Witches

Good to see I’m bringing our son up correctly. He learning the important stuff. The stuff which he will need going forward.

English set some homework to be done overnight. Read an article on a specific subject and answer questions. The class is currently analysing Macbeth. So the article was all about King James I and witchcraft.

Oh that’s fine Dad, don’t need to look at the article. I can answer any question on that subject….”

Really Son. The questions are quite random. They are about witches and folklore.

No problem at all Dad. I can do that…”

Ok without reading why was Macbeth shorter than other plays

James I was well known to become restless sitting through long plays”

Ok how many people were killed in Scotland during the witch trials.

Somewhere between 1400 and 1800″

What event convinced James I to act on witches

A bad storm almost killed Anne of Denmark at sea”

How do you know that… what was his first act against witchcraft after that event.

Easy he ordered the biggest ever witch hunt and witch trials around Berwick.”

Unbelievable.

James I wrote a book on witchcraft. He clearly had issues with witches. He passed the Witchcraft Act which made the first offence for any suspected witch behaviour a hanging and burning offence. Before that you only got executed if murder was involved

I think I need a coffee. That’s my level. I can’t even find my glasses most days….

Challenging

So my first Covid vaccination is in two weeks. The second is at the end of April. There are still no plans to offer vaccines to children. So in effect it does really change our situation going forward.

As of tonight the full online school system will be turned off again. Hawklad goes back to trying to keep up with his classmates with whatever we can get our hands on. How well that works depends largely on the teachers and teacher assistants. Dependent on them finding the time to send class materials and work. Since September it kind of just about worked. Better in some classes than others.

I’m not entirely hopeful this time around. The teachers and assistants have to be involved in supervising the pupils doing Covid self tests. For a school with 900 pupils to do that twice a week is a massive task. Support for Hawklad is likely to be very limited going forward.

It’s going to be a challenging period for everyone going forward.

Biathlon

I’ve always loved winter sports. Definitely my favourites are biathlon, ski jumping, skiing and ski cross. One of my dreams is to see it in person one day. Still waiting….. November to March is great as I get to binge watch it on TV. But when March comes it’s always quite sad as soon the season will be over. No winter sports for 7 months.

That thought has been praying on my mind. 7 months is a long time. What to do.

I’ve looked for some Winter Sports DVDs and Books but there isn’t much about. So I have a stock pile of 3 books and one dvd documentary. Plus one game on the Xbox. The probability of our family lockdown continuing through those 7 months is really high. With no trips out. No runs. Just feels like I need more this year to keep me going.

“Dad what are you doing?”

I’m trying to see if I can do GARDEN biathlon.

Really. It looks like you have gone mad…”

No there is method to my madness. I’ve dug out my two old walking poles. So to pretend I’m Nordic skiing I’m going to use the poles to walk round and round the garden. About 30 times round the garden is about 1km.

Ok how long is a biathlon thing then”

Going to start small first. The Spring is 10km with two shoots. So I would do 100 laps of the garden between shoots.

I think I can see what’s coming next but ok, why have you got my Nerf Gun.”

Well after 100 laps of the garden my pulse will be racing just like a Biathlete. So I will need to control my breathing and steady myself for the shoot. Ok I don’t have a rifle and five circular targets. So I’m putting some tins on the fence and I’m going to try and knock them over with your foam Nerf bullets. For every miss I will have to do a penalty loop or in my case 5 garden loops. The first shoot will be prone and the second will be standing.

OMG Dad. You have cracked.”

So from April one of my daily workouts every week will be my Biathlon competition.

“You have lost the plot”

Most probably Son, most most probably. But just be thankful I’m not trying to recreate Ski Jumping. πŸ˜‚πŸ˜‚πŸ˜‚πŸ€£πŸ€£πŸ€£

Whip

The sun almost shines down on a Monday morning. So the schools are now open again.

A real media blitz is underway telling parents just how safe things are and also reminding them of the fines that can be given out for keeping children off school. The Education Secretary is talking about change. Changes he thinks are necessary. Ways to extend the school day so children learn more. Changes to the school year drastically cutting back on school holidays. Finding ways to get pupils to keep studying during weekends and those reduced holidays. Changes he thinks are long overdue.

Strangely no mention of changes to make schools better places to learn and have fun. No mention of changes to the Government’s dogmatic national curriculum. No mention of investment in home schooling. No mention of changes to the funding cuts the Government has made to child mental health services. No mention of more input from pupils, teachers and parents in shaping a better future. The only change required is clearly to make children work longer.

But what do we expect from a politician who is supposed to be in charge or our schooling system and who makes a point of having a horse whip on the front of his desk. Photo from The Guardian

The future

The National Autistic Society has carried out research on the reality of adults living with autism spectrum disorders. It’s a sobering read.

I just want to highlight some specific lines in the report.

49% of adults with autism or Asperger syndrome are still living at home with their parents. 65% of these adults have had no community care assess- ments and are therefore unlikely to be known to the statutory agencies who should be supporting them.

31% of adults at the lower end of the autism spectrum are still being cared for at home, despite their high level needs. 45% of parents believed their son or daughter required 24-hour care, and only 15% thought they could live in sheltered or shared accommodation.

Only 3% of adults at the higher end of the autism spectrum are living fully independently, and a further 8% are living independently with some regular professional or family support.

As the report points out Families are picking up the care responsibilities in the UK associated with autism. Repeated Government’s have buried their heads in the sand. The current government unbelievably has probably set the bar even lower.

Like many families around the UK (and worldwide) my thoughts are increasingly focusing on the future. What will happen to Hawklad as an adult in our society which is so badly setup for those on the spectrum. Let’s just say that its currently not an entirely reassuring feeling I have. Yes I’m worried.

