aspergers – Page 30 – A Dad trying to cope with the loss of his Partner and becoming a single parent.

Posted on February 25, 2021February 25, 2021 by bereavedandbeingasingleparent · 60 Comments

Weather

It’s horrid weather today so let’s go back a few weeks. That’s better.

I heard someone from the Government brush off a parent talking about her daughters genuine fears and phobias about returning to school. Her daughter doesn’t think her classroom and school is safe enough. From the sound of it her daughter is in a similar place to Hawklad. Really struggling. The interviewer cut off the parent saying that she was in the minority and the vast majority would see things much more positively. The message from the Government followed instantly. People and kids who had concerns and fears needed to listen to the majority. Schools are completely safe, just get on with it. Parents have an obligation to send their children into schools when they open.

Meanwhile back here the NHS Psychologist is just at the early stages of a treatment programme to try and help with Hawklad’s deep seated anxieties. No guarantee that the programme will ever work. This week’s task is for Hawklad to try and stand in the front garden for 1 minute. The message is don’t worry if you can’t do that. Even a few seconds will be a massive leap of faith. And if he can’t do it at all then we can try another week. Pushing people with significant fears and ingrained anxieties can do so much harm to their long term mental health.

The Government and the ‘Majority’ are not trained mental health practitioners. They have absolutely no idea what some people are going through. On this issue they can stand out in the rain and whistle for all I care.

Posted on February 25, 2021February 26, 2021 by bereavedandbeingasingleparent · 59 Comments

Frustration

It looks like Yorkshire. It feels like Yorkshire. Its moody, dark, windy and cold. It is Yorkshire. Some places are perfect for growing olives, oranges, pineapples and coconuts. The climate in some places are just perfect for fantastic wine. Here in Yorkshire the climate is perfect for Rhubard…..says it all doesn’t it.

How difficult can a Science test be.

The answer – a nightmare.

40 minutes to complete 20 questions. Sounds easy. Questions about Pressure, Force, Springs and Moments. Not easy for Hawklad but seemed to get there. Worked stuff out in his head. But that’s only part the story. The real story is trying to get the answers to the teacher. He can answer the questions in his head but then struggles to record them. It’s such an effort to type or write for him that he losses the answers he has in his mind. He can confuse himself or just forget. Even trying to write and type as he goes along doesn’t work, it seems to disrupt his thinking. Ends up going round in circles.

The other option is a scribe. But talking out aloud makes him nervous and makes it harder for him to answer correctly. Often what he describes is different to the answer he has visualised.

How frustrating must that be.

Posted on February 24, 2021February 25, 2021 by bereavedandbeingasingleparent · 46 Comments

Garage

Who would have thought a year a go that a trip to the garage would so resemble a decontamination scene from the movie Outbreak. You arrive and you are greeted by someone in a full face Perspex visor and gloves. A clear bag is held out at arms length for me to drop my car keys into. They are sprayed with something before the bag is closed. I’m asked a number of health questions and told to keep my face mask on at all times. Then ushered into the building through a roped off side door. I’m then directed to a clear screen and the masked service engineer discuss my 4 wheeled bag of rust. I’m then pointed to a tray with a car key – clearly recently sprayed. After I have picked the key up another person with full head protection takes through a separate door and pointed towards the service pool car parked in a separate roped off part of the car park. I’m then given verbal instructions on how to return with the car. I have to park next to the car wash in the roped off return zone.

Wow.

Kind of makes me wish I had cleaned my car now. It is a right state. Feeling guilty about that….

And if you think that’s decontamination. It’s not a patch on what I had to go through on my return to our house. Hawklad wasn’t taking any chances.

Posted on February 23, 2021February 23, 2021 by bereavedandbeingasingleparent · 32 Comments

Pop Art

And still it shrinks. I’m going to miss it when it’s gone.

Back to school at home and back to the daily fun…. Started with the usual happy pep talk from a teacher. To paraphrase.

‘Remember I’ve set some work before the week off. It’s voluntary but I can see what people have done and how long you have spent on it. I am checking….I’m about to do your assessment….”

Ok….

