Lagoon

The real village lake and it’s frozen. That does not happen that often. Must be cold.

The call came from Hawklad’s counselling team. All visits are suspended until further notice. Basically until the lockdown is lifted. Which is such a shame as Hawklad had just met his new lead professional. She seemed really good. She set up weekly sessions but these are now on hold. They are going to try a video version but she is not hopeful that it will do any good. He hates all things Zoom and it really throws him.

It’s clear that she also thinks that this is a long term process. Maybe well beyond 2021. The worry is that it will just keep on getting longer until real counselling sessions can regularly commence. But it is what it is.

Anyway back to the frozen lake. I have history here……

I bought the two of us a mini drone to play with. Hawklad struggled to fly it as he found the coordination difficult. So it was down to Top Gun Maverick to show him how it was done. The first controlled garden attempt resulted in the drone being launched like a missile and flying rapidly over our house roof. It crashed near the road, thankfully with no casualties. It’s not big or clever kids…..

So after the drone was repaired with superglue, tape and blu tack, it was ready to go again. The second flight took place in the farmers field. More controlled with a less dramatic crash landing. Only problem was that some of the farm animals took a liking to the drone. That took some retrieving. That never happened to Tom Cruise.

After several more test flights I started to really master the high speed nose dive (wings smashing off) landing. One more flight. This time higher. Quicker. Then disaster. A tight banking turn was too much for the patched up aircraft. The wing dropped off. A spectacular crash followed unfortunately not into the farmers field. A direct village lake hit. Let’s try to be cool and say I performed an ‘in the ocean’ emergency ditching. No recovery craft here. Basically I had to jump over the fence, take my trousers off and wade in. The lake is surprisingly deep. Definitely bracing…. Belly button deep and very muddy. Certainly nothing like Tom Cruise emerging from the ocean. Now you can see where they got the idea for the Monster from the Black Lagoon movie.

Really

Another school deep sigh moment. Time to look at the view for a few moments and breathe.

All parents have different takes on life and schooling. No one right answer. Parents can fundamentally disagree on things like schools. So I am fully aware that what O might say now won’t strike home with many. It’s just me.

These are tough times. So much stress, anxiety and fear. It’s bad enough for adults , what’s it like for our children. It must be a nightmare for them. It’s robbing them of a large chunk of their precious childhood. So I’m my opinion it’s time to cut them some slack. Clearly that view is not shared.

Late last night Hawklad had an email from one of his teachers. Sent to all the class. It was a reminder that the homework that had been set over Christmas was due tomorrow morning. The teacher wanted to remind all the class that the large piece of work had to be done on time. One quote stuck with me. The homework is due regardless of the pandemic lockdown, negatives will be issued.

Ok some parents will be happy with that. This one isn’t. For a start why are we giving out homework over Christmas? Really. It happens every holiday. Can’t we just let children enjoy the time off. Especially at this dystopian time. And then those words regardless of the pandemic lockdown. Really…. For me those 5 words sum up everything which is wrong with the school system.

For me it REALLY needs to change.

Lake

The winter farm lake is starting to form. Wow it was wet feet trying to take this photo.

So again today the Government is telling parents that they must send their children to school if it’s open. It’s a mess. Some schools have been closed. Some are opening soon. Some partly closed. Some are opening today. The PM again is saying schools are perfectly safe. He must have evidence that shows children, teachers, teaching staff, parents and carers cannot catch the virus. Wish he would share that so it can all be cleared up. Maybe he could share that with his own scientific advisers as well. The Government is again threatening parents with legal action and fines. The teacher unions are taking the Government to court over its failure to operate safe working environments. It’s such a mess.

So where do we stand? Hawklads year group is kind of homeschooling for the next two weeks then after they have had one covid test they are back in the classroom on the 18th. Well not Hawklad.

His call is that he can’t go back yet. He will look again at the end of the this half term. I’m trying to get another medical exemption letter from his Key Health Worker who is due to come and visit him this week. If they won’t issue one or are not allowed to by the Government then they can see me in court. I’ve seen enough Perry Mason episodes to look after myself. I won’t be the only parent there.

