An MP. With mine it’s more patchy. Yes we can go back to someone born in 1805 but there are lots of blanks. Someone who refereed a big national football semifinal. Someone who walked on the Jarrow Poverty March. A female relative who went to be an exotic dancer in London at the turn of the last century. Someone who was gassed in World War One and survived. An uncle of mine who was a pilot during the Korean War. My Dad who fell in love with Iceland while serving during World War Two. But that’s about it. So many gaps.

So as Hawklad thinks about being partly English, Welsh, Scottish and German (maybe even more diverse), I have a new project. Time to try and fill in some of these family gaps. I owe that to my son.

It’s so important that we keep our own history alive because it forms a narrative to how we are.

Posted on by bereavedandbeingasingleparent · 69 Comments

Grouse

Most definitely not like this today. The strange yellow thing in the sky has most definitely gone on holiday. Hopefully not a long one.

Currently I am looking out of window into the rainy garden and thinking. I’m guessing this home at school project has many months to run. As a single parent it’s trying to get my head round the logistics of that. At present there is not much work and what work there is can be done at home. Shopping can be done through a combination of home delivery and very quick trips to the small local store. But what happens if I need to make a longer trip out. Hawklad is not comfortable at all being left alone.

The options are limited at the best of times and these are not the best of times.

Normally our options would be one of two sisters (but one-off those is 2 hours drive away, and both don’t drive) and a couple of local parents who have known Hawklad since the age of 5 (they are busy so are not often available). Unfortunately under the new Government Lockdown rules all four options are now banned. Breaking those would leave us open to heavy fines. The Government has even encouraged people to contact the police if neighbours flout the rules. The irony here is not lost, flouting rules if you are a member of the government or the dad of the PM is said to be entirely reasonable. Under the new rules our only option would be for a grandparent to stand in. Unfortunately ours have all left this world. But here’s another irony, those grandparents would fall into high risk groups. Those who should be shielding. Are grandparents seen as expendable….

The other irony is that those who would be an option before they were banned fall into much lower risk groups. They can’t babysit for us but I could go to work with them and sit alongside them in an office – that’s apparently fine. We could even put on green camouflage and go grouse hunting together without any punishment. Maybe that’s the childcare answer, we set up a grouse hunting lodge in the garden. The first ever vegetarian one….

Posted on by bereavedandbeingasingleparent · 93 Comments

It’s wet

It’s definitely wet today. Pouring down and very cold. All rather depressing so let’s take the time to look at a bit of nature’s colour.

Do you ever have those conversations. Those conversations where the words seem to head in one direction but actual the conversation clearly ends up in a totally different place. Ever so frustrating.

I’ve spoken to school about Hawklads enforced school at home project. I thought I had explained to school that although it’s kind of working it was far from ideal. In particular

  • He is getting absolutely zero feedback. He is submitting work but getting nothing back. The other kids are clearly getting marks and comments back. That’s clear from some of the teacher comments on the set work tasks. But those comments are always aimed at other pupils. If he doesn’t get feedback then what is the point.
  • Have the teachers forgotten that he is dyslexic. Comments like ‘if I don’t get round to sending you tasks for the lesson then just read a book on the subject’ don’t really help….
  • Have the teachers forgotten that he has difficulty in hand drawing. He struggles with fine motor skills. I can’t believe the number of times the set task is to hand draw something – unbelievably that is currently not Art.
  • Some of the subject teachers are still completely forgetting about Hawklad. No subject material at all has been made available.

Anyway the school seemed very supportive, so surely job done. Clearly not as the school responded with an email basically saying that they were happy that things where going so well. They will keep going with the current approach and they hoped that we would keep in touch…..

Sounds like it’s time for me to most definitely stay in touch with them right now.

Posted on by bereavedandbeingasingleparent · 57 Comments

Tomatoes

Sometimes it’s the little things….

I’ve just started my fifth year on my grief journey. A journey I would must definitely would rather had not started but now I’m on it, well I might as well make the best of it. And that’s what I am trying to do. For several years it was a nightmare. Just awful. But over time things have slowly moved on. Now it’s definitely good weeks and bad days.

I still get so many reminders of the process I am going through. Many of those are repeated experiences but every so often I still find new reminders.

I was checking the garden for things I could harvest for tonight’s meal and I came across these small tomatoes. Then a thought struck me. There was a time when this was not something I would do. Yes I would grow the tomato plants but that was it. My partner loved tomatoes. She would go out every day I see what could be picked and eaten right there and then. Those days have gone and now the ripe fruit sits and waits for me. That thought made me sad. But life has to go on. Hawklad would like a few fresh tomatoes on his plate. He currently doesn’t feel comfortable touching items outside so it’s down to me. Life goes on. Pick some tomatoes, think of my partner then it’s time to get on with living. Time to focus on the here and now. Find happiness in the world around me. It is most definitely there.

Posted on by bereavedandbeingasingleparent · 58 Comments

Odd sandwiches

The one thing that you get used to as an Aspergers parent is routine. Lots of routine. That’s tough for parents like me as I am not really a routine person. I’m a bit more impromptu. Bit more going with the flow, see what happens person. Maybe some would call it winging it. Which is most odd. On most of the old Aspergers tests I would score very highly yet on one I was way down. Routine.

On this Hawklad is completely different to me. He needs his routine, his order, his plans. He needs to have that safety net and he needs to follow them. It’s reflected in so many things. If we are driving somewhere then we need to follow the usual route, even if that means a much longer journey. He likes to wear the same types of clothing – if he grows out of them then we need to replace with almost exact copies. He has a TV and movie schedule which he sets way in advance. We will often watch the same movie over and over again. School lessons have to follow the timetable without variation. We need to buy the same types of pens and pencils. He likes to go out in the garden and talk at the same times. He doesn’t like me to do things like change my hairstyle or try new clothes. It’s funny I’ve been wanting to shave my hair off for years but that’s just not allowed.

Break the routine and he is immediately hit with waves of self doubt and fear. Over the years we have tried to work on this. Slowly trying to introduce change. Occasionally trying to introduce unplanned but definitely fun routine changes. But it’s never really worked. Routine is just a key part of who Hawklad is.

Another area of much needed repetition is food. He has the same seven day food menu. The same foods on the same days, year after year. Trying new foods is just not something he does really. Normally ends in failure.

“Dad what on Earth is that.”

It’s a sandwich.

“Yes I can see the bread but it’s what is between that which is the worry.”

That will be cheese and onion crisps. It’s going to be one of the great gourmet experiences. A crisp butty. A crisp sandwich.

“Really. That is just wrong on so many levels.”

It’s fantastic. Go on try it. It’s a family tradition. Your Little Nan would always be treating herself with one. But her crisp butty would be made with Ready Salted crisps.

“Just No Dad.”

Ok. But if it’s not a crisp butty then what about a chip butty. A sandwich made from fried chips (fries) with heaps of tomato ketchup. Another true taste sensation.

“Erm NO. You can keep that as well.”

Ok Hawklad what about a fish finger sandwich. Fantastic.

“Not happening. That’s a tradition which is not passing down the gene line anymore. It ends with you.”