Posted on by bereavedandbeingasingleparent · 65 Comments

Well that will stop it

So today our so called Government announced that our local city is to be moved up the pandemic risk table. It’s now a tier 2 area risk. That’s officially HIGH. As a result additional rules will apply to those living in the city. One rule is that I can’t now visit my sister at her house in York. But here’s the thing.

Under the rules I could go to work with anyone from York – no issues there. But after work finishes I would then not be allowed to go for a coffee with those same co-workers. Suddenly mixing with them becomes too risky. Well that will fool the pesky virus…..

Bizarrely I have just noticed that my next nearest sister who lives in another city 100 miles away has also been classed as living in a high risk area. So I can’t visit her as well. Well this is going well…..

Posted on by bereavedandbeingasingleparent · 68 Comments

Golden times

Unlikely to get too many trips out to enjoy the wonderful autumnal colours this year. But at least I will spend more time looking at very our own mini displays. Too often these are not fully appreciated.

It is often the little things in life that we miss. Don’t fully appreciate. Take them for granted.

Before 2016 at this time of year we would drive as a family through the tree lined country roads to the local arboretum. A walk round the thousands of autumnal trees ending with a hot chocolate at the cafe. It’s not until these moments are gone that you realise how golden those times were.

After 2016 I would drive son to very the same arboretum. Trying to control a mad dog while son kicked around in the fallen leaves. Ending in the cafe now so he and the dog can enjoy a bacon butty. I would saviour a freshly ground full on caffeine burst. Golden days not possible this year.

So maybe those annoying fallen leaves in the front garden will actually come in useful. Let’s go and have a thrash about in them. Followed by a home made butty and yes a hot chocolate. Yes different times, but still golden times.

Posted on by bereavedandbeingasingleparent · 85 Comments

Challenging

It’s wet. It’s cold. It’s dark. It feels like winter. At least the leaves are still in autumn mode.

It’s going to be a challenging few months.

School has now contacted all parents following the recent in school positive covid cases. Our sons year group have been instructed to return to school. However a further 57 pupils are being asked to self isolate for 14 days. It’s not just our school. Another 5 local schools have at least one year group isolating, with another school reporting its first cases today.

This is on the same day that the government once again stressed the civic responsibility to attend school. Schools are perfectly safe and the risk of infection is extremely low.

Are we supposed to believe you Boris?

I remember you telling university students to go back to college as it was their civic duty, it was perfectly safe and students would risk losing places if they refused. Just a few weeks later and in one local city 1600 of the 2200 new infections are from university students. Nationally over 10000 students have now gone down with the virus In another city a number of the university students have required intensive care treatment due to the virus. Many other students are now on lockdown, confined to their rooms.

Apparently this is all the fault of the students…..

Are you supposed to be in charge Boris?

Going to be a challenging few months.

Posted on by bereavedandbeingasingleparent · 73 Comments

See what the wind brings.

Sometimes you just have to sit back and see what the wind brings.

Drying clothes outside is proving a bit of a nightmare. Every few minutes the wind brings in another shower. Thankfully the bench cover is just about big enough to quickly chuck over the clothes horse. Given the dirty state of the cover rather defeats the purpose of washing. But needs must.

Sometimes you just have to sit back and see what the wind brings.

Further lockdown measures are set to be announced for northern areas next week. For the last month our part of the north has been an island. Surrounded by areas having significant pandemic outbreaks. Here it’s been reasonably calm. That means that things like shopping and daily life have continued without too much disruption. But is that about to change. Has our area succumbed.

Sons school has had confirmed cases. The local cafe had had to close due to a local outbreak. All public events are being cancelled (that includes Christmas events). Now the local city is reporting a huge growth in cases. 79% rise in 7 days, our rural area has gone up by 60%. Higher than some of the areas already under lockdown. Police are starting to enforce lockdown laws.

It’s the confusion that makes it so much harder for people. One week the PM tells people to grow a backbone and get out. Then suddenly the PM tells us it’s our fault fir getting out. Some places (often government supporting areas) have high infection rates but are excluded from lockdown while other areas with lower rates are forced into lockdown.

Feels like we as an area are about to be forced into a tough, restrictive extended period. All we can do is continue with our own family approach. Try to shield son from as much of the negative, doom loaded news. It’s the last thing he needs to hear. Much better for his (and my well-being) to sit in the back garden and see what the weather brings in.

Posted on by bereavedandbeingasingleparent · 62 Comments

Uncertain

Over the last few days nature has been providing its very own washing service.

