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Halloween or not

It’s the end of October and thoughts turn to Halloween. Well most probably if you are a parent. How to satisfy your young ones urge to join in the fun. From the age of about 5 Hawklad has looked forward to the 31st October. He liked to get dressed up. Maybe go to the school party. Definitely watch a bit of spooky TV. But never Trick or Treating. The thought of meeting strangers ruled that option out. So he’s never been. Actually I have never been. As a child the concept didn’t exist in our area. It was all about carving – not a pumpkin, we used turnips or swedes. A bonfire with jacket potatoes roasting in the embers. The dreaded turnip soup. Seeing what TV had on offer (just 3 channels in those days). Then it was to bed to read a spooky comic under the blankets by the light of a torch.

Trick or Treating really started to get going in our area only in the late 80s. In the last city we lived in, it was very popular. But then we moved into the sticks. The village we now live in has few children. Some years go by without a single Trick or Treater.

So what will 2020 bring. Well a full moon, so let’s hope for some breaks in the cloud.

Well for our little self contained world – it will mostly be the usual. Spicy red soup. Too many mini chocolates and sweets. Outside talks about our top ten monsters. Making up horror stories. We have a tradition that each year we invent a new horror computer game. No technical limitations when the game only ever exists in your mind. Watching cartoon halloween specials. Getting dressed up. Finally watching a couple of horror movies. When he was young that would be ScoobyDoo movies. The last couple of years it’s been old Hammer Horror flicks. This year he’s desperate to step up the horror option. Maybe the first Halloween movie.

Not forgetting Pumpkin Carving. Unfortunately our store has not had them in stock and Hawklad won’t let me go out to buy one. So it’s plan b. Well plan c as the store also failed to have a turnip or swede in. Don’t laugh plan c currently is trying to do mini carvings with jacket potatoes and apples…..

So yes 2020 may have some unique features for us. For many. Trick or Treating would appear to be banned in many areas. Luckily some places are trying to set up stuff for the kids (and parents!). Our village is doing a Halloween Trail. Households are being encouraged to put a pumpkin in the window or by the front gate. Families can then go pumpkin spotting without knocking on doors. So we need Plan D. An apple or potato carving just isn’t going to cut the mustard. At present it’s not a great plan. We have some orange balloons. The plan is to draw faces on the balloon with a think black marker pen. Then we will try to put an LED light or small torch inside the balloon. Then inflate it. What could possibly go wrong…..

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Fake news

I couldn’t sleep last night so I did that dreaded late night hobby. TV Channel Hoping. Normally a channel has about 20 seconds to catch my attention before I’ve moved on to the next televisual experience. Well one channel caught my attention for all the wrong reasons.

An American news channel which happened to be talking about Autism. Basically a so called expert was talking about curing people on the spectrum. The magic bullet was a combination of new drugs and intensive psychotherapy. That way apparently individuals can fit better into society by being cured.

Read that as Reprogramming and squeezing individuals into socially acceptable moulds.

I’m not going to get into the details of this crap but one thing did strike me about the expert. The expert kept talking about those on the spectrum having no empathy and no sense of humour.

Ok…..

Randomly I would like to list some of Hawklads favourite movies and shows. Ones which make him laugh and giggle.

Monty Python and The Holy Grail

Monty Python and The Life of Brian

Fawlty Towers

Red Dwarf

Deadpool 2

Airplane

Ghostbusters 1 and 2

All the Men in Black movies

ScoobyDoo

Penguins of Madagascar

Ice Age

Ant Man

Guardians of the Galaxy

Groundhog Day

Scrooged

Bill and Ted

Any Pink Panther movie

Dumb and Dumber

The Naked Gun

Horrible Histories

Black Adder

Gravity Falls

The Simpsons

Sponge Bob

Johnny English

Any Will Ferrell movie

Ace Ventura

Wayne’s World

The new Jumanji movies

Twins

Kindergarten Cop

Mall Cop

Bill

Yonderland

So many more…. Anyway apparently no sense of humour…..