Then I accidentally phoned the school. Who hasn’t done the ‘put the mobile in your back trouser pocket just to see how long it takes for your bum to unlock the phone and dial a number’ trick. The mobile can’t have been in the pocket for 2 minutes before suddenly I heard a strange voice coming from my nether regions. How is it that it takes me hours to figure out how to unlock the mobile, find the phone app, then repeatedly fail to type in the number. Yet my butt can unlock the phone and successfully call someone in a fraction of that time…..

So after I had apologised to school reception it was back to the usual fight with submitting pieces of work and trying to find the class work on Teams. Fights with explanations, hidden meanings and unclear instructions.

Quickly followed by the ritual Dad humiliation.

“Dad apart from Andy Warhol what other Pop Art practitioners can you name.”

Erm……..

“Ok can you at least name a few famous Pop Art pieces and before you say it, NO Godzilla doesn’t count.”

Erm there was that picture with about 100 Madonna’s replicated.

“Dad. You mean Monroe and it was 50 times…”

That’s the one. Then there was the soup tin. Erm Andy Warhol was in Men in Black 3, does that count?

So basically no help…….

But maybe my backside could become Pop Art. Probably not. Not sure how big the canvas would have to be to get 50 replicas of my butt on. But if they could then I could literally be sat on an important piece of avant garde culture. Sat on a fortune.

Posted on February 23, 2021February 22, 2021 by bereavedandbeingasingleparent · 41 Comments

Blink

Blink and it’s gone. Blue sky.

I remember back to my school days. Apart from living in caves and avoiding the dinosaurs, I was like most kids. Some stuff went in to my head easily, other stuff not so easily. Stuff about Physics, Mathematics and Geography went in. Subjects like History the dates would take a lot of effort to stick. Subjects like Chemistry I was ok. However French I was awful, it might as well have been a foreign language…. Biology I was not much better.

Today I was trying to help Hawklad understand Chemistry. He struggles to visualise chemical reactions. So trying to calculate reaction energy levels was a nightmare for him. Whatever we did he just couldn’t see it. That’s the thing with Hawklad, maybe that’s the thing with his Aspergers. He gets blind spots. They go beyond the dyslexia issues. With dyslexia if you read out the word then he can understand what he’s trying to learn. But these nothing seems to shed light for him. Some things he just can’t process and visualise. With a subject like French it’s a massive blind spot. History there are zero blind spots. But with other subjects he can understand most things really well but randomly encounters these blind spots.

Mathematics it’s decimals and volumes

Biology it’s cell structures and names

Design Technology it’s visualising 3D designs

Geography it’s grid references and grid lines

Physics it’s magnetism

Home Economics it’s cooking times

And Chemistry is chemical reaction equations

He can be going along swimmingly then encounter one of these areas and it completely stops him in his tracks. We kind of ignore them now. Blink and move on. Focus on all of the many areas he can make progress on. Hope that the blind spots don’t come up too many times in his main exams.

At the moment that’s our plan.

Posted on February 18, 2021February 17, 2021 by bereavedandbeingasingleparent · 50 Comments

Shrinkage

The snow has gone. The temporary lake is starting to shrink. Signs that Spring is on its way.

Another work call confirming that the work plans involving me are as empty as the tyres on my bike which hasn’t been used since 2019. Thats completely airless. Not going to loose any sleep over that. No point. Maybe next year. A quick scan of the new job situation indicates a job market that is as fiat as my last loaf of bread which actually reduced in size when it should have risen. It really is just a case of battening down the hatches until things pick up again.

In our case that is not a band thing.

Hawklads fears are still there. If anything a bit worse. Absolutely zero chance of him being able to cope in the outside world any time soon. Getting through the front door is too much at present for him. Even me venturing out into the front garden really spooked him. So that’s stopped. The Front Door has not been unlocked in days. Once a day I sneak out the back gate and feed the birds, check on the rust bucket car, put the rubbish into the bin and pick up any deliveries that are sat on the front step.

Our world has shrunk further. The house and the back garden now is all that’s left. So no work allows me the time to focus on Hawklad. Try to give him the support he needs. Try to give him a reasonable quality of life and as much fun as can be found.

Hopefully Spring will arrive and the garden will become more enticing. It will be nice to sit outside with a coffee without 25 layers on. But I will miss our lake…. miss the world.

Posted on February 17, 2021 by bereavedandbeingasingleparent · 93 Comments

Cut the grass

I know it’s all gone but the field looks better for it….So let’s go back to just before the thaw.

