Posted on by bereavedandbeingasingleparent · 53 Comments

Yellow Pages

We are now into the second half term of the school year. That’s 8 more weeks of school at home. Hawklad is sat at home trying to do the class work. Absolutely no sign of his anxieties and fears abating. So our little family is definitely in this for the long run. The prospect of missing the complete school year is not seeming so far fetched now as he’s already missed a sixth ot it. It’s certainly no consolation that he is currently not alone in doing that. Significant numbers of the school are having to isolate. But the message is carry on, nothing to see here. So the country is in lockdown but the schools and universities are most definitely open.

So we carry on making the most of the situation we find ourselves in.

WE learn what we can.

WE includes the slightly bemused single parent.

“Dad can you help me with Citizenship. I’m stuck on one of the questions.”

He must have heard my sigh. I love helping but some subjects are just a bit of a chore. French, Design Technology, Drama (thankfully now dropped) and Citizenship. Citizenship seems to have moved on from learning about politics and how the country works. Now it’s all about drug, smoking and alcohol abuse. Not an easy area to explain to a teenager with Aspergers and anxieties.

“Dad can you look at the three photos and tell me which one is Cocaine, Spice and Marijuana. ”

Not a clue. Spice was apparently not the stuff you cook with (well I hope not).

“Have you ever taken drugs Dad then.”

Well yes to alcohol. Too much alcohol when I was younger. Thankfully completely tea total now. Apart from that it would just be the pain killers you get from the doctor. Nothing else.

Then I told him the only time I had kind of dabbled. When I was at University I went to a party and I was drinking with friends. None of us did any other drugs. Anyway one friend spotted someone smoking a joint. I can’t remember why but I was sent to try and get one for us to try. I thought it was a bad idea but that was the order. Anyway a few minutes we were passing round a fine yellow looking thing. We all agreed that it had no effect, wasn’t very good and it didn’t last very long. So I think that was hopefully the end of all our smoking drug habit.

I never did tell my friends what we were smoking. Not really your typical high. I had ripped up a page out of the telephone book. Rolled it into a cigarette shape. Yes we smoked a telephone book. It was yellow. Those in the UK may remember the Yellow Pages which each house got every year.

There you go. I’ve come clean.

Posted on by bereavedandbeingasingleparent · 92 Comments

A bit later

Moody midday.

So we now are in lockdown officially. I should dig out my tinned foil hat. Must admit I’ve not noticed any real difference so far. The dustbin wagon turned up on time. Next doors gardener has been busy. Not much four wheeled traffic on the roads but plenty of cyclists. The mole and badger have continued to dig up the lawn. Hawklad is doing his school at home work. I’m wandering around being a muppet. So same old same old.

Well when I say nothing has changed well that’s not quite true. Shopping wise it’s a different matter. Many of the nonessential shops have closed. And food shopping has returned to being a pain in the buttocks again. As soon as lockdown is mentioned the availability of gluten free foods and Hawklad’s favourite sausages takes a nose dive. I blame it on Boris.

I also blame it on Boris that I’m clearly an old fart…..

“Dad what on earth is that?”

It’s vinyl Son. A record. It’s the first Pink Floyd album…

This produced a bemused look on number one son. A bit later….

“Say that again. You didn’t have computers when you started school.”

No. Home computing was not yet a thing. In fact calculators had just come out but my school didn’t believe in them. We were expected to do stuff in our heads or use the dreaded slide rulers.

“What on earth is a slide ruler?”

Basically an analog mechanical calculation device that looks like a big ruler. It has scales on and you have to slide the middle bit of the ruler out to read the results off the scale.

Another bemused look. A bit later….

“Can I put the hot water bottle in the microwave to warm it a bit Dad.”

Don’t need to ask. In my day I would have had to fill it with boiling hot water from the kettle.

Another one of those looks. And finally this morning….

“Dad it’s a shame that you haven’t got some videos or DVDs which you taped of some TV shows you watched as a kid. I bet there is a load that you can’t buy now on Amazon. That would be fun to watch. ”

Hawklad when I was a kid even video had not been invented. We didn’t get them until the 80s.

