Posted on by bereavedandbeingasingleparent · 50 Comments

Eat chocolate

I received a lovely present today in the post. The government support package for Hawklad will expire soon. So I need to reapply. Helpfully they have sent the 50 page application form to complete. I can’t submit the old paperwork and need to have more recent assessments and evidence. That’s a nightmare at the best of times but during a pandemic!!!!!!!

Only thing for it….. A bar of dark chocolate, a decaf coffee and listen to some angry music. Today’s choice, the latest from Roger Waters. That’s one seriously cheesed off artist recording those songs. That fits as that’s the music I would make today. Normal people are forced to jump through hoop after hoop for their kids yet friends of the Government are awarded multi million pound contracts without any due process. Roger Waters would certainly get the irony.

Well I then made a start. Book an appointment for a new assessment from a Paediatrician. On the waiting list. That’s currently a one year wait and growing. It’s a start…. Where’s the next chocolate bar.

But here’s the really scary thing. Our Son is fortunate as he has had some support. We somehow battled through the intentionally difficult minefield to get that. So many are either unsuccessful or are just missed. That’s the children, adult support is almost none existent. Discarded by our society that has its priorities so badly skewed. What’s the answer. Certainly to keep fighting. Most definitely to eat chocolate.

Posted on by bereavedandbeingasingleparent · 68 Comments

Wean myself off

This was last year. One hour into my trail run. Apart from missing the exercise I hope you can see why I miss running free.

Eventually you have to accept reality.

Hawklad’s anxieties are still rising. More routine tasks are becoming more difficult for him. He can largely control the dynamics within our house and garden. Lots of washing, extensive quarantining of items and being careful what he touches. He is ok within his castle walls. He is not ok with me venturing out.

Beyond those walls and that’s a completely different world. An alien, dangerous world to him. His doctors are clear – this will take a very long time to start to address. It’s not going to start happening until a pandemic is well behind us and as one of our leading scientists pointed out – with a fair wind we may start returning to something like normal life at the end of 2021. That’s assuming the new vaccines work and roll out soon….

So for me the reality is that our personal lockdown will likely stretch through 2021 as well. My mindset has to change. Away from getting through the next few months TO living the much longer new reality.

So back to the photograph. Running has become a bit of a drug for me. Now I have to completely wean myself off that. I’m nearly there as it’s been so long without it. Time to permanently replace it with other things.

Posted on by bereavedandbeingasingleparent · 50 Comments

New world

The sky is always adapting and changing. Constant motion. Never staying the same.

I was thinking about how life moves on. How life sends you down roads that force changes to your world, to your lifestyle, to your way of thinking. But often you still have to go in that direction. It’s seemingly beyond our control. That is so stressful.

The question for me is whether this stress comes from trying to resist the inevitable or it comes from not adjusting to the new world!

I suspect that it’s a bit of both. Initially fighting being pushed down a life path but then eventually coming to the realisation that it is futile to fight this. What’s the line from The Avengers movie. I AM INEVITABLE….

Now I increasingly find myself saying IT IS WHAT IT IS. But then I have a tendency to then do nothing about the new world. Even when my old self clearly does not match the present anymore. That causes stress. It also risks just surviving and not living.

At least I now realise it’s time for a major rethink.

Posted on by bereavedandbeingasingleparent · 63 Comments

Short movies

“Dad can we switch this movie off. I’m feeling very uncomfortable with this.”

Son loves Marvel movies but for some reason he just can’t handle Spider-Man Homecoming. It’s just that one movie. The other Spider-Man movies he really enjoys. Certain movies just throw him. It starts off with him fidgeting then he is not able to look at the screen. Then he starts to pacing about. Finally he has to leave the room until it’s switched. Last night a few minutes later he was happily watching a Wolverine movie.

I remember the first film he did this with. We had gone to see Hotel Transylvania at the cinema. Within 15 minutes we had left. We ended up watching another movie and he enjoyed it.

So some movies just get to him. The last Joker movie is another we switched off quickly yet he loves all the other Batman films, even the much darker ones.