Heres the thing. Put the Aspergers severe anxieties to one side. Each parent and child has to make a judgement call on if attending school is safe. Well clearly safety cannot be guaranteed. More so now than ever with this virus. Children, teachers, parents, grand parents are ending up in hospital with it. The Government might try to hide that information, but it is happening. The virus can infect all age ranges. So it is an individual judgment call. Is the benefits of classroom education and socialisation worth the inevitable risk. That’s not a call for Johnson or his inept Education Minister. They have a track record of lying, not caring and making the wrong disastrous calls.

Each family will have a view. All as valid as each other. Even without the anxieties and present fears, OURS would be no it’s not worth the risk. It won’t until the virus is under control and schools are allowed to put in the necessary safety mechanisms. The first has to be opening up home online schooling. That reduces the numbers in school at any one time, creates space, starts to build a safer more inviting learning environment.

Start with a change

It’s still a little cold here. Definitely a cold start to 2021.

We have a family tradition. For the last 7 years I’ve taken Hawklad on New Years Day to Yorkshire Wildlife Park. Set off at 8am. Get there for when it opens. Spend a few hours wandering round the animals. Then grab a burger and leave before the real crowds arrive.

It’s a lovely tradition that Hawklad loves.

But life happens. Only essential journeys are recommended. Avoid out of area travel.

AND

Hawklad just isn’t in the right frame of mind to go. He is seemingly a million miles from venturing into public places.

So no Wildlife Park visit this New Years Day. So we improvised. A homemade burger and a Pepsi, just like he would have had. A hot donut replaced with a warmed up cake. Then we sat and watched a David Attenborough wildlife TV series.

Not quite the tradition but a decent replacement given what was available to us. 2021 feels like a year for making the best of it.

Well that’s going to be fun

As it stands Hawklad is due for his first home counselling visit in months. Sometime next week – maybe….

If the visit happens then it will be very different. We have already been warned that even though the visit is outside or in separate cars then extra precautions have to be introduced. The nurse will have to wear gloves and a full face mask at all times.

A big part of me is tempted to cancel the visit. The site of protective gear is not going to do anything for Hawklads anxieties. It might even make things worse. But here’s the problem. Under the Governments cost cutting agenda, a cancelled visit can lead to the service being removed. So the accepted term is prioritised.

Going to have to think about this.

Who knows

Dog really wants to walk through that. I’m not so keen. Who wins the battle of minds.

I’ve got wet feet….

So the schools are here are due to go back next Monday. The hospitals are full to busting. Infection rates are rising fast.

The Government says the situation is in hand. The scientists and doctors are pleading for more action. They want schools to stay closed and use online education for a few weeks. The Government is resisting the move to that. They might stagger the return over a week with a good portion of pupils back in 7 days. They want to test all pupils with the unreliable, quick results method in the first week. That’s the answer apparently.

So as I’m writing this most parents just don’t know what’s happening next week.

I guess it doesn’t effect our little family that much. Hawklad is not starting back next week anyway. He just can’t. Maybe more online support will be opened up. How knows. We just have to make the best of it. Go with the flow.

It’s all such a huge mess.

No one ever asks

It’s been a little wet over the last few days. The sheep have got themselves a couple of paddling pools. We might give those a miss. I guess no one will be to upset about that.

I have a questionnaire to fill out about school and it’s services. Looking at lots of areas.

Teaching quality, subject material, classroom facilities, school meals, communication, discipline, bullying, uniform, school transport, sports facilities, IT, websites, outside clubs…..

Lots and lots of areas. So many questions.

What’s revealing is not the questions being asked but those which are not asked. Ones which are never asked. Questions about Autism and Aspergers support. Dyslexia support. Learning Disability support.

No one ever asks. It’s not just our school. It’s across the board. No one ever asks. We live in a world driven by performance measures and league tables. Yet no one ever asks….

I wonder why that is.

Worn out

It’s a cold, bleak start to the day. Kind of feels like a black and white photo is the way to go.

