Posted on by bereavedandbeingasingleparent · 63 Comments

Isolation

Late evening colour from Yorkshire.

It’s been one of those pushing up hill days. School doing as little as possible. A flu jab that ended up being a magical mystery tour around an NHS property – the signs had blown over in a wind storm and countless potential jab recipients were walking aimlessly around a vast site like a scene from ‘Night of the Zombies’ or ‘The Teletubbies’. Then news that Hawklad’s mental health support is getting reduced again. Was supposed to be a couple of yours every week. Then it was reduced to 45 minutes every two weeks. Soon it’s going to 45 minutes every month. Just not enough resources to meet rising mental health needs amongst our young. It’s all about government priorities. Well at least he’s still getting some help, that’s something.

Finally time to relax a bit. Hawklad was watching an Adam Sandler buddy movie. He does make Hawklad laugh a lot. I watch bits of it as I caught up with some housework. Funny how housework doesn’t ever sort itself out.

The movie was all about a group of childhood friends meeting up now they were middle aged. I must admit it got me wistfully thinking about how life has worked out over the last few years. Single parenting, living out in the sticks, a pandemic…. All are the equivalent of the FRIENDSHIP Hulk Buster Suit. Seeing friends has been officially been BUSTED. In over 5 years I’ve had one meet-up with a friend which lasted 2 hours at a so called football match. What I would give now for a few of those Adam Sandler type friend meet-ups. Just his much I would give for just 30 minutes with my best friend. Sadly I bet I’m not the only one feeling this way. These are isolating times.

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Colour

As Winter fast approaches, there is still so much colour around. Just need to keep looking, it’s too easy to assume that colour has left for the year.

A venture inside a small shop for Hawklad. Maybe 8 other shoppers and a couple of shop staff. It took all his strength to survive 2 minutes inside. But here’s the thing, his anxieties in there weren’t just focused on Covid thoughts. Yes those fears explained his refusal to touch any alien surfaces or objects. But those in the shop all had masks on (strict shop policy). He just felt uncomfortable in that relatively small space. Too hemmed in. Too many faces. A space to small for that number of strangers.

The Covid vaccine might help will some anxieties but not with all the ones circulating in his world. A small village shop is a world away from an overcrowded classroom in a school with 900 pupils. His well-being is paramount. It has to be the basis of any decision going forward. Life has to fit for him. That’s the only way he will be happy.

That feels like a roadmap to guide the future.

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Frustration

This week has been frustrating. So frustrating.

It’s been as tough a week that I can remember on this school at home project. Links with a number of teachers have become very strained. I bet the teachers are as desperate for the upcoming week break as we are.

Work has been a struggle. What can you do when so many are off with Covid. Not enough people still standing to cover the jobs. As much as I move the pieces around I’m always going to be short. Oh yes, sorry, apparently the pandemic is over….

My diet is a struggle. It’s a gluten and dairy free life for me at present. Yet those items are strangely unavailable at our local stores. Clearly the gluten free wagons are stuck somewhere trying to get into this brexit wonderland. I guess it’s a week of mostly jacket potatoes. I know what Matt Damon feels like in The Martian now….

Wow I need a break. But that break seems further away than ever. If only I could be Boris Johnson. Tell everyone we are in this together, take £20 a week off the poorest in our country then jump on a jet for a weeks painting and drinking at a Billionaires pad in the sun.

Dreams of a much better life are there. Stronger than ever. Just not this week. Not any time soon. Need to be patient.

Sleep. I find it’s a commodity vastly overrated but actually much needed….

And yet…..

If I just look up it’s amazing what I can find even on a 1 minute walk to the postbox.

There is always something to hold on to. There is always hope. When I focus on what really matters to me. The amazing in my life. I realise actually it’s still a wonderful life. Yes I’m ready to go again…..

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Slope

The long and slightly winding road. It doesn’t look much but it’s a bit of a pull up that slope. Unsurprisingly this little lane blocks quickly when the snow arrives. One day I will pick up the courage to try to sledge this all the way to the bottom. Our very own Cresta Run.

At the bottom of the slope (if I make it that far) I then need to find 2 feet of lift and aim for this gap in the hedge. If I pull that manoeuvre off then I will continue the sledge run across at least one more field. Miss the gap or get no height and it’s going to hurt. Hurt lots…..

