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A story to tell – one

We all have a story to tell. All stories are just as valid and important as the next one. Sadly many stories are not told. Well actually that’s incorrect. Sadly many stories are not heard. They are replaced by stereotypes. Too many jumping to conclusions. A view that fits better into the needs of so called modern society.

This week again stories of single parents coming from The Government and it’s Friends. Scrounging off society. Shying away from work. A life of luxury…. That fits in with the message. BUT Cut to a supermarket. A parent is struggling to control a child. Those knowing looks and tuts from other shoppers. They have no idea of the back story. Just how tired that parent is. Trying to figure out a way to feed the family with so little money. Trying to cope with zero help. Being crushed by anxiety and living no life at all. Crushed by circumstances. It’s often easier for some people to cast the first stone rather than offer a hand of support.

The story of kids with Autism and Aspergers again often not heard. Drowned out by stereotypes and unfounded assumptions. Each and every child is different, unique. Each child has their own back story. But so often we here – uncaring, cold, demonic, unfeeling, lacking empathy, no sense of humour, unable to love, a burden on society, low attainment, not really like a kid should be.

Wrong, wrong , wrong. Every child is unique. That’s the point of this blog. Others bloggers do it far better than my drivel. But we try to show the real story of our kids. Hawklad has Aspergers yet he can be funny, caring, have empathy, play games, understand others, be funny, have talents, be lovely, have dreams they want to achieve, have a sense of humour and love. All kids deserve a chance. Deserve a childhood. All kids.

Everyone has a unique story. Maybe as a society we need to start listening.

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Online Education

Red sky – delight or warning?

For a couple of weeks I had been thinking about doing a list of things which might help make homeschooling work. But then Robyn published her wonderful post about Successful Online Learning. Robyn said it way better than I could ever do, so I thought let’s forget about my post. But then the inner muppet took over. How about tips on making a complete dogs dinner of Online Learning. I can do that. So here goes a Muppet Guide to Homeschooling.

  • Don’t bother checking the unused school bags which have been sat next to the front door since March. There is absolutely no chance that half eaten sandwiches and bananas might be still squashed in there. Even less chance that damp PE kit might still be festering under the mouldy school lunch.
  • Make sure you buy new and expensive school uniform items a week before schools shutdown for a pandemic. Absolutely no possibility that your kid will shoot up several sizes in those few months.
  • When the PE teacher asks for the parent to also take part in home games lessons, you have only one sensible response. Absolutely, it will be fun to show off to your child that you are still a sporting Super Being. There is no conceivable risk that you will pull every single muscle in your body and that you will be completely humiliated by your beloved offspring.
  • The Xbox is a perfectly acceptable online educational tool.
  • When you hear the words SCIENCE LESSON and MOLECULAR STRUCTURES in the same sentence then immediately pretend to be on a works call for the next two hours. The same principle also applies to the words MATHEMATICS and CALCULUS.
  • On a similar theme the words RELATIONSHIP And SEX EDUCATION should immediately bring the response – “go and speak to the other parent”. If that is not practical then it is perfectly acceptable to run outside and spend the next hour cutting the grass in the pouring rain.
  • Letting your child watch wrestling videos during a Citizenship Lesson is perfectly in line with governments curriculum.
  • It is perfectly acceptable to attach a profanity to any reference to DRAMA lessons.
  • A can of Pepsi, bag of crisps and a chocolate bar represents a balanced school lunch.
  • When homeschooling first starts you have this real commitment to fully focus on your child’s education. To sit with them. To be that one on one teacher. That feeling lasts for at most a couple of hours. You start to waiver with frequent trips to the kitchen for a hot drink and a biscuit. Next you sit next your child but secretly try to look at your emails and news feeds. It finally breaks down as your openly start playing Crossy Roads.
  • You don’t need to worry about charging the school iPad up. Your diligent child will always do that…..
  • It doesn’t make you a bad parent when you tell your child to ignore the instructions of the French Teacher and to use the Google Translation App.
  • Never get drawn into debates on History. You have zero chance of winning those – you haven’t read a history text in decades and watching the Ozzy Osbournes history tv show does not count as an Academic Qualification. Best approach is to just smile and nod.
  • For absolutely any Geography question your only responses should be – ‘The Himalayas’, ‘The Nile’, ‘Coastal Erosion’ or ‘Go and watch the Discovery Channel’.
  • When you restock on pens from Amazon never buy the cheap multipacks. You will never use the Red and Green ones.
  • For Food Technology it is perfectly acceptable to let your child watch any Gordon Ramsey Show.
  • Try to avoid saying things like ‘In my day’, ‘That’s not what I was taught’, ‘The Dinosaurs were not extinct yet when I was in school’. These all may give the false appearance that you are in fact an old fossil.
  • When your child has to do an art project never say ‘what is it supposed to be’ when you see the completed work for the first time. That’s not cool parenting at all. Much better to say ‘that’s nice’ or ‘that’s better than an Andy Warhol masterpiece’.
  • You might think you are an expert in computing. This might be backed up with academic qualifications. But never ever get involved in anything to do with technology. Trust me, let your child deal with the computer stuff. In fact let your child sort out your mobile at the same time.