Posted on by bereavedandbeingasingleparent · 44 Comments

Patchy

Sometimes nothing is better than spending a few minutes kicking fallen leaves randomly around the garden. It’s good to go back to childhood feelings again. Autumn is often a great time for that.

Today’s visit by our son’s health worker has been cancelled. She will try again in a few weeks. It is what it is. At least we are due to get some help, many are not so fortunate. We just have to accept that what support we do get is likely to be very patchy over the coming months. Yep, we will be travelling these roads for a long while to come.

If anything we have just started the journey. Son is still wracked with anxiety and fears. He is most definitely house and garden bound. No sign of progress as yet. Actually no sign if progress in ages. We are not talking a few days here. We are already 7 months into his isolation. We will be adding many more months to that. Realistically his anxieties have become intertwined with the wider pandemic situation. How can he improve, his anxieties ease when the country is still in pandemic mode. If he ventured out he would just end up seeing people wearing masks and frequently looking nervous. It feels like manning the battlements until things start to pick up again.

That’s where kicking fallen leaves comes in. It’s so important that Hawklad still enjoys life. Enjoys his childhood. We find ways to fill our small world with fun. Yes kicking leaves ticks all those boxes. AND it’s fun for his old Pop as well.

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Lopsided

I sometimes worry that you think I’m a little drunk some days. The photos might look a little slanted. In my defence I have been tea total for years and struggling to get straight photos is down to living in the hills. Or maybe it’s because I tend to just be one second away from tripping over.

One of the highlights of the week these days is taking the car for a little run out. It doesn’t like sitting doing nothing. It seizes up and battery has a habit of going flat. Sounds a bit like me….. So once a week I take it for a 5 minute drive. Just along a few of our narrow country lanes. Most of them like this one are not wider enough for two cars. No motorways here.

Hawklad won’t currently come with me. Doesn’t feel comfortable enough. No point pushing that. He said that he will try to come with me starting in November. He stays at home hence it’s only a 5 minute trip. When I get back it’s time for full decontamination to keep him happy.

I thought I would take a photo of this one particular stretch of lane. It’s a favourite of mine. I would frequently run down here on my longer pre pandemic runs. Why is it a favourite?

It’s relatively flat. No ups and downs. Here that is such a lovely feeling. But even here I can’t get a truly level picture. But I will settle for this. At least I’m not falling over. Yet.

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2022

“Dad that’s not a bad sky at all”

It’s a grand one Son.

“You always say GRAND these days”

It’s just a way of saying something is impressive. It’s a bit like you saying something is sick….

“Dad I was thinking about school. What happens if I still can’t go out during next year as well. Maybe I’m not ready to go back until 2022. What happens then?”

Well we just carry on. We’ve coped for most of this year. We just do the same next year then. Although I might have a ZZ Top beard by 2022 .

“I so want to see that.”

Make a change for you. Having a Dad who looks cool….

“That’s never happening. As you would say Dad. You are a Grand Muppet.”

You never know. One day….

“Dad is that your mobile Dad going off.”

Yes it is. A message. Oh look they have rescheduled our Ozzy concert. Was supposed to be next week but they have put it back to October 2022. Time for me to grow a proper beard.

“Dad time for me to maybe venture out again…”

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Childhood

So many pupils from our son’s year group are isolating. I’m also hearing that other pupils are being asked to isolate in other year groups as well. Many teachers are off. It’s all a bit of a mess really. Many schools are like this in the UK. They don’t feel like environments conducive to learning at present.

These are stressful times for many. I’m not sure the Government understands this. Or chooses to ignore this. Bland statements that ‘schools are the best place for children’ are recited everyday. It might be in terms of the Economy but….

Some children need to be in school. Some need to be at home. They definitely need to have the chance to have a childhood. A good childhood. It’s often too easily forgotten how much stress and anxiety they are under. Unable to see friends. Unable to do some of the stuff they love. Living in a stress filled world with so much confusion. Told to wear masks in buses and shops, yet told not wear them in classrooms. Frequent enforced teacher switches. Many sadly forced to isolate or deal with the actual virus. Living in a small world with few holidays and adventures. Watching never ending grim news reports. How much stress are many of our children under. We have to do something about this. To me that’s more important than the short term needs of the economy.