“So how did you record stuff?”

We couldn’t. If you missed the show on the TV that was it. You had to just hope that it was repeated in a few months time.

And a really really really big one of those looks. Definitely feeling like an old fart…

Posted on by bereavedandbeingasingleparent · 46 Comments

Bin

Another day and another email from school. Another pupil has tested positive. I’ve lost count of the pupils isolating now. One year has about 80 isolating out of 130. Another year has about 60 isolating. Countless teachers can be added to the list. Sadly that’s what happens when a cramped and old fashioned school tries to operate at full capacity during a pandemic.

Unfortunately it’s a story being repeated across the England. The latest figures show that last week 400000 pupils were have to isolate. 50000 pupils had either tested positive or were suspected as having the virus. It’s almost as if the Government is trying to get as many of our children infected as possible.

Surely it’s time to bring in better controls within our schools. For a start opening up online education options to all pupils has to be done as a matter of urgency. That would instantly create space in classrooms. Cramped and overcrowded classrooms have to be consigned to the bin.

Posted on by bereavedandbeingasingleparent · 40 Comments

Childhood

So many pupils from our son’s year group are isolating. I’m also hearing that other pupils are being asked to isolate in other year groups as well. Many teachers are off. It’s all a bit of a mess really. Many schools are like this in the UK. They don’t feel like environments conducive to learning at present.

These are stressful times for many. I’m not sure the Government understands this. Or chooses to ignore this. Bland statements that ‘schools are the best place for children’ are recited everyday. It might be in terms of the Economy but….

Some children need to be in school. Some need to be at home. They definitely need to have the chance to have a childhood. A good childhood. It’s often too easily forgotten how much stress and anxiety they are under. Unable to see friends. Unable to do some of the stuff they love. Living in a stress filled world with so much confusion. Told to wear masks in buses and shops, yet told not wear them in classrooms. Frequent enforced teacher switches. Many sadly forced to isolate or deal with the actual virus. Living in a small world with few holidays and adventures. Watching never ending grim news reports. How much stress are many of our children under. We have to do something about this. To me that’s more important than the short term needs of the economy.

Our son is racked with anxiety. Too much to allow him to venture through the front gate. A significant part of his precious childhood is being spent in isolation. That’s hard to take as a parent. All I can do is to keep him feeling safe, try to shutout the bad stuff from the world and to try to find ways to help him still enjoy his childhood. He’s had a tough one already. Loss of his mum, coming to terms with Aspergers and now a Pandemic. That’s why I’ve got to work all the more harder. There’s still a childhood to be enjoyed.

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3am

Last night I was tired. Unusually tired for me. But it was one of those pesky tired setups. During the evening I could feel myself nodding off. Plenty of those ‘just starting to drift off while sat on the settee – then suddenly woken by those cataclysmic sudden neck snapping forward’ moments. This went on all evening until it was bed time. But then I just wasn’t tired. Pigging fiddlesticks……

Finally sleep came but all too soon…..

“DAD, DAAAAAADDDD!”

What’s up son.

“Dad I’ve forgotten, sorry we’ve forgotten the art assignment.”

Ooh yeh, that one that isn’t due in until the 12th.

“That’s the one, But ITS THE 12th.”

Oh big pants. Can you do it as soon as you get up?

“No it’s due at the start of the first lesson.”

***********

I could see by the look in his eyes that until it was done, sleep would be impossible. So a few minutes later I was in the kitchen making hot drinks. Years ago a late night session would have had a very different meaning to tonight’s version. 3am and rocking out to Japanese Art.

Basically I sat there looking vacant, occasionally nodding (in a of course I knew that kinda way) and asking Google such questions as ‘what on earth does wabi and sabi mean’. It took an hour before Hawklad had convinced himself that he had done enough. The school panic in his world was over. His completed presentation was significantly more robust than his Dads initial suggestive assignment text

Japanese Art is cool but Godzilla is real cool. Now it’s time for bed….