As Hawklad points out. He will let Dad go first, clear a path and then if Dad is able to stand without medical assistance, then he will follow. It’s good to know that I still have my uses. 🤪🤪🤪🤪

As the colder, darker months fast approach some of the things that kept both of us going over the warmer months will become harder to keep going. New hobbies and new things to do are really needed. Especially as there is no immediate sign of a breakout from our ongoing family isolation. But we need to keep living. Preferably things that don’t involve pain…

I was looking on eBay for a second hand telescope to help with Astronomy as something we could do together. One to replace my very old small scope. I found a potential option. 4 hours to go on bidding and after 3 bids the price was at £30 plus delivery. That’s great for a £900 telescope. I made the offer. £35…. It was mine…. until 5 minutes before the auction closed. Two minutes later budding was at £300.. Pants. Didn’t bother seeing what it finally went for. Not this time.

But I feel better as I have done something. I’ve tried. Now what other random items can I find. What weird hobbies might open up.

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Way forward

Who needs a shower when you can walk through an autumnal Yorkshire meadow. The sun might be out but it’s wet. Very wet.

Who would have thought it. THOR with shorts on walking across that very field 😂😂😂 Much waxing needed 😱😱😱😱

Apparently The Government believes that 100,000 children currently off school as a result of Covid is far too many. Letters are being issued to many parents about the need for children to be in school. If parents don’t cooperate then they will be ‘officially assisted’ in getting their children back. I’m sorry but there is a pandemic on. Maybe if those in charge had made schools safer rather than just remove all the requirements for masks and social distancing, then far less kids would have ended up catching Covid.

So this morning I listened to the Government talk about parents again. They should listen to the official message. Do the decent, patriotic thing and believe in what the Government tells them. Schools are safe, send your kids into class. Even if there is underlying health conditions or covid in the household or a covid outbreak in the classroom, kids must be sent in.

Ok…

Hairy Thor can see a slight problem with that. I remember just a few months ago. One Monday morning. The Government was telling parents schools were completely safe. They wrote to schools to instruct them to stay open. Letters were issued talking of the legal consequences of keeping children off school. Headteachers and Parents were threatened that Monday Morning. So schools stayed open. Kids were sent into school. Then just 12 hours later, that very same Monday, after a day of repeated official untruths, The Government CLOSED all schools. Suddenly schools had become a serious vector of pandemic spread. They were apparently not safe after all. How many children, teachers, support staff, parents and grandparents ended up catching Covid needlessly that day…..

I had a long talk with Hawklad. We agreed that regardless of his anxiety levels, he will NOT return until classrooms in his school are safer. That helps with his mindset as well. He was feeling under pressure to return too soon. Let’s see how is mindset is at the end of October.

The path is clearer.

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Reasons

There is something about this time of year. It just keeps on producing the most amazing mist covered skies. Almost as if the sky was an old watercolour art work.

We will ignore the absolutely sodden feet. Something about this time of year and wet socks as well….

The school term is well underway and finally a few subjects are providing some home materials for Hawklad. Certainly not the entire lesson but at least it’s something. One teacher even marked some work he had submitted and provided feedback. That’s a real start. But it all seems pretty disjointed and I get a sinking feeling – he is falling behind those in class. But at least it’s improving. I wonder if there is another reason for that.

Under the new Government Rules schools don’t notify parents if there are any in-class Covid cases. Lessons continue as normal without any additional precautions. Direct contacts with confirmed cases are NOT asked to isolate. It’s out of Headteachers hands now, external officials control the process. Those officials will not intervene until the number of cases escalate beyond thresholds set by the Government. So parents are kept in the dark and apparently should assume there is no news. Schools are completely safe.

Well a teacher accidentally let the cat out of the bag today with a stray email. The email talked about those unable to attend class due to having tested positive. In Hawklad’s class of 30 pupils, 6 are currently suffering with Covid. Those pupils sitting next to a confirmed case (that’s sat for hours, shoulder to shoulder with someone with Covid) are not traced. Mid last week all in the class had been given the all clear after the quick self testing process. A testing process which is not compulsory.

So I guess the reason for the improved home workload might just be that a sizeable proportion of the school are off…..

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They’re at it….

What on earth is going on the conservatory window. And yes the conservatory needs tidying up. Out of focus dinosaur toys have taken over.

So it’s the first full week back at school for families in our area. Already many children have taken the quick but problematic virus test. Our Government is really pushing them while other countries are deeply sceptical of the test we use. Even our own Doctor Groups have expressed concerns. Some parents are refusing to let their children take them. Some schools have run out of the test kits. But the tests are the only precaution left in our schools.