Autism

It was such a grey day today. Couldn’t find anything to photograph so let’s see what happened a year ago. So back 2020 and guess what was back!!!! After a few really bad storms our lake made a brief appearance.

One of the questions I’ve been asked the most by other parents and a few teachers (but interestingly never by family and friends) is

‘Does Aspergers get better with age?’Even occasionally the question becomes will he grow out of it….”

For every polite question I have trotted out the same answer

The condition will not change but the personality traits may well fluctuate over time. Some traits may become less noticeable while others may become more pronounced.

There is research in this area but I will leave others to discuss that. I will stick to my well trodden line of each child and adult is unique. With Hawklad it is very much on par with my standard answer. Some of the traits have become less apparent as he has got older. Some of his old repetitive behaviours like hand flapping are hardly seen these days. Where’s as some traits like fixation on objects and constant motion have stayed largely the same.

But there are also existing traits which are becoming far more pronounced. Verbal stimming (repetition of words and sounds) has dramatically increased with him. Phobias and social anxieties have increased but how I’m just not sure how much of that is down to the pandemic.

Aspergers is very much who Hawklad is. It’s his personality. It is him. Sadly there is still too often a fundamental misunderstanding of what being on the spectrum actually means. Not enough understanding of what it is to be Autistic. We have such a long way to go as a society.

Frustrating

The sun goes down on another school at home day. It was one of those days where it feels like for every step forward we took two giant steps back. Such hard work.the really frustrating thing is that it wasn’t the actual learning which was the issue today. No the frustrations came from repeated system crashes, missing content, confusing instructions, formatting disasters and online tests that will only work with exactly the right spelling and format.

We can make home schooling so much easier for the pupils than this…

So with the frustrations still ringing in my head another school communication arrived. All about the required Covid testing to support the schools reopening next week. Each family will be required to self test families using the rapid result kits TWICE a week. On top of that all pupils will be tested with the same kits once a week in school.

My one question is that if our schools are completely safe and not hubs for virus transfer (according to our PM) – why is this level of testing required…..

The school letter also apologised to parents for the confusing over masks in the classroom. A few days ago the PM told schools that masks had to be worn in the classroom. Our school wrote to parents to inform them of the new rule. Unfortunately the rule has now changed again. The PM has now said they are only recommended and school can’t enforce them.

More frustrations……

Mist

I don’t know why but as soon as I saw our morning sky I immediately thought of two opposing medieval armies preparing for battle. Just waiting for the mist to lift before they crash into each other.

Our area has had so many bloody battles dating back to Viking times. Who is to say that these very fields have not witnessed that grim sight.

Today’s grim sight was restricted to this unshaven, unkempt Bloke with zero fashion sense leaning against the fence. Coffee cup in hand, exposing his partly covered hairy legs to potentially the ghosts of the past. I guess in years gone by I would have opted for the kilt look. Need to get the air onto those ‘airy knees.

Mist is an apt way of describing my current thinking this morning. After a year of lockdown (now just two weeks short of that anniversary), I still can’t see the way forward. No nearer establishing when (or if) Hawklad will feel able to return to the outside world. Is it school or permanent homeschooling. Will my job survive. When will be our next holiday or excursion. Are my dreams on hold or permanently cancelled. Will I ever get to where my heart desperately wants to go. Is that it for concerts or football for us. When will we see friends and family. Is that it for hugs. Is the world still out there. Has anyone even noticed that we aren’t part of the crowds anymore.

A pandemic year and I still can’t answer those questions.

Mind and hope mist.

That is not a great feel.

Weather

It’s horrid weather today so let’s go back a few weeks. That’s better.

I heard someone from the Government brush off a parent talking about her daughters genuine fears and phobias about returning to school. Her daughter doesn’t think her classroom and school is safe enough. From the sound of it her daughter is in a similar place to Hawklad. Really struggling. The interviewer cut off the parent saying that she was in the minority and the vast majority would see things much more positively. The message from the Government followed instantly. People and kids who had concerns and fears needed to listen to the majority. Schools are completely safe, just get on with it. Parents have an obligation to send their children into schools when they open.

Meanwhile back here the NHS Psychologist is just at the early stages of a treatment programme to try and help with Hawklad’s deep seated anxieties. No guarantee that the programme will ever work. This week’s task is for Hawklad to try and stand in the front garden for 1 minute. The message is don’t worry if you can’t do that. Even a few seconds will be a massive leap of faith. And if he can’t do it at all then we can try another week. Pushing people with significant fears and ingrained anxieties can do so much harm to their long term mental health.

The Government and the ‘Majority’ are not trained mental health practitioners. They have absolutely no idea what some people are going through. On this issue they can stand out in the rain and whistle for all I care.

Frustration

It looks like Yorkshire. It feels like Yorkshire. Its moody, dark, windy and cold. It is Yorkshire. Some places are perfect for growing olives, oranges, pineapples and coconuts. The climate in some places are just perfect for fantastic wine. Here in Yorkshire the climate is perfect for Rhubard…..says it all doesn’t it.

How difficult can a Science test be.

The answer – a nightmare.

40 minutes to complete 20 questions. Sounds easy. Questions about Pressure, Force, Springs and Moments. Not easy for Hawklad but seemed to get there. Worked stuff out in his head. But that’s only part the story. The real story is trying to get the answers to the teacher. He can answer the questions in his head but then struggles to record them. It’s such an effort to type or write for him that he losses the answers he has in his mind. He can confuse himself or just forget. Even trying to write and type as he goes along doesn’t work, it seems to disrupt his thinking. Ends up going round in circles.

The other option is a scribe. But talking out aloud makes him nervous and makes it harder for him to answer correctly. Often what he describes is different to the answer he has visualised.

How frustrating must that be.