Hawklad got to bed and immediately fell asleep. I guess at about 4.30am I found some sleep. I woke up a couple of hours later with one overriding thought. How can you write two pages on Japanese Art and not mention Godzilla‘s Atomic Breath just once. What has become of Art.

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Which way

In life you get asked so many questions. But some questions keep repeating themselves. Like the classics ‘Are we there yet?’ and ‘where’s the remote control?’.

Then there are other questions. More vexing questions. One question keeps popping up. I’ve been asked this by family members, other parents, teachers and even once a nurse. It does have a number of variants but it’s basically the same question

Will your son get better?

Will his Aspergers improve?

Will his Aspergers improve as he gets older?

I’m no clinical specialist. Just a bumbling parent. But here’s my take on the question.

Aspergers is a lifelong syndrome. It’s not going to get better. Its not going to be cured. It’s not going to disappear. What might change is that over time the individual and the family may develop strategies to help deal better with some of the situations life will throw at them. Also some of the specific symptoms may fluctuate over time. For example in a number of individuals something like repetitive hand flapping may become less prevalent with age. Also Aspergers often coexists with a number of other conditions – dyspraxia, ADHD, dyslexia…. It is possible that some of these conditions could improve with time. For example our son has with hard work started to overcome some of the issues which his dyspraxia and dyslexia had caused him in his earlier years.

So yes it is possible that improvements may occur. But here’s the thing, it’s not guaranteed. Each individual case is different, unique. Things may stay the same with age. They can also get worse with age.

So we just don’t know.

The Clinical Psychologist who did the full review of our Son was quite clear. The majority of his Aspergers related traits will stay with him over his life. However at around the teenage period changes may start to occur. It could go either way. He could become fully independent or he may regress and may need some form of life long support. She talked through a number of possible scenarios. One scenario was that some improvements would occur potentially in the areas of dyslexia and the diminishing of some of the repetitive behaviours. Another scenario painted a downturn in his existing anxieties and fears. This could occur naturally during his teenage years or could be triggered by a single significant event which effects his view of the world. Tips the balance in his risk assessments of the world. This could lead to significant mental health concerns and potentially social isolation. Where we are sat currently, we are not a million miles away from that scenario. The triggers – the death of his mum, a pandemic, his teenage years…. He is currently physically cut adrift from the world. His fears and anxieties ramped up to the rafters.

Nothing is set in stone. We just have to go with the flow and see what life brings. It could be still be a fully independent life. But it could also entail a lifelong requirement for support. In this country we don’t cater for the latter scenario. Support has to be fought and won for young children. That support is at best is patchy. During the teenage years the support tends to be reduced due to funding cut backs. By early adulthood the support has completely vanished. That’s a sobering thought for parents in this position. It really is.

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Revolution

I was asked about if our son was any closer returning to school. This is his fourth week at home since the school returned full time. Well two things from today really paint the picture.

First an email from school advising that the school had now had its second confirmed case. This time a member of staff. Apparently the confirmed cases so far are not considered to be linked. A small number of individuals have been asked to isolate for 14 days and the school remains fully open.

The second was a conversation with our son. His words need no more elaboration.

“Dad I go into meltdown if the bedroom window is open. In fact I can’t even touch the window handle to close it. I just can’t go back. Can’t go back for some time to come.”

And there is our answer in a nutshell. At present government ministers are telling parents to ensure there kids go to school as it’s perfectly safe and is in fact our civic duty. To not do now apparently makes you a bad parent, someone who is not acting responsibly. Must get those words on a T-shirt.

I will continue to act irresponsibly and avoid doing my civic duty. Our son will return to school when he is ready to do so, when it is safe and when he is comfortable doing that. Until then – Viva La Revolution…..

L

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School, school, school

Captain Chaos is carefully guarding his new great tasting toys.

That Apple Tree needs a serious trim. I had a go today. Managed to fall out of the tree. Bruised shoulder but the fall ended with a fabulous forward role which was perfectly landed. The boy has still got the moves…..

School definitely still has some moves. Sadly not always great ones.

