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Who knows

Dog really wants to walk through that. I’m not so keen. Who wins the battle of minds.

I’ve got wet feet….

So the schools are here are due to go back next Monday. The hospitals are full to busting. Infection rates are rising fast.

The Government says the situation is in hand. The scientists and doctors are pleading for more action. They want schools to stay closed and use online education for a few weeks. The Government is resisting the move to that. They might stagger the return over a week with a good portion of pupils back in 7 days. They want to test all pupils with the unreliable, quick results method in the first week. That’s the answer apparently.

So as I’m writing this most parents just don’t know what’s happening next week.

I guess it doesn’t effect our little family that much. Hawklad is not starting back next week anyway. He just can’t. Maybe more online support will be opened up. How knows. We just have to make the best of it. Go with the flow.

It’s all such a huge mess.

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No one ever asks

It’s been a little wet over the last few days. The sheep have got themselves a couple of paddling pools. We might give those a miss. I guess no one will be to upset about that.

I have a questionnaire to fill out about school and it’s services. Looking at lots of areas.

Teaching quality, subject material, classroom facilities, school meals, communication, discipline, bullying, uniform, school transport, sports facilities, IT, websites, outside clubs…..

Lots and lots of areas. So many questions.

What’s revealing is not the questions being asked but those which are not asked. Ones which are never asked. Questions about Autism and Aspergers support. Dyslexia support. Learning Disability support.

No one ever asks. It’s not just our school. It’s across the board. No one ever asks. We live in a world driven by performance measures and league tables. Yet no one ever asks….

I wonder why that is.

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Worn out

It’s a cold, bleak start to the day. Kind of feels like a black and white photo is the way to go.

I was thinking about how a break would be most welcome. Especially today.

We all need a break every so often. Either a change. Or a time to relax. Or a chance to really let the hair down. A chance to experience new lands. Or just a time to breathe.

Don’t get me wrong. I know that I am so fortunate with my life. Far too many have so little and are in such dark place. But today I’m feeling just a little worn out. Tired. Thinking back to my last break back in 2015. A lots happened since then. Some good but some really bad. Since 2016 it’s been single Aspergers parenting, fighting the system for our son and trying to eke out an income to pay the bills. Feels like it’s been non stop. A few concerts with Hawklad and taking him to see the occasional sport event. A few walks and up to this year, trail runs. So yes things to be thankful for. But…

But today I just feel worn out. In need of a break. Even just a night away from the house. A different bed. It’s been over 5 years since I’ve done that. But deep down I know that’s not happening any time soon. Asperger parenting is something that you can just can’t drop. Certainly not for a few more years. Maybe longer. So it’s about finding other ways to feel less worn out. Exploiting the options that are open to me and also being thankful for what I have. There are such beautiful things in my life.

We can do this.

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Lines

Remind me not to fly my kite here.

It’s Christmas. Hawklad is happy. Very happy with his presents so far. Amazed that his Dad hasn’t messed up yet. Well apart from his new FIFA computer game seems to come wrapped with a free pair of scissors. I wondered where they disappeared to. Thankfully he has given me them back.

It’s an odd house these days. Probably something to do with it being completely MALE. Two humans, a dog, a cat, gerbils – all with an X and Y chromosome. That explains so much.

Maybe it explains one strange Christmas tradition. Hawklad has had that Santa conversation. So why do we still put out mince pies and a drink for Santa. A large pile of carrots for the reindeer’s. We even still draw lines on bits of paper pointing the big red fella to the location of the feast.

Maybe it’s time for someone to have that Santa conversation with ME…..

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Cinema

It’s that time of year. A definite feel to the movies we have watched. Can you see the theme.

Scrooged

Home Alone 1, 2, 3, 5

The Grinch

A Christmas Carol

Muppets Christmas Carol

The Santa Clause 1,2,3

Elf

National Lampoons Christmas Vacation

The Polar Express.

For me I just can’t quite catch the connection. Sure there must be one if I look hard enough.

One of the things that feels amiss this most odd year (that doesn’t work as 2020 is even) is the cinema experience. Before Hawklad we would always have a Christmas trip to the pictures (as my mum would have said). A meal before hand and then a movie. Such a lovely experience. So many wonderful memories.

Taking my mum to see The Horse Whisperer on Boxing Day. She hadn’t been to the pictures in 40 years. She was most puzzled not to watch the Pathe News segment before the movie. She refused to get up at the end and waited until the credits played through. Apparently she was waiting for the National Anthem to be played…

Trips with my partner to see huge blockbusters on Christmas Eve like the Lord of the Rings Movies. Then coming out in time to sing carols in the city centre.

Even after the world changed Hawklad and I kept the tradition going. A changed Aspergers tradition. We would take in the first, early morning screenings of movies like Jumanji and the Rise of Skywalker. Popcorn at 8am works on so many levels. Then we would go and get him his favourite takeout. All before midday.