Many people are doing more and more washing over the last six months. Especially hand washing. That’s certainly the case here in our little corner of the world. Since about the age of 6 son has had anxieties relating to touching unclean objects. This would result in fairly frequent hand washing exercises. Thankfully only a few seconds of soap and water was sufficient to calm the fears.

That all changed in 2016 when his mum died at a relatively young age. Suddenly the world was filled with uncertainty and unseen dangers. His hand washing rapidly spiralled out of control. It became more frequent and went on for up to a minute at a time. Thankfully he started working with a wonderful nurse counsellor who over a couple of years brought his hand washing back under control. He was taught to wash like a nurse and get it done in under 20 seconds.

Then a pandemic hit. All the reassurances, all the hard earned confidence was blown out of the water. His fears re-emerged worse than ever. Life is now an ‘avoid touching anything and hand washing’ fest. He will wash his hands several times an hour. When he starts washing, he will wash for anywhere up to 5 minutes. All without trying to touch the tap and only using elbows (usually my elbow).

Any delivery or letter has to be taken into the garage for several days of quarantine before it is opened. After I have touched the item then I need to change my clothes completely and be seen to wash my hands. If I venture out then almost full decontamination procedures have to be followed.

Welcome to 2020.

This time it feels different. More engrained. The health professionals agree. All we can do is try to manage the situation until he sees that the pandemic is under control. A vaccine works and he has had it. But even then there are no guarantees. His fears and anxieties may never truly fade. Maybe they will but only until the next killer bug emerges. The future is uncertain. It is uncertain for many.

Posted on by bereavedandbeingasingleparent · 70 Comments

Which way

In life you get asked so many questions. But some questions keep repeating themselves. Like the classics ‘Are we there yet?’ and ‘where’s the remote control?’.

Then there are other questions. More vexing questions. One question keeps popping up. I’ve been asked this by family members, other parents, teachers and even once a nurse. It does have a number of variants but it’s basically the same question

Will your son get better?

Will his Aspergers improve?

Will his Aspergers improve as he gets older?

I’m no clinical specialist. Just a bumbling parent. But here’s my take on the question.

Aspergers is a lifelong syndrome. It’s not going to get better. Its not going to be cured. It’s not going to disappear. What might change is that over time the individual and the family may develop strategies to help deal better with some of the situations life will throw at them. Also some of the specific symptoms may fluctuate over time. For example in a number of individuals something like repetitive hand flapping may become less prevalent with age. Also Aspergers often coexists with a number of other conditions – dyspraxia, ADHD, dyslexia…. It is possible that some of these conditions could improve with time. For example our son has with hard work started to overcome some of the issues which his dyspraxia and dyslexia had caused him in his earlier years.

So yes it is possible that improvements may occur. But here’s the thing, it’s not guaranteed. Each individual case is different, unique. Things may stay the same with age. They can also get worse with age.

So we just don’t know.

The Clinical Psychologist who did the full review of our Son was quite clear. The majority of his Aspergers related traits will stay with him over his life. However at around the teenage period changes may start to occur. It could go either way. He could become fully independent or he may regress and may need some form of life long support. She talked through a number of possible scenarios. One scenario was that some improvements would occur potentially in the areas of dyslexia and the diminishing of some of the repetitive behaviours. Another scenario painted a downturn in his existing anxieties and fears. This could occur naturally during his teenage years or could be triggered by a single significant event which effects his view of the world. Tips the balance in his risk assessments of the world. This could lead to significant mental health concerns and potentially social isolation. Where we are sat currently, we are not a million miles away from that scenario. The triggers – the death of his mum, a pandemic, his teenage years…. He is currently physically cut adrift from the world. His fears and anxieties ramped up to the rafters.

Nothing is set in stone. We just have to go with the flow and see what life brings. It could be still be a fully independent life. But it could also entail a lifelong requirement for support. In this country we don’t cater for the latter scenario. Support has to be fought and won for young children. That support is at best is patchy. During the teenage years the support tends to be reduced due to funding cut backs. By early adulthood the support has completely vanished. That’s a sobering thought for parents in this position. It really is.

Posted on by bereavedandbeingasingleparent · 43 Comments

Revolution

I was asked about if our son was any closer returning to school. This is his fourth week at home since the school returned full time. Well two things from today really paint the picture.

First an email from school advising that the school had now had its second confirmed case. This time a member of staff. Apparently the confirmed cases so far are not considered to be linked. A small number of individuals have been asked to isolate for 14 days and the school remains fully open.