I was thinking about how a break would be most welcome. Especially today.

We all need a break every so often. Either a change. Or a time to relax. Or a chance to really let the hair down. A chance to experience new lands. Or just a time to breathe.

Don’t get me wrong. I know that I am so fortunate with my life. Far too many have so little and are in such dark place. But today I’m feeling just a little worn out. Tired. Thinking back to my last break back in 2015. A lots happened since then. Some good but some really bad. Since 2016 it’s been single Aspergers parenting, fighting the system for our son and trying to eke out an income to pay the bills. Feels like it’s been non stop. A few concerts with Hawklad and taking him to see the occasional sport event. A few walks and up to this year, trail runs. So yes things to be thankful for. But…

But today I just feel worn out. In need of a break. Even just a night away from the house. A different bed. It’s been over 5 years since I’ve done that. But deep down I know that’s not happening any time soon. Asperger parenting is something that you can just can’t drop. Certainly not for a few more years. Maybe longer. So it’s about finding other ways to feel less worn out. Exploiting the options that are open to me and also being thankful for what I have. There are such beautiful things in my life.

We can do this.

Cinema

It’s that time of year. A definite feel to the movies we have watched. Can you see the theme.

Scrooged

Home Alone 1, 2, 3, 5

The Grinch

A Christmas Carol

Muppets Christmas Carol

The Santa Clause 1,2,3

Elf

National Lampoons Christmas Vacation

The Polar Express.

For me I just can’t quite catch the connection. Sure there must be one if I look hard enough.

One of the things that feels amiss this most odd year (that doesn’t work as 2020 is even) is the cinema experience. Before Hawklad we would always have a Christmas trip to the pictures (as my mum would have said). A meal before hand and then a movie. Such a lovely experience. So many wonderful memories.

Taking my mum to see The Horse Whisperer on Boxing Day. She hadn’t been to the pictures in 40 years. She was most puzzled not to watch the Pathe News segment before the movie. She refused to get up at the end and waited until the credits played through. Apparently she was waiting for the National Anthem to be played…

Trips with my partner to see huge blockbusters on Christmas Eve like the Lord of the Rings Movies. Then coming out in time to sing carols in the city centre.

Even after the world changed Hawklad and I kept the tradition going. A changed Aspergers tradition. We would take in the first, early morning screenings of movies like Jumanji and the Rise of Skywalker. Popcorn at 8am works on so many levels. Then we would go and get him his favourite takeout. All before midday.

But this year it’s no cinema. Any trip is just so out of reach for Hawklad and his anxieties. The world has changed. Even the prospect of Wonder Woman and Black Widow epics won’t overcome those fears. Maybe the trips to the Pictures have stopped for good. We will just have to see what the future holds but life goes on. It’s time to recreate that Christmas tradition at home. So we will pick a movie. A good movie. Set the dvd off at 8am. Microwaved popcorn in plentiful supply. The Christmas Cinema tradition continues.

Fence

Which side of the fence is best?

I had a call with Hawklads new health specialist. She will (pesky pandemic dependent) come out to see him for the first time in January. Continuity is so important for someone on the spectrum. It takes time to earn trust and confidence. Those bridges when they come down are slow to be rebuilt. Having had a wonderful health lead for three years we are now in a spell of meet one, quickly see one disappear. Fingers crossed this time.

It’s clear what the medical opinion still is. Any meaningful progress is extremely unlikely until this virus is well under control. When it’s clear that the vaccine which has been administered works effectively and does protect. Only then can any progress be realistically contemplated. Prepare to bunker down for 2021. 2022 might be the first gateway to a more open life for our little family. I also have to accept the risk that progress does not happen for Hawklad. Bridges are not built. This is the new world.

I remain clear. It’s Hawklads life. He makes the call. I will support which ever route he goes down.

So will he return to school in January? Most likely NO. Will he make it back before the end of the school year in July. Probably NO. Will he start the new school year in September. Definitely no guarantee.

It feels like we are in one side of a fence. The side that feels limited but safe. The other side of the fence opens up the world, broadens his horizons but…….