There you go. Don’t follow any of my tips and you might make homeschooling work for you. Even better go and read a post like Robyn’s, she knows what she’s talking about….

Remember homeschooling can be FUN.

Posted on by bereavedandbeingasingleparent · 66 Comments

Reality

Late last night I was watching the news channel and a government expert was being interviewed about people struggling to leave the house since lockdown was eased. We will ignore the fact that the easing has been halted and areas are starting to fall back under emergency regulations. The experts take was that it was perfectly safe for everyone to go about their normal business. People should get out, go to the park or better to a restaurant. Those struggling should be brave and get out. Those still struggling to get out should arrange to see a health professional. This Government had put in support to facilitate this.

Ok…..

We’ve been lucky. We might get to see a nurse this month but we’ve had to fight tooth and nail for that. Because of cutbacks son has not been seen by a Paediatrician in well over 2 years now… 6 of his 7 support services have been removed. But again we are lucky. Far too many don’t get any support at all.

It’s 3am and I heard our son call. He had gone to the bathroom and because he had gone barefoot he desperately needed to wash his feet. So just before the morning bird chorus started I was running the bath so he could ease his anxieties. He is currently not able to touch taps. Towels can only be used once before they are washed. His bedding has to be washed daily. He has to wash his hands every few minutes. He can’t even touch is own shoes and clothes with his hands. Tell me how he is supposed to be brave and just get outside. The government just has not got the slightest idea of the problems facing so many in our communities. The health professionals just don’t have the resources to cope. It’s taken a pandemic to expose the true folly of focusing cutbacks on mental health and support services. When will our leaders wake up to the reality of life for so many households in our countries.

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Snappy

Lockdown did have some advantages. One being – No Aeroplanes. Something about seeing a sky without any evidence of man made birds which are polluting the atmosphere. Now the number of vapour trails are slowly rising but clearly not back to the crowded skies of pre pandemic times. Which is still a bit of a win for the planet. Got to be pleased about that.

I did something that I’m not pleased about. Not at all. I snapped at Hawklad. Not a massive snap, but still a snap. Some post arrived and I quickly put the offending letters into the designated quarantine area. I quickly washed my hands then headed out to cut the grass.

“Dad have you washed your hands.”

“Which towel did you use.”

“Which soap did you use.”

Then…

“I don’t think you washed your hands for long enough. Can you wash them again.”

Maybe I was tired. Maybe it’s because I had gone 16 hours without food. Maybe I just wanted to get the grass cut before it rained. Maybe I was annoyed at myself for not washing my hands for long enough in the first place. Maybe it’s being seemingly stuck in Groundhog Day. For whatever reason, I snapped. Slammed the front door shut, did that teenage sigh, let out a little mild expletive, stomped to the bathroom and purposely washed in the noisiest fashion possible. Not massive stuff but unusual for me. We’ve all been there. Even Super Hero Parents are human…….

I quickly apologised and went outside to cool down. Easily done in today’s Yorkshire weather. All I could think about was school. What happens if he does decide to go back on the 11th September. His hyper hygiene mode will meet a school system which is basically winging it. Maybe they could make Hawklad into the Hygiene Monitor. Wow he would sort out the teachers and pupils. Definitely the iron fist of authority. But in all seriousness, the teachers and other kids will just not have the time or inclination to get anywhere near the hygiene levels that he’s got used to at home. The levels he needs for his own well-being. I can see some of the less patient teachers issuing so many negatives to him. But that was me just a few moments ago.