But this year it’s no cinema. Any trip is just so out of reach for Hawklad and his anxieties. The world has changed. Even the prospect of Wonder Woman and Black Widow epics won’t overcome those fears. Maybe the trips to the Pictures have stopped for good. We will just have to see what the future holds but life goes on. It’s time to recreate that Christmas tradition at home. So we will pick a movie. A good movie. Set the dvd off at 8am. Microwaved popcorn in plentiful supply. The Christmas Cinema tradition continues.

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Fence

Which side of the fence is best?

I had a call with Hawklads new health specialist. She will (pesky pandemic dependent) come out to see him for the first time in January. Continuity is so important for someone on the spectrum. It takes time to earn trust and confidence. Those bridges when they come down are slow to be rebuilt. Having had a wonderful health lead for three years we are now in a spell of meet one, quickly see one disappear. Fingers crossed this time.

It’s clear what the medical opinion still is. Any meaningful progress is extremely unlikely until this virus is well under control. When it’s clear that the vaccine which has been administered works effectively and does protect. Only then can any progress be realistically contemplated. Prepare to bunker down for 2021. 2022 might be the first gateway to a more open life for our little family. I also have to accept the risk that progress does not happen for Hawklad. Bridges are not built. This is the new world.

I remain clear. It’s Hawklads life. He makes the call. I will support which ever route he goes down.

So will he return to school in January? Most likely NO. Will he make it back before the end of the school year in July. Probably NO. Will he start the new school year in September. Definitely no guarantee.

It feels like we are in one side of a fence. The side that feels limited but safe. The other side of the fence opens up the world, broadens his horizons but…….

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Another day

Another day and yet more mist.

It’s been one of those days when apart from Hawklad, I haven’t seen another member of my species. Not one person walking the fields. No one walking in the village. Not one soul. In fact I haven’t even see one moving car. With the mist no chance to see aeroplanes. Nothing. No sign of human life. Its officially a GHOST TOWN. Time to FROWN…

Well Ghost Village. Time to PILLAGE. That maybe is my Viking ancestry.

The only other option entering my frazzled mind is. Living in a Ghost Village. Better listen to some Steve Hillage. I once had one of his albums.

Anyway you get the picture. ISOLATION.

Definitely the perfect metaphor for 2020. ISOLATION and learning to really appreciate what I have. It’s definitely been a defining year. Sadly the year has done nothing for my poetry skills….

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Something needs to change

I was talking to a colleague about the lack of work currently. The company will probably survive but it’s going to be many months before things start to slowly pick up. Is it just me but currently I‘m not missing it. Yes the bank balance is only going in one direction but as for work – not really in the mood for it.

Anyway this chap has a son on the spectrum. He’s a lovely, really bright boy. A couple of years older than Hawklad. It’s a depressingly familiar school story. Hardly any support. It’s all down to him to put his hand up in class and ask for help. Nothing proactive. The teaching is not suiting him. He’s going backwards. His potential grades are falling and it’s not ringing any alarm bells. It’s because he is Special Needs. The bar is set low so that there is no need to work on potential. Anything is seen as a bonus. What a waste.

Too many wonderful kids get let down like this. How can we have got education so badly wrong here. Something needs to change.

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Curve ball

Definite curve ball from school today.

I have wrote about the problems Hawklad has been having with French classes at school. The way the subject is taught just don’t suit him. Dyslexia complicates the learning process. Being at home adds to the difficulties.

I have been trying to get the school to modify the teaching approach in this one subject. Even switch the language to one which better suits him and one he is more interested in. Basically met with a brick wall. Then today’s curve ball.

The school doesn’t feel that he will be able to pass exams in this subject due to his learning issues. So they are now recommending that he drops the subject completely. Undertake no language learning at all. He would use the French class time to work on his other subjects.

So rather than try other learning routes they just want to ditch the subject. I’m kind of speechless. Will let Hawklad decide what happens next. BUT my initial take is that

…..Sadly it reflects the lack of flexibility in the UK teaching system. It also reflects the general approach schools take with those pupils who have learning disabilities.

Posted on by bereavedandbeingasingleparent · 63 Comments

Hanging on

Sometimes you just have to hang on. Just one leaf hanging on in a sea of wood. All alone. Looking at all the fallen brethren on the ground, now very brown and shrivelled. Feeling a little left out. Forgotten about. How long can it hang there for.

Somedays it does feel that way to me. Just hanging on. Trying to survive.

But just like this little green bit of life – IT CAN BE DONE. It is possible to survive against the odds. Even when the odds are seemingly stacked against you, there is always hope. If you look hard enough there will be a connection, something to cling on to. Something to keep you going. Something so precious to you.

Yes I can do this. Yes you can do this.