It’s so unpredictable. Just can’t anticipate these movie meltdowns. The problem movies don’t have a common theme. Last year a nondescript Disney Christmas movie set him off. At Easter the Pixar movie UP caused another meltdown. It’s not that they are scary. They are not more sensory than other ones. Not louder and not more violent. It’s not about death. We have never been able to pin the reason down.

But at least he knows that as soon as he gets the feeling that a movie is wrong then he can just switch it off. No questions will be asked and we will find another one to watch.

“Dad it’s like you and your football team. ”

He is so right. These days watching them play is deeply unsettling and often requires me to look the other way….

Posted on by bereavedandbeingasingleparent · 79 Comments

Tai Chi for Lego

Stress, anxiety, nerves.

For years the best tool I had to combat these pesky fellas was running. Lots of it. It almost became a daily fix for this bumbling muppet. But 2020 has completely curtailed that. So I strive for my new Excalibur.

The three best candidates so far are

Winning the lottery (still working on that, I guess it would help if I bought a lottery ticket),

Yoga,

Tai Chi.

So in reality it’s down to the later two candidates. It’s early days, we may need a few more recounts but it might be time to call a result. As ever my buddies the Mini Lego figures are keen to help out.

So I started out feeling a little unsure of myself but a few Scooby snacks encouraged me to give both mindfulness exercise regimes a go.

The first thing is that both approaches do require some comfy clothes. But it says nothing about how stylish for those have to be. You can get seriously creative. Maybe lime green circle shorts, or maybe something pinky purple or maybe something royally outrageous.

Both Yoga and Tai Chi do require you to commit to them. It takes much practice to master them. Balance is one thing you need to master. Although beards are not essential on the mat they may in fact help with balance and stability. False beards are available for those who can’t grow them…..

One thing you will notice is that both approaches have their own unique languages. Requests to perform a ‘bound lotus’ or ‘parting the wild horses main’ will frequently leave you with not the slightest ScoobyDoo of what is going on.

Then we come to the instructors. Be aware here. They start out sounding like your new best buddy but be careful. Look at some of the positions they bend you into – they must have a secret dark side.

Then we come to the end results. Well with dedication then just like Frankie both can be real body builders.

Are they good anxiety and stress busters? Yes if you find the right instructor. Find the wrong one and Tai Chi will leave you seriously red in the face as you try to master the meditative breathing routines.

Which actually is much better than Yoga which can definitely release the inner anger when you get painfully stuck in the Formidable Face Pose.

And finally the big difference I noticed between the two approaches to body and soul health. With Tai Chi I feel like I am still in one piece after completing a session.

Unfortunately the same can not be said for yoga. Often after one to many ‘nice detoxifying hip openers’ I feel something akin to this….

And please remember that for whatever exercise you opt for please be mindful of others and maintain effective social distancing.

Namaste….

Posted on by bereavedandbeingasingleparent · 54 Comments

School

That’s as clear as it’s been so far today. The mist lifted for a few minutes but far too quickly returned.

In the UK the Government’s handling of the pandemic has been an absolute shambles and that’s putting it mildly. Sometimes following the science, sometimes following politics, sometimes it’s all about common sense, sometimes it’s about enforcing rules but then not applying those rules to themselves. Telling people a national lockdown would be an unnecessary madness then days later enforcing one. Banning many safe activities but allowing other much riskier things to continue. Dithering on things like masks, testing and social distancing. Culminating in telling the public to go out and mix as it’s our civic duty to get the economy going THEN weeks later blaming people for meeting up and causing the virus to spread again.

It’s just a complete mess. So how tough must it be for schools to operate in these circumstances. All major social gatherings are banned but schools are instructed to stay open. My beef here is not with headteachers but with those above them….