The second was a conversation with our son. His words need no more elaboration.

“Dad I go into meltdown if the bedroom window is open. In fact I can’t even touch the window handle to close it. I just can’t go back. Can’t go back for some time to come.”

And there is our answer in a nutshell. At present government ministers are telling parents to ensure there kids go to school as it’s perfectly safe and is in fact our civic duty. To not do now apparently makes you a bad parent, someone who is not acting responsibly. Must get those words on a T-shirt.

I will continue to act irresponsibly and avoid doing my civic duty. Our son will return to school when he is ready to do so, when it is safe and when he is comfortable doing that. Until then – Viva La Revolution…..

L

Posted on by bereavedandbeingasingleparent · 44 Comments

Next stop

Ever got the urge to keep opening those gates. To just keep walking in one direction. To see what you find. No boundaries. No limits. To be free.

One day I will walk to the next stop.

Now if I packed enough egg sandwiches and tins of Pepsi!! then I will eventually arrive at the city of a Hull on the North East Coast. If I have been very organised and packed my floatation rings then it’s next stop Amsterdam.

What’s the next stop on the school at home journey?

I think Hawklad is now starting to realise that a return to school this month is out of the question. His fears and anxieties are not going to be overcome within weeks. So now he is starting to look at January as the next window of opportunity. So it’s looking like another 3 months of school at home (at least). We will continue to try to stick with the school teaching schedule. Cover the subjects they teach. Use whatever teaching materials they make available. If they don’t then we won’t lose any sleep over it. That’s more time for him to try and relax. To try and enjoy life. It’s often easily forgotten that too many are losing out on huge parts of their precious childhood. It’s not all about formal schooling and meeting government targets.

So be it. We have got this.

It’s completely his call. He decides what the next stop is.

Posted on by bereavedandbeingasingleparent · 82 Comments

Red

A trip out to the village post box feels like a real adventure. The stuff you can find even on a two minute walk. Definitely saviour those moments.

Today provided a longer trip out. This time a trip pharmacy to pick up a prescription. It felt odd driving in the local town. Actually it just felt odd driving. I admit that I needed to work out which of the 3 peddles was the clutch – how bad is that. Clearly cars are more than just point and go. In the town definitely more signs of the impact of the pandemic. Some places have closed down. Controlled entry queues outside the stores. 2m spacing tape on the pavements. Definitely more masks on view. In the pharmacy Perspex screens and staff dressed like they are about to perform surgery on the customers. Missing items on the prescription, some medicines are just not available. Sign of the times.

School emailed all the parents to let them know that the school has had its first confirmed coronavirus case. It’s stays open and carries on. Will be such a worry for everyone there. Sadly it won’t be the last one. It certainly doesn’t do anything to change the narrative for our son. He’s schooling at home. He’s schooling at home for the foreseeable future.

We carry on.

Posted on by bereavedandbeingasingleparent · 45 Comments

A window

A brief window to step outside and breath. Otherwise it’s been horrible. Many of the places around us have closed due to bad weather. Must admit education feels that way a bit currently.

UK School doesn’t really work for those with additional educational needs. The traditional classroom setup brings much stress. School at home brings a little respite.

So that’s two weeks ticked off from the next stage of the school at home approach.

I was asked why I didn’t call it homeschooling. Basically we are still trying to follow what the school is teaching. Not setting our own learning agenda. Having to do this just in case our son decides to return to school when he is able to. So it’s not the freedom of homeschooling, it’s basically school but at home.

So in two weeks we have kind of found a way of trying to keep up with the class. Covering the same subjects. In some lessons we are getting all of the material which is being used in class. In some we are getting some of the material and we are trying to fill in the gaps as best we can. In a few subjects we are basically getting nothing so we are just winging those – maybe we are following the class, maybe we are heading in completely the wrong direction.

He is getting virtually no pastoral care from school. Absolutely zero feedback on work submitted, not sure some of the teachers are even reading it yet. A couple of the teachers do occasionally send a message asking if he is ok with the work set. That’s it really. On a Thursday all the pupils have to select an option for an additional lesson. It’s supposed to cover non curriculum activities. It’s about learning new skills and building confidence. It could be a gaming option, archeology, performing arts, sports, astronomy. He hasn’t been included in this programme – says it all really.

In my mind I have already settled on the best way forward. It’s for our son to leave school and opt for full on homeschooling. But it’s his call. It’s his future. So when the time is right then he can make a decision. But I have to say school are not bending over backwards to sell themselves.

L