Our son is racked with anxiety. Too much to allow him to venture through the front gate. A significant part of his precious childhood is being spent in isolation. That’s hard to take as a parent. All I can do is to keep him feeling safe, try to shutout the bad stuff from the world and to try to find ways to help him still enjoy his childhood. He’s had a tough one already. Loss of his mum, coming to terms with Aspergers and now a Pandemic. That’s why I’ve got to work all the more harder. There’s still a childhood to be enjoyed.

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3am

Last night I was tired. Unusually tired for me. But it was one of those pesky tired setups. During the evening I could feel myself nodding off. Plenty of those ‘just starting to drift off while sat on the settee – then suddenly woken by those cataclysmic sudden neck snapping forward’ moments. This went on all evening until it was bed time. But then I just wasn’t tired. Pigging fiddlesticks……

Finally sleep came but all too soon…..

“DAD, DAAAAAADDDD!”

What’s up son.

“Dad I’ve forgotten, sorry we’ve forgotten the art assignment.”

Ooh yeh, that one that isn’t due in until the 12th.

“That’s the one, But ITS THE 12th.”

Oh big pants. Can you do it as soon as you get up?

“No it’s due at the start of the first lesson.”

***********

I could see by the look in his eyes that until it was done, sleep would be impossible. So a few minutes later I was in the kitchen making hot drinks. Years ago a late night session would have had a very different meaning to tonight’s version. 3am and rocking out to Japanese Art.

Basically I sat there looking vacant, occasionally nodding (in a of course I knew that kinda way) and asking Google such questions as ‘what on earth does wabi and sabi mean’. It took an hour before Hawklad had convinced himself that he had done enough. The school panic in his world was over. His completed presentation was significantly more robust than his Dads initial suggestive assignment text

Japanese Art is cool but Godzilla is real cool. Now it’s time for bed….

Hawklad got to bed and immediately fell asleep. I guess at about 4.30am I found some sleep. I woke up a couple of hours later with one overriding thought. How can you write two pages on Japanese Art and not mention Godzilla‘s Atomic Breath just once. What has become of Art.

Posted on by bereavedandbeingasingleparent · 73 Comments

See what the wind brings.

Sometimes you just have to sit back and see what the wind brings.

Drying clothes outside is proving a bit of a nightmare. Every few minutes the wind brings in another shower. Thankfully the bench cover is just about big enough to quickly chuck over the clothes horse. Given the dirty state of the cover rather defeats the purpose of washing. But needs must.

Sometimes you just have to sit back and see what the wind brings.

Further lockdown measures are set to be announced for northern areas next week. For the last month our part of the north has been an island. Surrounded by areas having significant pandemic outbreaks. Here it’s been reasonably calm. That means that things like shopping and daily life have continued without too much disruption. But is that about to change. Has our area succumbed.

Sons school has had confirmed cases. The local cafe had had to close due to a local outbreak. All public events are being cancelled (that includes Christmas events). Now the local city is reporting a huge growth in cases. 79% rise in 7 days, our rural area has gone up by 60%. Higher than some of the areas already under lockdown. Police are starting to enforce lockdown laws.

It’s the confusion that makes it so much harder for people. One week the PM tells people to grow a backbone and get out. Then suddenly the PM tells us it’s our fault fir getting out. Some places (often government supporting areas) have high infection rates but are excluded from lockdown while other areas with lower rates are forced into lockdown.

Feels like we as an area are about to be forced into a tough, restrictive extended period. All we can do is continue with our own family approach. Try to shield son from as much of the negative, doom loaded news. It’s the last thing he needs to hear. Much better for his (and my well-being) to sit in the back garden and see what the weather brings in.

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Uncertain

Over the last few days nature has been providing its very own washing service.