So more food for thought. As is the fact that in the broken cloudy skies, I can see three vapour trails. That’s the most in months…..

Posted on by bereavedandbeingasingleparent · 62 Comments

With one hand

August 2018

It’s been too long since I stood by the sea. Far too long. For someone born in a small north eastern seaside town, that’s tough. Genuinely don’t know when it will happen again. My gut feel is not in 2020. Our Government of Fools has now start reversing it’s rushed reopening plans. Yesterday it was perfectly safe to visit cinemas without a mask. Today you MUST wear a mask for your favourite movie. Yet kids and teachers are still expected to go mask free in classrooms. Last Friday we were being told to support the holiday industry and travel as it was safe. Just days later that all changed and more countries are being urgently added to the quarantine list with thousands of tourists now already out there. Even though those countries have much lower rates of deaths and infections than the UK.

Tougher lockdown regimes are being reintroduced into some areas with significantly rising infection rates . One such area is uncomfortable close to us. That is doing nothing for Hawklads anxiety levels. And now his garden consultation with his new health worker is in doubt. Such visits are now under review again. Somedays it feels like it’s one step forward and then one back. That’s at a time when his obsessive hand washing and fear of touching surfaces continues to mount.

But there is always hope and is it really one step forward, one step back…

When I first started climbing I hated having to retrace steps. One step forward, one step back seemed such a waste. A failure. Something to be avoided at all costs. But over time I learnt wiser ways. Things like climbing in things like pink compression tops and tight blue leggings is really not cool at all. Things like collecting rain water from rocky pools to drink might be a life saver but it doesn’t taste as nice as a can of coke stuffed into my climbing pack. Things like it’s not a great team building idea to lead a pitch when you have spilt asunder your tight blue leggings. I also learned that retracing steps is often a good thing. The times a few moments of retreat and sideways steps actually leads to a much easier and safe climbing way forward.

So yes things are tough and that garden visit would be useful but…..

The word BUT sounds to negative, maybe however is better.

However we do at least have access to the service still. That’s a huge bonus. The garden visit would bring stress currently, so if it doesn’t happen then it’s one less thing for Hawklad to worry about. It also encourages us both to try new things, see if we can find our own way through this maze. There will be things we haven’t tried. Maybe potential help has been there all the time and we just haven’t looked hard enough for it. Too much relying on someone else to find it for us. Maybe the only solution for Hawklad is to bunker down for a few more months until those clever vaccine people find something that works. So maybe retracing some steps is the best way forward.

There is always hope and yes I still have a pair of tight blue leggings…..

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Heatwave is here – kinda

Blue skies are coming

I have given the weather a hard time recently. A few too many rainy shots through the window. So let’s correct the balance. This is today through the window.

Summer

Blue skies, very warm but with a Yorkshire twist. Blowing a gale. The perfect weather for standing on flimsy plastic chairs looking like a star from Texas Chainsaw Massacre. Only joking, I suspect my bruised rump would seriously object.

We’ve been doing a little routine which does help Hawklad put things into perspective. It’s so easy for him to get overwhelmed with the negative. I wonder who else that could apply to….. Basically it involves an empty sweet jar and some brightly coloured sweets. Here Skittles or Smarties work well.

Notice I went for the old Rowntree’s version, rather than Nestle. One day will tell you why. Anyway the secret is to pick a colour which is to represent good things and a colour to represent bad things. Then every time something happens Hawklad decides if it is good or bad. He then picks the appropriate colour sweet. The sweet then goes into the jar. Over time it’s an easy way to see what happens more, good or bad stuff. Thankfully for Hawklad it is usually a jar filled largely with good things. That would be mainly a blue colour then – assuming we can get blue sweets. Depending on who you listen to, blue colouring is either dangerous or difficult to source naturally. This little technique has helped Hawklad. Basically it shows him that yes bad stuff happens but actually more good stuff is out there. You also get to eat the sweets after the experiment has finished.