I was sat in my car. It hadn’t moved in weeks so I thought I had better run the engine for a bit. Reverse it a few times up and down the our little drive. Make sure the brakes haven’t seized up. If I was sat for weeks my knees would definitely have stopped working. I was looking at the three peddles and scratching my head. I had forgotten which one was the clutch. After a few test presses I sussed them out again. Clearly driving doesn’t come naturally to me.

That’s probably very like parenting with me as well. I’m probably better at being the kid than the one apparently in charge.

Then a worrying thought. What if I’m getting this parenting lark completely wrong. What if I’m making things worse for a Hawklad. Who knows. I’ve never been assessed. It was easy when there was two parents. Someone would tell me if I was wrong. A quietly whispered ‘tell you what why don’t you go and cut the grass and I will do that’. But then that abruptly stopped in 2016. This summer it will be 5 years of me parenting solo. No checks. No assistance. No manual. Doing this all by myself. Over those years there were many times I would have definitely told myself to go outside and cut the grass.

What if I’ve got this wrong….

Would my partner have done it differently. Probably. We often politely disagreed. Even down to how to change a nappy. She wanted him to go to a different school. Was she right? She had a different view on the approach that should be taken with his Aspergers and Dyslexia. Have I been too laid back on the implementation of his Education and Health Care Plan. Have I done all I could for him. Have I missed something which would help him with his fears and phobias.

I guess the answer is that I will never know. All I can do is my best. Hope I get most things kinda right. Hope I don’t drop too many balls along the way. Maybe even find the time to cut the grass.

Posted on February 13, 2021February 13, 2021 by bereavedandbeingasingleparent · 92 Comments

Who do I listen to

Another day and another pompous government minister telling the kids what best for them. Not listening. Not accepting differences. Not accepting that some will be ready to jump back into life, others will not. Not accepting that his form of education is really about serving his needs and the economy. Not prepared to listen and work with what individual children and families need. Wanting schools to go backwards towards Victorian values. Totally against the notion of moving schools forward and turning them into wonderful places of learning and personal growth. To make them enjoyable and yes FUN. But what do we know, he clearly knows best. Just do what we are told.

So this middle aged pompous bloke will shut up and tell you exactly how Hawklad sees where he is. This is what he told me last night when I LISTENED to him.

I love to go back to school. But not because of the teaching. To meet up with my friends again.
Most of the teaching is so not me. Doesn’t suit me.
I hate being told what to learn and how to learn it. Getting no choice. Being told what to think and how to remember it
Hate always worrying about breaking the rules. Worrying about getting negatives.
Hate having to put my hand up in a lesson and ask for help. It’s so hard in front of all the other classmates admitting I can’t read something.
Being told it’s perfectly safe to go to school when I know I can catch covid. Being crammed in a class with someone who might have it and not know it. Having to share equipment without them being cleaned. Then being told that I won’t get the vaccine as I’m low risk. Reading about mutations that no one seems to understand. To me school is not safe at all. Just can’t go back for a long time. Until it’s really under control. Until I’ve been vaccinated with something that really works. Until I get some space in school.

That says it all to this middle aged pompous chap. Tells me where he is. That’s who I will listen to. Not some pompous government minister living his closeted life who doesn’t care and doesn’t listen.

Posted on February 12, 2021February 11, 2021 by bereavedandbeingasingleparent · 89 Comments

Origami

Tracks. Can you guess the little visitor?

***********

“Dad I’m not happy…”

What’s wrong?

“School. Apparently they think that origami is a fun activity”

Well many would agree.

“Not here they won’t. So when a teacher says ‘I have a fun activity for you‘ I personally would not be then referring to origami. I am tempted to contact my lawyer on this.”

Oops

I’m conscious that the posts have been a little dark recently. Let’s try to have a fun one…

This lake is only 3 miles from us. 3 miles of forest, farmland and rolling hills. Only 3 miles but seems so far away. Has it really been a year since we were here last. Wow.

Where does time go.

I was looking at some old photos for Swiss Sunday when I came across two old ones. Back to when someone was a toddler.

Someone asked if he could have Dads sunglasses.

Oh look Dad I’ve pulled your sunglasses apart.

Where does the time go.