Many people are doing more and more washing over the last six months. Especially hand washing. That’s certainly the case here in our little corner of the world. Since about the age of 6 son has had anxieties relating to touching unclean objects. This would result in fairly frequent hand washing exercises. Thankfully only a few seconds of soap and water was sufficient to calm the fears.

That all changed in 2016 when his mum died at a relatively young age. Suddenly the world was filled with uncertainty and unseen dangers. His hand washing rapidly spiralled out of control. It became more frequent and went on for up to a minute at a time. Thankfully he started working with a wonderful nurse counsellor who over a couple of years brought his hand washing back under control. He was taught to wash like a nurse and get it done in under 20 seconds.

Then a pandemic hit. All the reassurances, all the hard earned confidence was blown out of the water. His fears re-emerged worse than ever. Life is now an ‘avoid touching anything and hand washing’ fest. He will wash his hands several times an hour. When he starts washing, he will wash for anywhere up to 5 minutes. All without trying to touch the tap and only using elbows (usually my elbow).

Any delivery or letter has to be taken into the garage for several days of quarantine before it is opened. After I have touched the item then I need to change my clothes completely and be seen to wash my hands. If I venture out then almost full decontamination procedures have to be followed.

Welcome to 2020.

This time it feels different. More engrained. The health professionals agree. All we can do is try to manage the situation until he sees that the pandemic is under control. A vaccine works and he has had it. But even then there are no guarantees. His fears and anxieties may never truly fade. Maybe they will but only until the next killer bug emerges. The future is uncertain. It is uncertain for many.

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Which way

In life you get asked so many questions. But some questions keep repeating themselves. Like the classics ‘Are we there yet?’ and ‘where’s the remote control?’.

Then there are other questions. More vexing questions. One question keeps popping up. I’ve been asked this by family members, other parents, teachers and even once a nurse. It does have a number of variants but it’s basically the same question

Will your son get better?

Will his Aspergers improve?

Will his Aspergers improve as he gets older?

I’m no clinical specialist. Just a bumbling parent. But here’s my take on the question.

Aspergers is a lifelong syndrome. It’s not going to get better. Its not going to be cured. It’s not going to disappear. What might change is that over time the individual and the family may develop strategies to help deal better with some of the situations life will throw at them. Also some of the specific symptoms may fluctuate over time. For example in a number of individuals something like repetitive hand flapping may become less prevalent with age. Also Aspergers often coexists with a number of other conditions – dyspraxia, ADHD, dyslexia…. It is possible that some of these conditions could improve with time. For example our son has with hard work started to overcome some of the issues which his dyspraxia and dyslexia had caused him in his earlier years.

So yes it is possible that improvements may occur. But here’s the thing, it’s not guaranteed. Each individual case is different, unique. Things may stay the same with age. They can also get worse with age.

So we just don’t know.

The Clinical Psychologist who did the full review of our Son was quite clear. The majority of his Aspergers related traits will stay with him over his life. However at around the teenage period changes may start to occur. It could go either way. He could become fully independent or he may regress and may need some form of life long support. She talked through a number of possible scenarios. One scenario was that some improvements would occur potentially in the areas of dyslexia and the diminishing of some of the repetitive behaviours. Another scenario painted a downturn in his existing anxieties and fears. This could occur naturally during his teenage years or could be triggered by a single significant event which effects his view of the world. Tips the balance in his risk assessments of the world. This could lead to significant mental health concerns and potentially social isolation. Where we are sat currently, we are not a million miles away from that scenario. The triggers – the death of his mum, a pandemic, his teenage years…. He is currently physically cut adrift from the world. His fears and anxieties ramped up to the rafters.

Nothing is set in stone. We just have to go with the flow and see what life brings. It could be still be a fully independent life. But it could also entail a lifelong requirement for support. In this country we don’t cater for the latter scenario. Support has to be fought and won for young children. That support is at best is patchy. During the teenage years the support tends to be reduced due to funding cut backs. By early adulthood the support has completely vanished. That’s a sobering thought for parents in this position. It really is.