It’s strange that for such a clever little technique that works, I have never tried it on me. Someone who does have to fight negative thoughts. Someone who can see the world in a dark light. So here goes. This weekend this little muppet with his big bruised posterior is going to try this. Let’s see what happens and what it tells me about life.

Take care.

Posted on by bereavedandbeingasingleparent · 86 Comments

Hard life

It’s a hard life for some. Not sure if the hard life applies to The Cap or to that old sofa. The Cap is resting after a hard morning of causing chaos. This sofa is 17 years old. Over the last few years it has had to endure sustained cat and dog attention. Currently it’s covers are being washed for the millionth time.

It’s a hard life for my bottom as well. This morning I was blasting out a few miles on my equally old exercise bike when it basically fell to bits. It collapsed. One minute I was dreaming of summiting the Alpe d’Huez and leading the Tour de France. Three seconds later I’m sat on the floor surrounded by bits of exercise bike. Oh how the mighty fall. Now I know what it feels like to fall of your bike and forlornly watch the peloton scream past you.

Thankfully ten minutes later the bike was reassembled and the snapped retaining bolt replaced. The rest of the stationary ride was completed while I sat on an ice pack and a soft cushion. Bruised buttocks are not fun. But on the bright side, it’s much easier to ice pack your posterior than it is to ice pack your ego.

Bizarrely we were watching the Dora The Explorer movie last night. Yorkshire really knows how to live the dream. Near the start of the movie, poor Dora was dancing at a school ball. It was such a random odd dance that all the other kids were laughing and poking fun at her. Poor Dora, I really felt for her.

“Dad she dances like you.”

Really, I’m not that bad am I….

“In fact worse, much worse. At least Dora is coordinated. Your dancing is that bad, that if I’m within 50 miles of you, you are banned from any dance floor.”

The shame. How the mighty have fallen. I’m telling you that I once won a New Years Eve Blues Brothers dance competition.

“That was thankfully before I was born Dad….”

It’s a hard life……

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Flying

Wouldn’t it be great to fly. To just fly. No need for a baggage check in, security and long waits in the Terminal. Just to fly under your own steam, when and wherever. Given the size of my bum during these lockdown days, that would have to me some mighty wingspan to get me airborne. Buttocks like mine are the reason that they invented super sized planes like the 747 with those massive engines.

“Dad have you lost that weight you said you were going to before the summer…”

Yes I did set a goal of shedding some weight.

“You actually said it would be 14lbs which is 6.3kg’s. So how are you doing?”

I am probably about 6.3kg’s short of the goal currently…..

“So what’s gone wrong?”

I’m exercising really hard but I’m just not getting any long runs. Without the runs it’s a real struggle to get my heart rate above 100 during the exercise. But the main problem is the food. I’m having to eat Soya and some Gluten products. These just make me blow up as if I’m pregnant.

“Are you sure your not pregnant?”

Pretty sure, although we have some of your old baby clothes somewhere – just in case. Those food types just make my abdomen and face puff up. It takes ages for my system to try and process them. When the shop gets a better range of things back in, then things will improve.

“Arnold Schwarzenegger became pregnant in that movie. Look how much money he has now. Just saying……Instead of soya and gluten stuff, Dad, why don’t you just eat salads and soups…”

*******

Yes we could all do with some more money but call me a coward, not that way please…. But Hawklad does have a good point. I’ve just switched to the soya and gluten alternatives without really thinking. Salads would be far better for me. I’ve become lazy, stopped making things like soups and stews. So from today my body becomes a temple. A well cared for one. Now I don’t have an excuse, that weight has to come off now. Either that or it’s a remake of the movie Junior….

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Needs trimming

That hedge needs trimming……

Hawklad likes to think that this bush has become so large and overgrown, that if it was one day cut then it might destabilise the earths orbit. Better not touch it then. That’s what I call a quality excuse to avoid hard work. A few minutes later it was absolutely chucking it down. At least we got a few minutes sun.

Well that dreaded day has arrived. Been trying to put it off. Yes Hawklad is now taller than me. Certainly if you include the hair…. Even discounting hair then he is now above me. Waiting till he was 15 or 16 would have been nice. But only just gone 13 – really….