We are in the early stages of a long road trying to manage and help with our son’s serious anxieties. Anxieties about illness, unclean things, viruses and diseases. It’s so easy to tip him further into the realms of excessive hand washing and isolation. Yesterday started off heading a little too close to the rocks. News broke that the small local cafe had to close as two members of staff had tested positive for the pesky pandemic. I’ve managed to keep that from him so far. I can imagine his reaction to the thought that the pandemic was only a couple of miles away.

So while I was managing the news – SCHOOL got to work. Firstly an email was sent to him letting him know that the virus had arrived at the school. Then we got to the Food Technology lesson. All about poisoning, bacteria and viruses associated with food. James was asked to research the main offenders, the symptoms and the associated health risks. So now food has been added to his worry list.

A rather cheesed off email was sent to school…..

And today in Science it was all about diseases. The class being asked to research childhood diseases and viruses. Further they were asked to look at the risk of inherited medical problems.

Thanks that was a big help….

You couldn’t make it up…..

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Strain

After 36 hours the rain finally stopped. How long before the broadband dries out enough to start working again? My poor mobile and it’s dodgy 4G signal are having to try and take up the strain. It’s struggling.

Strain is a quite a good word for the day.

I was trying to do my Sunday morning yoga. My online yoga expert Adriene is always very calm but even she sounds strained when she keeps freezing due to signal problems. Yoga is definitely not without stress when I keep having to try and reload the app as it’s crashed. It’s also a strain when you try to keep balanced when a dog is trying to lick my face and the big boy cat is trying to use the yoga mat as a scratching toy. Yoga is supposed to be a good fit with life. It does feel that way. Today trying to hold a position which is supposed to be good for me. Actually the longer it goes on it feels less good and more a strain.

Strain….. Trying to be ahead of the curve and get Hawklads Christmas presents sorted early. This year will not allow me the fun of Christmas shopping in the local city so its online only. I worked hard to come up with 6 ideas. Unfortunately 5 of those are already out of stock. Maybe others are further ahead of the curve than I am … Shopping strain.

Strain…..Not being able to find my bank card to pay for the one Christmas item… Bank card strain.

Strain….. Finally finding the bank card but then nit being able to find my glasses to read card numbers… Eye Strain.

Strain….. That’s now three weeks without any feedback on work Hawklad has submitted. Is it even been looked at?

“Dad what we should do is for one subject not submit any work, rather we should send them a few screenshots of FIFA20. See what happens!!!!”

I’m so tempted to let him go ahead with his experiment. Maybe this week. It’s frustrating as it does look like it’s school at home for at least the next 3 months. Clearly unless the school is forced to shut and go full online tuition then things aren’t going to improve. This is it. It’s something but far from perfect. Will keep pushing school but I have a sinking feeling…. School strain.

Strain….. Trying to clean the kitchen and bathroom floors……. Knee strain.

Strain….. Trying to wash the house windows…….. Elbow strain.

Finally the thought of trying to get these words uploaded via the mobile. Not being able to easily read the posts I want to read. WP strain.

So yes definitely Sunday Strains.

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Questions

This is a little tree which is close to our house. It sits at the side of the farmers field which backs onto our garden. It’s close by as a couple of my garden football shots have nearly hit it….. In the years that we have lived here it has never grown. It just seems to lean over a little further each year. I know how it feels…..

So many questions today. So many school work queries.

“Dad what are your thoughts on Gladstone‘s and Disraeli‘s political reforming achievements. They didn’t go far enough and do you think their colonial record negated what good they did do?”

“Dad what do you know about DNA structure and it’s impact on identical and fraternal twins?”

“Dad how would you write the mass of the earth in standard notation?”

“Dad in Animal Farm what does the character Moses represent and his relationship to Soviet history?”

“Dad have you ever studied John Agard’s poem FLAGS. Is it about the dangers of patriotism?”

“Dad I can’t get my head round French Verb Conjugation. Can you explain it to me?

As any self respecting parent would do I looked suitably vacant and thought wishfully back to the questions about which was my favourite Tellytubby. I was good at those questions.