We received an email from our school yesterday trying to set out the current rules. To summarise

  • Even though the country has entered a national lockdown the School remains open but large numbers of pupils and staff are isolating. The school has a number of confirmed cases. Pupils and staff are struggling to get tests undertaken.
  • Pupils must attend school unless they have written confirmation from a Doctor that they are not medically cleared. Even if a pupil is clinically vulnerable they must attend unless a doctor has signed them off.
  • If the pupil lives in a household with someone who is clinically extremely vulnerable then the government line is that the pupil should still attend school.
  • If a pupil develops symptoms then the school recommends that the pupil isolates until a test is undertaken however this cannot be enforced due to Government rules.
  • If a pupil is legitimately unable to attend then they must use the online teaching systems. They must stick to school timetabling or punishments will be issued.
  • Masks should be worn on school buses, while walking in school corridors, visits to the toilet and while queuing for school meals. These will be enforced.
  • Masks can be worn outside school buildings and at times during classroom time but not when answering teacher questions or during group work. The wearing of masks in class cannot be enforced due to Government instructions.
  • Pupils are encouraged to observe 2m (6ft) social distancing outside of the classroom. Space does not permit that in classroom settings. The school is not currently allowed to install additional screening in the classrooms.
  • Pupils must not mix with pupils outside of their designated year group during the school day. That includes family members and close friends.
  • The school is still not permitted by the Government to make more general use of online tuition to free up space within the school.
  • During winter it will be necessary to keep many windows open for improved ventilation. Teachers have the discretion to allow pupils to wear coats if the classroom temperature drops. The wearing of hoodies or non school uniform is not permitted.
  • All out of school activities have had to be suspended due to Government instructions.
  • Due to the number of staff absences it is likely that a growing number of lessons will be taught by teachers who are not the normal class assigned one.

How stressful is this for children, staff and parents. Its such a mess which according to the Government is a bastion of best practice. We are told schools are perfectly safe, feature the highest standards of care and that it’s a parents civic duty to send their children into school……..

OK so here we start another week of homeschooling.

Posted on by bereavedandbeingasingleparent · 53 Comments

Yellow Pages

We are now into the second half term of the school year. That’s 8 more weeks of school at home. Hawklad is sat at home trying to do the class work. Absolutely no sign of his anxieties and fears abating. So our little family is definitely in this for the long run. The prospect of missing the complete school year is not seeming so far fetched now as he’s already missed a sixth ot it. It’s certainly no consolation that he is currently not alone in doing that. Significant numbers of the school are having to isolate. But the message is carry on, nothing to see here. So the country is in lockdown but the schools and universities are most definitely open.

So we carry on making the most of the situation we find ourselves in.

WE learn what we can.

WE includes the slightly bemused single parent.

“Dad can you help me with Citizenship. I’m stuck on one of the questions.”

He must have heard my sigh. I love helping but some subjects are just a bit of a chore. French, Design Technology, Drama (thankfully now dropped) and Citizenship. Citizenship seems to have moved on from learning about politics and how the country works. Now it’s all about drug, smoking and alcohol abuse. Not an easy area to explain to a teenager with Aspergers and anxieties.

“Dad can you look at the three photos and tell me which one is Cocaine, Spice and Marijuana. ”

Not a clue. Spice was apparently not the stuff you cook with (well I hope not).

“Have you ever taken drugs Dad then.”

Well yes to alcohol. Too much alcohol when I was younger. Thankfully completely tea total now. Apart from that it would just be the pain killers you get from the doctor. Nothing else.

Then I told him the only time I had kind of dabbled. When I was at University I went to a party and I was drinking with friends. None of us did any other drugs. Anyway one friend spotted someone smoking a joint. I can’t remember why but I was sent to try and get one for us to try. I thought it was a bad idea but that was the order. Anyway a few minutes we were passing round a fine yellow looking thing. We all agreed that it had no effect, wasn’t very good and it didn’t last very long. So I think that was hopefully the end of all our smoking drug habit.

I never did tell my friends what we were smoking. Not really your typical high. I had ripped up a page out of the telephone book. Rolled it into a cigarette shape. Yes we smoked a telephone book. It was yellow. Those in the UK may remember the Yellow Pages which each house got every year.

There you go. I’ve come clean.

Posted on by bereavedandbeingasingleparent · 52 Comments

Can walls come down

It’s like waiting for a bus. You wait ages and two come along at the same time. No posts about grief and then two arrive together.

It’s now four years since I lost my partner. Four years into the grief journey.