From the parent comments on our school’s forum, a number of children have tested positive and are waiting a full test. A number of parents are isolating due to contracting Covid. But the Government rules have changed. Schools are not allowed to track potential cases without the approval from the authorities. They are not allowed to notify parents of potential or confirmed cases. Parents will only be notified if the number of cases escalates beyond a set national threshold. It seems odd that if a child has head lice then other parents are immediately notified but no notification now with an infectious disease. It also seems bizarre that under the current rules a child who tests negative using the inaccurate quick tests must still attend class even if that child’s parents have Covid, and if the child’s siblings have Covid.

Not an ideal backdrop for Hawklad to be wrestling with going back to school or not. He is still struggling with crowds. Still struggling with OCD. Still struggling to touch objects. Still struggling to venture inside.

School have said that they will try to be flexible about his return but do they really get it . His health professionals recommended a number of changes to help but these have not been acted upon. We asked if he could be put into classes with at least a few friends to help his potential return. Most of his classes have now been announced and guess what. Where are his friends……NOT in his class. It’s as if they had tried to put him in the worst class groupings possible. Let’s hope that the last two subjects fair better. Classes are full, the year is over allocated and unless a pupil leaves then switches can’t happen apparently.

Yes they’re at it again…. And it’s not helping.

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And then

Another sign of the approaching Autumn Term. Plenty of insects on the windows. Yes this one is superimposed on the big boy cats butt.

The day has dawned. In hours Hawklad is due back in the classroom. One email from school informing parents that school Covid safeguards have been relaxed apart from some testing. The school day will start with all children undertaking a Covid self test. Then the Year will gather for a school assembly in the main hall. After about 3 hours lessons will then commence.

No specific contact from school about Hawklad.

No discussions on tailoring a return.

No chance for Hawklad to do another pre school visit.

School haven’t even specifically asked if Hawklad is returning.

So what is Hawklad doing?

The thought of 3 hours of being in the small main hall with something like 120 other pupils without masks has really bothered him. Bothers me….. No specific plans have been agreed with school. Nothing in place to help with his potential return. Under those circumstances he can’t return. So I have informed school that he is working from home today.

It doesn’t help that it’s an anniversary……

Let’s see if school offer anything today. At least the timetable and class details will be published. Hawklad has said he will decide on Saturday. At present he feels that he can’t return. If that’s the case then it’s a question about is the a temporary hold or the permanent switch to homeschooling.

It’s such a mess.

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Whitby

Maybe being inside amongst strangers is still a step too far for Hawklad but he keeps trying. A late call but we headed towards the North East Coast. To Whitby. A small town with so much history. A small town which provided one of the key settings for Bram Stoker’s Dracula.

These days it’s a busy tourist destination. Today was grey and cold, so hopefully not that busy.

Yes less busy but still too busy for Hawklad. He desperately tried to keep his distance. Often walking down the middle of the road to avoid strangers. His hoody pulled over almost to the bridge of his nose. He couldn’t stay long. It was too uncomfortable and unsettling. He resisted the urge to let me go inside to buy ice cream or the legendary Whitby Fish & Chips. We made it to see a few boats. A quick wander to the Pier. Then it was heading back to the safety and isolation of home.

What happens with school at the end of the week. Still to be determined. But to me there is only one viable road open.

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The River

A Yorkshire River. A bit of an odd Yorkshire River. It’s not in flood……

In winter the River is often several feet above the top of the sand banks. But in summer the banks provide a perfect place for Swift’s to nest.

As we walked along the river edge my thoughts drifted back to when Hawklad had just started school. It was the start of the Aspergers journey. it was before any expert help came our way. Two parents trying to get their head’s round our family life. We kinda knew he was on the spectrum but what did we know. Expert guidance was still 2 years away. It was such a confusing time. But one of my clearest recollections of that time was Hawklads’s reaction to people.

Hawklad struggled with meeting people. He wouldn’t make eye contact with anyone apart from his mum, dad and grannies. His hood was always over his head and pulled down over his eyes. He would freeze or have meltdowns if an outsider was too near. If he was in a room with others then he frequently would be found in a corner, facing the wall. Outside he would hide behind trees until the coast was clear.

Slowly over the following years things started to change. With so much hard work he became better able deal with people. Not comfortable but he found a way. He developed a slightly wider network of friends. Really close friendships formed.

Today we are walking along The River. We are avoiding people. We came off the path because Hawklad was struggling. The hood was over his head again. We headed in another direction as soon as an outsider came into view. If he couldn’t avoid them then he hid behind me. Down by The River he could hide away. He had the place to himself and he could tell his Dad all about the migrational pattern of Swift’s. It felt isolated but safe to him. Away from others. He’s comfortable with me and his best friends. Others just no way.

It feels like I have been here before.