I was happy at 5ft10.5 (179cm). I was just above average height. Yes a few more inches might have given my goalkeeping career a boost, but I was cool with my height. I was the tallest in our family. But deep down I knew my title would be lost. Especially when Hawklad was 9 and the Doctor told him that he was above the 97th percentile for height at his age. 97th is always going to tower over something like the 51st.

Now to work on his weight. He is tall but very slim. He struggles to maintain his weight. He’s underweight for his age and height. That’s a label that I have never, ever had. In the words of his Doctor – if he wants to eat chocolate then let him, no need for calorie counting, just eat…. It maybe that he is always moving, brain always in overdrive. It’s something I have to keep an eye on. Evidence is rising on the link between Autism and eating disorders. He is conscious of his weight but thinks he is overweight. He does love eating salads and vegetables. I need to find ways to get more calories in him in a sustainable way.

At the moment we are probably just about maintaining a balanced approach, but only just. I don’t want to make light of this. Many families and adults are so struggling with eating disorders, which too often end tragically. Much more needs to be understood and done. We will treat this so seriously and will continue to look at options. In our case the best approach often involves humour, so…. So maybe a better baker than me is required in our house. That’s something Hawklad would sign up to.

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Life snapshot

The Aspergers life can be racked with anxieties and obsessive behaviours. Additionally Aspergers can frequently coexist with OCD. Add the death of a mum and both grannies. Then on top of that you add a pandemic. Something has to give with that kind of pressure building up. That’s what our son is dealing with and it is so very tough for him. What does that mean in practice. Well here is a snapshot of life and the impact it has on him.

Every ache, every sneeze, every spot, every pain is seen as a potential sign of a serious disease or the C word. Anxieties bring on indigestion and constipation. These are then seen by him as more potential warnings of serious, life threatening health conditions. The natural response was to frequently wash his hands. It was both to cleanse his hands but also an attempt to pour water on the raging anxiety wildfire. Washing to the point of red raw skin. These issues have existed for years but slowly during 2019 slow progress started to happen. The hand washing was just about brought under control. Then the pandemic hit. The progress was instantly lost. Suddenly the months of reassuring talk a out avoiding serious illnesses, the bodies capacity to fight back and the advances in medical science are basically blown out of the water. The problems started to mount up again and escalate to new heights.

  • Hand washing every few minutes. From 15 second washing now to washing for minutes at a time.
  • A reluctance to dry washed hands as towels might be a source of germs.
  • Harmful germs are seen to exist everywhere. Suddenly it’s difficult for him to touch taps, toilet handles and door knobs. Sheets of paper have to be left next to these so he can avoid touching them directly. Even pulling on a shirt may result in the potentially unclean sleeves coming into contact with his hands. Shoes have to be put on without using his hands.
  • iPads and joysticks have to be washed frequently and definitely before he touches them. It’s the same for things like pens.
  • When he strokes his pets he will immediately run to wash his hands.
  • He needs to see evidence that I wash my hands before I touch any of his items.
  • Clothes have to be frequently washed often multiple times a day.
  • Outside he is constantly looking out for flies and flying bugs. If they come too close then he will need to go inside to wash.
  • He has to have his own seat and no one is allowed to touch it. If they do then the seat has to be cleaned.
  • When he goes out the the front door then he consciously tries to avoid walking over any areas that the postman or others might have walked across. When he comes back in them his shoes will need to be completely cleaned. If he ventures through the front gate and into the outside world then on his return he will completely strip, shower and change to new clothes. Those rules apply to me as well.
  • Mouth-washing and gargling is frequently repeated during the day.
  • Any item which hits the ground (inside or out) will need to be deep cleaned.
  • Any new food items have to go into the garage and complete a quarantine period if at least three days.

This is daily life in our little home. I do my best to reassure, reason and modify behaviours. But it feels nothing more than trying to plug a leaking dam at present. One hole maybe plugged but in the meantime another two new holes have appeared. Counselling was there but government cutbacks have taken their toll on services. The pandemic has temporarily suspended specialist help. The result is massive backlogs and no access to help. These are tough times. For him and yes me as well. As a parent you feel helpless, definitely so underprepared for these challenges. But we keep going. We pick ourselves up and go again. Yes we will get there. We will. But it will take time. Realistically maybe well into 2021. In practice timescales don’t matter, we take each day as it comes, fortified by the love of friends.