This morning I went to put the bin out onto the side of the road. When I looked down the street I noticed a ‘Sold Sign’ outside a house. It was outside the house of a couple I get on well with. Would often bump into them prior to the pandemic. Will be sad to see them leave. I know very few people in our small village now. The pandemic hasn’t helped but that’s the reality. Before the world changed for me in 2016 it was very much different. We knew many in the village. We would go to all the village events. Would visit people, people would visit us. Even when our son’s Aspergers stopped him going to village stuff, one parent would stay with him and the other could still go.

Then the world changed.

I didn’t want to venture out to these village do’s. I just wanted to build walls around myself. I lost touch with many. That was my bereavement. Not only did it rob me of my partner but it took many of my friends as well. That was partly my fault. The last thing I thought I wanted was company. It also didn’t feel right going out by myself. I had become programmed to being in a couple. Being single was something I had forgotten how to do. Most of my friends were now based on US being a couple. It must have been tough for those friends to adjust. To deal with someone grieving and now single. As a result over time many friends dropped off the radar. Increasing isolation. But at that time it was ok with me. It felt like how things should be. Me hiding behind the walls.

Then I began to change.

As my grief journey progressed suddenly those walls stopped being a useful self defence system. They became confines. Prison walls. Hemming me in. I came to realise just who much I missed company. Just maybe I had been wrong. When I was grieving and avoiding people, maybe that was when I needed company the most.

So now I’m trying to take those walls down. Sadly they go up easier than they come down. The pandemic doesn’t help. Being a single parent to a son with so many social fears certainly is restrictive. Also I’m nervous of social settings. But actually that’s not grief related, that’s going back to who I was when I was younger.

So here I am in 2020. Much further down the grief road now the question is can I bring those walls down.

Posted on by bereavedandbeingasingleparent · 63 Comments

Do you understand

It’s a dark old day here. This is midday…..

Sometimes it’s hard to tell from a photo but just past those buildings the land drops down quite steeply. Dropping about 150ft to sea level. Then it’s flat for miles. Sometimes it’s not easy to see these big details.

A few weeks back I was talking to my sister on the phone. I remember she said that I sounded ‘Happy’ and ‘was clearly doing well’. That’s odd as that day I was struggling. Feeling really low, down and so unhappy. Definitely not how my sister had seen me. That’s the thing about relationships. Often the people who should know you the best are the ones who actually get you the least. You can care and still not understand. You can care and still not really listen. You can care and still not see the reality.

Please don’t think I’m picking on my sister. We really care for each other but we don’t understand each other. I can think of so many in my life that applies to. Maybe it’s just me. Not prepared to share. Too quick to hide behind my smiling mask. But maybe we don’t often find people who truly understand us. Tuned into our thinking. Can see our pain and anxieties. Maybe that’s a rare gift. One we need to continue to search for.

Posted on by bereavedandbeingasingleparent · 44 Comments

Patchy

Sometimes nothing is better than spending a few minutes kicking fallen leaves randomly around the garden. It’s good to go back to childhood feelings again. Autumn is often a great time for that.

Today’s visit by our son’s health worker has been cancelled. She will try again in a few weeks. It is what it is. At least we are due to get some help, many are not so fortunate. We just have to accept that what support we do get is likely to be very patchy over the coming months. Yep, we will be travelling these roads for a long while to come.

If anything we have just started the journey. Son is still wracked with anxiety and fears. He is most definitely house and garden bound. No sign of progress as yet. Actually no sign if progress in ages. We are not talking a few days here. We are already 7 months into his isolation. We will be adding many more months to that. Realistically his anxieties have become intertwined with the wider pandemic situation. How can he improve, his anxieties ease when the country is still in pandemic mode. If he ventured out he would just end up seeing people wearing masks and frequently looking nervous. It feels like manning the battlements until things start to pick up again.

That’s where kicking fallen leaves comes in. It’s so important that Hawklad still enjoys life. Enjoys his childhood. We find ways to fill our small world with fun. Yes kicking leaves ticks all those boxes. AND it’s fun for his old Pop as well.